Guest guest Posted December 22, 2005 Report Share Posted December 22, 2005 Not Andy here, but what did his hair test show? High lead or meet counting rules for mercury toxicity? S S From: NADIA FIORE [mailto: nadiafiore@...] Date: Thu, 22 Dec 2005 10:19:56 -0500 (EST) Subject: [ ] DMSA dosing <html><body> <tt> Hi Dr. Cutler,<BR> <BR> I am currently seeing a DAN doctor and have my 4 year old who wieghs<BR> 35lbs on TD-DMSA. His current dosage is .16ml 300mg/ml every 8 hours 3<BR> days on 11 days off.<BR> <BR> This dosage seems very low and I haven't really seen any improvements<BR> after 3 rounds. Does this dosage sound right to you and if ASD<BR> children are responders, how long after beginning the protocol should<BR> we expect to see gains. Do gains sometimes occur after a many rounds<BR> or should it be immediate?<BR> <BR> I, along with all parents, appreciate all your doing to help our kids. <BR> Without this kind of hope all we would have left is despair.<BR> <BR> Nadia<BR> <BR> <BR> <BR> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2005 Report Share Posted December 22, 2005 Equating oral dosing and transdermal dosing is not valid, I assume. In the following I am talking about oral doses and you are talking about transdermal doses. You are giving 48 mgs/8 hours according to your post. Andy's protocol is found here: http://home.earthlink.net/~moriam/Andy_dose_sched.html Andy's maximum oral dose of DMSA would be 17 mgs/4 hours for a 35 lb. child. According to Andy, if you are giving a dose every 8 hours, you are NOT following Andy's protocol. According to Andy, you must dose DMSA every 4 hours. The dosage amount is not as important as the dose frequency. The dosage you are giving is HIGH on Andy's protocal. On Andy's protocol the correct oral dose would be from 4 to 17 mgs/ 4 hours. \ --- Shepard Salzer <_Shepard@...> wrote: > > > Not Andy here, but what did his hair test show? > High lead or meet counting rules for mercury > toxicity? > S S > > > > > From: NADIA FIORE [mailto: nadiafiore@...] > > Date: Thu, 22 Dec 2005 10:19:56 -0500 (EST) > Subject: [ ] DMSA dosing > > <html><body> > > > <tt> > Hi Dr. Cutler,<BR> > <BR> > I am currently seeing a DAN doctor and have my 4 > year old who wieghs<BR> > 35lbs on TD-DMSA. His current dosage is .16ml > 300mg/ml every 8 hours 3<BR> > days on 11 days off.<BR> > <BR> > This dosage seems very low and I haven't really seen > any improvements<BR> > after 3 rounds. Does this dosage sound right to you > and if ASD<BR> > children are responders, how long after beginning > the protocol should<BR> > we expect to see gains. Do gains sometimes occur > after a many rounds<BR> > or should it be immediate?<BR> > <BR> > I, along with all parents, appreciate all your doing > to help our kids. <BR> > Without this kind of hope all we would have left is > despair.<BR> > <BR> > Nadia<BR> > <BR> > <BR> > <BR> > [Non-text portions of this message have been > removed]<BR> > <BR> > </tt> > > > <!-- |**|begin egp html banner|**| --> > > <br><br> > <tt> > =======================================================<BR> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 > > Hi Dr. Cutler, > > I am currently seeing a DAN doctor Which is no guarantee of competence. > and have my 4 year old who wieghs > 35lbs on TD-DMSA. Any good reason or is this a fad? 99% of kids are fine with oral. > His current dosage is .16ml 300mg/ml OK > every 8 hours Not OK. > 3 days on 11 days off. OK. > > This dosage seems very low and I haven't really seen any improvements > after 3 rounds. Does this dosage sound right to you and if ASD > children are responders, how long after beginning the protocol should > we expect to see gains. You can only expect gains if you do it right. say 5-10 mg of DMSA by MOUTH every FOUR hours for 3 days on 11 off. You should see a response within 5 cycles (10 weeks). Get a hair test too, it isn't very expensive and can be quite informative. > Do gains sometimes occur after a many rounds > or should it be immediate? The most common thing WITH PROPER CHELATION is within a round or 2, but there are delayed responses. With improper protocols, all bets are off. > I, along with all parents, appreciate all your doing to help our kids. Thank you. > Without this kind of hope all we would have left is despair. Don't despair, because if you give up your child's hope is lost. If you keep muddling through despite doubts, false starts and mistakes (e. g. going to a DAN! doctor who uses an inappropriate protocol instead of the correct one) your child has hope of getting better. > Nadia Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 I've chelated my 2 boys, now 7 & 10, off & on for maybe 5 yrs., more off than on. I've followed proper protocol (low dosing, every 3 - 4 hrs.) 3 days on, 11 off (at least). Both have always been quite high-functioning Asperger's. While I have seen very minor improvements over the years, I've never had that " Eureka " moment with either. I'm ready to investigate other avenues. What direction should I look? The main thing I'd like to address is the low muscle tone, poor motor skills, uncoordination, poor motor planning, in my oldest son. He's also very disorganized. You should see a response within 5 cycles (10 weeks). > Do gains sometimes occur after a many rounds > or should it be immediate? The most common thing WITH PROPER CHELATION is within a round or 2, but there are delayed responses. With improper protocols, all bets are off. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 What did their hair tests show? Did you use DMSA, ALA, or both? What other interventions? Diet? Supplements? Probiotics? Antivirals? etc? S S <tt> I've chelated my 2 boys, now 7 & 10, off & on for maybe 5 yrs., more off<BR> than on. I've followed proper protocol (low dosing, every 3 - 4 hrs.)<BR> 3 days on, 11 off (at least).<BR> Both have always been quite high-functioning Asperger's. While I have<BR> seen very minor improvements over the years, I've never had that<BR> " Eureka " moment with either.<BR> I'm ready to investigate other avenues. What direction should I look?<BR> The main thing I'd like to address is the low muscle tone, poor motor<BR> skills, uncoordination, poor motor planning, in my oldest son. He's<BR> also very disorganized.<BR> <BR> <BR> <BR> <BR> You should see a response within 5 cycles (10 weeks).<BR> <BR> > Do gains sometimes occur after a many rounds<BR> > or should it be immediate?<BR> <BR> The most common thing WITH PROPER CHELATION is within a round or 2,<BR> but there are delayed responses.<BR> <BR> With improper protocols, all bets are off.<BR> <BR> <BR> <BR> <BR> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 Have they had PT, OT, or sensory integration? What physical activities do they participate in? Are there games they enjoy that might increase motor skills, etc? Does your oldest have mixed dominance (hand, foot, eye preference)? S S The main thing I'd like to address is the low muscle tone, poor motor<BR><br>skills, uncoordination, poor motor planning, in my oldest son. He's<BR><br>also very disorganized.<BR><br> <BR> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 > The main thing I'd like to address is the low muscle tone, poor motor > skills, uncoordination, poor motor planning, in my oldest son. He's > also very disorganized. Have you considered antiviral treatment? The other suggestion I'd make for the muscle tone and motor skills is creatine and fish oil. My Apserger's son made a real breakthrough with soccer after going back on EFAs (Nordic Naturals ProEFA) after not being able to tolerate them for a long time. Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 We've stuck w/ DMSA & ALA, oral, in different combinations or individually. We are taking TMG/mB12/folinic acid orally, too. Am curious if the injections would be any different than oral. Re: [ ] Re: DMSA dosing Have you stayed with one chelator? We've switched chelators recently and seen some nice things. Also, the B12 shots have made a difference for us. Barb RE: [ ] Re: DMSA dosing > I've chelated my 2 boys, now 7 & 10, off & on for maybe 5 yrs., more off > than on. I've followed proper protocol (low dosing, every 3 - 4 hrs.) > 3 days on, 11 off (at least). > Both have always been quite high-functioning Asperger's. While I have > seen very minor improvements over the years, I've never had that > " Eureka " moment with either. > I'm ready to investigate other avenues. What direction should I look? > The main thing I'd like to address is the low muscle tone, poor motor > skills, uncoordination, poor motor planning, in my oldest son. He's > also very disorganized. > > > > > You should see a response within 5 cycles (10 weeks). > >> Do gains sometimes occur after a many rounds >> or should it be immediate? > > The most common thing WITH PROPER CHELATION is within a round or 2, > but there are delayed responses. > > With improper protocols, all bets are off. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Antiviral is 1 of my next options. They already take creatine (2 - 5 g daily) & Nordic Naturals or Coromega. Interestingly, something recently caused a breast bud in BOTH boys (7 & 10). I suspect the creatine. This happen to anyone else? [ ] Re: DMSA dosing > The main thing I'd like to address is the low muscle tone, poor motor > skills, uncoordination, poor motor planning, in my oldest son. He's > also very disorganized. Have you considered antiviral treatment? The other suggestion I'd make for the muscle tone and motor skills is creatine and fish oil. My Apserger's son made a real breakthrough with soccer after going back on EFAs (Nordic Naturals ProEFA) after not being able to tolerate them for a long time. Nell ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 > > Antiviral is 1 of my next options. Virastop did amazing stuff for my son. Dana has had great results with OLE. > Interestingly, something recently caused a breast bud in BOTH boys (7 & > 10). I suspect the creatine. This happen to anyone else? Yikes! Not yet! How long have they been taking it? Anything else added recently? Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 > > Antiviral is 1 of my next options. Virastop did amazing stuff for my son. Dana has had great results with OLE. Where do you get Virastop? > Interestingly, something recently caused a breast bud in BOTH boys (7 & > 10). I suspect the creatine. This happen to anyone else? Yikes! Not yet! How long have they been taking it? Anything else added recently? Since September. Oh gosh, we add/change stuff frequently. ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 > > > The main thing I'd like to address is the low muscle tone, poor motor > > skills, uncoordination, poor motor planning, in my oldest son. He's > > also very disorganized. > > Have you considered antiviral treatment? The other suggestion I'd make > for the muscle tone and motor skills is creatine and fish oil. My > Apserger's son made a real breakthrough with soccer after going back > on EFAs (Nordic Naturals ProEFA) after not being able to tolerate them > for a long time. > > Nell > > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 > Where do you get Virastop? http://store./iherb/purify.html You can read more about VS/viruses at http://www.enzymestuff.com/conditionviruses.htm Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 > The main thing I'd like to address is the low muscle tone, poor motor > skills, uncoordination, poor motor planning, in my oldest son. He's > also very disorganized. I would try amino acids and yeast control for the motor issues, and anti-virals for the disorganized issue. Dana Quote Link to comment Share on other sites More sharing options...
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