Re: Please help - Behavior out of control when OFF DMSA

[Guest guest]

In a message dated 19/04/2006 01:54:19 GMT Daylight Time,

shelleyn@... writes:

Not sure what to do. Son finished 3rd round of DMSA yesterday

morning. Behavior has been really out of control since (explosive,

emotionally labile, etc.). He seems so much more controlled when he

is taking the DMSA. Is this normal? He is taking Probio Gold and

Sacc. boulardii. Would it be yeast or mercury moving around in the

system?

>>>Are you dosing 4 hourly? Yeast/bacteria can do that. Maybe he would do

better with longer rounds? Regardless of your protocol there is some

redistribution at the end of a round. I don't rate Probio gold, w use

CustomProbiotics.com CP1 with good effect. Adding Candex type enzyme to night

doses is helful

in fighting the yeast.

He may be being helped by the sulphur thats is DMSA andmisses it after the

round has ended

Mandi in UK

_Treating Autism - Fundraising |_ (http://www.freewebs.com/tafundraising/)

[Guest guest]

This is interesting, I just spent most of the day trying to figure out if the

improvement we saw when recently adding dmsa was increased sulfur or metal

excretion.

I found a post from Andy that said " dmsa lowers thiols, ala raises thiols " We

had 10 previous rounds with Ala with nothing, no side effects, no improvements.

So, improvement with dmsa is not due to increased sulfur/thiols?

He may be being helped by the sulphur thats is DMSA andmisses it after the

round has ended

Mandi in UK

_Treating Autism - Fundraising |_ (http://www.freewebs.com/tafundraising/)

[Guest guest]

The dose of DMSA is too high.

If you are dosing every 8 h, then need to switch to every 4 h.

J

>

> Not sure what to do. Son finished 3rd round of DMSA yesterday

> morning. Behavior has been really out of control since (explosive,

> emotionally labile, etc.). He seems so much more controlled when he

> is taking the DMSA. Is this normal? He is taking Probio Gold and

> Sacc. boulardii. Would it be yeast or mercury moving around in the

> system?

>

[Guest guest]

I've experienced this myself. I am fine while I take the chelators

and have side effects when I stop. I think that the improvements

while taking the chelators have to do with the chelator binding

metals. I think that this has been demonstrated to be true because as

I continue to chelate the side effects are less at the end of rounds

at doses that I previously could not tolerate. This tells me that

metals have moved out.

J

>

> This is interesting, I just spent most of the day trying to figure

out if the improvement we saw when recently adding dmsa was increased

sulfur or metal excretion.

>

> I found a post from Andy that said " dmsa lowers thiols, ala raises

thiols " We had 10 previous rounds with Ala with nothing, no side

effects, no improvements.

>

> So, improvement with dmsa is not due to increased sulfur/thiols?

>

>

> He may be being helped by the sulphur thats is DMSA andmisses it

after the

> round has ended

>

> Mandi in UK

> _Treating Autism - Fundraising |_

(http://www.freewebs.com/tafundraising/)

[Guest guest]

What dose and dosing schedule of DMSA are you using. What you're seeing may be

from redistribution if you using too high or too frequent a dose.

S S

<tt>

Not sure what to do.  Son finished 3rd round of DMSA yesterday <BR>

morning.  Behavior has been really out of control since (explosive, <BR>

emotionally labile, etc.).  He seems so much more controlled when he <BR>

is taking the DMSA.  Is this normal?  He is taking Probio Gold and <BR>

Sacc. boulardii.  Would it be yeast or mercury moving around in the <BR>

system?  <BR>

_______________________________________________

Join Excite! - http://www.excite.com

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[Guest guest]

Son is approx. 111 lbs. We are using 25 mg DMSA every 4 hours on a 3

days on, 4 days off schedule.

[Guest guest]

I remember Andy saying that if the side effects from chelation are too

great then lower the dose. 25 mg DMSA was too much for me. I am much

larger than your son. 18 mg gave manageable side effects for me.

12.5 mg gave no side effects. Everyone is different in the quantity

of chelator they can take at the start of chelation.

J

>

> Son is approx. 111 lbs. We are using 25 mg DMSA every 4 hours on a 3

> days on, 4 days off schedule.

>

[Guest guest]

>

> This is interesting, I just spent most of the day trying to figure

out if the improvement we saw when recently adding dmsa was increased

sulfur or metal excretion.

>

> I found a post from Andy that said " dmsa lowers thiols, ala raises

thiols " We had 10 previous rounds with Ala with nothing, no side

effects, no improvements.

>

> So, improvement with dmsa is not due to increased sulfur/thiols?

Maybe your child's improvements come from DMSA also addressing other

metals, some that ALA don't address. Although after just one round it

is not very likely..

The way I understand this " thiols " thing, and I could be completely

wrong, is that DMSA is high sulfur like ALA, but to be excreted it

needs thiols, which ALA does not need. So you end up lowering the

thiols.

Did you do DMSA and ALA, or just DMSA? In my family, chelating with ALA

only produces more side effects than chelating with DMSA and ALA.

[Guest guest]

We have used only DMSA so far.

[Guest guest]

Would the behavior be considered a side effect if it occurs when he is

off round? This is all so new to me, I'm having a little trouble

putting it altogether.

[Guest guest]

>

> Would the behavior be considered a side effect if it occurs when he >is

> off round?

Yes. I am chelating myself. I am fine while taking the chelators. I

get side effects when I stop.

J

> This is all so new to me, I'm having a little trouble

> putting it altogether.

>