Re: Dr.Neubrander's B12 protocol & chelation

April 16, 2006

-

I've come to believe my son is an undermethylator too! Do you use TMG? Can

you share more of your protocol for this problem?

Thanks so much!

Colleen V.

April 16, 2006

Harumi,

I'm no expert, but I wanted to respond to some of your questions b/c

my son sounds a lot like yours.

My son got very hyper on all of the b-vitamins (b6, folenic, p5p,

MB12) and DMG. After doing some research and corresponding with other

parents on lists like these, it seemed clear that my son was an

" undermethylator. " Take a look at the information on

www.danasview.net/phenol.htm. The site explains the relationship

between phenols and methylation and the b-vitamins. Also, read the

files in the " asd_solutions " group. There's some great

information there. ALso, the " enzymes and autism " group has

some helpful information. Go to files, then " related topics and

supplements " and click on methylation.

We recently changed DAN! docs b/c our first DAN! doc was not

addressing my concerns about hyperactivity on B-vitamins. She put him

on high-dose MB12, and he was outrageously hyper, but didn't seem to

have a plan for figuring out the underlying issues. Our new DAN! doc

(Dr. DeMio in Ohio) has come up with a plan for addressing these

issues so that we can get the methylation " spokes " working again.

HIH,

>

> Hi all,

>

> Recently when I was searching about Folinic Acid and Hyperacitivity, I

> found Dr. Neubrander's Methyl B12 protocol.

>

> My Son is 6 year and 10 months old, and weighs about 50 lbs. He is on

> his second round of Diflucan right now (it made a huge difference at

> the first round - talking more in a sentense, very aware and more

> social and less 'foggy') and after the anti-fungal we were thinking of

> starting chelation.

>

> Our DAN Doctor told me to add Folinic acid 800mg 3 days after starting

> anti-fungal treatment, then add methyl b12 shot, and then transdermal

> glutathione.

>

> I added Folinic acid and he bacame very hyper - he woke at 3am and

> started to giggle for 2 hours! He WAs a good sleeper and took me a

> while to realize that maybe Folinic acid was messiong his system.

>

> So - I read Dr. Neubrander's report about methly B12 and am very

> intersted in it. He said about 20% of kids who take folinic acid (not

> sure with B12 shot or not)has a sleeping problem! Has anyone been

> following his protocol? Our Dan doc prescribed higher dose of B12

> than Dr. Neudrander suggests in his paper - which is 1.6 mg for my

> son's weight(where as our Dan gave us 2.5mg).

>

> We had a methyl B12 shot in January (and it was 5mg I think) and my

> son got very very hyper...we did not see any significant change in his

> language nor his behaviors so we only did it once. We did a organic

> acid test in February and it suggested that my son is low in Folic

> acid/vitamin Bs that is why I think DAN suggested those supplements

> for him...

>

> Here is my questions...

> 1.Dr. Neubrander says you should not add any supplements during the

> first 5 week of methyl B12 - should we wait to start chelation too?

>

> 2. Does anyone follow Dr. Neubrander's protocol? ANy success or did

> not work for some reasons?

>

> 3. How can you be a patient of Dr. Neubrander? Can your DAN work with

> Dr.N?

>

> Thank you so much in advance,

>

> Harumi

>

April 16, 2006

> I added Folinic acid and he bacame very hyper - he woke at 3am and

> started to giggle for 2 hours! He WAs a good sleeper and took me a

> while to realize that maybe Folinic acid was messiong his system.

Some kids do better with folic, so try that.

I have used both for my kids, and both of them tremendously feed yeast

[almost as bad as mB12 feeds yeast]. And night waking and 2 hour

giggling, for my son, meant yeast overgrowth. Try increasing your

yeast protocol, see if that helps.

> We had a methyl B12 shot in January (and it was 5mg I think) and my

> son got very very hyper...

This happened to my son with oral mB12. I had to reduce the dose,

give it with folic acid, and increase the yeast protocol. Then there

were nice improvements.

Dana

April 16, 2006

Colleen,

We haven't yet started any of the new stuff the doc wants to do. (I

talked to him for the first time on Thursday of this week.) I know

that he wants to start with TMG and see how does with that

(since DMG made him hyper), and we're going to start some antivirals

soon (b/c my son is high on his titers for rubella, rubeola and HHV06).

When I get all of the paperwork and compare it to my notes from the

phone call, I'll be glad to post what we're doing.

HIH,

>

> -

> I've come to believe my son is an undermethylator too! Do you use

TMG? Can

> you share more of your protocol for this problem?

> Thanks so much!

> Colleen V.

>

April 17, 2006

My son is a patient of Dr. N -- or actually somone new who works for him --

Rigalski. Answers to your questions are below.

harumistew <ct-stewarts@...> wrote: Hi all,

Recently when I was searching about Folinic Acid and Hyperacitivity, I

found Dr. Neubrander's Methyl B12 protocol.

My Son is 6 year and 10 months old, and weighs about 50 lbs. He is on

his second round of Diflucan right now (it made a huge difference at

the first round - talking more in a sentense, very aware and more

social and less 'foggy') and after the anti-fungal we were thinking of

starting chelation.

Our DAN Doctor told me to add Folinic acid 800mg 3 days after starting

anti-fungal treatment, then add methyl b12 shot, and then transdermal

glutathione.

I added Folinic acid and he bacame very hyper - he woke at 3am and

started to giggle for 2 hours! He WAs a good sleeper and took me a

while to realize that maybe Folinic acid was messiong his system.

So - I read Dr. Neubrander's report about methly B12 and am very

intersted in it. He said about 20% of kids who take folinic acid (not

sure with B12 shot or not)has a sleeping problem! Has anyone been

following his protocol? Our Dan doc prescribed higher dose of B12

than Dr. Neudrander suggests in his paper - which is 1.6 mg for my

son's weight(where as our Dan gave us 2.5mg).

We had a methyl B12 shot in January (and it was 5mg I think) and my

son got very very hyper...we did not see any significant change in his

language nor his behaviors so we only did it once. We did a organic

acid test in February and it suggested that my son is low in Folic

acid/vitamin Bs that is why I think DAN suggested those supplements

for him...

Here is my questions...

1.Dr. Neubrander says you should not add any supplements during the

first 5 week of methyl B12 - should we wait to start chelation too?

The idea behind waiting 5-6 weeks is to see if your child is a responder to

MB12. If you add anything else to the protocal and you see a reaction (good or

bad), you may not be sure as to what caused the reaction. Therefore, I think

you are better off waiting.

2. Does anyone follow Dr. Neubrander's protocol? ANy success or did

not work for some reasons?

We have been following his protocal for about 4 months. Our son (5 years, 3

months) is a mild responder and has responded mildly. All kids are different.

3. How can you be a patient of Dr. Neubrander? Can your DAN work with

Dr.N?

I don't think Dr. Nuebrander is taking new patients for another 2 years.

However, you may get one of the new DAN Drs like Rigalski.

Dr. Nuebrander is a DAN doctor. I'm not sure why you would want him to work

with another DAN doctor.

Thank you so much in advance,

Harumi

=======================================================

April 19, 2006

Thanks for those who responded to my post. It is hard to spend time

on PC when the kids are out of school!

Anyhow- I will look into Folic Acid and Folinic acid - it is funny, as

Dana mentioned that Folinic(folic) acid feeds yeast for her son - two

days ago I found a LOT of red pimples on his bottocks which is his

classic sympton of yeast overgrowth - even though he is on 100mg of

Diflucan (and he was a good responder to Diflucan before)...we did not

change his diet so the only thing I can think of was Folic acid....it

has been 6 days since we stopped giving him Folinic acid and his yeast

is slowing going down(i hope)..

, I was thinking of becoming Dr. Neubrander's patient because our

DAN doctor's instruction is slightly different from Dr.N's. Her

recommending dose for Mthyl B12 was twice as much as Dr.N suggests in

his paper and I am very confused with which one to go. I feel like I

messed up my son's system following my DAN doctor's instruction of

giving 1600mg of folinic acid and after reading a lot of reports and

messages of B12, I am totally lost. My DAN doc told me that about 60%

is a responder to B12 shot whereas Dr. N said 90% is a responder...so

Dr.N appealed to me more:)

For now I will jsut keep his diflucan treatment to see if his yeast

sympton goes down and then decide whether we try B12 shot or not.

thanks,

Harumi

Hi all,

>

> Recently when I was searching about Folinic Acid and Hyperacitivity, I

> found Dr. Neubrander's Methyl B12 protocol.

>

> My Son is 6 year and 10 months old, and weighs about 50 lbs. He is on

> his second round of Diflucan right now (it made a huge difference at

> the first round - talking more in a sentense, very aware and more

> social and less 'foggy') and after the anti-fungal we were thinking of

> starting chelation.

>

> Our DAN Doctor told me to add Folinic acid 800mg 3 days after starting

> anti-fungal treatment, then add methyl b12 shot, and then transdermal

> glutathione.

>

> I added Folinic acid and he bacame very hyper - he woke at 3am and

> started to giggle for 2 hours! He WAs a good sleeper and took me a

> while to realize that maybe Folinic acid was messiong his system.

>

> So - I read Dr. Neubrander's report about methly B12 and am very

> intersted in it. He said about 20% of kids who take folinic acid (not

> sure with B12 shot or not)has a sleeping problem! Has anyone been

> following his protocol? Our Dan doc prescribed higher dose of B12

> than Dr. Neudrander suggests in his paper - which is 1.6 mg for my

> son's weight(where as our Dan gave us 2.5mg).

>

> We had a methyl B12 shot in January (and it was 5mg I think) and my

> son got very very hyper...we did not see any significant change in his

> language nor his behaviors so we only did it once. We did a organic

> acid test in February and it suggested that my son is low in Folic

> acid/vitamin Bs that is why I think DAN suggested those supplements

> for him...

>

> Here is my questions...

> 1.Dr. Neubrander says you should not add any supplements during the

> first 5 week of methyl B12 - should we wait to start chelation too?

> The idea behind waiting 5-6 weeks is to see if your child is a

responder to MB12. If you add anything else to the protocal and you

see a reaction (good or bad), you may not be sure as to what caused

the reaction. Therefore, I think you are better off waiting.

>

> 2. Does anyone follow Dr. Neubrander's protocol? ANy success or did

> not work for some reasons?

>

> We have been following his protocal for about 4 months. Our son

(5 years, 3 months) is a mild responder and has responded mildly. All

kids are different.

>

> 3. How can you be a patient of Dr. Neubrander? Can your DAN work with

> Dr.N?

>

> I don't think Dr. Nuebrander is taking new patients for another 2

years. However, you may get one of the new DAN Drs like Rigalski.

>

> Dr. Nuebrander is a DAN doctor. I'm not sure why you would want

him to work with another DAN doctor.

>

> Thank you so much in advance,

>

> Harumi

>

> =======================================================

>

April 22, 2006

Hi:

What different from Folinic Acid and Folic Acid that make Folinic feed yeast?

Thanks

Jeanne

harumistew <ct-stewarts@...> wrote: