Re: Trouble breathing due to the smell of TTFD?

[Guest guest]

> Today was our first day using TTFD.

Well, stop it. The stuff is poison, and the amounts used are high

enough that it really does cause problems for a lot of kids.

Try benfotiamine instead. Several times a day, by mouth.

Andy

[Guest guest]

Poison??

Then why does Dr. Jaquelyn McCandless recommend Authia?

http://www.autism-rxguidebook.net/uploads/Article%20for%20Medical%

20Veritas.pdf

In fact when I google TTFD and autism I don't get any hits regarding

poison or toxicity. Nothing but positve responses actually

>

> > Today was our first day using TTFD.

>

> Well, stop it. The stuff is poison, and the amounts used are high

> enough that it really does cause problems for a lot of kids.

>

> Try benfotiamine instead. Several times a day, by mouth.

>

> Andy

>

[Guest guest]

> >

> > > Today was our first day using TTFD.

> >

> > Well, stop it. The stuff is poison, and the amounts used are high

> > enough that it really does cause problems for a lot of kids.

> >

> > Try benfotiamine instead. Several times a day, by mouth.

> >

> > Andy

> >

>

[Guest guest]

Oh this if friggin' great! Seems what works is what " camp " we align

ourselves with; Buttar, Usman, Cutler, Candless,etc. Can't you say

these negative things about any of the chelation\ biomed stuff

parents do? I'm not saying you or anyone else is right or wrong its

just very disheartning.

> > >

> > > > Today was our first day using TTFD.

> > >

> > > Well, stop it. The stuff is poison, and the amounts used are

high

> > > enough that it really does cause problems for a lot of kids.

> > >

> > > Try benfotiamine instead. Several times a day, by mouth.

> > >

> > > Andy

> > >

> >

>

[Guest guest]

> > > >

> > > > > Today was our first day using TTFD.

> > > >

> > > > Well, stop it. The stuff is poison, and the amounts used are

> high

> > > > enough that it really does cause problems for a lot of kids.

> > > >

> > > > Try benfotiamine instead. Several times a day, by mouth.

> > > >

> > > > Andy

> > > >

> > >

> >

>

[Guest guest]

>

> Oh this if friggin' great! Seems what works is what " camp " we align

> ourselves with; Buttar, Usman, Cutler, Candless,etc.

Unfortunately we're all in the position of having been burned at least

once by doctors, and now we have to take the responsibility of

figuring out who to trust -- and that means looking at conflicts of

interest, paying close attention to negative reports, whether claims

of success are warranted, etc. It's a drag but what choice do we have?

Can't you say

> these negative things about any of the chelation\ biomed stuff

> parents do?

No, I don't think so. Not every supp or chelator is right for every

kid, but some treatments/protocols are dangerous for a large

percentage which is quite a different thing.

Nell

[Guest guest]

> > Oh this if friggin' great! Seems what works is what " camp " we align

> > ourselves with; Buttar, Usman, Cutler, Candless,etc.

Nope.

If you truly believe that you need psychiatric help yourself.

What works does so regardless of anyone's opinion.

People who make their decisions by whetting their finger, putting it

in the air and seeing which way the political wind from DAN! is

blowing have no real hope of getting their child well. To get them

well requires taking responsibility to figure stuff out - there is no

alternative.

The important questions about any intervention are:

what are the benefits,

what are the risks,

what are the risks and benefits of other interventions directed at the

same goal.

Generally benefits are grossly overstated, risks minimized, and other

means ignored.

The most valuable thing I can tell anyone is risks and an alternatvie,

such as that TTFD seems to make 20-30% of children horribly worse (and

it can be very long lasting) while benfotiamine has a very similar

action but doesn't have this risk.

This allows people who wish to engage in reasoned analysis to make

good decisions.

It would be really nice if doctors had their acts together and could

take the responsibility off your shoulders, but that is not how things

are at present and it is unlikely to get better in the forseeable future.

I am sorry to be so harsh and blunt about this, but for your child's

sake you really do have to accept it and take on the responsibility to

gather accurate information from mutually contradictory sources and

make a good decision.

Andy

[Guest guest]

Andy has said it best. One can not expect the doctor treating your

child to make the appropriate decisions for you. As the person that

has to pick up the pieces and deal with it, it is the

parent/caregivers responsibility to investigate EVERY item that goes

into the childs mouth. That also goes for all medical interventions

not only chelation. Been in medical profession nearly 20 years, and

you would be horrified if I told you a 1/4 of the errors I saw being

made. You do have to look at the politics/ego of it also, and do

what makes sense.

>

> > > Oh this if friggin' great! Seems what works is what " camp " we

align

> > > ourselves with; Buttar, Usman, Cutler, Candless,etc.

>

> Nope.

>

> If you truly believe that you need psychiatric help yourself.

>

> What works does so regardless of anyone's opinion.

>

> People who make their decisions by whetting their finger, putting

it

> in the air and seeing which way the political wind from DAN! is

> blowing have no real hope of getting their child well. To get them

> well requires taking responsibility to figure stuff out - there is

no

> alternative.

>

> The important questions about any intervention are:

>

> what are the benefits,

>

> what are the risks,

>

> what are the risks and benefits of other interventions directed at

the

> same goal.

>

> Generally benefits are grossly overstated, risks minimized, and

other

> means ignored.

>

> The most valuable thing I can tell anyone is risks and an

alternatvie,

> such as that TTFD seems to make 20-30% of children horribly worse

(and

> it can be very long lasting) while benfotiamine has a very similar

> action but doesn't have this risk.

>

> This allows people who wish to engage in reasoned analysis to make

> good decisions.

>

> It would be really nice if doctors had their acts together and

could

> take the responsibility off your shoulders, but that is not how

things

> are at present and it is unlikely to get better in the forseeable

future.

>

> I am sorry to be so harsh and blunt about this, but for your

child's

> sake you really do have to accept it and take on the

responsibility to

> gather accurate information from mutually contradictory sources and

> make a good decision.

>

> Andy

>