Urine porphyrins result-- false negative?

[Guest guest]

Okay, so we ran the porphyrin test thru Lab Corp. It all came

back negative and it even came back as low in the coproporphyrins.

(result was 5, rr 15-75) Should I assume it was mishandled, or do I

need to rethink my son's mercury status? (we will start chelation

next week) He has no mercury on hair/blood/urine, but high levels of

just about everything else on hair--aluminum, arsenic, antimony, etc,

plus his hair minerals are a holy mess. He meets and exceeds all 3

counting rules by far. He is 5.

I read Andy's posts on how the sample should be handled. They

did give us a light-proof container, but I have no idea if

preservative was added. This same lab has screwed up several other

very basic tests for us before, so I wouldn't be surprised. Also,

they did not measure his creatinine that I can see.

I was looking forward to getting a big fat positive so I could

say

SEE-- THERE'S THE MERCURY!!! For all the people who think I'm nuts

(and for myself , I must admit)

Anyone else get a negative porphyrin but still get mercury out?

Or know anything about LabCorps accuracy with this test??

thanks, Becky

[Guest guest]

Hi Becky,

Please see *** below:

> Okay, so we ran the porphyrin test thru Lab Corp. It all came

> back negative and it even came back as low in the coproporphyrins.

> (result was 5, rr 15-75) Should I assume it was mishandled

***I had a 24hour fractionated urine porphyrins test done at

LabCorp. The specimen was definitely mishandled, but one of the

porphyrins was still elevated. According to Andy, the one elevated

was not clearly diagnostic for anything in particular, but definitely

indicated there was a problem somewhere.

or do I

> need to rethink my son's mercury status? (we will start chelation

> next week) He has no mercury on hair/blood/urine, but high levels

of

> just about everything else on hair--aluminum, arsenic, antimony,

etc,

> plus his hair minerals are a holy mess. He meets and exceeds all 3

> counting rules by far. He is 5.

***The more mercury toxic a person is, the less likely you are to see

elevated mercury levels in hair, etc. (Unless you've had a recent

toxic exposure) If your child met 3 of the counting rules, then

there is a very high statistical probability he is mercury toxic.

>

> I read Andy's posts on how the sample should be handled. They

> did give us a light-proof container, but I have no idea if

> preservative was added. This same lab has screwed up several other

> very basic tests for us before, so I wouldn't be surprised. Also,

> they did not measure his creatinine that I can see.

***Andy gave me a detailed list of do(s) and don'ts for proper

handling of specimens for testing. If you contact me off list I can

provide you with the document I sent to the local lab which handled

my second specimen. (which was handled properly and came back

negative) My second specimen was sent to the Mayo Clinic. You would

need to find a local lab (a hospital outpatient lab is a good

possibility) that uses Mayo as one of their reference labs and have

your doc write the script for 24hour fractionated urine porphyrins

test at Mayo Clinic.

>

> I was looking forward to getting a big fat positive so I could

> say

> SEE-- THERE'S THE MERCURY!!! For all the people who think I'm nuts

> (and for myself , I must admit)

***Even if the porphyrin test is negative, it does not mean mercury

is not an issue.

If you would like the documents I mentioned above, contact me off

list.

Gladioli

[Guest guest]

Where can i get more details about porphyrins test? why are you doind

this test?. sorry to ask so many quastions! I will appreciate your

answers.

nur

>

> Hi Becky,

> Please see *** below:

>

> > Okay, so we ran the porphyrin test thru Lab Corp. It all came

> > back negative and it even came back as low in the coproporphyrins.

> > (result was 5, rr 15-75) Should I assume it was mishandled

>

> ***I had a 24hour fractionated urine porphyrins test done at

> LabCorp. The specimen was definitely mishandled, but one of the

> porphyrins was still elevated. According to Andy, the one elevated

> was not clearly diagnostic for anything in particular, but

definitely

> indicated there was a problem somewhere.

>

> or do I

> > need to rethink my son's mercury status? (we will start chelation

> > next week) He has no mercury on hair/blood/urine, but high

levels

> of

> > just about everything else on hair--aluminum, arsenic, antimony,

> etc,

> > plus his hair minerals are a holy mess. He meets and exceeds all

3

> > counting rules by far. He is 5.

>

> ***The more mercury toxic a person is, the less likely you are to

see

> elevated mercury levels in hair, etc. (Unless you've had a recent

> toxic exposure) If your child met 3 of the counting rules, then

> there is a very high statistical probability he is mercury toxic.

> >

> > I read Andy's posts on how the sample should be handled.

They

> > did give us a light-proof container, but I have no idea if

> > preservative was added. This same lab has screwed up several

other

> > very basic tests for us before, so I wouldn't be surprised.

Also,

> > they did not measure his creatinine that I can see.

>

> ***Andy gave me a detailed list of do(s) and don'ts for proper

> handling of specimens for testing. If you contact me off list I

can

> provide you with the document I sent to the local lab which handled

> my second specimen. (which was handled properly and came back

> negative) My second specimen was sent to the Mayo Clinic. You

would

> need to find a local lab (a hospital outpatient lab is a good

> possibility) that uses Mayo as one of their reference labs and have

> your doc write the script for 24hour fractionated urine porphyrins

> test at Mayo Clinic.

> >

> > I was looking forward to getting a big fat positive so I

could

> > say

> > SEE-- THERE'S THE MERCURY!!! For all the people who think I'm

nuts

> > (and for myself , I must admit)

>

> ***Even if the porphyrin test is negative, it does not mean mercury

> is not an issue.

> If you would like the documents I mentioned above, contact me off

> list.

> Gladioli

>

[Guest guest]

>

> Where can i get more details about porphyrins test?

***If the Andy index still exists, you can find more info. there or do

a google search on porphyrins/porphyria/porphyrin testing/etc.

why are you doind

> this test?.

***The results can help to rule out or diagnose toxicity/intoxication,

other liver diseases, and rare genetic conditions.

Gladioli

[Guest guest]

Anyone else get a negative porphyrin but still get mercury

out?

>>I know of a chap who had negative x 2 at the Paris lab, took ALA, repeated

the test and was off the page for Hg.

Mandi in Uk

[Guest guest]

>

>

> Okay, so we ran the porphyrin test thru Lab Corp. It all came

> back negative and it even came back as low in the coproporphyrins.

> (result was 5, rr 15-75) Should I assume it was mishandled, or do

I

> need to rethink my son's mercury status? (we will start chelation

> next week) He has no mercury on hair/blood/urine, but high levels

of

> just about everything else on hair--aluminum, arsenic, antimony,

etc,

> plus his hair minerals are a holy mess. He meets and exceeds all

3

> counting rules by far. He is 5.

>

> I read Andy's posts on how the sample should be handled.

They

> did give us a light-proof container, but I have no idea if

> preservative was added. This same lab has screwed up several

other

> very basic tests for us before, so I wouldn't be surprised. Also,

> they did not measure his creatinine that I can see.

>

> I was looking forward to getting a big fat positive so I could

> say

> SEE-- THERE'S THE MERCURY!!! For all the people who think I'm

nuts

> (and for myself , I must admit)

>

> Anyone else get a negative porphyrin but still get mercury

out?

> Or know anything about LabCorps accuracy with this test??

>

> thanks, Becky

See my post 177394 on this subject.

>

[Guest guest]

My son's hair test showed he was not mercury toxic. His porphyrins showed he

was toxic. Yes, I needed that " I FOUND MERCURY " feeling.

Sometimes we need to make assumptions. There is no accurate way to detect

mercury. The hair test and porphyrins are not always accurate. If a child has

ASD, then its a good assumption they are metal toxic.

Sounds like its time to chelate. When you see ASD symptoms disappear, that's

the proof you need.

Wishing your child the best.

betterthanamonkey <tayglo@...> wrote:

>

>

> Okay, so we ran the porphyrin test thru Lab Corp. It all came

> back negative and it even came back as low in the coproporphyrins.

> (result was 5, rr 15-75) Should I assume it was mishandled, or do

I

> need to rethink my son's mercury status? (we will start chelation

> next week) He has no mercury on hair/blood/urine, but high levels

of

> just about everything else on hair--aluminum, arsenic, antimony,

etc,

> plus his hair minerals are a holy mess. He meets and exceeds all

3

> counting rules by far. He is 5.

>

> I read Andy's posts on how the sample should be handled.

They

> did give us a light-proof container, but I have no idea if

> preservative was added. This same lab has screwed up several

other

> very basic tests for us before, so I wouldn't be surprised. Also,

> they did not measure his creatinine that I can see.

>

> I was looking forward to getting a big fat positive so I could

> say

> SEE-- THERE'S THE MERCURY!!! For all the people who think I'm

nuts

> (and for myself , I must admit)

>

> Anyone else get a negative porphyrin but still get mercury

out?

> Or know anything about LabCorps accuracy with this test??

>

> thanks, Becky

See my post 177394 on this subject.

>

---------------------------------

Messenger with Voice. PC-to-Phone calls for ridiculously low rates.

[Guest guest]

> >I just had one done on my son. this test is very sensitive to

light, so you are supposed to cover the container with aluminum foil

after the cup has been filled with urine to avoid any light exposure.

Light would mess up your results.

> >

> > Okay, so we ran the porphyrin test thru Lab Corp. It all came

> > back negative and it even came back as low in the coproporphyrins.

> > (result was 5, rr 15-75) Should I assume it was mishandled, or do

> I

> > need to rethink my son's mercury status? (we will start chelation

> > next week) He has no mercury on hair/blood/urine, but high levels

> of

> > just about everything else on hair--aluminum, arsenic, antimony,

> etc,

> > plus his hair minerals are a holy mess. He meets and exceeds all

> 3

> > counting rules by far. He is 5.

> >

> > I read Andy's posts on how the sample should be handled.

> They

> > did give us a light-proof container, but I have no idea if

> > preservative was added. This same lab has screwed up several

> other

> > very basic tests for us before, so I wouldn't be surprised. Also,

> > they did not measure his creatinine that I can see.

> >

> > I was looking forward to getting a big fat positive so I could

> > say

> > SEE-- THERE'S THE MERCURY!!! For all the people who think I'm

> nuts

> > (and for myself , I must admit)

> >

> > Anyone else get a negative porphyrin but still get mercury

> out?

> > Or know anything about LabCorps accuracy with this test??

> >

> > thanks, Becky

>

> See my post 177394 on this subject.

> >

>