: Re: Starting -TD-DMSA - dosing questions-

[Guest guest]

Hello ,

Not , but my comments are interspersed:

>

> Wouldn't 1mg/lb be 30 mg/dose (180mg/day)?

Andy recommends a maximum of 1/2 mg of DMSA/pound. One mg/pound per

dose is double his recommended maximum. We've seen a number of

posts here where people have gone over that and had very bad

reactions. I started my son at 1/8 mg/pound and have worked up to

1/4 mg/pound. We won't be going higher than that for a long time

(even after 60 some days of chelation) although we do go a bit

higher with the ALA--about 1/3 mg/pound.

I am a little confused

> now because the rx says 75 mg/ml but Angie at Wellness said the

> script was written for 225mg/day. She didn't know what I meant

> by " four hour schedule " at first she thought I was refering to

four

> times a day instead of three (8hr). Are you using TD? Which

> pharmacy did you use? I thought we didn't add ALA until later.

> When are you starting ALA? Are you using oral or TD? My kids

have

> such bad guts and malabsorbtion issues that I use TD whenever I

> can.

Some people choose to start ALA almost immediately. It is best not

to start the two at the same time, just in case your child is one of

the few who might have a bad reaction to one or the other chelator.

You may want to ask for advice from people who use the TD version as

to what sort of dosing they started with. No one is quite sure how

much of the TD is absorbed, so I would suggest starting with a very

low dose and working up as you see that your child is doing well

with chelation.

So when I do add ALA, I don't dose every four hours but every

> three hours? Are you doing 3/11? How do people do that when

their

> kids are in school?

You dose ALA every three hours. Some people even need to go every

2.5 hours. Most people dose over the weekends, beginning asap after

school on Friday and finishing Monday morning. Doing that, you can

get in very close to three days.

Do you know how to do a urine test when they

> aren't potty trained? Do I just get the first morning urine on

the

> last " on " day? Or does it have to be a timed thing?

You can get pediatric bags to help with catching urine. There are

also other tricks if that doesn't work. There is controversy over

when to catch the urine to get the best reading on it. Timed

catches are more accurate, but pretty difficult if your child isn't

using a toilet. Remember that these tests are not very accurate.

The best way to know if chelation is working is to observe your

child.

Sorry about

> all the questions. I just joined and haven't completely read the

> files yet. Thanks for the reply. Let me know how it goes. I

will

> be thinking of you this weekend!

>

Best wishes,

Anita

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