RE: frustrated- need advice

[Guest guest]

Hi

I'm not one of the veterans here, but if you can share the specifics

of the protocols you are using or have tried (particularly dose and

timing for TD-DMPS and TD-DMSA) and the supplements (with amounts),

I'll bet someone will have some really relevant advice for you.

Take care

René

[Guest guest]

>

> i have to say that very little has improved in a year. i am very

> frustrated and sad. we have done DAN doc- yes at 300/hr- and

chelated

> for 3 months tddmps and tddmsa alternate weekends. i am ready to

start

> over. so. starting from scratch, my dtr annie is 5 y old,

nonverbal.

> epilepsy since 19 mo old. vitiligo all over, multiple autoimmune

type

> problems. tried ketogenic diet, failed it- would not take. lyme

test

> negative. multiple food sensitivities, reactive to everything.

gfcfsf

> for 1 1/2 years. tried afp peptizide with gluten but probably need

to

> give higher doses with meals- is a grazer, gave 1 chewable with

meal-

> did hair test at great plains and will reorder to do thru ddi so

you

> all can help me interpret.

The Great Plains test actually IS a DDI test.

The one you already did should be okay -- as long as it is

a HAIR ELEMENTS test rather than a toxic elements test.

> have seen no big wows with anything, but if

> i start a therapy then stop it she regresses. postitves are yeast

> killing- nystatin plus no fenol is great, melatonin- does sleep

> better,craniosacral therapy. i do not want to do alot of lab tests

> again. is anything jumping out at you that i should recheck or try?

> i tried lauricidin but never really progressed and increased dose

much.

> i have a very super husband and terrific pediatrician as well as

DAN-

> who i would rather not pay any more money to.

> i am considering stopping the tddmsa and tddmps and doing starting

ala

> alone- what do you think?

fine as long as you use it every 3 hours (including at night).

> i have a metals test kit my DAN sent but it

> is a challenge test with dmsa suppository and i wont do that to

annie

> for possible harm per andy.

> please talk back to me as if i am a newbie- maybe i am missing

> something basic here?

since you are a newbie, I have to wonder what dosing schedule

you used for the chelation you have done so far. Many people

have found the frequent dosing schedule to make a VERY BIG

difference.

> thanks for any advice. sometimes i feel so

> alone in this journey, i am really grateful for all of you

although i

> wish you didnt have to go thru this either...teresa c

>

good wishes,

Moria

[Guest guest]

Hi ,

I know you are probably sick of hearing this , but hang in there. Three months

of chelation really isn't that long, considering 6 months to two years

depending on child/severity of toxicity is considered an average. I don't think

it

would hurt to try ALA, since it crosses the bbb and I don't think that dmps or

dmsa can (correct me if I'm wrong).

Also, if you don't mind, list what supplements she is taking along with dosages

if it's not too much trouble. How is her diet? That way we could offer

suggestions based on our individual experiences that have helped.

>

> i have to say that very little has improved in a year. i am very

> frustrated and sad. we have done DAN doc- yes at 300/hr- and chelated

> for 3 months tddmps and tddmsa alternate weekends. i am ready to start

> over. so. starting from scratch, my dtr annie is 5 y old, nonverbal.

> epilepsy since 19 mo old. vitiligo all over, multiple autoimmune type

> problems. tried ketogenic diet, failed it- would not take. lyme test

> negative. multiple food sensitivities, reactive to everything. gfcfsf

> for 1 1/2 years. tried afp peptizide with gluten but probably need to

> give higher doses with meals- is a grazer, gave 1 chewable with meal-

> did hair test at great plains and will reorder to do thru ddi so you

> all can help me interpret. have seen no big wows with anything, but if

> i start a therapy then stop it she regresses. postitves are yeast

> killing- nystatin plus no fenol is great, melatonin- does sleep

> better,craniosacral therapy. i do not want to do alot of lab tests

> again. is anything jumping out at you that i should recheck or try?

> i tried lauricidin but never really progressed and increased dose much.

> i have a very super husband and terrific pediatrician as well as DAN-

> who i would rather not pay any more money to.

> i am considering stopping the tddmsa and tddmps and doing starting ala

> alone- what do you think? i have a metals test kit my DAN sent but it

> is a challenge test with dmsa suppository and i wont do that to annie

> for possible harm per andy.

> please talk back to me as if i am a newbie- maybe i am missing

> something basic here? thanks for any advice. sometimes i feel so

> alone in this journey, i am really grateful for all of you although i

> wish you didnt have to go thru this either...teresa c

>

[Guest guest]

Try NAET.

> >

> > i have to say that very little has improved in a year. i am very

> > frustrated and sad. we have done DAN doc- yes at 300/hr- and

> chelated

> > for 3 months tddmps and tddmsa alternate weekends. i am ready to

> start

> > over. so. starting from scratch, my dtr annie is 5 y old,

nonverbal.

> > epilepsy since 19 mo old. vitiligo all over, multiple autoimmune

> type

> > problems. tried ketogenic diet, failed it- would not take. lyme

test

> > negative. multiple food sensitivities, reactive to everything.

> gfcfsf

> > for 1 1/2 years. tried afp peptizide with gluten but probably

need

> to

> > give higher doses with meals- is a grazer, gave 1 chewable with

> meal-

> > did hair test at great plains and will reorder to do thru ddi so

you

> > all can help me interpret. have seen no big wows with anything,

but

> if

> > i start a therapy then stop it she regresses. postitves are yeast

> > killing- nystatin plus no fenol is great, melatonin- does sleep

> > better,craniosacral therapy. i do not want to do alot of lab

tests

> > again. is anything jumping out at you that i should recheck or

try?

> > i tried lauricidin but never really progressed and increased

dose

> much.

> > i have a very super husband and terrific pediatrician as well as

> DAN-

> > who i would rather not pay any more money to.

> > i am considering stopping the tddmsa and tddmps and doing

starting

> ala

> > alone- what do you think? i have a metals test kit my DAN sent

but

> it

> > is a challenge test with dmsa suppository and i wont do that to

> annie

> > for possible harm per andy.

> > please talk back to me as if i am a newbie- maybe i am missing

> > something basic here? thanks for any advice. sometimes i feel so

> > alone in this journey, i am really grateful for all of you

although

> i

> > wish you didnt have to go thru this either...teresa c

> >

>

[Guest guest]

Holly,

Have you used NAET? We took our son to a DAN doctor a couple of months ago

that used the NAET method. We were a little skeptical and couldn't find anyone

else that could give us some input. Please pass on any info you have. Thanks!

Gretchen

[ ] Re: frustrated- need advice

Try NAET.

> >

> > i have to say that very little has improved in a year. i am very

> > frustrated and sad. we have done DAN doc- yes at 300/hr- and

> chelated

> > for 3 months tddmps and tddmsa alternate weekends. i am ready to

> start

> > over. so. starting from scratch, my dtr annie is 5 y old,

nonverbal.

> > epilepsy since 19 mo old. vitiligo all over, multiple autoimmune

> type

> > problems. tried ketogenic diet, failed it- would not take. lyme

test

> > negative. multiple food sensitivities, reactive to everything.

> gfcfsf

> > for 1 1/2 years. tried afp peptizide with gluten but probably

need

> to

> > give higher doses with meals- is a grazer, gave 1 chewable with

> meal-

> > did hair test at great plains and will reorder to do thru ddi so

you

> > all can help me interpret. have seen no big wows with anything,

but

> if

> > i start a therapy then stop it she regresses. postitves are yeast

> > killing- nystatin plus no fenol is great, melatonin- does sleep

> > better,craniosacral therapy. i do not want to do alot of lab

tests

> > again. is anything jumping out at you that i should recheck or

try?

> > i tried lauricidin but never really progressed and increased

dose

> much.

> > i have a very super husband and terrific pediatrician as well as

> DAN-

> > who i would rather not pay any more money to.

> > i am considering stopping the tddmsa and tddmps and doing

starting

> ala

> > alone- what do you think? i have a metals test kit my DAN sent

but

> it

> > is a challenge test with dmsa suppository and i wont do that to

> annie

> > for possible harm per andy.

> > please talk back to me as if i am a newbie- maybe i am missing

> > something basic here? thanks for any advice. sometimes i feel so

> > alone in this journey, i am really grateful for all of you

although

> i

> > wish you didnt have to go thru this either...teresa c

> >

>

=======================================================

[Guest guest]

I've used NAET for myself, both in CA and in WA. I found the practitioners I

went to very helpful.

S S

Holly,

Have you used NAET?   We took our son to a DAN doctor a couple of months ago

that used the NAET method.  We were a little skeptical and couldn't find anyone

else that could give us some input.  Please pass on any info you have.  Thanks!

Gretchen

 

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

[Guest guest]

My son did 15 or so treatments of NAET/Bioset. At the last visit, I

was told that it really wouldn't " take " on someone who had an

underlying chronic illness or infection (duh, yeast, bacteria?). Of

course, that is what my son is riddled with.

What I saw was that reactions became delayed. He would react to a

food 24hrs after he ate it, so I know it did something, just not what

I was hoping.

A friend showed me how to test whether a food or supplement would be

good for me/my son to take which works amazingly well. I use that

alot.

a

mom to

>

> Holly,

>

> Have you used NAET?   We took our son to a DAN doctor a couple of

months ago that used the NAET method.  We were a little skeptical and

couldn't find anyone else that could give us some input.  Please pass

on any info you have.  Thanks!

>

> Gretchen

>  

[Guest guest]

Are you giving probiotics? Did you do a DDI hair eo=lements test? What did it

show? I presumes she has NO mercury amalgam dental filings...

S S

i have to say that very little has improved in a year. i am very

frustrated and sad. we have done DAN doc- yes at 300/hr- and chelated

for 3 months tddmps and tddmsa alternate weekends. i am ready to start

over. so. starting from scratch, my dtr annie is 5 y old, nonverbal.

epilepsy since 19 mo old. vitiligo all over, multiple autoimmune type

problems. tried ketogenic diet, failed it- would not take. lyme test

negative. multiple food sensitivities, reactive to everything. gfcfsf

for 1 1/2 years. tried afp peptizide with gluten but probably need to

give higher doses with meals- is a grazer, gave 1 chewable with meal-

did hair test at great plains and will reorder to do thru ddi so you

all can help me interpret. have seen no big wows with anything, but if

i start a therapy then stop it she regresses. postitves are yeast

killing- nystatin plus no fenol is great, melatonin- does sleep

better,craniosacral therapy. i do not want to do alot of lab tests

again. is anything jumping out at you that i should recheck or try?

i tried lauricidin but never really progressed and increased dose much.

i have a very super husband and terrific pediatrician as well as DAN-

who i would rather not pay any more money to.

i am considering stopping the tddmsa and tddmps and doing starting ala

alone- what do you think? i have a metals test kit my DAN sent but it

is a challenge test with dmsa suppository and i wont do that to annie

for possible harm per andy.

please talk back to me as if i am a newbie- maybe i am missing

something basic here?  thanks for any advice. sometimes i feel so

alone in this journey, i am really grateful for all of you although i

wish you didnt have to go thru this either...teresa c

=======================================================

[Guest guest]

,

We, too, have a seizure prone daughter. For her, afp peptizide

contributed to neuro irritability. Enzymes that she's able to

tolerate include Ultrase MT(prescription), and Thorne's Dipan(non-

prescription). Keeping our child off gluten, casein, peanut, dyes,

additives, hydrogenated fats and relatively low phenol has been

critical for seizure prevention. No phenol also did not work well

for her even in small amoounts. Isn't Great Plains hair test

processed through Doctor's Data? - down at the bottom of the page in

almost readable print it will say what lab. You may be able to post

those results if they're at all current. Keep plugging! I'd love to

have that 5 year old under my wing. Our child was 15 when I first

found the mercury connection in 2001 but better late than never!

B.

>

> i have to say that very little has improved in a year. i am very

> frustrated and sad. we have done DAN doc- yes at 300/hr- and

chelated

> for 3 months tddmps and tddmsa alternate weekends. i am ready to

start

> over. so. starting from scratch, my dtr annie is 5 y old,

nonverbal.

> epilepsy since 19 mo old. vitiligo all over, multiple autoimmune

type

> problems. tried ketogenic diet, failed it- would not take. lyme

test

> negative. multiple food sensitivities, reactive to everything.

gfcfsf

> for 1 1/2 years. tried afp peptizide with gluten but probably need

to

> give higher doses with meals- is a grazer, gave 1 chewable with

meal-

> did hair test at great plains and will reorder to do thru ddi so

you

> all can help me interpret. have seen no big wows with anything,

but if

> i start a therapy then stop it she regresses. postitves are yeast

> killing- nystatin plus no fenol is great, melatonin- does sleep

> better,craniosacral therapy. i do not want to do alot of lab tests

> again. is anything jumping out at you that i should recheck or try?

> i tried lauricidin but never really progressed and increased dose

much.

> i have a very super husband and terrific pediatrician as well as

DAN-

> who i would rather not pay any more money to.

> i am considering stopping the tddmsa and tddmps and doing starting

ala

> alone- what do you think? i have a metals test kit my DAN sent but

it

> is a challenge test with dmsa suppository and i wont do that to

annie

> for possible harm per andy.

> please talk back to me as if i am a newbie- maybe i am missing

> something basic here?  thanks for any advice. sometimes i feel so

> alone in this journey, i am really grateful for all of you

although i

> wish you didnt have to go thru this either...teresa c

>

>

>

>

>

>

>

>

>

>

> =======================================================

>