Guest guest Posted March 5, 2006 Report Share Posted March 5, 2006 Someone on this list's child had a horrible regression from miralax. It was probably about 4 years ago or so. I don't remember which family. whether they ended up figuring out a way of reversing the regression, or how long they used it. S S <tt> Just an fyi..many of you may already know this. The doc prescribed <BR> miralax for my 3.5 year old. We only had two doses ( not the adult <BR> dose but one figured for his size). Let me say...hyper! I couldn't <BR> talk to him and get through. Not to mention the foulest gas and no <BR> poop.<BR> <BR> I stopped in at the second dose. At day three with no success I just <BR> bought some probiotics and gave them before bed. In the am we added <BR> administered some babylax. All better now. <BR> <BR> His problem going was worse after giving the two doses. He went from <BR> going a little many times a day, to not at all. I really did not think <BR> the hyper effect was a good sign either. <BR> <BR> Might want to avoid using this if given a choice. <BR> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2006 Report Share Posted March 5, 2006 I think there is an entire group, or at least a website devoted to the horror stories of Miralax! I used it (prior to having our ASD child) successfully with my NT daughter... only 2 doses solved our problem. Amazing how different the outcomes are between my daughter and your child. Makes me wonder just how lucky I might have been. I hope you can get things back on track very soon. Pam > > Just an fyi..many of you may already know this. The doc prescribed > miralax for my 3.5 year old. We only had two doses ( not the adult > dose but one figured for his size). Let me say...hyper! I couldn't > talk to him and get through. Not to mention the foulest gas and no > poop. > > I stopped in at the second dose. At day three with no success I just > bought some probiotics and gave them before bed. In the am we added > administered some babylax. All better now. > > His problem going was worse after giving the two doses. He went from > going a little many times a day, to not at all. I really did not think > the hyper effect was a good sign either. > > Might want to avoid using this if given a choice. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2006 Report Share Posted March 6, 2006 > > Just an fyi..many of you may already know this. The doc prescribed > miralax for my 3.5 year old. We only had two doses ( not the adult > dose but one figured for his size). Let me say...hyper! I couldn't > talk to him and get through. Not to mention the foulest gas and no > poop. I have a personal story from a parent whose child has a nasty Miralax experience, and a bit of her research, on this page http://www.danasview.net/miralax.htm Here is my page of constipation info and ideas http://www.danasview.net/constip.htm Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2006 Report Share Posted March 6, 2006 Nasty stuff! My son developed eye tics while on it. Nasty, nasty stuff. Check out the Miralax for more horror tales. My son got off easily compared to lots of kids. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2006 Report Share Posted March 6, 2006 I am so glad that you stopped this! We had the most horrible experience with this and this product, IMO, should NEVER be used with children. If you need some ideas with constipation issues... e-mail me offlist at jhines @ ptd.net (all together). My son who will be 5 on Wednesday has this under control now. Jackie--- > Just an fyi..many of you may already know this. The doc prescribed > miralax for my 3.5 year old. We only had two doses ( not the adult > dose but one figured for his size). Let me say...hyper! I couldn't > talk to him and get through. Not to mention the foulest gas and no > poop. > > I stopped in at the second dose. At day three with no success I just > bought some probiotics and gave them before bed. In the am we added > administered some babylax. All better now. > > His problem going was worse after giving the two doses. He went from > going a little many times a day, to not at all. I really did not think > the hyper effect was a good sign either. > > Might want to avoid using this if given a choice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2006 Report Share Posted March 6, 2006 We didn't have a horrible experience like many others did, but I am so glad my son is off that stuff. It takes some effort, as I am sure Jackie will tell you, but it is well worth the effort. Miralax is nasty nasty nasty stuff. And many of our kids with their leaky guts react horribly! Please feel free to email me as well if you need some additional input or support in this area. I found out (or suspect) that it is much more complicated even than I ever could have imagined, and really stemmed from thyroid issues and bile production issues. Best, Anne > > I am so glad that you stopped this! We had the most horrible experience > with this and this product, IMO, should NEVER be used with children. If > you need some ideas with constipation issues... e-mail me offlist at jhines > @ ptd.net (all together). My son who will be 5 on Wednesday has this under > control now. > > Jackie--- > > > Just an fyi..many of you may already know this. The doc prescribed > > miralax for my 3.5 year old. We only had two doses ( not the adult > > dose but one figured for his size). Let me say...hyper! I couldn't > > talk to him and get through. Not to mention the foulest gas and no > > poop. > > > > I stopped in at the second dose. At day three with no success I just > > bought some probiotics and gave them before bed. In the am we added > > administered some babylax. All better now. > > > > His problem going was worse after giving the two doses. He went from > > going a little many times a day, to not at all. I really did not think > > the hyper effect was a good sign either. > > > > Might want to avoid using this if given a choice. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2006 Report Share Posted March 6, 2006 I fixed him. Probiotics, and a baby enema. He is fine now. I just can't beleive they prescribe stuff like this. What ever happend to prune juice or something? The nurse tells me on the phone, " it might say on the bottle, not for children. Just ignore this. WE use it all the time and find it works well in kids " . I was skeptical already when she said that. > > I am so glad that you stopped this! We had the most horrible experience > with this and this product, IMO, should NEVER be used with children. If > you need some ideas with constipation issues... e-mail me offlist at jhines > @ ptd.net (all together). My son who will be 5 on Wednesday has this under > control now. > > Jackie--- > > > Just an fyi..many of you may already know this. The doc prescribed > > miralax for my 3.5 year old. We only had two doses ( not the adult > > dose but one figured for his size). Let me say...hyper! I couldn't > > talk to him and get through. Not to mention the foulest gas and no > > poop. > > > > I stopped in at the second dose. At day three with no success I just > > bought some probiotics and gave them before bed. In the am we added > > administered some babylax. All better now. > > > > His problem going was worse after giving the two doses. He went from > > going a little many times a day, to not at all. I really did not think > > the hyper effect was a good sign either. > > > > Might want to avoid using this if given a choice. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Jan, Just be aware that you may need to give him another enema tomorrow just to make he is completely cleaned out. We had to fleet my son for 7 days to completely empty him before all of the natural stuff could work. The ped gastro told me I may have to fleet him for up to 10 days. Please watch him closely. We were on Miralax for a year before I got smart..... I got a lot smarter with a lot of things a year ago! LOL! Keep us posted! Jackie--- >I fixed him. Probiotics, and a baby enema. He is fine now. > I just can't beleive they prescribe stuff like this. What ever > happend to prune juice or something? The nurse tells me on the > phone, " it might say on the bottle, not for children. Just ignore > this. WE use it all the time and find it works well in kids " . > I was skeptical already when she said that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 I am happy to say that he did not go yesterday, probably all out of poop from that enema. He went and went all weekend after the enema. But today, he produced his first normal, soft bowel movement. The only things we did was start and keep him on probiotics!! I can't beleive the difference. He seems a bit calmer, happier as well. I also files a adverse event report with the FDA about that " crap " that passes for medicine. Am I too understand that this stuff is related to antifreeze? Polyethylene glycol and ethelyne glycol? Common sense says the Poly isn't cancelling out the antifreeze ingredient! I am sorry your son suffered so with Miralax. I am glad I followed my instinct and stopped it at the second dose. > > Jan, > Just be aware that you may need to give him another enema tomorrow just to > make he is completely cleaned out. We had to fleet my son for 7 days to > completely empty him before all of the natural stuff could work. The ped > gastro told me I may have to fleet him for up to 10 days. Please watch him > closely. We were on Miralax for a year before I got smart..... I got a lot > smarter with a lot of things a year ago! LOL! > > Keep us posted! > Jackie--- > > >I fixed him. Probiotics, and a baby enema. He is fine now. > > I just can't beleive they prescribe stuff like this. What ever > > happend to prune juice or something? The nurse tells me on the > > phone, " it might say on the bottle, not for children. Just ignore > > this. WE use it all the time and find it works well in kids " . > > I was skeptical already when she said that. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Jan, PEG is found as an ingredient in antifreeze and alot of other things we inject! Keep up the probiotics and watch for any early signs of a back up. You really need him to go everyday!!! If he went and went and went.... it takes up to 6 months for the colon to shrink back into it's normal size, so this is why you want him to try and push. He may not have the sensation to have to go. That is the bad part about chronic constipating and withholding behaviors. I also have children's senokot on hand (Fletcher's is the name from WalMart) to use from time to time before I will use an enema. It typically works over night. Keep us posted on his progress! jackie--- >I am happy to say that he did not go yesterday, probably all out of > poop from that enema. He went and went all weekend after the enema. > But today, he produced his first normal, soft bowel movement. The > only things we did was start and keep him on probiotics!! I can't > beleive the difference. He seems a bit calmer, happier as well. > > I also files a adverse event report with the FDA about that " crap " > that passes for medicine. Am I too understand that this stuff is > related to antifreeze? Polyethylene glycol and ethelyne glycol? > Common sense says the Poly isn't cancelling out the antifreeze > ingredient! > > I am sorry your son suffered so with Miralax. I am glad I followed > my instinct and stopped it at the second dose. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Hey, he pooped again twice today. Normal, no struggles. Etc. I still have a large bottle of poly crap here. Maybe I can make an art project with it! LOL... > > Jan, > PEG is found as an ingredient in antifreeze and alot of other things we > inject! Keep up the probiotics and watch for any early signs of a back > up. You really need him to go everyday!!! If he went and went and went.... > it takes up to 6 months for the colon to shrink back into it's normal size, > so this is why you want him to try and push. He may not have the sensation > to have to go. That is the bad part about chronic constipating and > withholding behaviors. > > I also have children's senokot on hand (Fletcher's is the name from WalMart) > to use from time to time before I will use an enema. It typically works > over night. > > Keep us posted on his progress! > jackie--- > > >I am happy to say that he did not go yesterday, probably all out of > > poop from that enema. He went and went all weekend after the enema. > > But today, he produced his first normal, soft bowel movement. The > > only things we did was start and keep him on probiotics!! I can't > > beleive the difference. He seems a bit calmer, happier as well. > > > > I also files a adverse event report with the FDA about that " crap " > > that passes for medicine. Am I too understand that this stuff is > > related to antifreeze? Polyethylene glycol and ethelyne glycol? > > Common sense says the Poly isn't cancelling out the antifreeze > > ingredient! > > > > I am sorry your son suffered so with Miralax. I am glad I followed > > my instinct and stopped it at the second dose. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Know what really burns me about this. I asked the nurse on the phone when she said the doctor recommended we try this, what it was. She said it was a vegetable based laxative. What vegetable exactly is that? > > Jan, > PEG is found as an ingredient in antifreeze and alot of other things we > inject! Keep up the probiotics and watch for any early signs of a back > up. You really need him to go everyday!!! If he went and went and went.... > it takes up to 6 months for the colon to shrink back into it's normal size, > so this is why you want him to try and push. He may not have the sensation > to have to go. That is the bad part about chronic constipating and > withholding behaviors. > > I also have children's senokot on hand (Fletcher's is the name from WalMart) > to use from time to time before I will use an enema. It typically works > over night. > > Keep us posted on his progress! > jackie--- > > >I am happy to say that he did not go yesterday, probably all out of > > poop from that enema. He went and went all weekend after the enema. > > But today, he produced his first normal, soft bowel movement. The > > only things we did was start and keep him on probiotics!! I can't > > beleive the difference. He seems a bit calmer, happier as well. > > > > I also files a adverse event report with the FDA about that " crap " > > that passes for medicine. Am I too understand that this stuff is > > related to antifreeze? Polyethylene glycol and ethelyne glycol? > > Common sense says the Poly isn't cancelling out the antifreeze > > ingredient! > > > > I am sorry your son suffered so with Miralax. I am glad I followed > > my instinct and stopped it at the second dose. > Quote Link to comment Share on other sites More sharing options...
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