Re: Can anyone give me advice?

[Guest guest]

You might try introducing some antivirals, if you have not already

done so. I think that for a lot of people, viruses are a very

significant problem and can mask the gains that chelation might be

bringing. There are some very effective over the counter antivirals

like OLE and virastop (which is an enzyme). Do your research first

though, as antiviral stuff can kick up yeast and you need to be

prepared for what drawing out viruses can do. There are some good

posts in the onibasu archives which discuss introducing antivirals.

Best,

Anne

>

> My 3 year old started chelation in December 2005. We did about 2

> months of treatment, changed his diet and continue to give him the

> standard supplements for autism. (He has not been diagnosed)

>

> I have to say that our son is the same as he was when we started

> the DAN treatment. He has not changed at all. Still stimms,

little

> eye contact, no language ..etc....

> The only positive difference is that his face and ears are no

longer

> red since we changed his diet.

>

> I feel hopeless. Is this just not meant to be? I want so badly

for

> him to learn and be happy, but it seems thats never going to

happen.

>

> The last urine test showed that the lead and mercury were infact

> very low. Low enough that his doctor said to stop giving him the

> DMSA.

>

> Still no change. I feel like I've tried everything to help him.

> Can anyone give me some advice on what I can do from here?

>

> Thanks

> Lori B

>

[Guest guest]

> The last urine test showed that the lead and mercury were infact

> very low. Low enough that his doctor said to stop giving him the

> DMSA.

>

> Still no change. I feel like I've tried everything to help him.

> Can anyone give me some advice on what I can do from here?

>

> Thanks

> Lori B

>

I don't see any mention of chelating with ALA (alpha lipoloc acid).

Our gains with DMSA alone were modest. After adding in ALA, things

really started happening. I'd try doing this, according to the Cutler

protocol.

[Guest guest]

Thanks Anne. I look into it and see what I can find out. At this

poing anything is worth a shot. Thanks again

Lori

> >

> > My 3 year old started chelation in December 2005. We did about

2

> > months of treatment, changed his diet and continue to give him

the

> > standard supplements for autism. (He has not been diagnosed)

> >

> > I have to say that our son is the same as he was when we

started

> > the DAN treatment. He has not changed at all. Still stimms,

> little

> > eye contact, no language ..etc....

> > The only positive difference is that his face and ears are no

> longer

> > red since we changed his diet.

> >

> > I feel hopeless. Is this just not meant to be? I want so badly

> for

> > him to learn and be happy, but it seems thats never going to

> happen.

> >

> > The last urine test showed that the lead and mercury were infact

> > very low. Low enough that his doctor said to stop giving him

the

> > DMSA.

> >

> > Still no change. I feel like I've tried everything to help him.

> > Can anyone give me some advice on what I can do from here?

> >

> > Thanks

> > Lori B

> >

>

[Guest guest]

Lori,

Two months is a drop in the bucket, as far as chelation goes. What

dose were you using? Was it TD-DMSA or oral? How many rounds did

you actually complete? I question the quick reaction of your DAN!

doctor to give up on DMSA, minus any negative reactions.

Urine tests are snap shots in time. I don't believe we should rely

on them to start or stop chelation, necessarily (for heavy metal

content). On the flip side of your case, my son showed behavioral

improvements not too long after starting DMSA, but his urine metals

tests never show tons of mercury or lead (barely a blip in to the

green for Hg and 0 lead).

Have you ever had DDI hair tests done? If so, what did that test

show?

Before you give up, consider your alternatives. Change to oral DMSA

if you were using transdermal. Up the dose of DMSA if you were

using super low doses (say, like 12.5 mgs per dose). Try DMPS or

ALA. If your DAN! doctor is baffled and stagnant, consider finding

another doctor.

Each child is so different. I hate to think you will give up

because your child does not match some of the stories you have read

from other parents. For every child who responds quickly, there are

children like yours who are slower responders. We ALL want this

nightmare to be over, but searching for the magic bullet or quick

fix is going to drive you insane. It is said over and over again,

this is a marathon, not a sprint.

I don't mean to imply that DMSA is for sure your answer. I just

wanted to offer some (hopeful) encouragment not to give up on

chelating heavy metals just yet. You obviously have reason to

believe your child is toxic.

THREE! Oh, to be three again. You have time to figure this out.

Try not to fall in to that dark place... you've had success with the

diet. You are giving supplements that also might take time to

elicit noticeable change. You haven't gone BACKWARDS (others can't

say that much!).

Hang in there and ask questions. I know others will offer

suggestions.

Pam

>

> My 3 year old started chelation in December 2005. We did about 2

> months of treatment, changed his diet and continue to give him the

> standard supplements for autism. (He has not been diagnosed)

>

> I have to say that our son is the same as he was when we started

> the DAN treatment. He has not changed at all. Still stimms,

little

> eye contact, no language ..etc....

> The only positive difference is that his face and ears are no

longer

> red since we changed his diet.

>

> I feel hopeless. Is this just not meant to be? I want so badly

for

> him to learn and be happy, but it seems thats never going to

happen.

>

> The last urine test showed that the lead and mercury were infact

> very low. Low enough that his doctor said to stop giving him the

> DMSA.

>

> Still no change. I feel like I've tried everything to help him.

> Can anyone give me some advice on what I can do from here?

>

> Thanks

> Lori B

>

[Guest guest]

Wow, two months is not really long enough to tell. What did you use for his

treatment?

Barb

[ ] Can anyone give me advice?

> My 3 year old started chelation in December 2005. We did about 2

> months of treatment, changed his diet and continue to give him the

> standard supplements for autism. (He has not been diagnosed)

>

> I have to say that our son is the same as he was when we started

> the DAN treatment. He has not changed at all. Still stimms, little

> eye contact, no language ..etc....

> The only positive difference is that his face and ears are no longer

> red since we changed his diet.

>

> I feel hopeless. Is this just not meant to be? I want so badly for

> him to learn and be happy, but it seems thats never going to happen.

>

> The last urine test showed that the lead and mercury were infact

> very low. Low enough that his doctor said to stop giving him the

> DMSA.

>

> Still no change. I feel like I've tried everything to help him.

> Can anyone give me some advice on what I can do from here?

>

> Thanks

> Lori B

>

>

>

>

>

>

>

> =======================================================

>

[Guest guest]

My experience: It can take many months to really reap the benefits of

dietary changes and it's a bit like peeling an onion: progress leads to

realizing what else you can do to make additional gains. Also, after you

get rid of the bad stuff, it can take time to rebuild the body. As others

have said: two months really is a short period of time. You ARE seeing

positive changes: he is no longer red in the face and ears.

I haven't done chelation but I have an 18 year old. Off the top of my head,

I would say he made big gains at ages 3, 9, 11, 14, and 16 and he continues

to make gains in functioning more smoothly in the world. I call that

" growing up " , basically. I know these kids need more intervention than

average but parenting is not done for most kids in modern American until

about the mid twenties (half of all kids under age 25 still live with mom

and dad -- I chalk that up in part to how complex the world is today). So

from my point of view (which is deemed " warped " by a lot of people), 3 is

WAY too soon to right a child off as " having no hope " .

My advice: keep educating yourself about what other parents have done who

were successful in addressing their child's issues. My understanding is

that about 75% of kids who are chelated see reductions in ASD symptoms.

Anecdotally, my oldest son has a genetic disorder (a form of cystic

fibrosis) and there is a high percentage of ASD kids who have Celiac's

(gluten intolerance -- which some folks find improves with chelation). Just

because chelation has not worked does not mean there is no solution. And,

really, two months is way too soon to say chelation has " failed " . But I am

not the right person to speak to that because I have not chelated my kids (I

have chelated myself -- for 16 months).

((hugs))

--

Michele in Limbo (formerly in California)

talithamichele@...

Visit Michele's World!

http://www.califmichele.com

" Peace cannot be kept by force. It can only be achieved by understanding. "

-- Albert Einstein

[Guest guest]

Thanks ;

My son goes back to his DAN doctor in 2 weeks. I'll ask more

questions.

Thanks for your advice

Lori

>

> My experience: It can take many months to really reap the

benefits of

> dietary changes and it's a bit like peeling an onion: progress

leads to

> realizing what else you can do to make additional gains. Also,

after you

> get rid of the bad stuff, it can take time to rebuild the body.

As others

> have said: two months really is a short period of time. You ARE

seeing

> positive changes: he is no longer red in the face and ears.

>

> I haven't done chelation but I have an 18 year old. Off the top

of my head,

> I would say he made big gains at ages 3, 9, 11, 14, and 16 and he

continues

> to make gains in functioning more smoothly in the world. I call

that

> " growing up " , basically. I know these kids need more intervention

than

> average but parenting is not done for most kids in modern American

until

> about the mid twenties (half of all kids under age 25 still live

with mom

> and dad -- I chalk that up in part to how complex the world is

today). So

> from my point of view (which is deemed " warped " by a lot of

people), 3 is

> WAY too soon to right a child off as " having no hope " .

>

> My advice: keep educating yourself about what other parents have

done who

> were successful in addressing their child's issues. My

understanding is

> that about 75% of kids who are chelated see reductions in ASD

symptoms.

> Anecdotally, my oldest son has a genetic disorder (a form of cystic

> fibrosis) and there is a high percentage of ASD kids who have

Celiac's

> (gluten intolerance -- which some folks find improves with

chelation). Just

> because chelation has not worked does not mean there is no

solution. And,

> really, two months is way too soon to say chelation has " failed " .

But I am

> not the right person to speak to that because I have not chelated

my kids (I

> have chelated myself -- for 16 months).

>

> ((hugs))

>

> --

> Michele in Limbo (formerly in California)

>

> talithamichele@...

>

>

> Visit Michele's World!

> http://www.califmichele.com

>

> " Peace cannot be kept by force. It can only be achieved by

understanding. "

> -- Albert Einstein

>

>

>

[Guest guest]

ALA as some other suggested is the way to remove it from the brain.

Mercury does most of it's interference and damage in the brain. I

definitely would not give up yet. Two months really is not a long

time. Once you get some out of the brain, you may notice things

improving.

>

> My 3 year old started chelation in December 2005. We did about 2

> months of treatment, changed his diet and continue to give him the

> standard supplements for autism. (He has not been diagnosed)

>

> I have to say that our son is the same as he was when we started

> the DAN treatment. He has not changed at all. Still stimms,

little

> eye contact, no language ..etc....

> The only positive difference is that his face and ears are no

longer

> red since we changed his diet.

>

> I feel hopeless. Is this just not meant to be? I want so badly

for

> him to learn and be happy, but it seems thats never going to

happen.

>

> The last urine test showed that the lead and mercury were infact

> very low. Low enough that his doctor said to stop giving him the

> DMSA.

>

> Still no change. I feel like I've tried everything to help him.

> Can anyone give me some advice on what I can do from here?

>

> Thanks

> Lori B

>

[Guest guest]

Thanks ! You are so right on the parenting part in this

country! And I beleive you NEVER write off your kid as hopeless, or

untreatable no matter how old. Three is just starting out! My son is

three and there is no way I would ever stop fighting to do what he

needs. SO you hang in there Lori and follow your instinct! Which is

to keep helping your son.

-- In , " ldbender " <ldbender@...>

wrote:

>

> Thanks ;

>

> My son goes back to his DAN doctor in 2 weeks. I'll ask more

> questions.

>

> Thanks for your advice

>

> Lori

>

>

>

> >

> > My experience: It can take many months to really reap the

> benefits of

> > dietary changes and it's a bit like peeling an onion: progress

> leads to

> > realizing what else you can do to make additional gains. Also,

> after you

> > get rid of the bad stuff, it can take time to rebuild the body.

> As others

> > have said: two months really is a short period of time. You

ARE

> seeing

> > positive changes: he is no longer red in the face and ears.

> >

> > I haven't done chelation but I have an 18 year old. Off the top

> of my head,

> > I would say he made big gains at ages 3, 9, 11, 14, and 16 and

he

> continues

> > to make gains in functioning more smoothly in the world. I call

> that

> > " growing up " , basically. I know these kids need more

intervention

> than

> > average but parenting is not done for most kids in modern

American

> until

> > about the mid twenties (half of all kids under age 25 still live

> with mom

> > and dad -- I chalk that up in part to how complex the world is

> today). So

> > from my point of view (which is deemed " warped " by a lot of

> people), 3 is

> > WAY too soon to right a child off as " having no hope " .

> >

> > My advice: keep educating yourself about what other parents

have

> done who

> > were successful in addressing their child's issues. My

> understanding is

> > that about 75% of kids who are chelated see reductions in ASD

> symptoms.

> > Anecdotally, my oldest son has a genetic disorder (a form of

cystic

> > fibrosis) and there is a high percentage of ASD kids who have

> Celiac's

> > (gluten intolerance -- which some folks find improves with

> chelation). Just

> > because chelation has not worked does not mean there is no

> solution. And,

> > really, two months is way too soon to say chelation

has " failed " .

> But I am

> > not the right person to speak to that because I have not

chelated

> my kids (I

> > have chelated myself -- for 16 months).

> >

> > ((hugs))

> >

> > --

> > Michele in Limbo (formerly in California)

> >

> > talithamichele@

> >

> >

> > Visit Michele's World!

> > http://www.califmichele.com

> >

> > " Peace cannot be kept by force. It can only be achieved by

> understanding. "

> > -- Albert Einstein

> >

> >

> >

[Guest guest]

DMSA chelates mercury the body but not the brain. ALA chelates from the brain.

Did you do a hair test? What did it show? Did he meet the counting rules?

Were other toxic metals high? Many on the spectrum have high arsenic,

antimony, etc. What dose and dosing schedule did you use? I presume he has NO

mercury amalgam dental fillings. What diet is he on?

S S

<html><body>

<tt>

My 3 year old started chelation in December 2005.  We did about 2 <BR>

months of treatment, changed his diet and continue to give him the <BR>

standard supplements for autism. (He has not been diagnosed)<BR>

<BR>

  I have to say that our son is the same as he was when we started <BR>

the DAN treatment.  He has not changed at all.  Still stimms, little <BR>

eye contact, no language ..etc....<BR>

The only positive difference is that his face and ears are no longer <BR>

red since we changed his diet.<BR>

<BR>

I feel hopeless.  Is this just not meant to be?  I want so badly for <BR>

him to learn and be happy, but it seems thats never going to happen.<BR>

<BR>

The last urine test showed that the lead and mercury were infact <BR>

very low.  Low enough that his doctor said to stop giving him the <BR>

DMSA.<BR>

<BR>

Still no change. I feel like I've tried everything to help him.  <BR>

Can anyone give me some advice on what I can do from here?<BR>

<BR>

Thanks<BR>

Lori B<BR>

<BR>

<BR>

<BR>

<BR>

<BR>

</tt>

<!-- |**|begin egp html banner|**| -->

<br><br>

<tt>

=======================================================<BR>

[Guest guest]

> I have to say that our son is the same as he was when we started

> the DAN treatment. He has not changed at all. Still stimms, little

> eye contact, no language ..etc....

What my son needed for language, I wrote here

http://www.danasview.net/issues.htm

My son made the most improvement with certain supplements, especially

anti-virals.

What are the stims?

> The last urine test showed that the lead and mercury were infact

> very low. Low enough that his doctor said to stop giving him the

> DMSA.

Maybe it is now time to add the ALA.

Dana

[Guest guest]

> Thanks for the info. My son stims on everything.

> Looking at the palm of his hand, lights,

These were visuals for my son. Check this page for what he needed for

that

http://www.danasview.net/issues.htm

>> jumping up

> and down for 30 minutes or more at a time,

Several things for my son, including yeast overgrowth.

>>humming all

> day,

Several things for my son, including yeast overgrowth.

>>slapping his chest,

This is one of the things that disappeared with folic acid, in

addition to scripting and writing letters in the air.

Dana