Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 This question comes up often and the strange thing is that about as many people blame the LDN for making them put on weight as do blame it for them losing it ....... :-( jgarcia3788 wrote: > Hi all, > I was just wondering if anyone has suffered (unwanted) weight loss as > a result of using LDN. I'm already underweight due to CFS, but since > starting LDN (3.3mg) I'm losing weight at an alarming rate. > > My weight loss is partly due to increased metabolism - i.e. I'm > burning off more calories at rest. This would be a nice effect were it > not for the fact that I have severe maldigestion issues which means I > can't compensate by eating more. I also have infections which mean > that I can't just eat junk calories (sugar/carbs). I've tried maxing > out on fats but even that doesn't help. > > Another reason for the weight loss is a loss of digestive > function/capacity - its like my already weak digestion has shut down > even more due to the LDN. > > I've experimented with several dosages, but am yet to find something > that gives me benefits without this side effect. Its really annoying > because without this side effect I do really well on LDN. > > Interested to hear from others who have experienced similar. > > many thanks, > garcia. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 since starting LDN I have had quite a loss of appetite, so leading to weight loss. Regards Helen ~ UK Diabetic type 1 Ankylosing Spondylitis (AS) Multiple sclerosis (MS) C wrote: This question comes up often and the strange thing is that about as many people blame the LDN for making them put on weight as do blame it for them losing it ....... :-( jgarcia3788 wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 I have big time weight loss but it is attributed to stress and came before my LDN use and I cannot gain weight and none of the docs seem to be too concerned about that - Just me. LDN, MSHelen W <helen@...> wrote: since starting LDN I have had quite a loss of appetite, so leading to weight loss. RegardsHelen ~ UKDiabetic type 1 Ankylosing Spondylitis (AS)Multiple sclerosis (MS) C wrote: This question comes up often and the strange thing is that about as many people blame the LDN for making them put on weight as do blame it for them losing it ....... :-(jgarcia3788 wrote: Need a vacation? Get great deals to amazing places on Travel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 Have you tried digestive enzymes? Marcie jgarcia3788 <jgarcia3788@...> wrote: Hi all,I was just wondering if anyone has suffered (unwanted) weight loss asa result of using LDN. I'm already underweight due to CFS, but sincestarting LDN (3.3mg) I'm losing weight at an alarming rate.My weight loss is partly due to increased metabolism - i.e. I'mburning off more calories at rest. This would be a nice effect were itnot for the fact that I have severe maldigestion issues which means Ican't compensate by eating more. I also have infections which meanthat I can't just eat junk calories (sugar/carbs). I've tried maxingout on fats but even that doesn't help.Another reason for the weight loss is a loss of digestivefunction/capacity - its like my already weak digestion has shut downeven more due to the LDN.I've experimented with several dosages, but am yet to find somethingthat gives me benefits without this side effect. Its really annoyingbecause without this side effect I do really well on LDN.Interested to hear from others who have experienced similar.many thanks,garcia. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 Thanks for the replies guys. its not really that strange that some people lose weight and others gain weight - after all LDN is a modulator so we should expect it to have differential effects on people. Also in CFS generally some people gain weight whilst others lose weight. Generally the sickest people tend to be those who lost weight. Losing weight is a much bigger deal than gaining weight because it becomes a major health issue very quickly. Helen, loss of appetite is the commonly mentioned LDN side effect. Strange thing for me is that if anything I have an increased appetite (due to calorific deficit). , weight loss is definitely related to stress - specifically adrenal stress. If the adrenals aren't working properly (e.g. if you have adrenal fatigue) then you will lose weight. Unfortunately taking LDN on top of existing adrenal fatigue for me has exacerbated the weight loss. Marcie, I've tried digestive enzymes but to be honest they don't really do that much for me. garcia. > > > > > > > > --------------------------------- > Need a vacation? Get great deals to amazing places on Travel. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 The trick is to find a doc who can help you investigate the whole body. I have one in the form of an allergist/ear/nose/throat specialist. I am not saying docs are the only way to go, but he will help me ID my allergies and digestion deficiencies and hopefully get me back on the right track to health. LDN /MSjgarcia3788 <jgarcia3788@...> wrote: Thanks for the replies guys. its not really that strange that some people lose weight andothers gain weight - after all LDN is a modulator so we should expectit to have differential effects on people. Also in CFS generally somepeople gain weight whilst others lose weight. Generally the sickestpeople tend to be those who lost weight. Losing weight is a muchbigger deal than gaining weight because it becomes a major healthissue very quickly.Helen, loss of appetite is the commonly mentioned LDN side effect.Strange thing for me is that if anything I have an increased appetite(due to calorific deficit). , weight loss is definitely related to stress - specificallyadrenal stress. If the adrenals aren't working properly (e.g. if youhave adrenal fatigue) then you will lose weight. Unfortunately takingLDN on top of existing adrenal fatigue for me has exacerbated theweight loss.Marcie, I've tried digestive enzymes but to be honest they don'treally do that much for me.garcia.> > > > > > > > ---------------------------------> Need a vacation? Get great deals to amazing places on Travel.> Looking for a deal? Find great prices on flights and hotels with FareChase. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 what about swings BOTH ways? I was 135 when I started, 124 7 months later, 127 a year after that, 114 8 months after that, 110 7 months after that, 108 a month after that; and then I stopped smoking cigarettes. 3 weeks later I was at 129! Since then I'm between 124 and 130, One year, four months, four weeks, one day, 20 hours, 44 minutes and 13 seconds. 15505 cigarettes not smoked, saving $4,264.13. Life saved: 7 weeks, 4 days, 20 hours, 5 minutes. Re: [low dose naltrexone] Severe Weight loss This question comes up often and the strange thing is that about as many people blame the LDN for making them put on weight as do blame it for them losing it ....... :-(jgarcia3788 wrote:> Hi all,> I was just wondering if anyone has suffered (unwanted) weight loss as> a result of using LDN. I'm already underweight due to CFS, but since> starting LDN (3.3mg) I'm losing weight at an alarming rate. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 Well thats just another way LDN is helping me then as loosing a bit of weight is a good thing for my diabetes (and B/P)! Regards Helen ~ UK Diabetic type 1 Ankylosing Spondylitis (AS) Multiple sclerosis (MS) jgarcia3788 wrote: Thanks for the replies guys. its not really that strange that some people lose weight and others gain weight - after all LDN is a modulator so we should expect it to have differential effects on people. Also in CFS generally some people gain weight whilst others lose weight. Generally the sickest people tend to be those who lost weight. Losing weight is a much bigger deal than gaining weight because it becomes a major health issue very quickly. Helen, loss of appetite is the commonly mentioned LDN side effect. Strange thing for me is that if anything I have an increased appetite (due to calorific deficit). , weight loss is definitely related to stress - specifically adrenal stress. If the adrenals aren't working properly (e.g. if you have adrenal fatigue) then you will lose weight. Unfortunately taking LDN on top of existing adrenal fatigue for me has exacerbated the weight loss. Marcie, I've tried digestive enzymes but to be honest they don't really do that much for me. garcia. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 , some folks report losing weight on LDN but you are the first underweight person I've read to do so (but I'm pretty new here). How long have you been taking LDN? You know that if you weigh less than 100 lbs, to take only 3mg LDN max until you weigh more than that, right? That's Dr. Bihari's recommendation. Malabsorption issues are tough to deal with. You're not eating a lot now so it may be hard to get enough vitamins and minerals without taking sups. Also take a look at some of the liquid protein sups you can make smoothies and shakes with. You can put fruit and other stuff into protein shakes, even raw eggs (I do). There's been a discussion here on smoothies the last few days. If you haven't read these posts, do. They're titled: "Re: Removing gluten and soy from diet." If you can't eat a lot of protein, etc. right now, maybe you can drink some. Judging by LDN's ability to help the body heal Crohn's my guess is it will help you, and that you are temporarily losing mostly water weight. Soon this should stop and hopefully you will start gaining healthy lean weight, as you heal and are able to eat more healthy foods, and more of them. Stay away from the sugar and processed starches anyway. Even if you suddenly started gaining weight from them it would be only flab, and that is not what you want; you want healthy lean tissue. As your CFS lessens you may be able to do more resistance exercises, too, which will start sculpting your bod in yummy ways. And try to get outdoors at least a bit; nature can heal the soul. Best health, Jo PS Better nutrition really does lead to fewer infections. jgarcia3788 wrote: Hi all, I was just wondering if anyone has suffered (unwanted) weight loss as a result of using LDN. I'm already underweight due to CFS, but since starting LDN (3.3mg) I'm losing weight at an alarming rate. My weight loss is partly due to increased metabolism - i.e. I'm burning off more calories at rest. This would be a nice effect were it not for the fact that I have severe maldigestion issues which means I can't compensate by eating more. I also have infections which mean that I can't just eat junk calories (sugar/carbs). I've tried maxing out on fats but even that doesn't help. Another reason for the weight loss is a loss of digestive function/capacity - its like my already weak digestion has shut down even more due to the LDN. I've experimented with several dosages, but am yet to find something that gives me benefits without this side effect. Its really annoying because without this side effect I do really well on LDN. Interested to hear from others who have experienced similar. many thanks, garcia. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 Larry: I also quit smoking four weeks ago - cold turkey, I might add. I am still trying to gain but it is not happening yet. I guess love yourself for who and what you are. LarryGC <larrygc@...> wrote: what about swings BOTH ways? I was 135 when I started, 124 7 months later, 127 a year after that, 114 8 months after that, 110 7 months after that, 108 a month after that; and then I stopped smoking cigarettes. 3 weeks later I was at 129! Since then I'm between 124 and 130, One year, four months, four weeks, one day, 20 hours, 44 minutes and 13 seconds. 15505 cigarettes not smoked, saving $4,264.13. Life saved: 7 weeks, 4 days, 20 hours, 5 minutes. Re: [low dose naltrexone] Severe Weight loss This question comes up often and the strange thing is that about as many people blame the LDN for making them put on weight as do blame it for them losing it ....... :-(jgarcia3788 wrote:> Hi all,> I was just wondering if anyone has suffered (unwanted) weight loss as> a result of using LDN. I'm already underweight due to CFS, but since> starting LDN (3.3mg) I'm losing weight at an alarming rate. Shape in your own image. Join our Network Research Panel today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 Someone asked me if it was the LDN that helped me quit, and stay quit. I never gave it much thought, but I THINK it did. When I left my marital home 2/13/06 I was at 30/day, 2/14/06 I had just 8, and less and less until the end of March when I had a little setback. I was down to 3 a day and went back to 7. I think I was smoking just enough to avoid withdrawal and unknown territory. Couldn't let go. But when I was back down to 2 a day, 2am and 4pm; a antismoking friend was over, I didn't have my 2nd til 18:45; he said since I'm now down to 2, just "don't light up" at 2am. So on 4/27 at 0200 I took one out, put it back, haven't had one since. One year, four months, four weeks, one day, 23 hours, 11 minutes and 43 seconds. 15508 cigarettes not smoked, saving $4,264.97. Life saved: 7 weeks, 4 days, 20 hours, 20 minutes. And my weight is stable again. Re: [low dose naltrexone] Severe Weight loss Larry: I also quit smoking four weeks ago - cold turkey, I might add. I am still trying to gain but it is not happening yet. I guess love yourself for who and what you are. LarryGC <larrygc@...> wrote: what about swings BOTH ways? I was 135 when I started, 124 7 months later, 127 a year after that, 114 8 months after that, 110 7 months after that, 108 a month after that; and then I stopped smoking cigarettes. 3 weeks later I was at 129! Since then I'm between 124 and 130, One year, four months, four weeks, one day, 20 hours, 44 minutes and 13 seconds. 15505 cigarettes not smoked, saving $4,264.13. Life saved: 7 weeks, 4 days, 20 hours, 5 minutes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 Larry: I am trying to detox my body with ion detoxification but there are other methods. You should see the brown and black gunk that fills clear water after 30 minutes - iodized salt is the only thing added to pull out the toxins as well as the ion unit. The water continues to be brown, which is a sign of tox from cigarette smoking. I quit four weeks ago and started the detox a week and a half ago. LarryGC <larrygc@...> wrote: Someone asked me if it was the LDN that helped me quit, and stay quit. I never gave it much thought, but I THINK it did. When I left my marital home 2/13/06 I was at 30/day, 2/14/06 I had just 8, and less and less until the end of March when I had a little setback. I was down to 3 a day and went back to 7. I think I was smoking just enough to avoid withdrawal and unknown territory. Couldn't let go. But when I was back down to 2 a day, 2am and 4pm; a antismoking friend was over, I didn't have my 2nd til 18:45; he said since I'm now down to 2, just "don't light up" at 2am. So on 4/27 at 0200 I took one out, put it back, haven't had one since. One year, four months, four weeks, one day, 23 hours, 11 minutes and 43 seconds. 15508 cigarettes not smoked, saving $4,264.97. Life saved: 7 weeks, 4 days, 20 hours, 20 minutes. And my weight is stable again. Re: [low dose naltrexone] Severe Weight loss Larry: I also quit smoking four weeks ago - cold turkey, I might add. I am still trying to gain but it is not happening yet. I guess love yourself for who and what you are. LarryGC <larrygclarrygc> wrote: what about swings BOTH ways? I was 135 when I started, 124 7 months later, 127 a year after that, 114 8 months after that, 110 7 months after that, 108 a month after that; and then I stopped smoking cigarettes. 3 weeks later I was at 129! Since then I'm between 124 and 130, One year, four months, four weeks, one day, 20 hours, 44 minutes and 13 seconds. 15505 cigarettes not smoked, saving $4,264.13. Life saved: 7 weeks, 4 days, 20 hours, 5 minutes. Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2007 Report Share Posted September 26, 2007 The goal of LDN therapy is to stop progression of disease. Any reversal of disease symptoms is a bonus but should not be expected. Please trim your posts leaving only the message to which you are responding instead of the several messages. mjh Posted by: " Hawthorne" wendy.hawthorne@... wendy.hawthorne Wed Sep 26, 2007 11:02 am (PST) Kristie:My neurologist presribed the LDN for me after I researched. I found a compounding pharmacy 15 miles away that makes the 4.5 mg dose. I found out today that I do indeed have Celic Disease - allergies to glueten.I have yet to have the LDN make any symptom improvements in my MS.ThanksSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
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