Re: Unauthorized quoting of my and email on your website

[Guest guest]

Everyone,

Please go to this website - http://onibasu.com/ - These b___tards

have posted all the archives of the list on

their " Blog " website. I can't tell you how shocked I was, but we are

not the only list they have posted. How do we protest to ?

Best,

Theresa

>

> Onibasu.com,

>

>

>

> I am absolutely appalled to find that you have posted on your

website my

> email posts to the list about my young daughter's

> neurological problems without asking for my permission. This is

simply

> inexcusable and is a clear violation of my young daughter's right

to

> privacy. How dare you post on your site intimate details about a

young girl

> of 2 years without first gaining consent? Shame on you!

>

>

>

> Remove IMMEDIATELY from your website all references to my emails,

my name

> and my email address. The following seven pages must be removed

from your

> site:

>

> http://onibasu.com/archives/am/131110.html

>

> http://onibasu.com/archives/am/131114.html

>

> http://onibasu.com/archives/am/131140.html

>

> http://onibasu.com/archives/am/131186.html

>

> http://onibasu.com/archives/am/131404.html

>

> http://onibasu.com/archives/am/131407.html

>

> http://onibasu.com/archives/am/131450.html

>

>

>

> I note that you have posted the entire list

archives on your

> website - http://onibasu.com/archives/am/date_index_80.html . This

is

> tantamount to internet highway robbery and you are very much in

the wrong in

> violating the privacy of all the individuals on that list. I can

only assume

> that you have posted the group list archives on

your website

> without permission. I am notifying immediately the

list owner

> and all list members of this fact. You say on your homepage -

> http://onibasu.com/ - that you are an " archives search interface, "

but you

> are not. You have clearly copied all the archives of Autism-

Mercury onto

> your site, along with the archives of a number of other

Groups -

> http://onibasu.com/date_indices.html .

>

>

>

> In absolute outrage,

>

> Theresa Lynn Truax

>

>

>

>

>

>

[Guest guest]

That's the archives of this list, not a blog.

S S

<tt>

Everyone,<BR>

<BR>

Please go to this website - <a

href= " http://onibasu.com/ " >http://onibasu.com/</a> - These b___tards <BR>

have posted all the archives of the list on <BR>

their " Blog " website. I can't tell you how shocked I was, but we are <BR>

not the only list they have posted.  How do we protest to ?<BR>

<BR>

Best,<BR>

Theresa<BR>

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

[Guest guest]

FYI: I just did a search at the top of the message page

for " Onibasu " and found he is referrenced by this site many times

and in many posts, as a resource.

It looks like many here may have known, and it was okay.

>

> Onibasu.com,

>

>

>

> I am absolutely appalled to find that you have posted on your

website my

> email posts to the list about my young daughter's

> neurological problems without asking for my permission. This is

simply

> inexcusable and is a clear violation of my young daughter's right

to

> privacy. How dare you post on your site intimate details about a

young girl

> of 2 years without first gaining consent? Shame on you!

>

>

>

> Remove IMMEDIATELY from your website all references to my emails,

my name

> and my email address. The following seven pages must be removed

from your

> site:

>

> http://onibasu.com/archives/am/131110.html

>

> http://onibasu.com/archives/am/131114.html

>

> http://onibasu.com/archives/am/131140.html

>

> http://onibasu.com/archives/am/131186.html

>

> http://onibasu.com/archives/am/131404.html

>

> http://onibasu.com/archives/am/131407.html

>

> http://onibasu.com/archives/am/131450.html

>

>

>

> I note that you have posted the entire list

archives on your

> website - http://onibasu.com/archives/am/date_index_80.html . This

is

> tantamount to internet highway robbery and you are very much in

the wrong in

> violating the privacy of all the individuals on that list. I can

only assume

> that you have posted the group list archives on

your website

> without permission. I am notifying immediately the

list owner

> and all list members of this fact. You say on your homepage -

> http://onibasu.com/ - that you are an " archives search interface, "

but you

> are not. You have clearly copied all the archives of Autism-

Mercury onto

> your site, along with the archives of a number of other

Groups -

> http://onibasu.com/date_indices.html .

>

>

>

> In absolute outrage,

>

> Theresa Lynn Truax

>

>

>

>

>

>

[Guest guest]

I think having those references(all of them ) is invaluable. If someone posts

to this list ( or any other list) then they should expect that their stories

may be shared. We are all in this together so I don't see the harm in this. I

would think most people would not mind this especially if it encourages even

one family in need it is well worrh it. My daughter is not high functiononig

YET and some days are very hard. I look to other peoples stories and it gives

me hope. Shame on you for acting this way Jen

Theresa Truax-Gischler <tltbaku@...> wrote: Onibasu.com,

I am absolutely appalled to find that you have posted on your website my

email posts to the list about my young daughter's

neurological problems without asking for my permission. This is simply

inexcusable and is a clear violation of my young daughter's right to

privacy. How dare you post on your site intimate details about a young girl

of 2 years without first gaining consent? Shame on you!

Remove IMMEDIATELY from your website all references to my emails, my name

and my email address. The following seven pages must be removed from your

site:

http://onibasu.com/archives/am/131110.html

http://onibasu.com/archives/am/131114.html

http://onibasu.com/archives/am/131140.html

http://onibasu.com/archives/am/131186.html

http://onibasu.com/archives/am/131404.html

http://onibasu.com/archives/am/131407.html

http://onibasu.com/archives/am/131450.html

I note that you have posted the entire list archives on your

website - http://onibasu.com/archives/am/date_index_80.html . This is

tantamount to internet highway robbery and you are very much in the wrong in

violating the privacy of all the individuals on that list. I can only assume

that you have posted the group list archives on your website

without permission. I am notifying immediately the list owner

and all list members of this fact. You say on your homepage -

http://onibasu.com/ - that you are an " archives search interface, " but you

are not. You have clearly copied all the archives of onto

your site, along with the archives of a number of other -

http://onibasu.com/date_indices.html .

In absolute outrage,

Theresa Lynn Truax

[Guest guest]

Um. If you are worried about privacy why did you originally post your two year

old's " private " medical information in a public forum which does not even

require a sign in or password?

You also cut and pasted URLs which you included in the message below for

everyone to see.

I don't get it. Do you know what you are doing?

[ ] Unauthorized quoting of my and email

on your website

Onibasu.com,

I am absolutely appalled to find that you have posted on your website my

email posts to the list about my young daughter's

neurological problems without asking for my permission. This is simply

inexcusable and is a clear violation of my young daughter's right to

privacy. How dare you post on your site intimate details about a young girl

of 2 years without first gaining consent? Shame on you!

Remove IMMEDIATELY from your website all references to my emails, my name

and my email address. The following seven pages must be removed from your

site:

http://onibasu.com/archives/am/131110.html

http://onibasu.com/archives/am/131114.html

http://onibasu.com/archives/am/131140.html

http://onibasu.com/archives/am/131186.html

http://onibasu.com/archives/am/131404.html

http://onibasu.com/archives/am/131407.html

http://onibasu.com/archives/am/131450.html

I note that you have posted the entire list archives on your

website - http://onibasu.com/archives/am/date_index_80.html . This is

tantamount to internet highway robbery and you are very much in the wrong in

violating the privacy of all the individuals on that list. I can only assume

that you have posted the group list archives on your website

without permission. I am notifying immediately the list owner

and all list members of this fact. You say on your homepage -

http://onibasu.com/ - that you are an " archives search interface, " but you

are not. You have clearly copied all the archives of onto

your site, along with the archives of a number of other -

http://onibasu.com/date_indices.html .

In absolute outrage,

Theresa Lynn Truax

[Guest guest]

Theresa, I am very sorry for your frustration, but this IS a public forum.

BTW, with the right search, you can find your messages to this forum on Google

too...

Valentina

> I think having those references(all of them ) is invaluable. If someone posts

to this list ( or any other list) then they should expect that their stories

may be shared. We are all in this together so I don't see the harm in this. I

would think most people would not mind this especially if it encourages even

one family in need it is well worrh it. My daughter is not high functiononig

YET and some days are very hard. I look to other peoples stories and it gives

me hope. Shame on you for acting this way Jen

>

> Theresa Truax-Gischler <tltbaku@...> wrote: Onibasu.com,

>

>

>

> I am absolutely appalled to find that you have posted on your website my

> email posts to the list about my young daughter's

> neurological problems without asking for my permission. This is simply

> inexcusable and is a clear violation of my young daughter's right to

> privacy. How dare you post on your site intimate details about a young girl

> of 2 years without first gaining consent? Shame on you!

>

>

>

> Remove IMMEDIATELY from your website all references to my emails, my name

> and my email address. The following seven pages must be removed from your

> site:

>

> http://onibasu.com/archives/am/131110.html

>

> http://onibasu.com/archives/am/131114.html

>

> http://onibasu.com/archives/am/131140.html

>

> http://onibasu.com/archives/am/131186.html

>

> http://onibasu.com/archives/am/131404.html

>

> http://onibasu.com/archives/am/131407.html

>

> http://onibasu.com/archives/am/131450.html

>

>

>

> I note that you have posted the entire list archives on your

> website - http://onibasu.com/archives/am/date_index_80.html . This is

> tantamount to internet highway robbery and you are very much in the wrong in

> violating the privacy of all the individuals on that list. I can only assume

> that you have posted the group list archives on your website

> without permission. I am notifying immediately the list owner

> and all list members of this fact. You say on your homepage -

> http://onibasu.com/ - that you are an " archives search interface, " but you

> are not. You have clearly copied all the archives of onto

> your site, along with the archives of a number of other -

> http://onibasu.com/date_indices.html .

>

>

>

> In absolute outrage,

>

> Theresa Lynn Truax

>

>

[Guest guest]

> I am absolutely appalled to find that you have posted on your website my

> email posts to the list about my young daughter's

> neurological problems without asking for my permission. This is simply

> inexcusable and is a clear violation of my young daughter's right to

> privacy.

You appear to be very concerned about your child's privacy.

Autism-mercury list is a public list. In fact, people can read the

messages without even joining the list.

I would recommend you create a new ID that does not include your

full name. That would help keep your information private.

You can go to the a-m archives and delete your own messages, that

would also help.

Dana

[Guest guest]

You can go to the a-m archives and delete your own messages, that

would also help.

Dana

Will this also remove them from the omi=whatever mirror?

[Guest guest]

You need to get over your " outrage " and understand that, anytime you post

ANYTHING on the Internet, it becomes public for the whole world to read. That

goes for emails, posts, blogs, etc - it's out there in cyberspace. This is just

drawing attention to your personal information.

-------------- Original message --------------

From: " tltbaku " <tltbaku@...>

Everyone,

Please go to this website - http://onibasu.com/ - These b___tards

have posted all the archives of the list on

their " Blog " website. I can't tell you how shocked I was, but we are

not the only list they have posted. How do we protest to ?

Best,

Theresa

>

> Onibasu.com,

>

>

>

> I am absolutely appalled to find that you have posted on your

website my

> email posts to the list about my young daughter's

> neurological problems without asking for my permission. This is

simply

> inexcusable and is a clear violation of my young daughter's right

to

> privacy. How dare you post on your site intimate details about a

young girl

> of 2 years without first gaining consent? Shame on you!

>

>

>

> Remove IMMEDIATELY from your website all references to my emails,

my name

> and my email address. The following seven pages must be removed

from your

> site:

>

> http://onibasu.com/archives/am/131110.html

>

> http://onibasu.com/archives/am/131114.html

>

> http://onibasu.com/archives/am/131140.html

>

> http://onibasu.com/archives/am/131186.html

>

> http://onibasu.com/archives/am/131404.html

>

> http://onibasu.com/archives/am/131407.html

>

> http://onibasu.com/archives/am/131450.html

>

>

>

> I note that you have posted the entire list

archives on your

> website - http://onibasu.com/archives/am/date_index_80.html . This

is

> tantamount to internet highway robbery and you are very much in

the wrong in

> violating the privacy of all the individuals on that list. I can

only assume

> that you have posted the group list archives on

your website

> without permission. I am notifying immediately the

list owner

> and all list members of this fact. You say on your homepage -

> http://onibasu.com/ - that you are an " archives search interface, "

but you

> are not. You have clearly copied all the archives of Autism-

Mercury onto

> your site, along with the archives of a number of other

Groups -

> http://onibasu.com/date_indices.html .

>

>

>

> In absolute outrage,

>

> Theresa Lynn Truax

>

>

>

>

>

>

[Guest guest]

> You can go to the a-m archives and delete your own messages, that

> would also help.

>

> Dana

>

> Will this also remove them from the omi=whatever mirror?

It depends. If onibasu updates its ENTIRE archive periodically, then

once the messages are deleted from a-m, they will eventually also be

deleted from onibasu. However, if it only updates the current month,

then perhaps the messages won't be deleted from previous months, even

if they were deleted here.

Dana

[Guest guest]

> It depends. If onibasu updates its ENTIRE archive periodically, then

> once the messages are deleted from a-m, they will eventually also be

> deleted from onibasu. However, if it only updates the current month,

> then perhaps the messages won't be deleted from previous months, even

> if they were deleted here.

>

> Dana

>

Messages that are deleted from here after they get initially archived

by Onibasu do not get deleted when Onibasu updates.

[Guest guest]

[ ] Re: Unauthorized quoting of my and

email on your website

> You can go to the a-m archives and delete your own messages, that

> would also help.

>

> Dana

>

> Will this also remove them from the omi=whatever mirror?

It depends. If onibasu updates its ENTIRE archive periodically, then

once the messages are deleted from a-m, they will eventually also be

deleted from onibasu. However, if it only updates the current month,

then perhaps the messages won't be deleted from previous months, even

if they were deleted here.

Dana

The real issue I have is why the complainer decided to second-guess their

original judgement of making their child's private medical information very

public in the first place? And on top of that actually post URLs directing lots

of attention to the posts they claim to be private and sensitive. Go figure

that? I mean why do this publically and not privately?

At any rate, the people at oniasbu are undoubtedly under attack for some

reason. It's not clear that the complainer might be forcing oniasbu to do

something that might screw up the archives by re-setting them. Maybe somebody is

trying to destroy the archives, maybe they aren't.

As you may recall we discovered that, in fact, we are most fortunate to have

oniasbu as last year about this same time for some reason the first thousand or

so posts to the archives of began disappearing. With the normal

high volume of posting that might have meant the destruction of hundreds of

foundational posts would be gone forever.

I remember we thought eventually all would be lost if we didn't migrate to a

new II list. Had it not been for oniasbu saving the day lots of

vital information would have been lost.

[Guest guest]

I think that we need to look past the desire to have a searchable

archive or a n archive3 that has a web-based backup to consider what

it might mean for some individuals on this list -- and there are

6022 of them last time I checked -- to have their emails to this

list posted on the internet on an external site that is entirely

public.

I'm sure that we are all very much aware that the issue of

biomedical treatment of autism -- and particularly that of

chelation -- is highly politicized. Posts to email lists -- if

gotten into the wrong hands -- can have far-reaching ramifications -

legal, monetary, and more. Think of all the struggles for health

care coverage or educational services. Think about the terrible

custody cases, jobs that have been lost. You really don't know what

use the public display of these emails could be put to. By having

them copied to the Onibasu website you are making them entirely

public as opposed to partially so. This is why Onibasu HAS to copy

the emails onto their site -- they can't search them if they remain

within the system.

I think this is a VERY IMPORTANT issue, and if this list does opt to

have the email archives copied onto the Onibasu website so that they

are rendered searchable with a powerful search engine, this fact --

and the ramifications of this fact -- should be made EXTREMELY clear

to everyone who posts on this list.

Yes, I see that one of the literally thousands upon thousands of my

emails sent to lists over the years does come up in

the Google search that Cheryl posted. I don't know why that is ,

and it is definitely disconcerting -- I will bring it up with the

list. But even more disconcerting is that every single one of my

emails to this list comes up on the Onibasu website.

Do you not see beyond my immedeiate concern for my own family's

privacy to the larger ramifications -- ramifications that could

seriously injure individuals who are members of this site? I ask

that everyone here please consider this before throwing out my

concerns. Lives could be ruined -- this really is no exaggeration.

Again, I am sorry to belabor this point, but I feel that I have no

other recourse but to do so.

Best,

Theresa

>

> The real issue I have is why the complainer decided to second-

guess their original judgement of making their child's private

medical information very public in the first place? And on top of

that actually post URLs directing lots of attention to the posts

they claim to be private and sensitive. Go figure that? I mean why

do this publically and not privately?

>

> At any rate, the people at oniasbu are undoubtedly under attack

for some reason. It's not clear that the complainer might be forcing

oniasbu to do something that might screw up the archives by re-

setting them. Maybe somebody is trying to destroy the archives,

maybe they aren't.

>

> As you may recall we discovered that, in fact, we are most

fortunate to have oniasbu as last year about this same time for some

reason the first thousand or so posts to the archives of Autism-

Mercury began disappearing. With the normal high volume of posting

that might have meant the destruction of hundreds of foundational

posts would be gone forever.

>

> I remember we thought eventually all would be lost if we didn't

migrate to a new II list. Had it not been for oniasbu

saving the day lots of vital information would have been lost.

>

>

>

>

>

[Guest guest]

Did it occur to you that you're the only one of 6022 members to ever

complain?

And how much logic does it take to figure out from the home page that

if the ENTIRE message archive is at " Onibasu " : that would include ANY

message posted ? Doesnt ENTIRE mean ALL ? Add that to the NUMEROUS

times people have directed others to the archive at " Onibasu " ....it's a

given !

ly you are worrying me that because of ONE persons mistake the

very valuable tool might be take away (and thats what i think it is,

your mistake that you feel you posted something you ought not have and

now want to blame someone else).

I rarely post here, i read daily and check the archive to find an

answer to something i need and The search engine within the group is

basically time comsuming and tedious. I for one have used the " outside "

seach numerous times to find specific information so i wouldnt have to

post something clogging up the list with things that have already been

discussed and it is very worrisome to think one person might change

that.....

I think others have said it better, but you basically shouldnt post

things you dont want others to know....anywhere on the net! especially

under a name that is identifiable to yourself. Trying to make a group

responsible for your actions is unreasonable imo and trying to make

that group change its policys for one person is also unreasonable.

Count me as one that hopes this group stays the same....

Cheryl

[Guest guest]

> Do you not see beyond my immedeiate concern for my own family's

> privacy to the larger ramifications -- ramifications that could

> seriously injure individuals who are members of this site? I ask

> that everyone here please consider this before throwing out my

> concerns. Lives could be ruined -- this really is no exaggeration.

Theresa,

I don't think you understand that whatever you post on the internet is

" searchable " . Whatever you post somewhere, privately or not, a powerful

enough search engine could find. This is the internet. Almost everything is

public. Even emails are not private anymore.

There is a good side to this though. You can take any identity you want, any

name... Did you ever consider just taking a different name (other than your

real one) if you don't want your privacy to be threatened? Take a new name,

take a different email address... something generic like hotmail... even

offers email addresses... You can make yourself anonymous pretty

easily.

Valentina

[Guest guest]

And you may have noted that Dana does not refer to her children by name but as

#1, #2, #3, and #4, probably for their privacy.

S S

<tt>

<BR>

> I am absolutely appalled to find that you have posted on your website my<BR>

> email posts to the list about my young daughter's<BR>

> neurological problems without asking for my permission.  This is simply<BR>

> inexcusable and is a clear violation of my young daughter's right to<BR>

> privacy.<BR>

<BR>

<BR>

You appear to be very concerned about your child's privacy.<BR>

<BR>

Autism-mercury list is a public list.  In fact, people can read the<BR>

messages without even joining the list.<BR>

<BR>

I would recommend you create a new ID that does not include your<BR>

full name.  That would help keep your information private.<BR>

<BR>

You can go to the a-m archives and delete your own messages, that<BR>

would also help.<BR>

<BR>

Dana<BR>

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

[Guest guest]

This group is public.

The purpose of this group is to discuss mercury and autism

issues, not debating about confidentiality issues involved in

participating in a public group.

Could you please go discuss this somewhere else, sorry to put it that

way, but I feel your messages are OT (off topic).

Thanks,

>

> I think that we need to look past the desire to have a searchable

> archive or a n archive3 that has a web-based backup to consider

what

> it might mean for some individuals on this list -- and there are

> 6022 of them last time I checked -- to have their emails to this

> list posted on the internet on an external site that is entirely

> public.

>

> I'm sure that we are all very much aware that the issue of

> biomedical treatment of autism -- and particularly that of

> chelation -- is highly politicized. Posts to email lists -- if

> gotten into the wrong hands -- can have far-reaching ramifications -

> legal, monetary, and more. Think of all the struggles for health

> care coverage or educational services. Think about the terrible

> custody cases, jobs that have been lost. You really don't know

what

> use the public display of these emails could be put to. By having

> them copied to the Onibasu website you are making them entirely

> public as opposed to partially so. This is why Onibasu HAS to copy

> the emails onto their site -- they can't search them if they remain

> within the system.

>

> I think this is a VERY IMPORTANT issue, and if this list does opt

to

> have the email archives copied onto the Onibasu website so that

they

> are rendered searchable with a powerful search engine, this fact --

> and the ramifications of this fact -- should be made EXTREMELY

clear

> to everyone who posts on this list.

>

> Yes, I see that one of the literally thousands upon thousands of my

> emails sent to lists over the years does come up in

> the Google search that Cheryl posted. I don't know why that is ,

> and it is definitely disconcerting -- I will bring it up with the

> list. But even more disconcerting is that every single one of my

> emails to this list comes up on the Onibasu website.

>

> Do you not see beyond my immedeiate concern for my own family's

> privacy to the larger ramifications -- ramifications that could

> seriously injure individuals who are members of this site? I ask

> that everyone here please consider this before throwing out my

> concerns. Lives could be ruined -- this really is no exaggeration.

>

> Again, I am sorry to belabor this point, but I feel that I have no

> other recourse but to do so.

>

> Best,

> Theresa

[Guest guest]

If this worries you, set up a hotmail account and use an alias or

nickname (as many members do anyway)

Personally I couldn't care less who reads my postings here (except

maybe a couple in which I made a fool of myself)

I think people like Wakefield, Andy Cutler and the Geiers are

much more at risk of victimisation than A-M listmates.

Steve

[Guest guest]

Since when is the Internet ever been considered confidential. It is

common knowledge that it is not private. The 3rd graders I teach at

school even know this.

M

[ ] Re: Unauthorized quoting of my and

email on your website

Did it occur to you that you're the only one of 6022 members to ever

complain?

And how much logic does it take to figure out from the home page that

if the ENTIRE message archive is at " Onibasu " : that would include ANY

message posted ? Doesnt ENTIRE mean ALL ? Add that to the NUMEROUS

times people have directed others to the archive at " Onibasu " ....it's a

given !

ly you are worrying me that because of ONE persons mistake the

very valuable tool might be take away (and thats what i think it is,

your mistake that you feel you posted something you ought not have and

now want to blame someone else).

I rarely post here, i read daily and check the archive to find an

answer to something i need and The search engine within the group is

basically time comsuming and tedious. I for one have used the " outside "

seach numerous times to find specific information so i wouldnt have to

post something clogging up the list with things that have already been

discussed and it is very worrisome to think one person might change

that.....

I think others have said it better, but you basically shouldnt post

things you dont want others to know....anywhere on the net! especially

under a name that is identifiable to yourself. Trying to make a group

responsible for your actions is unreasonable imo and trying to make

that group change its policys for one person is also unreasonable.

Count me as one that hopes this group stays the same....

Cheryl

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