Guest guest Posted April 9, 2006 Report Share Posted April 9, 2006 Forrist, This issue came up before. Please tell us why each " study participant " required to pay for their NCD. It may ease the minds of some who are very sceptical of the marketing structure of this stuff. Also, please let us know why the patent that is so often referred to should be meaningful to us. Anne > > > Hello, > > www.AutismToday.com <http://www.AutismToday.com> , Health & Wellness > Research Institute and others are developing a series of clinical > studies on NCD Zeolite (the only ingrediant in Natural Cellular > Defense). Learn more at: www.ZeoliteAutismStudy.com > <http://www.ZeoliteAutismStudy.com> - become a free member to be > notified of details about the study and participation. > > The study is named, " A Clinical Study Evaluating the Use of the NCD > Zeolite™ in the Treatment of Autism Spectrum Disorder " and will be > overseen by an Investigational Review Board (IRB). > > Objective: The study objective is to test the safety, tolerance, and > efficacy of NCD Zeolite™ on various behaviors demonstrated by > subjects with autism spectrum disorders. The subject populations to be > studied will include those subjects with a diagnosis of Autism, Asperger > Syndrome, PDD-NOS, Landau-Kleffner Syndrome, Rett's Disorder, Fragile X > Syndrome and others with similar conditions. > > Background: Zeolites are a family of minerals and related minerals. They > are hydrated aluminosilicates of the alkaline and alkaline-earth metals. > About 40 natural zeolites have been identified during the past 200 > years. Technically, zeolites are framework silicates with exchangeable > cations that form in complex quaternary structures. They have 4-, 5-, > and 6-sided cavities that hold cations and anions. These zeolitic > channels (or pores) are microscopically small and have molecular size > dimensions such that they are often termed " molecular sieves. " > > NCD Zeolite™ is a purified type of zeolite suspended in solution, > and is amphoteric - viable in an acid or base solution. Being an inert > substance, it does not degrade or change its chemistry by reacting with > the cations it adsorbs. It has been shown that metal oxides and salts > can disperse spontaneously to the surface and pores of zeolites. This > zeolite is specifically formulated to be charge and reaction specific in > a " specific reactivity series, " meaning there are a low affinity for > calcium, magnesium, potassium, etc. and a high affinity for lead, > mercury, arsenic, and cadmium. > > Study design: This will be a 180 day non-randomized study of subjects > suffering from autism spectrum disorders with an age range of birth > through twenty-one. The effectiveness of NCD Zeolite™ in reducing > the speech, language, sociability, sensory and cognitive awareness, and > physical behaviors as measured by either the Aberrant Behavior Checklist > (ABC) or the Autism Treatment Evaluation Checklist (ATEC) -see > www.usautism.org <http://www.usautism.org> & > www.autismeval.com/ari-atec/ <http://www.autismeval.com/ari-atec/> > > For more information or to learn how you may support this important > research, or how your child may participate, visit > www.ZeoliteAutismStudy.com <http://www.ZeoliteAutismStudy.com> and sign > up to become a free member. > > To purchase NCD, visit: www.Zeolitesource.com > <http://www.Zeolitesource.com> > > The first study is being planned to commence by the end of May. > > I am the coordinator of these studies for www.autismtoday.com > <http://www.autismtoday.com> & HWRI. You may reach me for private > questions at: coordinator (at) ZeoliteAutismStudy.com > > Warmly, > > Forrist Lytehaause > www.ZeoliteAutismStudy.com <http://www.ZeoliteAutismStudy.com> > Study Coordinator > Health & Wellness Research Institute > Portland, OR > (503)675-7684 > > Additional note: NCD Zeolite aka " Natural Cellular Defense " is > available now and sold via a network marketing system. Call > (800)460-1882 to purchase single bottles - or go to > www.ZeoliteSource.com <http://www.ZeoliteSource.com> to purchase in > groups of 4 as it is normally sold. > > Vist www.ZeoliteAutismStudy.com <http://www.ZeoliteAutismStudy.com> to > read existing studies, listen to Dr. Prociuk, a DAN MD describe how 75% > of the ASD patients he has started in NCD have received rapid and > significant improvements within weeks, and 10% of the patients have > " home-run " success. ie. they are no longer on the ASD specturm as > evaluated by all normal criteria. This is a very safe product with wide > ranging positive results. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2006 Report Share Posted April 9, 2006 Anne, Thank you for these questions. The reason the participant has to pay for their own NCD is simply budget. These set of studies are not being organized by the company. The sponsor, Health & Wellness Research Institute, is a small non-profit organized to do these studies and more like them once these are complete. The company does have it's own series of studies that it is funding but they are not focussed on autism. They just finished one with Duke University that is to be published in a peer-reviewed journal in June, so I'm told. The focus of that study was to prove that NCD Zeolite is indeed pulling heavy metals from the body and which ones. They looked at coal miners and 6 average men. I also know they have 6 more studies under way but I don't expect to see the results from them for over 1 yr. Because of my personal relationship with of Autismtoday, I learned of the powerful effect NCD was having with ASD, ADD/ADHA,MS,C , diabetes, and other issues. My background includes having put together a clinical study for an expensive pulsed magnetic healing device a number of years ago. Since this study is not being funded by the company, I with a few of my associates in support decided to under take this project primarily on my own. I've been involved with alternative medicine avocationally for 25 yrs. I co-produced a TV series on a mind-body-spirit approach to cancer 20 years ago. So in short, there is no budget to cover the costs of the product for the participant. Same as no budget to cover me (btw, I've been involved with this product since Dec and I've received 1 check for $148, not even equal to 1 hour of my business management consulting rate.) Fortunately, I have another source of income, and so the few funds required in addition to my time and the project is being supported by a few volunteers. (We are always looking for more...( grin ) ) My hope is that at some point when we have enough data assembled, we will offer a full funded study. My estimate is that it will cost about $75,000. This will cover only 50 participants receiving NCD and 50 receiving a placebo, and all the costs surrounding the study. It will be done with the intention of publishing the study in a peer-reviewed journal and probably take a couple years from start to publication. If you or anyone reading this has a wealthy friend who might be interested in supporting a worthy cause, please send them my way. I'd love to talk with them. In the meantime, I keep working with the resources at hand. In the meantime, for those who want to try NCD before waiting for the studies, this is a way they can do so and get specific data about the changes occuring in their child and help the wider autistic community by their sacrafice of time and energy. (There should be no additional cost if they were going to try NCD anyway.) The reason the patent is referred to for at least a couple reasons: o it is extremely rare to have a health product that is patented to perform a function such as heal cancer, and not have that product owned by a pharmecuetical company. o in the patent, it discusses the removal of heavy metals & the interference of a viruses ability to replicate o this product isn't something someone just thought up. There have been many years of research and testing to develop it. It is true the patent says nothing about asd or the like. The effects there were only discovered after the product was released and parents started reporting the results they were witnessing. Warmly, Forrist > > > > > > Hello, > > > > Additional note: NCD Zeolite aka " Natural Cellular Defense " is > > available now and sold via a network marketing system. Call > > (800)460-1882 to purchase single bottles - or go to > > www.ZeoliteSource.com <http://www.ZeoliteSource.com> to purchase > in > > groups of 4 as it is normally sold. > > > > Vist www.ZeoliteAutismStudy.com > <http://www.ZeoliteAutismStudy.com> to > > read existing studies, listen to Dr. Prociuk, a DAN MD describe > how 75% > > of the ASD patients he has started in NCD have received rapid and > > significant improvements within weeks, and 10% of the patients > have > > " home-run " success. ie. they are no longer on the ASD specturm as > > evaluated by all normal criteria. This is a very safe product > with wide > > ranging positive results. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2006 Report Share Posted April 9, 2006 I tried to watch the video of the DAN doctor that you gave a link to, but I got " You are not authorized to view this resource. " I have had bad experiences with other companies who require registration - it is a common method used by people to turn around and advertise (not implying this is the method of your fine site). If the product is as good as is claimed, I'm sure I will hear of it again. No doubt it does something. Even cilantro does something. Mark > > > > > > > > > Hello, > > > > > > Additional note: NCD Zeolite aka " Natural Cellular Defense " is > > > available now and sold via a network marketing system. Call > > > (800)460-1882 to purchase single bottles - or go to > > > www.ZeoliteSource.com <http://www.ZeoliteSource.com> to purchase > > in > > > groups of 4 as it is normally sold. > > > > > > Vist www.ZeoliteAutismStudy.com > > <http://www.ZeoliteAutismStudy.com> to > > > read existing studies, listen to Dr. Prociuk, a DAN MD describe > > how 75% > > > of the ASD patients he has started in NCD have received rapid and > > > significant improvements within weeks, and 10% of the patients > > have > > > " home-run " success. ie. they are no longer on the ASD specturm as > > > evaluated by all normal criteria. This is a very safe product > > with wide > > > ranging positive results. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2006 Report Share Posted April 9, 2006 Mark, I want to re-assure you that your email address wont be shared with anyone nor used for any reason except to occasionally notify you of activities with www.ZeoliteAutismStudy.com <http://www.ZeoliteAutismStudy.com> - And each of those notifications will offer the opportunity to unsubscribe. It is true, that the audios are currently restricted to those who are willing to complete the free registration. Forrist > > > > > > > > > > > > Hello, > > > > > > > > Additional note: NCD Zeolite aka " Natural Cellular Defense " is > > > > available now and sold via a network marketing system. Call > > > > (800)460-1882 to purchase single bottles - or go to > > > > www.ZeoliteSource.com <http://www.ZeoliteSource.com> to purchase > > > in > > > > groups of 4 as it is normally sold. > > > > > > > > Vist www.ZeoliteAutismStudy.com > > > <http://www.ZeoliteAutismStudy.com> to > > > > read existing studies, listen to Dr. Prociuk, a DAN MD describe > > > how 75% > > > > of the ASD patients he has started in NCD have received rapid and > > > > significant improvements within weeks, and 10% of the patients > > > have > > > > " home-run " success. ie. they are no longer on the ASD specturm as > > > > evaluated by all normal criteria. This is a very safe product > > > with wide > > > > ranging positive results. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 > > Forrist, > > Specifically, > Enzymatic Therapy comes to mind. You can read about the studies > that were done on their Virastop Enzyme at Seroussi's website > www.enzymestuff.com. > Anne > Anne, enzymestuff is Defelice's site, and the company is Enzymedica. :-) I agree with you; the product could be donated for studies. It only seems fair. have a good day René Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 ANNE, I totally agree that any study should be undertaken without expense to any of the testees. Only willing parties should be used . You would think that any study that has the person testing the product, buy it might be subject to ridicule down the road if the test were of a positive nature. Do not think for one minute that my relating the results of my use of NCD are anything but that. But, you must at least give the respect that I am trying to relate my own experience for that is the most I have. Hopefully, if NCD is the product that it has claimed to be it will get into the right hands for the proper use. I myself am a skeptic at heart and will remain so. I also will continue to use NCD, for I believe , with all honesty that it has helped me. As far as me needing a nice polished website to speak for me, I need it not. I will go to people that I believe might be interested enough to look for themselves. AS far as trust goes, obviously I do not expect any of you to trust me at this point, for I have not earned that trust. I also do not expect anyone to go into something blindly. I assure you I am not taking NCD blindly, I have done my research and have found, on my part at least, that it is worth a try. with utmost sincerity, bill wellkeyone@... mywaiora.com/932231 anneecbrynn <abrynn@...> wrote: Forrist, There are a number of reputable companies that have donated product for informal studies like you describe below. Specifically, Enzymatic Therapy comes to mind. You can read about the studies that were done on their Virastop Enzyme at Seroussi's website www.enzymestuff.com. If the company that produces NCD has truly grown 1000% since August as you describe in another email, and if people like you and Bill are here marketing NCD to this population, I would think it would have the resources to contribute product (with no strings attached) to allow it to be tested. Just my .02. Anne > > > > > > > > > Hello, > > > > > > Additional note: NCD Zeolite aka " Natural Cellular Defense " is > > > available now and sold via a network marketing system. Call > > > (800)460-1882 to purchase single bottles - or go to > > > www.ZeoliteSource.com to purchase > > in > > > groups of 4 as it is normally sold. > > > > > > Vist www.ZeoliteAutismStudy.com > > to > > > read existing studies, listen to Dr. Prociuk, a DAN MD describe > > how 75% > > > of the ASD patients he has started in NCD have received rapid and > > > significant improvements within weeks, and 10% of the patients > > have > > > " home-run " success. ie. they are no longer on the ASD specturm as > > > evaluated by all normal criteria. This is a very safe product > > with wide > > > ranging positive results. > > > > ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 > > > Anne, enzymestuff is Defelice's site, and the company is > Enzymedica. :-) > > I agree with you; the product could be donated for studies. It only > seems fair. > > have a good day > René > Hello Rene, It would be wonderful if the product could be donated but since the company is not funding the study, they will not donate it. Therefore, the challenge then is who would purchase the product to donate it to the participants? Forrist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 I never heard of a study, which is sometimes, more often than not, experimental, that made the patient pay for the product. Most normally the person/institution conducting the study/experiment provides the product. [ ] Re: FORRIST / NCD Zeolite > > > Anne, enzymestuff is Defelice's site, and the company is > Enzymedica. :-) > > I agree with you; the product could be donated for studies. It only > seems fair. > > have a good day > René > Hello Rene, It would be wonderful if the product could be donated but since the company is not funding the study, they will not donate it. Therefore, the challenge then is who would purchase the product to donate it to the participants? Forrist ======================================================= Quote Link to comment Share on other sites More sharing options...
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