Re: We have empathy!!! how important is it??

[Guest guest]

Kerrie,

Have you added folic or folinic acid in with the MB12 doses. I ask bacause the

same

thing happened when I first started it w/ my two ASD kids and they are calm

again.

Also sometimes I find depending on the child, you may need to back off on the

shots

or the dosage until you find their threshold-then stay at that dose for a while.

Sorry for your sleep deprivation- I know how hard that can be : (

>

> I lost it today. Totally flipped out on . Three nights in a row now he's

> been up from 2am to 6am, sleeping until 7:30am and luckily he's up and happy

> and goes to school.

>

> Since starting MB12 (just had #17 on Tues) his stimming is way up

> particularly verbal. is setting a world record in it. Sometimes its a

phrase

> sometimes its nonsense sounds, but the same nonsense sound over and over for

> hours!! My husband and I are the brink of insanity and actually fight over

who has

> to stay in the room with him because neither can take it anymore.

>

> I felt like crap today and just wanted to sleep but I promised my sister in

> law I'd go to Babies R Us and register with her. What a mistake. I came home

> with a splitting headache and ready to pass out. I had to pick him up from

> school an hour later.

>

> Not an hour after we get home he's full force stimming, not responding when

> I ask him to stop and not responding to questions I ask trying to distract

> him. I flipped. I screamed at the top of my lungs and just started crying. I

> put my hands over my face and just cried. walks over and he starts

crying

> too. He pulled my hands way, wiped my face and kissed me. He stood there

> staring at me and it was one of those awkward moments where someone should

say

> something, and he did, he said something. He said

>

> " Thank you for coming. "

>

> AWWWW...poor kid. He knew he had to say something and probably didn't know

> what to say. Why he said that is beyond me but he broke my heart.

>

>

> Just how big is empathy when a child carries a diagnosis of PDD-NOS?? Is

> this something to jump up and down over or should I be doing back flips while

I

> scream it from the roof tops??

>

> Kerrie

>

>

>

[Guest guest]

This is big IMO! Sorry it took all the frustration to get to it. Try adding

folic acid and/or back off or stop the MB-12.

S S

walks over and he starts crying <BR>

too. He pulled my hands way,  wiped my face and kissed me. He stood there <BR>

staring at me and it was one of  those awkward moments where someone should say

<BR>

something, and he did, he said  something. He said<BR>

<BR>

" Thank you for coming. " <BR>

<BR>

AWWWW...poor kid. He  knew he had to say something and probably didn't know <BR>

what to say. Why he said  that is beyond me but he broke my heart. <BR>

<BR>

<BR>

Just how big is empathy when a child carries a diagnosis of PDD-NOS??   Is <BR>

this something to jump up and down over or should I be doing back flips while  I

<BR>

scream it from the roof tops??<BR>

<BR>

Kerrie<BR>

<BR>

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[Guest guest]

Kerrie -

You story soo warmed my heart. Empathy is HUGE! And, his reponse

shows his strong attachment and connection to you, which is also

huge.

We do floortime and progress is broken downinto developmental

levels. Empathy is one of the higher levels and is definitely to be

celebrated.

And, we've all had those exhausted days when we have no patience, no

ability to work it out. How amazing that your son is the one to

provide you with comfort. That's the stuff of strong relationships.

Ruth

>

> I lost it today. Totally flipped out on . Three nights in a

row now he's

> been up from 2am to 6am, sleeping until 7:30am and luckily he's

up and happy

> and goes to school.

>

> Since starting MB12 (just had #17 on Tues) his stimming is way up

> particularly verbal. is setting a world record in it.

Sometimes its a phrase

> sometimes its nonsense sounds, but the same nonsense sound over

and over for

> hours!! My husband and I are the brink of insanity and actually

fight over who has

> to stay in the room with him because neither can take it anymore.

>

> I felt like crap today and just wanted to sleep but I promised my

sister in

> law I'd go to Babies R Us and register with her. What a mistake.

I came home

> with a splitting headache and ready to pass out. I had to pick

him up from

> school an hour later.

>

> Not an hour after we get home he's full force stimming, not

responding when

> I ask him to stop and not responding to questions I ask trying to

distract

> him. I flipped. I screamed at the top of my lungs and just

started crying. I

> put my hands over my face and just cried. walks over and he

starts crying

> too. He pulled my hands way, wiped my face and kissed me. He

stood there

> staring at me and it was one of those awkward moments where

someone should say

> something, and he did, he said something. He said

>

> " Thank you for coming. "

>

> AWWWW...poor kid. He knew he had to say something and probably

didn't know

> what to say. Why he said that is beyond me but he broke my heart.

>

>

> Just how big is empathy when a child carries a diagnosis of PDD-

NOS?? Is

> this something to jump up and down over or should I be doing back

flips while I

> scream it from the roof tops??

>

> Kerrie

>

>

>

[Guest guest]

> Since starting MB12 (just had #17 on Tues) his stimming is way up

> particularly verbal.

mB12 caused major issues, including hyper and sleep issues, for my

kids until I reduced the dose and added folic acid.

It also caused scripting/echolalia until I added TMG and increased the

yeast protocol.

> Just how big is empathy when a child carries a diagnosis of PDD-NOS??

My son has a dx of " classic Kanner's autism " , severe, low functioning,

and I was truly amazed the first time he went over to a crying child

and said " baby okay? " He got very upset until I told him " yes, baby

is okay " .

I think it is a very good sign, but you need to remove the negative

effects of the mB12 by adding folic acid and increasing your yeast

protocol. TMG sometimes helps, sometimes not, but those other two are

usually required, based on other messages I have read by other parents

who had problems with mB12.

Dana

[Guest guest]

Utterly, perfectly exquisite. Bravo, .

René

>

> walks over and he starts crying

> too. He pulled my hands way, wiped my face and kissed me. He stood

there

> staring at me and it was one of those awkward moments where someone

should say

> something, and he did, he said something. He said

>

> " Thank you for coming. "

>

[Guest guest]

Empathy.

This is VERY good.

My son used to have none of that a few years ago. If he did, he wasn't showing

any.

Now... he cannot watch a movie without crying It is very annoying

> Since starting MB12 (just had #17 on Tues) his stimming is way up

> particularly verbal. is setting a world record in it.

What does " #17 " mean?

If he had B12 deficiency, lots of things in his body are changing now. So maybe

give it

a little more time?

My son had a " weird " reaction to B12 too, but I lowered the dose and things

normalized.

As a person who used to be echolalic and so understands the need for it, I would

say

that rather than fight it, work with him... maybe echo the words with him for a

while,

see what he does... maybe try to make games, rhymes, new words, see what he

does...

Just an idea...

I don't know though why echolalia happens, but if your son has problems

speaking, I

personally wouldn't stop it. (It feels bad enough to NEED to echo and repeat

words over

and over again. When you are forced to stop, it feels worse.)

Are you also giving folic acid, B6? how much? Did he have a negative reaction

to other

supplements?

Valentina

[Guest guest]

> Just how big is empathy when a child carries a diagnosis of PDD-NOS??

HUGE. Sorry you've been haivng such a crummy time of it, but that is

HUGE. Hooray!

Nell

[Guest guest]

I assumed that #17 meant the seventh shoot of MB12.

S S

> Since starting MB12 (just had #17 on Tues) his stimming is  way up<BR>

> particularly verbal. is setting a world record in it.<BR>

<BR>

What does " #17 " mean?<BR>

If he had B12 deficiency, lots of things in his body are changing now. So maybe

give it<BR>

a little more time?<BR>

My son had a " weird " reaction to B12 too, but I lowered the dose and things

normalized.<BR>

<BR>

Valentina<BR>

</tt>

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[Guest guest]

In a message dated 1/13/2006 9:10:14 PM Eastern Standard Time,

_Shepard@... writes:

I assumed that #17 meant the seventh shoot of MB12.

S S

Yes, it was his 17th shot of mb12