Re: Bored to death with MB12-It just does not work for us

[Guest guest]

Hi -

MB12 did not work for us either. We never did shots but when I brought

this up to my DAN doctor he told me it is not for every child. Some

children will benefit while others do not need it.

We have seen great gains with TD-DMPS. We just started NDF Plus also

and that seems promising.

Once again seems like every child has different puzzle pieces missing.

I guess its up to us parents to find those pieces:)

Jeannine

>

> Dear listmates,

>

> MB12 has been one of the most frustating treatments for us. Shots or

> spray, dose increase or decrease and frequency --whatever variable you

> may think of, we have tried. I am about to let this one go, after a

> year and a half. To me the question here is " The fact that MB12 does

> not seem to do anything for him (one way or the way), what does it

> tell me about my son?

>

> I welcome any theories or experiencies here.

>

>

[Guest guest]

,

Have you ever stopped for a week or two and tried it again?? I have read

reports that once a parent stopped MB12 for a while and reintroduced it....

they saw gains. Can I ask what dose, strength and volume you have been

using and your child's weight. IE: My son is 60 lbs. He is taking 0.08ml

from a 25 mg/ml through Hopewell. My doctor originally ordered the wrong

volume 12.5 mg/ml and it wasn't enough.

Just a thought.

Jackie---

> MB12 has been one of the most frustating treatments for us. Shots or

> spray, dose increase or decrease and frequency --whatever variable you

> may think of, we have tried. I am about to let this one go, after a

> year and a half. To me the question here is " The fact that MB12 does

> not seem to do anything for him (one way or the way), what does it

> tell me about my son?

>

> I welcome any theories or experiencies here.

>

[Guest guest]

hello,

My name is i have a 3 year old beautiful little girl, who

has autism. I have tried everything. I also give my daughter MB12 shots, along

with many vitamins.

I took her to the Pfeiffer treatment center in Warrenville, IL. There is where

they gave me the MB12 shots. she has made a great inprovment in the last 3 mons.

Before i took her there she had done 28 treatments of a hyperbaric chamber.

There she was placed in a chamber for 2 hours a day for 28 days, i seen great

improvment. She also went to Kaufman Children's Center, for speech and Language

evaluation. I feel that everything all together is what has helped her, not just

the shots.

just a little something

stephanie

Jackie Hines <jhines@...> wrote:

,

Have you ever stopped for a week or two and tried it again?? I have read

reports that once a parent stopped MB12 for a while and reintroduced it....

they saw gains. Can I ask what dose, strength and volume you have been

using and your child's weight. IE: My son is 60 lbs. He is taking 0.08ml

from a 25 mg/ml through Hopewell. My doctor originally ordered the wrong

volume 12.5 mg/ml and it wasn't enough.

Just a thought.

Jackie---

> MB12 has been one of the most frustating treatments for us. Shots or

> spray, dose increase or decrease and frequency --whatever variable you

> may think of, we have tried. I am about to let this one go, after a

> year and a half. To me the question here is " The fact that MB12 does

> not seem to do anything for him (one way or the way), what does it

> tell me about my son?

>

> I welcome any theories or experiencies here.

>

=======================================================

[Guest guest]

While it is true that not everybody *needs* supplemental methylB12, I still

think you should see *something* from using it in high doses (especially when

you don't need it). Did you give folic acid at the same time?

Valentina

>

> MB12 has been one of the most frustating treatments for us. Shots or

> spray, dose increase or decrease and frequency --whatever variable you

> may think of, we have tried. I am about to let this one go, after a

> year and a half. To me the question here is " The fact that MB12 does

> not seem to do anything for him (one way or the way), what does it

> tell me about my son?

>

> I welcome any theories or experiencies here.

>

[Guest guest]

We do 0.05 from a 25 mg/ml through Hopewell as well. My son is about

35 pounds.

>

> ,

> Have you ever stopped for a week or two and tried it again?? I have

read

> reports that once a parent stopped MB12 for a while and reintroduced

it....

> they saw gains. Can I ask what dose, strength and volume you have been

> using and your child's weight. IE: My son is 60 lbs. He is taking

0.08ml

> from a 25 mg/ml through Hopewell. My doctor originally ordered the

wrong

> volume 12.5 mg/ml and it wasn't enough.

>

> Just a thought.

> Jackie---

>

> > MB12 has been one of the most frustating treatments for us. Shots or

> > spray, dose increase or decrease and frequency --whatever variable you

> > may think of, we have tried. I am about to let this one go, after a

> > year and a half. To me the question here is " The fact that MB12 does

> > not seem to do anything for him (one way or the way), what does it

> > tell me about my son?

> >

> > I welcome any theories or experiencies here.

> >

>

[Guest guest]

We did folinic for a while and then switched to the activated form of

folate (Folapro) 800 mcg a day. When he was doing folinic he was

placed in a very high dose 4800 mcg. We stopped this high dose months

ago as we did not see any benefit from it, and my son's glutamate

levels were high.

>

> While it is true that not everybody *needs* supplemental methylB12,

I still

> think you should see *something* from using it in high doses

(especially when

> you don't need it). Did you give folic acid at the same time?

>

>

>

> Valentina

>

>

>

> >

> > MB12 has been one of the most frustating treatments for us. Shots or

> > spray, dose increase or decrease and frequency --whatever variable you

> > may think of, we have tried. I am about to let this one go, after a

> > year and a half. To me the question here is " The fact that MB12 does

> > not seem to do anything for him (one way or the way), what does it

> > tell me about my son?

> >

> > I welcome any theories or experiencies here.

> >

>

[Guest guest]

I also do the same amount with my daughter from hopewell also. she has been on

it for almost 3 mons, i have seen great improvment. she is also about 32lb.

stephanie

Park <nospam@...> wrote:

We do 0.05 from a 25 mg/ml through Hopewell as well. My son is about

35 pounds.

>

> ,

> Have you ever stopped for a week or two and tried it again?? I have

read

> reports that once a parent stopped MB12 for a while and reintroduced

it....

> they saw gains. Can I ask what dose, strength and volume you have been

> using and your child's weight. IE: My son is 60 lbs. He is taking

0.08ml

> from a 25 mg/ml through Hopewell. My doctor originally ordered the

wrong

> volume 12.5 mg/ml and it wasn't enough.

>

> Just a thought.

> Jackie---

>

> > MB12 has been one of the most frustating treatments for us. Shots or

> > spray, dose increase or decrease and frequency --whatever variable you

> > may think of, we have tried. I am about to let this one go, after a

> > year and a half. To me the question here is " The fact that MB12 does

> > not seem to do anything for him (one way or the way), what does it

> > tell me about my son?

> >

> > I welcome any theories or experiencies here.

> >

>

=======================================================

[Guest guest]

I also do the same amount with my daughter from hopewell also. she has been on

it for almost 3 mons, i have seen great improvment. she is also about 32lb.

stephanie

Park <nospam@...> wrote:

We do 0.05 from a 25 mg/ml through Hopewell as well. My son is about

35 pounds.

>

> ,

> Have you ever stopped for a week or two and tried it again?? I have

read

> reports that once a parent stopped MB12 for a while and reintroduced

it....

> they saw gains. Can I ask what dose, strength and volume you have been

> using and your child's weight. IE: My son is 60 lbs. He is taking

0.08ml

> from a 25 mg/ml through Hopewell. My doctor originally ordered the

wrong

> volume 12.5 mg/ml and it wasn't enough.

>

> Just a thought.

> Jackie---

>

> > MB12 has been one of the most frustating treatments for us. Shots or

> > spray, dose increase or decrease and frequency --whatever variable you

> > may think of, we have tried. I am about to let this one go, after a

> > year and a half. To me the question here is " The fact that MB12 does

> > not seem to do anything for him (one way or the way), what does it

> > tell me about my son?

> >

> > I welcome any theories or experiencies here.

> >

>

=======================================================

[Guest guest]

I also do the same amount with my daughter from hopewell also. she has been on

it for almost 3 mons, i have seen great improvment. she is also about 32lb.

stephanie

Park <nospam@...> wrote:

We do 0.05 from a 25 mg/ml through Hopewell as well. My son is about

35 pounds.

>

> ,

> Have you ever stopped for a week or two and tried it again?? I have

read

> reports that once a parent stopped MB12 for a while and reintroduced

it....

> they saw gains. Can I ask what dose, strength and volume you have been

> using and your child's weight. IE: My son is 60 lbs. He is taking

0.08ml

> from a 25 mg/ml through Hopewell. My doctor originally ordered the

wrong

> volume 12.5 mg/ml and it wasn't enough.

>

> Just a thought.

> Jackie---

>

> > MB12 has been one of the most frustating treatments for us. Shots or

> > spray, dose increase or decrease and frequency --whatever variable you

> > may think of, we have tried. I am about to let this one go, after a

> > year and a half. To me the question here is " The fact that MB12 does

> > not seem to do anything for him (one way or the way), what does it

> > tell me about my son?

> >

> > I welcome any theories or experiencies here.

> >

>

=======================================================

[Guest guest]

I also do the same amount with my daughter from hopewell also. she has been on

it for almost 3 mons, i have seen great improvment. she is also about 32lb.

stephanie

Park <nospam@...> wrote:

We do 0.05 from a 25 mg/ml through Hopewell as well. My son is about

35 pounds.

>

> ,

> Have you ever stopped for a week or two and tried it again?? I have

read

> reports that once a parent stopped MB12 for a while and reintroduced

it....

> they saw gains. Can I ask what dose, strength and volume you have been

> using and your child's weight. IE: My son is 60 lbs. He is taking

0.08ml

> from a 25 mg/ml through Hopewell. My doctor originally ordered the

wrong

> volume 12.5 mg/ml and it wasn't enough.

>

> Just a thought.

> Jackie---

>

> > MB12 has been one of the most frustating treatments for us. Shots or

> > spray, dose increase or decrease and frequency --whatever variable you

> > may think of, we have tried. I am about to let this one go, after a

> > year and a half. To me the question here is " The fact that MB12 does

> > not seem to do anything for him (one way or the way), what does it

> > tell me about my son?

> >

> > I welcome any theories or experiencies here.

> >

>

=======================================================

[Guest guest]

I am thrilled that this is a treatment that works for your daughter.

Unfortunately, there is " zero " improvements here that can be related

or connected to MB12.

Thanks for sharing the good gains with me.

maria

> >

> > ,

> > Have you ever stopped for a week or two and tried it again?? I have

> read

> > reports that once a parent stopped MB12 for a while and reintroduced

> it....

> > they saw gains. Can I ask what dose, strength and volume you have

been

> > using and your child's weight. IE: My son is 60 lbs. He is taking

> 0.08ml

> > from a 25 mg/ml through Hopewell. My doctor originally ordered the

> wrong

> > volume 12.5 mg/ml and it wasn't enough.

> >

> > Just a thought.

> > Jackie---

> >

> > > MB12 has been one of the most frustating treatments for us. Shots or

> > > spray, dose increase or decrease and frequency --whatever

variable you

> > > may think of, we have tried. I am about to let this one go, after a

> > > year and a half. To me the question here is " The fact that MB12 does

> > > not seem to do anything for him (one way or the way), what does it

> > > tell me about my son?

> > >

> > > I welcome any theories or experiencies here.

> > >

> >

>

>

>

>

>

>

>

> =======================================================

>

[Guest guest]

maria,

not all of her improvment is from the MB12 shots. i have done lots of

stuff with her, even before i started the MB12 shot. everything i did from

changing the way she eats to the vitamins that she is on helped. i also did 28

treatments of a hyperbaric chamber with her. all of this i have done over about

a 10 mon time. she still is behind but getting much better than what she was a

year ago. if you want any information please feel free to let me know.

stephanie

Park <nospam@...> wrote:

I am thrilled that this is a treatment that works for your daughter.

Unfortunately, there is " zero " improvements here that can be related

or connected to MB12.

Thanks for sharing the good gains with me.

maria

> >

> > ,

> > Have you ever stopped for a week or two and tried it again?? I have

> read

> > reports that once a parent stopped MB12 for a while and reintroduced

> it....

> > they saw gains. Can I ask what dose, strength and volume you have

been

> > using and your child's weight. IE: My son is 60 lbs. He is taking

> 0.08ml

> > from a 25 mg/ml through Hopewell. My doctor originally ordered the

> wrong

> > volume 12.5 mg/ml and it wasn't enough.

> >

> > Just a thought.

> > Jackie---

> >

> > > MB12 has been one of the most frustating treatments for us. Shots or

> > > spray, dose increase or decrease and frequency --whatever

variable you

> > > may think of, we have tried. I am about to let this one go, after a

> > > year and a half. To me the question here is " The fact that MB12 does

> > > not seem to do anything for him (one way or the way), what does it

> > > tell me about my son?

> > >

> > > I welcome any theories or experiencies here.

> > >

> >

>

>

>

>

>

>

>

> =======================================================

>

[Guest guest]

I think MB12 is a very subtle thing that grows with time. We don't

necessarily see change when we give it to our 25-yr. old son, but he tells

me on his computer that he feels it " getting things started " in his body or

something to that effect. He doesn't like it when we miss a dose. This is

a young man who HATES needles but doesn't even blink when his dad gives him

the shot now.

We've been using the mb12 since last August and he is giving more attention

to things he never seemed to indicate any interest in before. (Maybe he

did, but now he's talking more about it.) He is more insistent on what he

wants and needs and has more energy. He's definitely coming out with more

speech--more original speech instead of echolalic stuff or the usual patter.

Every so often he'll surprise me with something, but I have to be watching

to catch it. So, we're definitely continuing . . .

Barb

Re: [ ] Bored to death with MB12-It just does not work

for us

> ,

> Have you ever stopped for a week or two and tried it again?? I have read

> reports that once a parent stopped MB12 for a while and reintroduced

> it....

> they saw gains. Can I ask what dose, strength and volume you have been

> using and your child's weight. IE: My son is 60 lbs. He is taking 0.08ml

> from a 25 mg/ml through Hopewell. My doctor originally ordered the wrong

> volume 12.5 mg/ml and it wasn't enough.

>

> Just a thought.

> Jackie---

>

>> MB12 has been one of the most frustating treatments for us. Shots or

>> spray, dose increase or decrease and frequency --whatever variable you

>> may think of, we have tried. I am about to let this one go, after a

>> year and a half. To me the question here is " The fact that MB12 does

>> not seem to do anything for him (one way or the way), what does it

>> tell me about my son?

>>

>> I welcome any theories or experiencies here.

>>

>

>

>

>

> =======================================================

>

[Guest guest]

I agree that these do sound like improvements coming from B12.

It's my impression that B12 would work on the brain more, it would help thinking

and learning and " feeling good " and calm.

(B12 definitely helps in other ways too, if it's needed)

Valentina

> I think MB12 is a very subtle thing that grows with time. We don't

> necessarily see change when we give it to our 25-yr. old son, but he tells

> me on his computer that he feels it " getting things started " in his body or

> something to that effect. He doesn't like it when we miss a dose. This is

> a young man who HATES needles but doesn't even blink when his dad gives him

> the shot now.

>

> We've been using the mb12 since last August and he is giving more attention

> to things he never seemed to indicate any interest in before. (Maybe he

> did, but now he's talking more about it.) He is more insistent on what he

> wants and needs and has more energy. He's definitely coming out with more

> speech--more original speech instead of echolalic stuff or the usual patter.

> Every so often he'll surprise me with something, but I have to be watching

> to catch it. So, we're definitely continuing . . .

>

> Barb

>

> Re: [ ] Bored to death with MB12-It just does not work

> for us

>

> > ,

> > Have you ever stopped for a week or two and tried it again?? I have read

> > reports that once a parent stopped MB12 for a while and reintroduced

> > it....

> > they saw gains. Can I ask what dose, strength and volume you have been

> > using and your child's weight. IE: My son is 60 lbs. He is taking 0.08ml

> > from a 25 mg/ml through Hopewell. My doctor originally ordered the wrong

> > volume 12.5 mg/ml and it wasn't enough.

> >

> > Just a thought.

> > Jackie---

> >

> >> MB12 has been one of the most frustating treatments for us. Shots or

> >> spray, dose increase or decrease and frequency --whatever variable you

> >> may think of, we have tried. I am about to let this one go, after a

> >> year and a half. To me the question here is " The fact that MB12 does

> >> not seem to do anything for him (one way or the way), what does it

> >> tell me about my son?

> >>

> >> I welcome any theories or experiencies here.

> >>

> >

> >

> >

> >

> > =======================================================

> >

[Guest guest]

I too have a 3 year old and am trying to do whatever I can to make

her better. We've just started with chelation w/ DMSA and have her

on a bunch of supps including B-12 shots. We've noticed some gains

but are unsure if any one thing is " the " cause. I think that it all

helps in some way. We've definately seen a difference after B-12

after just a few rounds (about 10 days now of consistently every 3

days). She's repeating words and using speech to communicate with

greater frequency and her energy is better.

I found great inspiration from danasview.net on B-12 testimonials

linking to Drneubrander.com. These parents used B-12 as the primary

form of treatment and it worked wonders for them. My daughter was

diagnosed as highly B-12 deficient, so I suspect that she'll respond

well to it both in short and long term.

It's not needed for everyone I'm sure. I think that after 1.5

years, you can give it up if you don't think it's making a

difference - at least you'll see if it made a difference if it's

missed once you stop.

> ,

> Have you ever stopped for a week or two and tried it again?? I

have read

> reports that once a parent stopped MB12 for a while and

reintroduced it....

> they saw gains. Can I ask what dose, strength and volume you have

been

> using and your child's weight. IE: My son is 60 lbs. He is

taking 0.08ml

> from a 25 mg/ml through Hopewell. My doctor originally ordered

the wrong

> volume 12.5 mg/ml and it wasn't enough.

>

> Just a thought.

> Jackie---

>

> > MB12 has been one of the most frustating treatments for us.

Shots or

> > spray, dose increase or decrease and frequency --whatever

variable you

> > may think of, we have tried. I am about to let this one go,

after a

> > year and a half. To me the question here is " The fact that MB12

does

> > not seem to do anything for him (one way or the way), what does

it

> > tell me about my son?

> >

> > I welcome any theories or experiencies here.

> >

>

>

>

>

> =======================================================

>

[Guest guest]

thats about where my daughter is at with the shots. i am to not sure what worked

because of all the other stuff i did. i do want to take her off them in about 2

years, then i will see how she does off them. they told me she would have to be

on them longer than that, but i am going to take her off after about 1 1/2 -2

years just to see how she does. your right not everything i have done or you

have done is for every child but i feel that my baby has gained from it.

stephanie

Loulourgas <mloulourgas@...> wrote:

I too have a 3 year old and am trying to do whatever I can to make

her better. We've just started with chelation w/ DMSA and have her

on a bunch of supps including B-12 shots. We've noticed some gains

but are unsure if any one thing is " the " cause. I think that it all

helps in some way. We've definately seen a difference after B-12

after just a few rounds (about 10 days now of consistently every 3

days). She's repeating words and using speech to communicate with

greater frequency and her energy is better.

I found great inspiration from danasview.net on B-12 testimonials

linking to Drneubrander.com. These parents used B-12 as the primary

form of treatment and it worked wonders for them. My daughter was

diagnosed as highly B-12 deficient, so I suspect that she'll respond

well to it both in short and long term.

It's not needed for everyone I'm sure. I think that after 1.5

years, you can give it up if you don't think it's making a

difference - at least you'll see if it made a difference if it's

missed once you stop.

> ,

> Have you ever stopped for a week or two and tried it again?? I

have read

> reports that once a parent stopped MB12 for a while and

reintroduced it....

> they saw gains. Can I ask what dose, strength and volume you have

been

> using and your child's weight. IE: My son is 60 lbs. He is

taking 0.08ml

> from a 25 mg/ml through Hopewell. My doctor originally ordered

the wrong

> volume 12.5 mg/ml and it wasn't enough.

>

> Just a thought.

> Jackie---

>

> > MB12 has been one of the most frustating treatments for us.

Shots or

> > spray, dose increase or decrease and frequency --whatever

variable you

> > may think of, we have tried. I am about to let this one go,

after a

> > year and a half. To me the question here is " The fact that MB12

does

> > not seem to do anything for him (one way or the way), what does

it

> > tell me about my son?

> >

> > I welcome any theories or experiencies here.

> >

>

>

>

>

> =======================================================

>

[Guest guest]

>

> Dear listmates,

>

> MB12 has been one of the most frustating treatments for us. Shots or

> spray, dose increase or decrease and frequency --whatever variable you

> may think of, we have tried. I am about to let this one go, after a

> year and a half. To me the question here is " The fact that MB12 does

> not seem to do anything for him (one way or the way), what does it

> tell me about my son?

Here is another angle.

My kids did not tolerate mB12 without folic acid. Plus, it did

increase yeast for them, so I had to increase their yeast protocol.

I really did not notice any real effect from it tho, until I added

anti-virals. NOW I notice if I don't give the B12 [i give very low

dose oral mB12, with folic acid], but it was not until I started the

anti-virals that I noticed the difference with the B12.

Dana