Guest guest Posted October 19, 2005 Report Share Posted October 19, 2005 Hi , No, I am not sure we have viral issues (i.e. have never done a titers check or anything), although I guess my assumption was that serious visual stim issues and no reaction to the high dose protocol (including no toxicity reaction) suggested a problem. I have not tried antivirals on my son yet (except Virastop a while ago - primarily for constipation - and we did see some lip sores, etc. with that), but we have seen nice things from LDN (including a reduction in the visual stims), whatever that indicates. Anne > > > > > > Hi Anne: > > > > > > I think you can do at anytime. No indicators that I know of as > to > > timing. We did the 500-1000 IU per lb, but deducted our intake of > A > > from clo after about 6 months of chelation. > > > > Why did you wait until after chelation to deduct the A from the > CLO? > > I'm not following you here. > > > > > > We got good improvement with the higher dose A. We kept it at > 1000 > > IU per lb for about 2 months. We are now at 500IU per lb for last > 4 > > months. Since this is higher than recommended dose of A, it is a > good > > idea to familarize yourself with the signs of vitamin A toxicity. > No > > long lasting ill effects from the toxicity, just stop if you get > to > > it. > > > > Did you drop down because you saw signs of toxicity? > > > > > > But, as I said, we are now high dose A for the last 3.5 months > and > > no sign of toxicity. One of the many reasons we believe we have > viral > > issues that will need addressed. I am tempted to get the dr to > write > > a script for some pharmaceutical antiviral, but will hold off for > a > > while longer to see if we can eradicate the viral stuff on our > own. > > Andy has said that most kids sort the viral issues out on their > own > > with chelation. > > > > > > Good luck Ann, > > > > > > > > > > Thanks . As always, much appreciated. > > > > Anne > > > [ ] Vitamin A / CLO/ Eye Stims/Chelation > > > > > > > > > At what point in the process have people found that attacking > eye > > > stim issues is most successful? I have made a good amount of > > > progress on this front in the last few months, to the point > where > > it > > > is manageable. I have also begun the 3/4 DMSA and ALA > protocol. > > > > > > After one round, we have decided to drop from 1/6 mg of > each /lb > > to > > > 1/8th mg of each/lb protocol. The change was not prompted by > > > anything really bad, my son was just a bit more > tantrummy/defiant > > > that I think should be the case. I think generally his tummy > > didn't > > > feel great (history of constipation on top of it all that I > had > > to > > > make sure we were working through during chelation). > > > > > > I want to keep going for three more rounds at the lower dose > and > > see > > > if I feel we need to do some liver testing, etc. Assuming I > keep > > to > > > that plan, I am trying to figure out when would be a good > time to > > > start working on the vision stuff from a high dose protocol > > > perspective? My son tolerates a lot of Vitamin A with no > signs > > of > > > toxicity. He can comfortably handle 3 tsp. NN CLO (should I > be > > > giving him this much? Seems to work for him.). Although I > did > > try > > > the Vit A protocol a while back with Thorne's Vit A palmitate > (my > > son > > > didn't react at all), I don't supplement with any other vit > A. > > Is > > > this something I should continue to work on now? Or hold off > > until I > > > am further along with chelation? > > > > > > If it looks like I am doing anything crazy here, feel free to > let > > me > > > know! > > > > > > Anne > > > > > > > > > > > > > > > > > > ======================================================= > > > Quote Link to comment Share on other sites More sharing options...
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