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Re: Nell/was: Re: Thank you everyone Was: leaving GFCF

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Yes, cheese is very constipating. We give it liberally on the rare occasions

ours gets diarrhea.

[ ] Re: Thank you everyone Was: leaving GFCF

Twice. Once while on the GFCF diet (2 months) and the other time

last year. I used the chewables the second time which he HATED

(very unusual for this kid to refuse supplements), so I didn't get

them in him all of the time. Probably can't count that effort.

I didn't notice any difference with HNI ZP and AFP-PEP while he was

on the diet, but I do occasionally think about giving them a third

try.

I love what DMSA is doing right now. GSE seems to have helped us

with the constipation, too. Ian was never an immediate reactor to

foods so it is hard to justify restricting his diet.

I DID take out cheese a few days ago. Ian was eating about 1.5 oz

cheese/day for the past 6 months. Perhaps that is constipating?

We'll see.

Thanks, .

pam

>

> <tt>

> I'm not trying to sway anybody's decision, but I can tell you our

<BR>

> decision to take Ian off of the GFCF diet had some murky results.

<BR>

> He was on the diet from 19-26 months of age. The diet seemed to

<BR>

> stop a downward spiral in to Autism. After some immediate <BR>

> improvements (fog lifting, red ring around anus disappearing) the

<BR>

> diet didn't seem beneficial.<BR>

> <BR>

> When Ian was 26 months old, two doctors told us Ian did not have

<BR>

> Autism but instead some weird DSM-IV Dx of Mixed Developmental <BR>

> Delay. One doc pretty much laughed us out of the clinic. Ian had

<BR>

> an ice cream cone that day and we never looked back.<BR>

> <BR>

> Over the next year, Ian very slowly developed social anxiety. His

<BR>

> receptive and expressive language lagged -2.2 Standard Deviations

<BR>

> below his peers. Eye contact was elusive. He just seemed to stop

<BR>

> his language and social development yet he remained a very happy

<BR>

> little boy. Friends and family stopped bending over backwards to

<BR>

> reassure me Ian didn't have Autism. <BR>

> <BR>

> Almost 1 year to the day of stopping GFCF, Ian was given the <BR>

> diagnosis of Autism. I often wonder " what if? " What if I had

kept <BR>

> him GFCF for a little bit longer. Would that have made the <BR>

> difference? Honestly, we'll never know.<BR>

> <BR>

> I never did put Ian back on the GFCF diet. He does eat mainly <BR>

> organic and hormone free foods. I've got him on a host of <BR>

> supplements and we are chelating with TD-DMSA. He is getting

better <BR>

> every day. I can sometimes see that little boy I had for 15

months <BR>

> again!<BR>

> <BR>

> The question about stopping the diet still bugs me. I guess I

would <BR>

> just advise you to really pay attention to the small changes (or

<BR>

> lack of changes) in your child over the next few months if you <BR>

> decide to stop GFCF.<BR>

> <BR>

> Good luck!<BR>

> <BR>

> Pam<BR>

>

>

> _______________________________________________

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