/was: 's privacy and DAN doctor's opinions

[Guest guest]

Thanks, . I think it is very educational to hear what you had to say - I

get a bit intimated by doctors, and that's something to overcome quickly as well

as learning my rights. This can be perhaps explained by the fact that I have

been born and raised in Hungary, which still struggles with democracy and human

rights, so patients rights, anyhow, got a lot of learning to do. Doctors do

whatever they please there, and patients, well, their rights don't amount to

much. My Mom, she is coming to visit me in a few days, is so mercury toxic, not

even funny (she still lives in Hungary) and is unable to get the doctors test

her for allergies...besides helping my son, I'd like to help her detox as well.

Anyhow, that's a different topic. Thanks for your input, again, I think many of

us need to hear it!

Cochran <Ladyshrink111@...> wrote:

IMO, is always a danger sign when any professional gets defensive or acts like

their feelings get hurt when you bring a question or raise another treatment

modality.

Informed consent is required of any professional with ANY medical treatment and

consists of formulating a treatment plan WITH the patient and answering any

questions a patient has (nondefensively) about differing treatments. They are

supposed to tell you about other treatments than they are offering that could

possibly help you.

When we told our dan! were were not going to do the diet after she lost language

and looked like death warmed over after three weeks, she launched into a

diatribe about how she was going to be the only queen in the kingdom, captain of

the ship, etc, etc.

I tried really hard not to laugh, but then caught a glimpse of my daughter

stifling a giggle, and it was all over. We were both laughing hysterically while

the dr was attempting to quickly herd us toward the exit of her office. We never

went back.

[ ] 's privacy and DAN doctor's opinions

I don't know if anyone thinks this is important but I just got this new

account from which I am writing from, set up to separate my asd-mercury related

emails from the other ones. I also set the account up in order to protect my

privacy a bit more. Here's why (and I am sure many of you have realized the

problems of displaying full name and so forth, but I am kind of new to this). So

let me share this with you, maybe others have something to share regarding these

issues.

I don't want to be identified by name for the following reasons:

I am not afraid to confront the DAN doctor I have been seeing with my son

and whom I have been referring to in some of my emails but I really want to

avoid conflics or burn my bridges, if possible at all. I talked to this doc

yesterday and she got pretty defensive about the information I told her I

learned about from this group... She said she does not read the postings here

any more, but is familiar with Andy Cuttler's protocol. She sounded a little bit

disappointed that I started reading/corresponding here saying " had you only

asked me I would have told you " . I responded to her that " the problem is you

don't know what kind of questions to ask antil you start reading up on

things " ...it sounded that she understood. And I really wasn't going to take up

the 8hr vs 4hr DMSA protocol with her in deapth - she still insisted that

there's no difference between the two schedules. I told her that I have had

concernes about things not going too well because of my son coming down with

colds each time I do a round - this is why we only got to round 9 in a year

and a half!!!! And I really haven't seen a breakthrough with my 4-year-old

either. Still non-verbal, autistic symptoms actually got worse (based on CARS

last year) and all this despite the 30 hour intensive ABA he is receiving per

week. Something's not right. Doc responded that she agrees and maybe my son is

not tolerating the DMSA itself, and should be tested for it (they do

muscletesting at their practice). Perhaps at our next visit we could test him,

I support it, but I told her I will try the 4 hour protocol on DMSA and see if I

see the same behaviors. She said it was fine with her.

Next, I wanted to have my son tested for cysteine plasma, and she

recommended to do Spectracell - I'll have a brochure in the mail soon about

this. Is anyone familiar with this test? I believe it is supposed to be looking

at nutritional issues on the cellular level. Does anyone know about this?

Also, I managed to talk her out of doing another challenge test for urine

and stool heavy metal analysis. I will be collecting these after we do a round

of chelation at the 4 hr schedule, the morning after. I don't know why but she

said she preferred the urine and stool test to the hair test - does anyone have

an opinion on this?

I really want to say that I like the work this particular doctor has done

for us in the past, for the most part, except the 8 hr protocol that she

endorses, and which may be the reason why my son has not been doing well with

the rounds and overall.

It's just that would be a pretty big concern to have if it turns out that it

was the 8 hr dosing that did much harm to my son.

But I want to be fair and say that the NAET based treatments have done many

good things for us, including myself (chronic migrains GONE, my son tolerating

his supplements, pooping better).

But I think the one HUGE lesson I learned from our past experiences is to

ALWAYS DO YOUR RESEARCH and ASK QUESTIONS before you let anything ingested/done

to yourself or your child. I feel awful and I can't sleep at night because I

let 2 precious years go by without suspecting that the chelation protocol and

some of the supps prescribed were not working or in fact may have been harmful

for us.

My husband's support for biomedical interventions is almost zero by now,

having the experiences that we have had, and it has been quite costly as well,

seeing the doc, doing the NAET thing... all my hubby sees is the cost of all

this and the negatives to Evan (which is very scary for me as well). But I

think he will support my research into this and slow and careful supplementation

and chelation of the 4 hr protocol this last time - I think this is my last

chance, and my son's, and just can't blow it. I know I should not be solely

responsible for whatever the outcome is going to be and my hubby should be

involved as well, but unfortunately he does not have the time to commit to this.

Anyhow, sorry this has been long but I thought this may help others.

So anyhow, back to the privacy issue, I think it will work better for me if

I will not display my or my son's or hubby's full name in my postings any more.

I may see the doc again, and I want to be fair.

So from now on, I will be aedape4, and will sign my emails as .

Best of luck to all of you!

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