Re: Very low muscle tone and coordination. Where do you start biomedically?

[Guest guest]

> Physical and ocupational therapies have only helped identifying the

> many physical delays, but we have not made any progress,

Coordination improved for my son with EFAs, specifically Nordic

NAturals ProEFA.

Nell

[Guest guest]

Baths with epsom salt definitely changed something in my son's muscles.

My son's muscles felt like... sponge (hard to describe... very weak) and they

became more consistent, harder, and his strength increased after epsom salt

baths.

I don't know if this information is of any help to you, but lack of sulfate

(or low sulfation) can definitely affect muscles and strength and... I guess

pretty much everything else in the body

Valentina

> This is an area that brings a whole lot of frustation for us. My son

>

> (3.6) cannot go a step up or down without help, needless to say he

> cannot jump, climb etc. I have long realized that a simple activity

> like going to the park is one of the most frustating experiences for

> him. He has an extremely hard time negotiating play structures. They

> are not fun, but stressful. And it is getting worse. He simply refuses

> to go to the park! Just yesterday, I could see how he shook in fear

> when he saw we were going down our own home stairs. He is very

> cautious when he goes down or up anything just because he does not

> trust himself.

> Physical and ocupational therapies have only helped identifying the

> many physical delays, but we have not made any progress, SO ... I am

> turnning to the bio-medical treatments to see how to help here.

> AT the root of our problems is a very toxic mercury child (combined

> with viral issues). We are chelating with DMSA for the first time (did

> DMPS for a while before). Only in our second round.

>

> I don't know where to start with my research in this area or what to

> test for. I have read how many of you seem to have found a way to help

> your child here. I was wondering if you wouldn't mind sharing your

> experience and pointing out some reading to get me started.

>

>

>

[Guest guest]

You are probably dealing with depth perception issues as well. I think you

need to chelate and supplement and consider the mb12 shots or nasal spray.

Lots of people have seen big changes motor-wise with the b12.

Remember, this is a marathon, not a sprint!

Barb

[ ] Very low muscle tone and coordination. Where do

you start biomedically?

> Dear listmates,

>

> This is an area that brings a whole lot of frustation for us. My son

> (3.6) cannot go a step up or down without help, needless to say he

> cannot jump, climb etc. I have long realized that a simple activity

> like going to the park is one of the most frustating experiences for

> him. He has an extremely hard time negotiating play structures. They

> are not fun, but stressful. And it is getting worse. He simply refuses

> to go to the park! Just yesterday, I could see how he shook in fear

> when he saw we were going down our own home stairs. He is very

> cautious when he goes down or up anything just because he does not

> trust himself.

> Physical and ocupational therapies have only helped identifying the

> many physical delays, but we have not made any progress, SO ... I am

> turnning to the bio-medical treatments to see how to help here.

> AT the root of our problems is a very toxic mercury child (combined

> with viral issues). We are chelating with DMSA for the first time (did

> DMPS for a while before). Only in our second round.

>

> I don't know where to start with my research in this area or what to

> test for. I have read how many of you seem to have found a way to help

> your child here. I was wondering if you wouldn't mind sharing your

> experience and pointing out some reading to get me started.

>

>

>

>

>

>

>

>

> =======================================================

>

[Guest guest]

,

I second the Essential Fatty Acids recommendation. I believe both

fish oil AND cod liver oil (for the vitamins A and D) helped my

son's motor planning problems immensely.

It seemed my son had some visual deficits that compounded any muscle

weakness/coordination problems. He could climb UP things (somewhat)

but not back down (even chairs)... maybe vestibular deficits is more

accurate? It was much more than just a fear of falling.

My son was only 19 months when I started using EFAs. I used 1/2 tsp

each of cod liver oil and fish oils (both Nordic Naturals). I

switched to only fish oil after about one year. Now I use ProEFA

from Nordic Naturals. I chose this blend to attack his language

delays (many parents reported progress specifically with ProEFA),

but I think you could do just fine with another Nordic Naturals,

Eskimo Oil, Coronomega, OmegaBrite, Neptune Krill oil.

Forgot to say: the cod liver oil and Vitamin A was used to address

visual concerns.

This past November I completed the Vineland (parent report)

evaluation on Ian: he scored within his age range with motor

skills! I was so pleased. We've also been chelating over the past

5 months with TD-DMSA and ALA, but the majority of motor skills

improvement was prior to chelation.

I would definitely take a look at his vision.

Pam

>

> Dear listmates,

>

> This is an area that brings a whole lot of frustation for us. My

son

> (3.6) cannot go a step up or down without help, needless to say he

> cannot jump, climb etc. I have long realized that a simple activity

> like going to the park is one of the most frustating experiences

for

> him. He has an extremely hard time negotiating play structures.

They

> are not fun, but stressful. And it is getting worse. He simply

refuses

> to go to the park! Just yesterday, I could see how he shook in fear

> when he saw we were going down our own home stairs. He is very

> cautious when he goes down or up anything just because he does not

> trust himself.

> Physical and ocupational therapies have only helped identifying the

> many physical delays, but we have not made any progress, SO ... I

am

> turnning to the bio-medical treatments to see how to help here.

> AT the root of our problems is a very toxic mercury child (combined

> with viral issues). We are chelating with DMSA for the first time

(did

> DMPS for a while before). Only in our second round.

>

> I don't know where to start with my research in this area or what

to

> test for. I have read how many of you seem to have found a way to

help

> your child here. I was wondering if you wouldn't mind sharing your

> experience and pointing out some reading to get me started.

>

>

>

[Guest guest]

Try oral methyl B12 first. Many can absorb it orally, always start with the

least invasive treatment.

[ ] Very low muscle tone and coordination. Where do

you start biomedically?

> Dear listmates,

>

> This is an area that brings a whole lot of frustation for us. My son

> (3.6) cannot go a step up or down without help, needless to say he

> cannot jump, climb etc. I have long realized that a simple activity

> like going to the park is one of the most frustating experiences for

> him. He has an extremely hard time negotiating play structures. They

> are not fun, but stressful. And it is getting worse. He simply refuses

> to go to the park! Just yesterday, I could see how he shook in fear

> when he saw we were going down our own home stairs. He is very

> cautious when he goes down or up anything just because he does not

> trust himself.

> Physical and ocupational therapies have only helped identifying the

> many physical delays, but we have not made any progress, SO ... I am

> turnning to the bio-medical treatments to see how to help here.

> AT the root of our problems is a very toxic mercury child (combined

> with viral issues). We are chelating with DMSA for the first time (did

> DMPS for a while before). Only in our second round.

>

> I don't know where to start with my research in this area or what to

> test for. I have read how many of you seem to have found a way to help

> your child here. I was wondering if you wouldn't mind sharing your

> experience and pointing out some reading to get me started.

>

>

>

>

>

>

>

>

> =======================================================

>

[Guest guest]

> This is an area that brings a whole lot of frustation for us. My son

> (3.6) cannot go a step up or down without help, needless to say he

> cannot jump, climb etc.

Amino acids, especially carnitine, and EFAs. B vitamins can also help.

>>He is very

> cautious when he goes down or up anything just because he does not

> trust himself.

This can also be yeast overgrowth.

> Physical and ocupational therapies have only helped identifying the

> many physical delays, but we have not made any progress, SO ... I am

> turnning to the bio-medical treatments to see how to help here.

NONE of my son's issues were adequately addressed by traditional

therapies. ALL of them were biomedical in nature.

Dana

[Guest guest]

Have you had a plasma amino acid rest run and/or a fatty acid test? The

aminos are very much implicated in gross motor strength and coordination -

and of course mercury can mess up the aminos. We had a custom amino acid

supplement made/prescribed for us basded on the results of such a test

(Metametrix) and it made a world of difference.

Josie

essage: 6

Date: Sat, 11 Feb 2006 08:36:05 -0600

From: Valentina Scharpf <val999@...>

Subject: Re: Very low muscle tone and coordination. Where do you start

biomedically?

Baths with epsom salt definitely changed something in my son's muscles. My

son's muscles felt like... sponge (hard to describe... very weak) and they

became more consistent, harder, and his strength increased after epsom salt

baths. I don't know if this information is of any help to you, but lack of

sulfate (or low sulfation) can definitely affect muscles and strength and...

I guess pretty much everything else in the body

Valentina

> This is an area that brings a whole lot of frustation for us. My son

>

> (3.6) cannot go a step up or down without help, needless to say he

> cannot jump, climb etc. I have long realized that a simple activity

> like going to the park is one of the most frustating experiences for

> him. He has an extremely hard time negotiating play structures. They

> are not fun, but stressful. And it is getting worse. He simply refuses

> to go to the park! Just yesterday, I could see how he shook in fear

> when he saw we were going down our own home stairs. He is very

> cautious when he goes down or up anything just because he does not

> trust himself. Physical and ocupational therapies have only helped

> identifying the many physical delays, but we have not made any

> progress, SO ... I am turnning to the bio-medical treatments to see

> how to help here. AT the root of our problems is a very toxic mercury

> child (combined with viral issues). We are chelating with DMSA for the

> first time (did DMPS for a while before). Only in our second round.

>

> I don't know where to start with my research in this area or what to

> test for. I have read how many of you seem to have found a way to help

> your child here. I was wondering if you wouldn't mind sharing your

> experience and pointing out some reading to get me started.

>

>

>

[Guest guest]

Does your son have any mito issues? My son's muscle tone was

terrible until recently. Falling down all the time, etc. He wasn't

absorbing his EFAs or much of anything. I put him on the low

oxalate diet (LOD - see Owen's group) and noticed

improvement within days. I then added the mito cocktail supplements

and saw more improvement. He still had problems gaining weight so I

recently added Proper Nutrition's Seacure (hydrolized fish protein &

AAs) and we are seeing weight gain and improved muscle tone again!

It still isn't his area of strenght but he is so much better. I

have also been reading about creatine and may check into that at

some point.

HTH,

>

> Dear listmates,

>

> This is an area that brings a whole lot of frustation for us. My

son

> (3.6) cannot go a step up or down without help, needless to say he

> cannot jump, climb etc. I have long realized that a simple activity

> like going to the park is one of the most frustating experiences

for

> him. He has an extremely hard time negotiating play structures.

They

> are not fun, but stressful. And it is getting worse. He simply

refuses

> to go to the park! Just yesterday, I could see how he shook in fear

> when he saw we were going down our own home stairs. He is very

> cautious when he goes down or up anything just because he does not

> trust himself.

> Physical and ocupational therapies have only helped identifying the

> many physical delays, but we have not made any progress, SO ... I

am

> turnning to the bio-medical treatments to see how to help here.

> AT the root of our problems is a very toxic mercury child (combined

> with viral issues). We are chelating with DMSA for the first time

(did

> DMPS for a while before). Only in our second round.

>

> I don't know where to start with my research in this area or what

to

> test for. I have read how many of you seem to have found a way to

help

> your child here. I was wondering if you wouldn't mind sharing your

> experience and pointing out some reading to get me started.

>

>

>

[Guest guest]

- Can you explain the mito cocktails? What is that?

Thanks - Sally

> >

> > Dear listmates,

> >

> > This is an area that brings a whole lot of frustation for us. My

> son

> > (3.6) cannot go a step up or down without help, needless to say

he

> > cannot jump, climb etc. I have long realized that a simple

activity

> > like going to the park is one of the most frustating experiences

> for

> > him. He has an extremely hard time negotiating play structures.

> They

> > are not fun, but stressful. And it is getting worse. He simply

> refuses

> > to go to the park! Just yesterday, I could see how he shook in

fear

> > when he saw we were going down our own home stairs. He is very

> > cautious when he goes down or up anything just because he does

not

> > trust himself.

> > Physical and ocupational therapies have only helped identifying

the

> > many physical delays, but we have not made any progress, SO ...

I

> am

> > turnning to the bio-medical treatments to see how to help here.

> > AT the root of our problems is a very toxic mercury child

(combined

> > with viral issues). We are chelating with DMSA for the first

time

> (did

> > DMPS for a while before). Only in our second round.

> >

> > I don't know where to start with my research in this area or

what

> to

> > test for. I have read how many of you seem to have found a way

to

> help

> > your child here. I was wondering if you wouldn't mind sharing

your

> > experience and pointing out some reading to get me started.

> >

> >

> >

>

[Guest guest]

I am not sure if you addressed the question to me or to ...

You are right though.

My son too had very low plasma amino acids (almost everything was low, including

the branched chain amino acids). I didn't check fatty acids, but I know he has

problems there too. I recently bought carnitine and will try it soon.

Was the " custom amino acid supplement " made based on the low amino acids?

Valentina

> Have you had a plasma amino acid rest run and/or a fatty acid test? The

> aminos are very much implicated in gross motor strength and coordination -

> and of course mercury can mess up the aminos. We had a custom amino acid

> supplement made/prescribed for us basded on the results of such a test

> (Metametrix) and it made a world of difference.

> Josie

>

>

> Baths with epsom salt definitely changed something in my son's muscles. My

> son's muscles felt like... sponge (hard to describe... very weak) and they

> became more consistent, harder, and his strength increased after epsom salt

> baths. I don't know if this information is of any help to you, but lack of

> sulfate (or low sulfation) can definitely affect muscles and strength and...

> I guess pretty much everything else in the body

>

> Valentina

>

> > This is an area that brings a whole lot of frustation for us. My son

> >

> > (3.6) cannot go a step up or down without help, needless to say he

> > cannot jump, climb etc. I have long realized that a simple activity

> > like going to the park is one of the most frustating experiences for

> > him. He has an extremely hard time negotiating play structures. They

> > are not fun, but stressful. And it is getting worse. He simply refuses

> > to go to the park! Just yesterday, I could see how he shook in fear

> > when he saw we were going down our own home stairs. He is very

> > cautious when he goes down or up anything just because he does not

> > trust himself. Physical and ocupational therapies have only helped

> > identifying the many physical delays, but we have not made any

> > progress, SO ... I am turnning to the bio-medical treatments to see

> > how to help here. AT the root of our problems is a very toxic mercury

> > child (combined with viral issues). We are chelating with DMSA for the

> > first time (did DMPS for a while before). Only in our second round.

> >

> > I don't know where to start with my research in this area or what to

> > test for. I have read how many of you seem to have found a way to help

> > your child here. I was wondering if you wouldn't mind sharing your

> > experience and pointing out some reading to get me started.

> >

> >

[Guest guest]

>

> - Can you explain the mito cocktails? What is that?

I wrote about my son's experience here

http://www.danasview.net/mar05.htm

My son needed mito cocktail, amino acids especially taurine, and

pre-loading with Omega 6, before he tolerated any Omega 3 EFAs.

Dana

[Guest guest]

acetyl-l-carnitine and vit B1 helped my son with low musche tone and

balance. After the B1, he was able to go down stairs. I gave him only

a pinch of a B1 50 mg cap at lunch time, he was about 2 1/2 - 3 yo at

that time.

>

> Dear listmates,

>

> This is an area that brings a whole lot of frustation for us. My son

> (3.6) cannot go a step up or down without help, needless to say he

> cannot jump, climb etc. I have long realized that a simple activity

> like going to the park is one of the most frustating experiences for

> him. He has an extremely hard time negotiating play structures. They

> are not fun, but stressful. And it is getting worse. He simply

refuses

> to go to the park! Just yesterday, I could see how he shook in fear

> when he saw we were going down our own home stairs. He is very

> cautious when he goes down or up anything just because he does not

> trust himself.

> Physical and ocupational therapies have only helped identifying the

> many physical delays, but we have not made any progress, SO ... I am

> turnning to the bio-medical treatments to see how to help here.

> AT the root of our problems is a very toxic mercury child (combined

> with viral issues). We are chelating with DMSA for the first time

(did

> DMPS for a while before). Only in our second round.

>

> I don't know where to start with my research in this area or what to

> test for. I have read how many of you seem to have found a way to

help

> your child here. I was wondering if you wouldn't mind sharing your

> experience and pointing out some reading to get me started.

>

>

>