Re: Question regarding Dan Protocal

[Guest guest]

> I have a 16 year old Asperger son and a 14 year old non verbal

autistic son. We are seeing a DAN dr. who is perscribing this vitamin

and mineral protocal (Brainchild) and diet. We have done the diets

very extensively in the passed and found dairy and whole wheat to be a

problem. They both are free of these. We also find that some

preservatives and dies bother them. All have been eliminated for

years. We have tried Kirkman vitamins with horrible results. We have

tried a combination of vitamin mineral supplement and amino acids

ect........................ only to have terrible results. We have

never tried chelation. This is the one thing I think will work, but

it seems the DAN protocal requires all these vitamin and mineral

supplements and this is the one thing that my son's really do not do

well with.

The DAN! protocol is pretty random. All you really need is a bit of

antioxidants (C, E, magnesium, maybe milk thistle extract) and some

zinc. The C and Mg need to be several times a day, and the milk

thistle works better that way.

Also HOW you chelate is important. Do it every 8 hours or otherwise

randomly as given in a protocol and many kids get worse, every 3-4

hours and most get better.

> The Greir's (Father and Son Dr.'s) are doing chelation by reducing

testosterone in some boys and seeing some great results. Why can you

not start there instead of all of these supplements.

Actually this isn't what they do, they have the same psychotic

delusion induced in med school that most MD's have - they truly

believe the drugs they give only do what they prescribe them for.

They give Lupron, it does a lot more than reduce testosterone.

This is a lot newer (and thus has an unknown level of risk) than

chelation and vitamins.

Vitamin intolerance is often B6, sometimes B complex generally.

> If the reasoning is that the supplements get the system going, which

is what we where told,

A pretty meaningless statement.

> it just doesn't make sense to me.

Because it doesn't make sense!

> How can a system damaged by mercury and still having the mercury in

it get going from a vitamin supplement?

They do partly correct osme of the enzyme blockages by providing more

cofactor.

> It just seems to me that the chelation should be first and then

bringing in the vitamins and minerals makes sense.

The primary use of the V's and M's is to correct cofactor needs so

that chelation is easier - it will exacerbate symptoms VERY BADLY

otherwise. Most of what some of the vitamins do is just be

antioxidants. Most of what the toxic metals do is promote oxidation.

> Dr. Geier does not talk at all about all these vitamins and

supplements in the short acticle I read . He does talk about good

nutrition.

> I am also a firm believer that you should only see positve responses

if the protocal is really working.

Mostly true.

What to expect with chelation:

DURING the round, some exacerbation of symptoms.

A day or two after, tired crankiness or depression.

After that, improvement. If you do a few rounds and they are getting

worse, it isn't a healing crisis, it is a problem and chelation should

be stopped until it is solved.

>I have done too many protocals over the years waiting for the die

off to get over, or their system to adjust, just to have a regression

that took sometimes 6 months to get him back to where he was after

stopping the protocal.

Chelation if done right should not be this way.

> I am frustrated and really do not want to waste a ton of $$$$ again

on a protocal that just causes behavior problems.

The supplements are cheap. The doctors are expensive.

> Why can't you just do chelation??????

It creates oxidative stress and makes thema bit more symptomatic.

You need SOMETHING to oppose this. It doesn't have to be much, or

fancy. It shoujld be things that make them better, not worse.

>Do any of you have any idea, who have been in my shoes with older

kids and having done alot of stuff that didn't work?

> I would appreciate your input as to what you think or found that has

worked for you older kids.

> Thanks

>

>

>

[Guest guest]

Hey ,

I have an 11 yr. old Aspie son. The only thing I have

seen really help my son is the Methyl B12 shots, every

3 days. He is initiating more conversations, eye

contact, social appropriateness with this procedure.

Also, the epsom salt baths, tons of magnesium sulfate,

and he does do well on Coenzyme B Complex. He eats

lots of grassfed meats, raw goat's milk, and is

wheat/gluten free.

Keep us posted, I know how frustrating it is, like a

freaking roller coaster ride, never knowing when the

next meltdown will occur, ughh. But we have been

amazed with just the gluten free diet and the B12

shots, Juli

--- Ed <torresd61@...> wrote:

> I have a 16 year old Asperger son and a 14 year old

> non verbal autistic son. We are seeing a DAN dr.

> who is perscribing this vitamin and mineral protocal

> (Brainchild) and diet. We have done the diets very

> extensively in the passed and found dairy and whole

> wheat to be a problem. They both are free of these.

> We also find that some preservatives and dies

> bother them. All have been eliminated for years. We

> have tried Kirkman vitamins with horrible results.

> We have tried a combination of vitamin mineral

> supplement and amino acids

> ect........................ only to have terrible

> results. We have never tried chelation. This is

> the one thing I think will work, but it seems the

> DAN protocal requires all these vitamin and mineral

> supplements and this is the one thing that my son's

> really do not do well with.

> The Greir's (Father and Son Dr.'s) are doing

> chelation by reducing testosterone in some boys and

> seeing some great results. Why can you not start

> there instead of all of these supplements.

> If the reasoning is that the supplements get the

> system going, which is what we where told, it just

> doesn't make sense to me. How can a system damaged

> by mercury and still having the mercury in it get

> going from a vitamin supplement? It just seems to

> me that the chelation should be first and then

> bringing in the vitamins and minerals makes sense.

> Dr. Geier does not talk at all about all these

> vitamins and supplements in the short acticle I read

> . He does talk about good nutrition.

> I am also a firm believer that you should only see

> positve responses if the protocal is really working.

> I have done too many protocals over the years

> waiting for the die off to get over, or their system

> to adjust, just to have a regression that took

> sometimes 6 months to get him back to where he was

> after stopping the protocal.

> I am frustrated and really do not want to waste a

> ton of $$$$ again on a protocal that just causes

> behavior problems.

> Why can't you just do chelation?????? Do any of you

> have any idea, who have been in my shoes with older

> kids and having done alot of stuff that didn't work?

> I would appreciate your input as to what you think

> or found that has worked for you older kids.

> Thanks

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hi Juli,

The casin free diet has really made a difference for both of our boys. My 16

year old can't even touch dairy or he will swell up and wheez, so keeping him

dairy free is very important. He has an anaphylactic reaction to dairy so we

all steer clear of it.

In the B12 shots, is it the Methyl B12? What is in that? Does it also have

folic Acid and B6? I have heard so many kids respond poorly to them . hyper and

such. I want to do them, but as with every thing else I am terrified. My 14

year old son is severely autistic and huge. Not the kid you want to experience

a regression with. Or have hyper if you know what I mean.

It just feels good to know there are others who's kids do not respond to the

vitamiin and mineral protocal for the autistic population. They are each so

different.

Thanks again.

Re: [ ] Question regarding Dan Protocal

Hey ,

I have an 11 yr. old Aspie son. The only thing I have

seen really help my son is the Methyl B12 shots, every

3 days. He is initiating more conversations, eye

contact, social appropriateness with this procedure.

Also, the epsom salt baths, tons of magnesium sulfate,

and he does do well on Coenzyme B Complex. He eats

lots of grassfed meats, raw goat's milk, and is

wheat/gluten free.

Keep us posted, I know how frustrating it is, like a

freaking roller coaster ride, never knowing when the

next meltdown will occur, ughh. But we have been

amazed with just the gluten free diet and the B12

shots, Juli

--- Ed <torresd61@...> wrote:

> I have a 16 year old Asperger son and a 14 year old

> non verbal autistic son. We are seeing a DAN dr.

> who is perscribing this vitamin and mineral protocal

> (Brainchild) and diet. We have done the diets very

> extensively in the passed and found dairy and whole

> wheat to be a problem. They both are free of these.

> We also find that some preservatives and dies

> bother them. All have been eliminated for years. We

> have tried Kirkman vitamins with horrible results.

> We have tried a combination of vitamin mineral

> supplement and amino acids

> ect........................ only to have terrible

> results. We have never tried chelation. This is

> the one thing I think will work, but it seems the

> DAN protocal requires all these vitamin and mineral

> supplements and this is the one thing that my son's

> really do not do well with.

> The Greir's (Father and Son Dr.'s) are doing

> chelation by reducing testosterone in some boys and

> seeing some great results. Why can you not start

> there instead of all of these supplements.

> If the reasoning is that the supplements get the

> system going, which is what we where told, it just

> doesn't make sense to me. How can a system damaged

> by mercury and still having the mercury in it get

> going from a vitamin supplement? It just seems to

> me that the chelation should be first and then

> bringing in the vitamins and minerals makes sense.

> Dr. Geier does not talk at all about all these

> vitamins and supplements in the short acticle I read

> . He does talk about good nutrition.

> I am also a firm believer that you should only see

> positve responses if the protocal is really working.

> I have done too many protocals over the years

> waiting for the die off to get over, or their system

> to adjust, just to have a regression that took

> sometimes 6 months to get him back to where he was

> after stopping the protocal.

> I am frustrated and really do not want to waste a

> ton of $$$$ again on a protocal that just causes

> behavior problems.

> Why can't you just do chelation?????? Do any of you

> have any idea, who have been in my shoes with older

> kids and having done alot of stuff that didn't work?

> I would appreciate your input as to what you think

> or found that has worked for you older kids.

> Thanks

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Bless your heart, , having 2 on the spectrum

must be so very stressful, as I am stressed with just

one on the spectrum.

The shots are just plain methylcobalamin (B12). We

also give our son folicin and the Coenzyme B Complex

by Ecological Formulas, this is the only B complex my

son has not gotten hyper on, maybe because it is in

the coenzyme formula and yeast free. And yes, I

totally know about hyper, as my son exhibits that with

every reaction. Dont give up on magnesium chelates,

they have been a life saver, Juli

--- Ed <torresd61@...> wrote:

> Hi Juli,

> The casin free diet has really made a difference for

> both of our boys. My 16 year old can't even touch

> dairy or he will swell up and wheez, so keeping him

> dairy free is very important. He has an

> anaphylactic reaction to dairy so we all steer clear

> of it.

> In the B12 shots, is it the Methyl B12? What is in

> that? Does it also have folic Acid and B6? I have

> heard so many kids respond poorly to them . hyper

> and such. I want to do them, but as with every

> thing else I am terrified. My 14 year old son is

> severely autistic and huge. Not the kid you want to

> experience a regression with. Or have hyper if you

> know what I mean.

> It just feels good to know there are others who's

> kids do not respond to the vitamiin and mineral

> protocal for the autistic population. They are each

> so different.

> Thanks again.

>

> Re: [ ] Question regarding

> Dan Protocal

>

>

> Hey ,

>

> I have an 11 yr. old Aspie son. The only thing I

> have

> seen really help my son is the Methyl B12 shots,

> every

> 3 days. He is initiating more conversations, eye

> contact, social appropriateness with this

> procedure.

>

> Also, the epsom salt baths, tons of magnesium

> sulfate,

> and he does do well on Coenzyme B Complex. He

> eats

> lots of grassfed meats, raw goat's milk, and is

> wheat/gluten free.

>

> Keep us posted, I know how frustrating it is, like

> a

> freaking roller coaster ride, never knowing when

> the

> next meltdown will occur, ughh. But we have been

> amazed with just the gluten free diet and the B12

> shots, Juli

>

> --- Ed <torresd61@...> wrote:

>

> > I have a 16 year old Asperger son and a 14 year

> old

> > non verbal autistic son. We are seeing a DAN

> dr.

> > who is perscribing this vitamin and mineral

> protocal

> > (Brainchild) and diet. We have done the diets

> very

> > extensively in the passed and found dairy and

> whole

> > wheat to be a problem. They both are free of

> these.

> > We also find that some preservatives and dies

> > bother them. All have been eliminated for years.

> We

> > have tried Kirkman vitamins with horrible

> results.

> > We have tried a combination of vitamin mineral

> > supplement and amino acids

> > ect........................ only to have

> terrible

> > results. We have never tried chelation. This

> is

> > the one thing I think will work, but it seems

> the

> > DAN protocal requires all these vitamin and

> mineral

> > supplements and this is the one thing that my

> son's

> > really do not do well with.

> > The Greir's (Father and Son Dr.'s) are doing

> > chelation by reducing testosterone in some boys

> and

> > seeing some great results. Why can you not

> start

> > there instead of all of these supplements.

> > If the reasoning is that the supplements get the

> > system going, which is what we where told, it

> just

> > doesn't make sense to me. How can a system

> damaged

> > by mercury and still having the mercury in it

> get

> > going from a vitamin supplement? It just seems

> to

> > me that the chelation should be first and then

> > bringing in the vitamins and minerals makes

> sense.

> > Dr. Geier does not talk at all about all these

> > vitamins and supplements in the short acticle I

> read

> > . He does talk about good nutrition.

> > I am also a firm believer that you should only

> see

> > positve responses if the protocal is really

> working.

> > I have done too many protocals over the years

> > waiting for the die off to get over, or their

> system

> > to adjust, just to have a regression that took

> > sometimes 6 months to get him back to where he

> was

> > after stopping the protocal.

> > I am frustrated and really do not want to waste

> a

> > ton of $$$$ again on a protocal that just causes

> > behavior problems.

> > Why can't you just do chelation?????? Do any of

> you

> > have any idea, who have been in my shoes with

> older

> > kids and having done alot of stuff that didn't

> work?

> > I would appreciate your input as to what you

> think

> > or found that has worked for you older kids.

> > Thanks

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

>>We have tried Kirkman vitamins with horrible results. We have tried

a combination of vitamin mineral supplement and amino acids

ect........................ only to have terrible results. We have

never tried chelation. This is the one thing I think will work, but

it seems the DAN protocal requires all these vitamin and mineral

supplements and this is the one thing that my son's really do not do

well with.

My son did not tolerate any supplements with the exception of enzymes

until about round 50 of ALA chelation. I chelated anyway, without

supplements, on a low dose conservative protocol.

My son started tolerating vitamins at about round 50. He never

tolerated minerals because he was mineral toxic and in fact I had to

give him a demineralizer for several months.

>>How can a system damaged by mercury and still having the mercury in

it get going from a vitamin supplement? It just seems to me that the

chelation should be first and then bringing in the vitamins and

minerals makes sense.

That worked for my son. However, for myself, I am using several

supplements without chelation, with nice success.

> I am also a firm believer that you should only see positve responses

if the protocal is really working.

I agree with you here. If you can't identify the cause for the

negative [like for example, yeast], then the protocol is not right for

the child. You may need to adjust the protocol, or drop it.

Dana

[Guest guest]

>

> Hi Juli,

> The casin free diet has really made a difference for both of our

boys. My 16 year old can't even touch dairy or he will swell up and

wheez, so keeping him dairy free is very important. He has an

anaphylactic reaction to dairy so we all steer clear of it.

Just thought I would mention that milk caused me to have asthma

issues, wheezing, etc, and near anaphylactic, but enzymes and certain

supplements allow me to have small amounts of milk now without

problems. There is an end!

Dana

[Guest guest]

>

> Dana,

> What enzymes and supplements do you use

HNI enzymes

http://www.houstonni.com/

B vitamins and CLO appear to have been the most beneficial for my milk

problem, followed by the mito cocktail and amino acids that my son

required to tolerate milk. I am also taking several other

supplements, but I think my milk problem is primarily helped by the

ones I just listed.

>> and did you also have the swelling when milk touched the skin?

I don't recall having that problem. I do recall severe breathing

difficulties with milk, and in fact I have a specific memory of

driving to Sav-On to buy Primatene while not being able to breathe.

Dana