Re: Just starting my son on ALA, need some help.

[Guest guest]

Anita put together a great supplement file. It is in the file

section under " Supplements " or something like that. You will

probably want to take a look at that before you do any chelating.

Best,

Anne

>

>

> I am new to the board and to chelation, and i have learned a lot

in

> the last week thanks to the supportive and knowledgable parents on

> this board. thanks to everyone for making this group possible.

>

> I am thinking of starting my son on ALA alone for the first few

> months and i was curious as to what other supplements are good to

> give my son either on chelation days and/or everyday.

>

> We currently have him on a liquid multivitamin and probiotics

only.

> No special diets at this point.

>

> I am contemplating adding Carnosine and Idebenone (a tweaked form

of

> CoQ10) to his supplements at the advice of his pediatrician. Just

> wondering what am i missing- or if the two new supplements make

any

> sense.

>

> thanks,

>

> -john

>

[Guest guest]

thanks,

does anyone have the link?

-john

anneecbrynn <abrynn@...> wrote:

Anita put together a great supplement file. It is in the file

section under " Supplements " or something like that. You will

probably want to take a look at that before you do any chelating.

Best,

Anne

>

>

> I am new to the board and to chelation, and i have learned a lot

in

> the last week thanks to the supportive and knowledgable parents on

> this board. thanks to everyone for making this group possible.

>

> I am thinking of starting my son on ALA alone for the first few

> months and i was curious as to what other supplements are good to

> give my son either on chelation days and/or everyday.

>

> We currently have him on a liquid multivitamin and probiotics

only.

> No special diets at this point.

>

> I am contemplating adding Carnosine and Idebenone (a tweaked form

of

> CoQ10) to his supplements at the advice of his pediatrician. Just

> wondering what am i missing- or if the two new supplements make

any

> sense.

>

> thanks,

>

> -john

>

=======================================================

[Guest guest]

> We currently have him on a liquid multivitamin and probiotics only.

> No special diets at this point.

What about minerals? Zinc, Mg, Molybdenum, etc. Are you giving anything?

Are you giving vit. E?

The water soluble vitamins should be given 3-4 times a day.

> I am contemplating adding Carnosine and Idebenone (a tweaked form of

> CoQ10) to his supplements at the advice of his pediatrician. Just

> wondering what am i missing- or if the two new supplements make any

> sense.

Do you know why she recommended them?

My son had some really nice improvements with Carnosine. I hope it works for

your son at least as well as it worked for us

Good luck!

Valentina

[Guest guest]

I know it might sound odd, but we are just getting into all this with my son and

have got no direction (surprise) from his former pediatrician. It seems that

everything we have gotten in the form of direction was in the form of

behaviorable therapies (OT, speech, etc.)

I am really trying to figure all this stuff out on my own. Taking what i

recall from my bio-psychology major in college (saddly we didn't even touch on

Autism once in four years) and then taking what i am getting from this board any

other sources i am gathering.

So i am really 200 steps behind where everyone else is in terms of

supplementing, chelation, etc. I am trying to pick it all up very quickly so

that i can try and help my son in every way possible.

I read through the file about supplements and it has a lot of good

information, but my head is really spinning at the same time, as i can't imagine

giving my son 50 supplements a day. Even tougher to grasp is that what works for

some children does not work for others, so trail and error will be the best way

to go about this- at least i have the information of others who have done this

before to let me know what is most important.

I guess just understanding the very basic supplements to start with would

help.

Here is what we have right now:

Probiotics (Powder):

Bifidob acterium bifidum,

Lactobacillus acidophilus,

Bifidobacterium infantis,

Childrens Multi-Vitamin (Liquid):

Vitamin A (200% dv)

Vitamin C (333% dv)

Vitamin D (100% dv)

Vitamin E (333% dv)

Thiamin (B1) (500% dv)

Riboflavin (B2) (500% dv)

Niacin (100% dv)

Vitamin B6 (850% dv)

Folate (folic acid) (100% dv)

Vitamin B12 (833% dv)

Biotin (100% dv)

pantothenic acid (d-calicum pantothenate) (500% dv)

Calcium (3% dv)

-john

Valentina Scharpf <val999@...> wrote:

> We currently have him on a liquid multivitamin and probiotics only.

> No special diets at this point.

What about minerals? Zinc, Mg, Molybdenum, etc. Are you giving anything?

Are you giving vit. E?

The water soluble vitamins should be given 3-4 times a day.

> I am contemplating adding Carnosine and Idebenone (a tweaked form of

> CoQ10) to his supplements at the advice of his pediatrician. Just

> wondering what am i missing- or if the two new supplements make any

> sense.

Do you know why she recommended them?

My son had some really nice improvements with Carnosine. I hope it works for

your son at least as well as it worked for us

Good luck!

Valentina

=======================================================

[Guest guest]

,

I think we all have experienced the " spinning head " feeling when we first came

to this forum Believe me, it gets better. You will learn everything in no

time.

I would add some minerals to his supplements list. At least some Magnesium and

some Zinc. Maybe some Selenium too. Like always, try small doses first and

increase in time. Some of our kids need Molybdenum too. You might like to try

this one later...

Milk thistle is very helpful for most kids.

I personally never tried supplements in a " multi- " form. I always buy individual

supplements and try them. You never know what our kids might react to. Sometimes

they need one supplement in higher amounts then others...

It works best if you divide the daily dose of supplements (especially the water

soluble vitamins but also some minerals) in 3 or 4 doses and give these during

the day.

Good luck!

Valentina

> I know it might sound odd, but we are just getting into all this with my son

and have got no direction (surprise) from his former pediatrician. It seems that

everything we have gotten in the form of direction was in the form of

behaviorable therapies (OT, speech, etc.)

>

> I am really trying to figure all this stuff out on my own. Taking what i

recall from my bio-psychology major in college (saddly we didn't even touch on

Autism once in four years) and then taking what i am getting from this board any

other sources i am gathering.

>

> So i am really 200 steps behind where everyone else is in terms of

supplementing, chelation, etc. I am trying to pick it all up very quickly so

that i can try and help my son in every way possible.

>

> I read through the file about supplements and it has a lot of good

information, but my head is really spinning at the same time, as i can't imagine

giving my son 50 supplements a day. Even tougher to grasp is that what works for

some children does not work for others, so trail and error will be the best way

to go about this- at least i have the information of others who have done this

before to let me know what is most important.

>

> I guess just understanding the very basic supplements to start with would

help.

>

> Here is what we have right now:

>

> Probiotics (Powder):

> Bifidob acterium bifidum,

> Lactobacillus acidophilus,

> Bifidobacterium infantis,

>

> Childrens Multi-Vitamin (Liquid):

> Vitamin A (200% dv)

> Vitamin C (333% dv)

> Vitamin D (100% dv)

> Vitamin E (333% dv)

> Thiamin (B1) (500% dv)

> Riboflavin (B2) (500% dv)

> Niacin (100% dv)

> Vitamin B6 (850% dv)

> Folate (folic acid) (100% dv)

> Vitamin B12 (833% dv)

> Biotin (100% dv)

> pantothenic acid (d-calicum pantothenate) (500% dv)

> Calcium (3% dv)

>

> -john

>

[Guest guest]

, Im coming into this a little late, but this is so true. Please

be sure to get your child established with minerals and at least anti-

oxidants prior to beginning chelation. Chelation is hard on the

child and can send them into oxidative stress. I did not know this,

even my DAN didnt tell me this...this group did! But, our DAN was

very cautious that everything else was in place prior to beginning

with any form of chelation...including working on yeast/bacteria

protocol, methylation process (glutathione, MB-12) etc. Only after

those things were established, did we begin. Personally, I think

while this was correct, it took us WAY too long to prep our son...it

could have been done quicker.

Finally, only my opinion, I would start with DMSA first for a few

rounds, then add in ALA....but others have used only ALA with great

success.....that was just the way I chose to go.

Good luck! Kim

>

> > We currently have him on a liquid multivitamin and probiotics

only.

> > No special diets at this point.

>

> What about minerals? Zinc, Mg, Molybdenum, etc. Are you giving

anything?

> Are you giving vit. E?

> The water soluble vitamins should be given 3-4 times a day.

>

>

>

> > I am contemplating adding Carnosine and Idebenone (a tweaked form

of

> > CoQ10) to his supplements at the advice of his pediatrician. Just

> > wondering what am i missing- or if the two new supplements make

any

> > sense.

>

> Do you know why she recommended them?

> My son had some really nice improvements with Carnosine. I hope it

works for

> your son at least as well as it worked for us

> Good luck!

>

>

> Valentina

>

[Guest guest]

Until next week (our first DAN appt.) my son has never had any input from a

doctor that really knew much about autism. He will be three in late August, his

diagnosis started at around 20 months. So i am totally at square one (as you can

tell from my question.)

We are hoping that our DAN will be able to give us the necessary base

information in the form of hair, urine and other tests to know where to begin

before starting chelation.

Before jumping onto this board, i knew nothing about yeast/bacteria or any

other issues with autistic children. I just was so focused on pushing to get a

diagnosis for my son so that he could get OT, speech and other help. His window

is closing quickly and in 5 months his case will be handled by the public

schools- a transition i am not looking forward to making.

Thank you for your input on this. I think the information i am getting on this

board has allowed me to speak more intelligently when we meet with his DAN vs.

feeling like i am at the mercy of whatever he recommends.

I am going to reconsider the DMSA vs. ALA protocal when i talk with the DAN on

the 20th. I am so excited about it.

again, thanks for the input my son thanks you as well) and the help!

-john

Kim GIll <kim.gill@...> wrote:

, Im coming into this a little late, but this is so true. Please

be sure to get your child established with minerals and at least anti-

oxidants prior to beginning chelation. Chelation is hard on the

child and can send them into oxidative stress. I did not know this,

even my DAN didnt tell me this...this group did! But, our DAN was

very cautious that everything else was in place prior to beginning

with any form of chelation...including working on yeast/bacteria

protocol, methylation process (glutathione, MB-12) etc. Only after

those things were established, did we begin. Personally, I think

while this was correct, it took us WAY too long to prep our son...it

could have been done quicker.

Finally, only my opinion, I would start with DMSA first for a few

rounds, then add in ALA....but others have used only ALA with great

success.....that was just the way I chose to go.

Good luck! Kim

>

> > We currently have him on a liquid multivitamin and probiotics

only.

> > No special diets at this point.

>

> What about minerals? Zinc, Mg, Molybdenum, etc. Are you giving

anything?

> Are you giving vit. E?

> The water soluble vitamins should be given 3-4 times a day.

>

>

>

> > I am contemplating adding Carnosine and Idebenone (a tweaked form

of

> > CoQ10) to his supplements at the advice of his pediatrician. Just

> > wondering what am i missing- or if the two new supplements make

any

> > sense.

>

> Do you know why she recommended them?

> My son had some really nice improvements with Carnosine. I hope it

works for

> your son at least as well as it worked for us

> Good luck!

>

>

> Valentina

>

=======================================================

[Guest guest]

thanks so much for the simplification. I understand the liquid Multivitamin is a

lot at once and i cannot figure out if one might be causing something. I just

started him on it two days ago along with epsom baths. No real noticable adverse

affects yet.

What is wierd is that i have had him on the probitics and taken him off a few

times... he seems to... i wouldn't say regress... but get sick more often when

on them. Could this be as a result of the candida dying off in his system?

-jja

Valentina Scharpf <val999@...> wrote:

,

I think we all have experienced the " spinning head " feeling when we first came

to this forum Believe me, it gets better. You will learn everything in no

time.

I would add some minerals to his supplements list. At least some Magnesium and

some Zinc. Maybe some Selenium too. Like always, try small doses first and

increase in time. Some of our kids need Molybdenum too. You might like to try

this one later...

Milk thistle is very helpful for most kids.

I personally never tried supplements in a " multi- " form. I always buy individual

supplements and try them. You never know what our kids might react to. Sometimes

they need one supplement in higher amounts then others...

It works best if you divide the daily dose of supplements (especially the water

soluble vitamins but also some minerals) in 3 or 4 doses and give these during

the day.

Good luck!

Valentina

> I know it might sound odd, but we are just getting into all this with my son

and have got no direction (surprise) from his former pediatrician. It seems that

everything we have gotten in the form of direction was in the form of

behaviorable therapies (OT, speech, etc.)

>

> I am really trying to figure all this stuff out on my own. Taking what i

recall from my bio-psychology major in college (saddly we didn't even touch on

Autism once in four years) and then taking what i am getting from this board any

other sources i am gathering.

>

> So i am really 200 steps behind where everyone else is in terms of

supplementing, chelation, etc. I am trying to pick it all up very quickly so

that i can try and help my son in every way possible.

>

> I read through the file about supplements and it has a lot of good

information, but my head is really spinning at the same time, as i can't imagine

giving my son 50 supplements a day. Even tougher to grasp is that what works for

some children does not work for others, so trail and error will be the best way

to go about this- at least i have the information of others who have done this

before to let me know what is most important.

>

> I guess just understanding the very basic supplements to start with would

help.

>

> Here is what we have right now:

>

> Probiotics (Powder):

> Bifidob acterium bifidum,

> Lactobacillus acidophilus,

> Bifidobacterium infantis,

>

> Childrens Multi-Vitamin (Liquid):

> Vitamin A (200% dv)

> Vitamin C (333% dv)

> Vitamin D (100% dv)

> Vitamin E (333% dv)

> Thiamin (B1) (500% dv)

> Riboflavin (B2) (500% dv)

> Niacin (100% dv)

> Vitamin B6 (850% dv)

> Folate (folic acid) (100% dv)

> Vitamin B12 (833% dv)

> Biotin (100% dv)

> pantothenic acid (d-calicum pantothenate) (500% dv)

> Calcium (3% dv)

>

> -john

>

=======================================================

[Guest guest]

> What is wierd is that i have had him on the probitics and taken him off a

few times... he seems to... i wouldn't say regress... but get sick more often

when on them. Could this be as a result of the candida dying off in his system?

Probiotics don't kill candida.

It could be some other bacteria.

Or maybe he is reacting to the probiotic itself. I don't really know... I am

sorry.

Try giving charcoal see if anything changes.

Valentina

[Guest guest]

_____

From: [mailto: ]

On Behalf Of Valentina Scharpf

Sent: Saturday, February 11, 2006 8:44 AM

Subject: Re: [ ] Just starting my son on ALA, need some help.

> What is wierd is that i have had him on the probitics and taken him off

a few times... he seems to... i wouldn't say regress... but get sick more

often when on them. Could this be as a result of the candida dying off in

his system?

Probiotics don't kill candida.

It could be some other bacteria.

Or maybe he is reacting to the probiotic itself. I don't really know... I am

sorry.

Try giving charcoal see if anything changes.

Valentina

Anytime you have non-organic mercury candida will form around it and suck it

up into it's cells. Breaking the cell wall of candida releases the mercury.

Many people with mercury in their digestive tract, especially the stomach,

are sensitive to probiotics. As an example, if you had amalgams and were

breathing mercury vapor, it would accumulate in the stomach. It would slowly

dissolve in hydrochloric acid to form mercuric salts (mercuric chloride,

etc) and candida would replicate in a viral fashion to cover the area and

then begin to suck the mercury up into it's cells.

Probiotics can break the cell wall of candida, and release the mercury, and

then methylate it. This is why some people with amalgams or a large amount

of mercury in their gut often are sensitive to probiotics, and will get

worse over time taking them. Sometimes they can take enteric coated

probiotics without having a problem.

Also taking something that displaces mercury (like zinc) along with the

probiotics can make matters worse. Personally I go really easy on probiotics

or don't do them all all because of my large burden of mercury.

Cheers,

PS - I'm not sure how far down the rabbit hole to take you here, but I will

add that candida serves a valuable function in sucking inorganic mercury up

into it's plant cells. Basically it is digesting the mercury, methylating it

into it's own flesh and as a result will create a better balance of soil in

the intestines. That is why we go through the cycle of chelating mercury and

then killing candida and yeast over and over again. I'll explain this

farther sometime if anyone is interested, but you need a basic understanding

of pleomorphism (euroamericanhealth.com has a nice primer). Nitrogenous

flesh with blood flowing through it, be it human, animal or plant flesh

(chlorophyll is plant blood), reflects the terrain of the soil. The

microorganisms in cells (protits) can and do change the cells from viral to

bacteral to fungal based on the terrain (this can easily be observed with ph

changes). A simpler way to look at it is " things are always breaking down

and creating a balance in the soil " or " life is being creating from the

soil " . The soil that a plants roots extend into and the soil that flows

through our small intestine where our villi (roots) extend into are very

similar. In the human body candida forms to digest (buffer) the mercury and

in " dying " creates better soil. In nature if you have rocks with high

mercury content, candida grows and breaks the rock down eventually back into

better soil.

For fun, I put a side by side picture at this URL:

http://mastermindresearch.com/anonymous

On the left is candida in the human body, on the right is a candida like

lichen growing on a rock with high mercury content near a mercury mine.

Notice any similarity? This picture was from a USGOV study where they break

off the lichen/candida and measure the amount of mercury it has sucked up to

determine how toxic the area near the mine is.

Cheers,

=======================================================

[Guest guest]

,

I always read your comments with interest, because you sound like somebody who

does a lot of research, but to be totally honest, I very rarely understand the

things you say. They simply don't make a lot of sense to me. I am not saying

that you are wrong. I am just saying that to me these things that you are

talking about sound like chinese. They don't match with the knowledge and

understanding I have about whatever the discussion is about.

I tried to do some research and find out if what you say is true. So far I

wasn't very successful.

I will try to comment a little bit, but as I said, I am not even sure I

understand correctly what you are saying. I am sorry...

> Anytime you have non-organic mercury candida will form around it and suck it

> up into it's cells. Breaking the cell wall of candida releases the mercury.

And how do you break the cell of candida? With probiotics? How would probiotics

break the cell wall of candida? And why all of a sudden the probiotics would

decide to do that? In what conditions? And why breaking the cell wall of the

yeast means that the mercury would be released?

And if you say that probiotics break the cell wall of candida, how come that

before you take probiotics the bacteria that is already in there is not doing

the same thing?

I don't think probiotics do anything like this. Or I should say I've never read

anything to make me believe this.

> Many people with mercury in their digestive tract, especially the stomach,

> are sensitive to probiotics.

Why are you saying this?

> As an example, if you had amalgams and were

> breathing mercury vapor, it would accumulate in the stomach.

Why? My research says that the organs where mercury from amalgams accumulates

are brain, kidneys, liver, not necessarily lung.

> Probiotics can break the cell wall of candida, and release the mercury, and

> then methylate it.

I want to believe this is true, but unless you show me some study that

demonstrates this... I am sorry to say but I don't understand how that would

happen.

And who methylates mercury now? Candida, or the probiotics?

> Sometimes they can take enteric coated

> probiotics without having a problem.

Why would that make a difference? I mean when those probiotics get out of that

coating, they are not going to do what you said they do anymore? Or why? I don't

understand... sorry.

> Also taking something that displaces mercury (like zinc)

Huh????

> PS - I'm not sure how far down the rabbit hole to take you here, but I will

> add that candida serves a valuable function in sucking inorganic mercury up

> into it's plant cells.

Now candida has plant cells???

Again I have to say I am not sure I understand what you're saying.

> Basically it is digesting the mercury, methylating it

> into it's own flesh and as a result will create a better balance of soil in

> the intestines.

Soil in the intestines... I think you lost me here. Not that I wasn't lost

before

> That is why we go through the cycle of chelating mercury and

> then killing candida and yeast over and over again.

Maybe this is what some people do.

This is not my experience. Me and my son chelated and got rid of candida in the

meantime.

> I'll explain this

> farther sometime if anyone is interested, but you need a basic understanding

> of pleomorphism (euroamericanhealth.com has a nice primer).

Boy! I read a little bit from this website. Hmmm..... how can a microorganism

change from a virus into a bacteria and then into yeast or fungus? I have to say

that I am not THAT smart to wrap my mind around that one.

> Nitrogenous

> flesh with blood flowing through it, be it human, animal or plant flesh

> (chlorophyll is plant blood), reflects the terrain of the soil. The

> microorganisms in cells (protits) can and do change the cells from viral to

> bacteral to fungal based on the terrain (this can easily be observed with ph

> changes). A simpler way to look at it is " things are always breaking down

> and creating a balance in the soil " or " life is being creating from the

> soil " . The soil that a plants roots extend into and the soil that flows

> through our small intestine where our villi (roots) extend into are very

> similar. In the human body candida forms to digest (buffer) the mercury and

> in " dying " creates better soil.

Do you really want me to comment on this one

> In nature if you have rocks with high

> mercury content, candida grows and breaks the rock down eventually back into

> better soil. For fun, I put a side by side picture at this URL:

> http://mastermindresearch.com/anonymous

> On the left is candida in the human body, on the right is a candida like

> lichen growing on a rock with high mercury content near a mercury mine.

> Notice any similarity?

Are you asking about the shape?

Well, they are both fungi...

> This picture was from a USGOV study where they break

> off the lichen/candida

So you're actually saying that the lichen is candida? I think you are wrong.

Well, anyway, I am sorry I get lost in trying to understand your theories. Maybe

you care to explain more. That would be great. If you do, I cannot promise

though that I will answer back. Mostly because I feel like I am spending too

much of my time trying to explain to you that your comments don't make sense TO

ME. Please don't get me wrong. I am not saying that you don't know what you're

talking about. I am just saying that to me it doesn't make much sense.

Valentina

[Guest guest]

Actually recommendation was kind of a blind one from his pediatrician on just

things he read that might help. I am seeing a DAN next week and doing blood

tests and everything to get a baseline so that i can get a better grip on

things.

thanks for your help. you are really a sound voice of reason on this board and

you take time to answer questions from most everyone. I appreciate it!

-jja

Valentina Scharpf <val999@...> wrote:

> We currently have him on a liquid multivitamin and probiotics only.

> No special diets at this point.

What about minerals? Zinc, Mg, Molybdenum, etc. Are you giving anything?

Are you giving vit. E?

The water soluble vitamins should be given 3-4 times a day.

> I am contemplating adding Carnosine and Idebenone (a tweaked form of

> CoQ10) to his supplements at the advice of his pediatrician. Just

> wondering what am i missing- or if the two new supplements make any

> sense.

Do you know why she recommended them?

My son had some really nice improvements with Carnosine. I hope it works for

your son at least as well as it worked for us

Good luck!

Valentina

=======================================================