Guest guest Posted August 15, 2007 Report Share Posted August 15, 2007 Hello Rhonda,Our daughter lives in a different town and has a friend who has ALS. She was diagnosed at a well known and respected medical center. She also went to a neurologist seeking help. Both told her there was nothing they could do and suggested she go home and get her affairs in order. My daughter told her about my experiences with LDN. The lady then went to her family doc asking for a prescription for LDN. He said she would have to get it from the well know and respected med center. They refused. She asked if I could somehow help. I asked my doc, who was willing to step up to the plate and try. He is already way too busy but agreed to see her and wrote her a script for LDN. That was several months ago. She now reports that she has a much higher energy level, her friends and family see a big improvement. Her speech is much better.I did a search, too, for ALS. It is a tough disease to have, not much hope in traditional medicine.I am not a doc or know much about medicine, I don't know if she is cured or just in relapse. I Just know that her quality of life is much better for now on LDN. She is looking forward to going back to the well known and respected medical center to show her improvement. I hope she teaches them something this time!If anyone else knows of any ALS treatment with LDN, I would very much like to pass them along to the lady.ThanksLeroy Choose the right car based on your needs. Check out Autos new Car Finder tool. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2007 Report Share Posted August 15, 2007 I don't understand the docs that won't let people try LDN when they have any disease that much else can't help and LDN surely won't hurt. I use to email a girl with carcinoid cancer and she had to BEG for LDN and finally she got a script. I lost contact and think she died and really pisses me off that docs act so stupid about prescribing LDN. > > OK, so go ahead home and die, but we won't try LDN???? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2007 Report Share Posted August 15, 2007 I would love to get all the mercury out of my mouth. I believe the procedure is expensive and if not done correctly can be more hazardsous to our health. Also, people need to think about mercury in seafood. I know a person that was tested for mercury and other things and her mercury levels were very high. She ate a lot of seafood and stopped. She has MS with other health issues and has no mercury dental fillings in her mouth. Rhonda > > Leroy/Ronda - > > I only know of one person who had ALS - My dentist (about 40). It was so bad he was in a wheelchair. He went to Canada to have the mercury taken out of his teeth the proper Dr. Hal Huggins method and came home walking. > > Mike Early > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2007 Report Share Posted August 16, 2007 There is a gentleman, named Pat Sullivan, who has had CFS and other auto immune issues, who has a foundation to pay for people's removal of amalgams---------------try www.patsullivan.org God Bless, Sara Mom/Grammie to seven "Trying to live by my priorities rather then my pressures". Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2007 Report Share Posted August 18, 2007 Hi Bonnie So glad you were helped by the trial. My husband goes to the MS dept at UCSF - he couldnt take part in the trial as he is already on LDN - but I`m hoping you should have no trouble at all in getting a script on the 27th. My husbands neuro at UCSF has been giving him LDN for over two years now so at least one neuro there does prescribe. I dont know if this doctor wants it to be known that he does prescribe and I`m planning on asking him next time we go (not till the end of the year I`m afraid) but at least you can ask for more LDN with knowledge that it is being done there. Good luck! -- In low dose naltrexone , " Bonnie Lyon " <bonniejlyon@...> wrote: > > I am new to this site. I participated in the clinical trial at UCSF with > Bruce Cree and want to thank all of you who funded it! I have not gotten > the results of the double blind study revealed and won't until " November " > according to the research assistant. I did experience a significant change > in the first leg of the trial and I wrote my neur and my gp the following: > > " Hi Doc! > > I am just finishing the second leg of the UCSF study of LDN with Dr. Bruce > Cree. I think the first 7 weeks were the real deal and I am now on placebo > because there is a significant change in the way I feel and if I was on the > LDN the first 7 weeks, I want it back for sure. Much more energy and less > bladder problems. Also less trips to the bathroom at night so better sleep. > Also seemed less stiff and sore. Just an overall lifting of general malaise > that is hard to really quantify but was certainly welcome. I also noticed > that I never missed a dosage for the first 7 weeks and it seemed that there > was almost an unconscious desire to take the pill. > If I was on a placebo the first 7 weeks then I am terrible test subject and > a world class responder to suggestion. I would like to make an appt. when > the trial is over to discuss this with you. " > > I have an appt with him on the 27th. If he doesn't prescribe for whatever > reason I have a GP friend who will. > > Determined Bonnie > > On 8/17/07, marshiris@... <marshiris@...> wrote: > > > > ANN CHERRY - you're right!! we have to fight to maintain our own > > health, these days and times!! if one doctor won't prescribe LDN, let > > him/her go, and get another one, who will!! > > > > marshiris > > > > > > > > ------------------------------ > > Get a sneak peek of the all-new AOL.com<http://discover.aol.com/memed/aolcom30tour/? ncid=AOLAOF00020000000982> > > . > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2007 Report Share Posted August 18, 2007 > > I am new to this site. I participated in the clinical trial at UCSF with > Bruce Cree and want to thank all of you who funded it! I have not gotten > the results of the double blind study revealed and won't until " November " > according to the research assistant. I did experience a significant change > in the first leg of the trial and I wrote my neur and my gp the following: > > " Hi Doc! > > I am just finishing the second leg of the UCSF study of LDN with Dr. Bruce > Cree. I think the first 7 weeks were the real deal and I am now on placebo > because there is a significant change in the way I feel and if I was on the > LDN the first 7 weeks, I want it back for sure. Much more energy and less > bladder problems. Also less trips to the bathroom at night so better sleep. > Also seemed less stiff and sore. Just an overall lifting of general malaise > that is hard to really quantify but was certainly welcome. I also noticed > that I never missed a dosage for the first 7 weeks and it seemed that there > was almost an unconscious desire to take the pill. > If I was on a placebo the first 7 weeks then I am terrible test subject and > a world class responder to suggestion. I would like to make an appt. when > the trial is over to discuss this with you. " > > I have an appt with him on the 27th. If he doesn't prescribe for whatever > reason I have a GP friend who will. > > Determined Bonnie =========== Bonnie, I encourage those of you in the trial who can afford to make the trip to try and attend the 2007 LDN Conference in Nashville, TN in October. Go to the LDN website and scroll down below Dr. Jill 's crohn's reults and click on the orange box about the Third Annual LDN Conference and all the details and regstration form will be there. Quote Link to comment Share on other sites More sharing options...
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