Guest guest Posted June 19, 2007 Report Share Posted June 19, 2007 PAUL - WELCOME TO THE GROUP!! you certainly have some good news to share with us all!! keep us informed of your continued progress!! marshiris@... See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2007 Report Share Posted June 19, 2007 Hi all My name is and I'm from Co Galway in Ireland . I was diagnosed in February 06 with RRMS but I'm sure i have had it since about 00 as i had many symptoms, but i always put them down to me leading a very unhealthy lifestyle ,smoking , drinking, bad diet, overweight , etc. The symptoms that i had was dizziness, loss of balance,blured vision, pins and needles, fatigue , bladder problems and bowel problems. Eventually after going to my GP for the second time with dizziness and loss of balance he sent me to hospital and i had a cat scan and a lumber puncture and shortly after i was told i had RRMS . When i came out of hospital i started to do my own research on the net and came across many things but the one that stood out was LDN. I got myself a copy of the book up the creek with a paddle and after reading that my mind was made up i got myself a prescription from my GP and got my LDN . I have now been taken a dose of 4.5 mg since February 06 . I have also changed all my bad habits and am taking regular exercise. And i am also taking cod liver oil , vitamins and fish oil and i stick to a diet that is very low in saturated fat .I also take Copaxone. I have never felt as healthy in all my life , all my symptoms have completely cleared up and i have had only one minor relapse since been diagnosed and that has also completely cleared up. On my last visit to my neuro after he had done his examination , the words he used was that if he had not the paperwork in front of him he would not no i had ms. The question i have is , is their anyone else out their that takes both ldn and copaxone? and if so how are you getting on? . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2007 Report Share Posted June 20, 2007 why are people on copaxone if they are having good success w/ LDNs?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2007 Report Share Posted June 20, 2007 > > why are people on copaxone if they are having good success w/ LDNs?? >  > ========= Some docs will not write a script for LDN unless their patients agree to take an FDA approved for MS treatment drug so some take C to appease their docs. Some are fearful that LDN will not do the trick alone. Other reasons I do not know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2007 Report Share Posted June 20, 2007 The one person I know about to begin LDN is adamant she'll stay on her Copaxone as she's fearful that IF she stops, she'll decline....we can't criticise others with MS as we all make our own choices, but I think more of us believe that the CRAB drugs fundamentally don't work than those that do..... From: Bren [mailto:b63powell@...] Sent: Wednesday, 20 June 2007 1:47 PM low dose naltrexone Subject: [low dose naltrexone] Re:LDN and Copaxone? > > why are people on copaxone if they are having good success w/ LDNs?? >  > ========= Some docs will not write a script for LDN unless their patients agree to take an FDA approved for MS treatment drug so some take C to appease their docs. Some are fearful that LDN will not do the trick alone. Other reasons I do not know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2007 Report Share Posted June 20, 2007 Hi to all, I just want to express my thoughts....with all due respect to all... We are all here because we have found LDN to help us with our health issues...period. How about we keep matters positive, share success stories, allow the experts to offer advice, and stop bashing those that do not follow the medical protocol that each one has chosen for themselves! We have enough baggage with our medical conditions and should remember that life is short, live it to your fulllest, and learn to agree to disagree. We do not need to use this forum to bash doctors, to question others medical choices, or to fill it up with personal comments directed to one person that just does not think like one thinks. Bitterness, anger, and any negative feeling just hurts ones body and mind and when these thoughts are typed they poison the rest on this forum. Please, if you are having a bad day just say so or don't type. Thanks for reading and again this is expressed with all due respect. Ivy in FloridaSee what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2007 Report Share Posted June 20, 2007 Hi , I'm taking both LDN and Copaxone, and I feel great. I used to take 3mg of LDN every night, and now I increased it to 3.5mg. I don't think that I should raise it to 4.5ml yet, I feel very secure taking both of the meds. I hope you'll continue to feel well, and please continue to update us in the group. Ronit Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2007 Report Share Posted June 20, 2007 I started with the Copaxone before I heared of the LDN. A week after I started taking LDN I felt great improvement. Since then, I continue taking them both. I feel more 'secure' taking both of the drugs. I'm very afraid of relapses. I don't ever want to have another relapse in my life. Perhaps in the future I will feel more comfortable with only the LDN. For now, I need all the security I can get. Psychology wise I guess. Ronit Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2007 Report Share Posted June 20, 2007 The reason I'm on Copaxone and LDN is that i have read in several places, one been the LDN website that Copaxone is the only one of the CRAB drugs that you are able to take with LDN. I have absolutely no side affects from the Copaxone and i coudnt be doing better , so why wouldn't i keep taking it. And the decision to take Copaxone was totally my own decision and nothing to do with my neuro or my GP. My view on it is i have four young children that are dependent on me and if i can have the best of both worlds with LDN and Copaxone then i will, and if a dozen more drugs come along that i think will keep me healthy then i will take them too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2007 Report Share Posted June 20, 2007 > > Hi to all, > > I just want to express my thoughts....with all due respect to all... > > We are all here because we have found LDN to help us with our health > issues...period. > > How about we keep matters positive, share success stories, allow the experts > to offer advice, and stop bashing those that do not follow the medical > protocol that each one has chosen for themselves! > > We have enough baggage with our medical conditions and should remember that > life is short, live it to your fulllest, and learn to agree to disagree. > > We do not need to use this forum to bash doctors, to question others medical > choices, or to fill it up with personal comments directed to one person that > just does not think like one thinks. Bitterness, anger, and any negative > feeling just hurts ones body and mind and when these thoughts are typed they > poison the rest on this forum. > > Please, if you are having a bad day just say so or don't type. > > Thanks for reading and again this is expressed with all due respect. > Ivy in Florida >=========== I am very leary of Copaxone because there's POSSIBLY, that's POSSIBLY a link that Copaxone increases a woman's risk of developing breast cancer. I feel Copaxone is just as much a poison as the other FDA approved MS drugs, but I'm not a professional, I'm just voicing my opinion. Until they prove in a " non-corrupt clinical trial " that Copaxone does not increase a woman's chances of developing breast cancer, I'd never encourage a woman to take Copaxone. Not being negative, just being cautious. Look at chemo, now it's been found to not be of benefit to most women with breast cancer, possibly only 8% or a little more. Look at all the lawsuits on FDA approved drugs that have been rushed through to approval that are killing people or causing other serious diseases, my dad is now a victim of medicated stents and cannot be by himself because his heart starts racing out of control because of these stents. It's very dangerous to remove the stents. Sometimes a negative opinion might save another person's life. /Bren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2007 Report Share Posted June 21, 2007 Good Morning to All, I just got back from a quick trip to Key Largo, Florida. Originally my husband and I were only going to drive down from Fort Myers, which is about a 3 hour drive, and come back the same day. Last October, right before my 53rd birthday, I wanted to swim with the dolphins, before I got so bad I couldn't do much of anything. Stacey, at Dolphins Plus, was wonderful with me. She had to be in the water with me to keep my legs down in the water and to help hold things, like the hoop for the dolphins to jump through. My strength was so bad that I couldn't hold onto the fin to be pulled around for fun. Luckily, at the time it was their slow season, so I was the only one scheduled for the afternoon. Well, last Monday we stopped at Dolphins Plus to say hello to our new friends. Marie and Lloyd (the parents of the owners) were just leaving for Lloyd's root canal. I hugged Marie, we talked some, and then Lloyd offered for me to be his guest for a dolphin swim the next morning. Of course we couldn't turn down such a kind and wonderful gift, so we stayed over night and at 8:30 a.m. Wednesday, I was sitting with people from many other states and countries hearing a 50 minute talk about the dolphins life. I got my vest on and scootered over to the bench on the dock. No shade, and it was warm. Stacey and I waited in the sun for about 15 minutes. Normally after only minutes of getting over heated I would have turned into Raggedy Ann, without being able to even lift up my head. Well, I was like a normal human, just feeling warm but didn't get effected by it. I held a heavy hoop by myself for the dolphins to jump thru. I have a picture to prove it. After my newest experience with Sara and the dolphins, and Stacey, I was helped out and back on my scooter. Stacey was amazed at all my improovements and new strength I had She wants me to email her with my progress. She was on national tv a few weeks ago for working with a deaf baby dolphin. I just happened to be channel surfing and saw her. Who knows may LDN could work on sick dolphin. They are such beautiful creatures. Can't wait to refill my ldn to to 3.0 dosage. I just received a flyer from the National MS Society South Florida Chapter announcing the 8th Annual Women's Retreat Celebrating The Essence Of You: Living It Up" July 20 - 22, 2007.Miami, Florida Miami Airport Hilton 800-344-4867 200 women is the limit $100 per person. with a limited number of scholarships (free) I attended the very first one at Pier 66 in Fort Lauderdale. I would love to attend and stand up and share my story with ldn in the dining room. Maybe I could save many newly diagnosed from the struggle to get better and being on expensive drugs that didn't help me at all for many years. Sadly I have an important event happening at the same time and can not attend. If anyone is interested in a fun weekend and can make it, go share you success story. It would have been a blessing to me if someone had shared that 8 years ago. I'm guessing ldn wasn't known about yet. The world is looking brighter to me thanks to ldn. Have a fantastic day everyone. Annie From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of nadasuit@...Sent: Wednesday, June 20, 2007 8:16 AMlow dose naltrexone Subject: Re: [low dose naltrexone] Re:LDN and Copaxone? Hi to all, I just want to express my thoughts....with all due respect to all... We are all here because we have found LDN to help us with our health issues...period. How about we keep matters positive, share success stories, allow the experts to offer advice, and stop bashing those that do not follow the medical protocol that each one has chosen for themselves! We have enough baggage with our medical conditions and should remember that life is short, live it to your fulllest, and learn to agree to disagree. We do not need to use this forum to bash doctors, to question others medical choices, or to fill it up with personal comments directed to one person that just does not think like one thinks. Bitterness, anger, and any negative feeling just hurts ones body and mind and when these thoughts are typed they poison the rest on this forum. Please, if you are having a bad day just say so or don't type. Thanks for reading and again this is expressed with all due respect. Ivy in Florida See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2007 Report Share Posted June 21, 2007 HI Annie Your story is very heartwarming - so glad you had a different experience from your last visit. As to speaking out at these conferences - my husband (who has MS) and I attended quite a few of them right after his diagnoses and starting LDN three years ago - I have to tell you they dont want to hear it! They are all sponsored by the big pharma`s - Biogen etc - and they very efficiantly shut you down when you try to discuss anything other than tranditional MS meds. We left each time feeling very frustrated that we couldnt get a platform to spread the word and most people seemed to think we were trying to sell them something! Too many people are closed minded and put all their faith in what their doctors tell them without venturing out of the box and doing research themselves. We gave up trying to tell our story at these meetings years ago unfortunately. To this day my husband has never taken anything other than LDN and continues to show no progression and works a full day doing a physical job. Our own little sucess story indeed! > > Good Morning to All, > > I just got back from a quick trip to Key Largo, Florida. Originally my > husband and I were only going to drive down from Fort Myers, which is about > a 3 hour drive, and come back the same day. > > Last October, right before my 53rd birthday, I wanted to swim with the > dolphins, before I got so bad I couldn't do much of anything. Stacey, at > Dolphins Plus, was wonderful with me. She had to be in the water with me to > keep my legs down in the water and to help hold things, like the hoop for > the dolphins to jump through. My strength was so bad that I couldn't hold > onto the fin to be pulled around for fun. Luckily, at the time it was their > slow season, so I was the only one scheduled for the afternoon. > > Well, last Monday we stopped at Dolphins Plus to say hello to our new > friends. Marie and Lloyd (the parents of the owners) were just leaving > for Lloyd's root canal. I hugged Marie, we talked some, and then Lloyd > offered for me to be his guest for a dolphin swim the next morning. Of > course we couldn't turn down such a kind and wonderful gift, so we stayed > over night and at 8:30 a.m. Wednesday, I was sitting with people from many > other states and countries hearing a 50 minute talk about the dolphins life. > > I got my vest on and scootered over to the bench on the dock. No shade, and > it was warm. Stacey and I waited in the sun for about 15 minutes. Normally > after only minutes of getting over heated I would have turned into Raggedy > Ann, without being able to even lift up my head. Well, I was like a normal > human, just feeling warm but didn't get effected by it. I held a heavy hoop > by myself for the dolphins to jump thru. I have a picture to prove it. > After my newest experience with Sara and the dolphins, and Stacey, > I was helped out and back on my scooter. Stacey was amazed at all my > improovements and new strength I had She wants me to email her with my > progress. She was on national tv a few weeks ago for working with a deaf > baby dolphin. I just happened to be channel surfing and saw her. Who knows > may LDN could work on sick dolphin. They are such beautiful creatures. > Can't wait to refill my ldn to to 3.0 dosage. > > I just received a flyer from the National MS Society South Florida Chapter > announcing the 8th Annual Women's Retreat Celebrating The Essence Of You: > Living It Up " July 20 - 22, 2007.Miami, Florida Miami Airport Hilton > 800-344-4867 200 women is the limit $100 per person. with a limited > number of scholarships (free) > > I attended the very first one at Pier 66 in Fort Lauderdale. I would love > to attend and stand up and share my story with ldn in the dining room. > Maybe I could save many newly diagnosed from the struggle to get better and > being on expensive drugs that didn't help me at all for many years. Sadly I > have an important event happening at the same time and can not attend. If > anyone is interested in a fun weekend and can make it, go share you success > story. It would have been a blessing to me if someone had shared that 8 > years ago. I'm guessing ldn wasn't known about yet. > > The world is looking brighter to me thanks to ldn. > > Have a fantastic day everyone. > > Annie > > _____ > > From: low dose naltrexone > [mailto:low dose naltrexone ] On Behalf Of nadasuit@... > Sent: Wednesday, June 20, 2007 8:16 AM > low dose naltrexone > Subject: Re: [low dose naltrexone] Re:LDN and Copaxone? > > > > > Hi to all, > > I just want to express my thoughts....with all due respect to all... > > We are all here because we have found LDN to help us with our health > issues...period. > > How about we keep matters positive, share success stories, allow the experts > to offer advice, and stop bashing those that do not follow the medical > protocol that each one has chosen for themselves! > > We have enough baggage with our medical conditions and should remember that > life is short, live it to your fulllest, and learn to agree to disagree. > > We do not need to use this forum to bash doctors, to question others medical > choices, or to fill it up with personal comments directed to one person that > just does not think like one thinks. Bitterness, anger, and any negative > feeling just hurts ones body and mind and when these thoughts are typed they > poison the rest on this forum. > > Please, if you are having a bad day just say so or don't type. > > Thanks for reading and again this is expressed with all due respect. > Ivy in Florida > > > > _____ > > See what's free at AOL.com <http://www.aol.com? ncid=AOLAOF00020000000503> . > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 Hi Christin, Copaxone is the only CRAB drug deemed compatible with LDN. For more information about LDN in the treatment of MS, visit http://tinyurl.com/grpm9 All the best, Dudley Delany dudley_delany [low dose naltrexone] LDN and Copaxone? Hi, I have a question as far as using LDN and Copaxone together. Will that work or will the LDN work against the Copaxone? My primary symptoms with MS are cognitive symptoms, balance and coordination. My doctor wants me to continue the traditional CRAB drugs, but I also want to use LDN. I wonder if a compromise could be possible? Anybody else using both? Thank you, Christin Quote Link to comment Share on other sites More sharing options...
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