Guest guest Posted June 29, 2007 Report Share Posted June 29, 2007 Ann- I am on both Copaxone and LDN and I feel great...maybe it is you diet, your not eating artificial sugar are you b/c that kills me. MeghannSee what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2007 Report Share Posted June 29, 2007 I felt (no firm data to support) that the Copaxone was making me worse / may have caused an exacerbation. That's what drove me to low dose naltrexone (LDN). > > Dear Group, > I haven't spoken to you guys in a while but I have been reading the e-mails. > Either I'm dense or this has not been brought up, I have been on Copaxone for > about 2 1/2 weeks and if I'm not going nuts it seems that the symptoms are > worse, as if it aggravates it. > Thanks, > Ann > ann02@... > > > > ************************************** See what's free at http://www.aol.com. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2007 Report Share Posted June 29, 2007 Meghann, I have thought about my diet countless times, give myself credit for thinking about it put do nothing. I don't eat artificial sugar, just eat too much sugar. I'm 5',5 1/2", 137lbs, eat pretty good but not good enough. Also have all my supplements. I'll get off Copaxone for a week eat better and see how I feel. Thanks, Ann annf02@...See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2007 Report Share Posted June 29, 2007 > > Dear Group, > I haven't spoken to you guys in a while but I have been reading the e-mails. > Either I'm dense or this has not been brought up, I have been on Copaxone for > about 2 1/2 weeks and if I'm not going nuts it seems that the symptoms are > worse, as if it aggravates it. > Thanks, > Ann > ann02@... > Ann, If you think Copaxone is making you worse why don't you stop taking it and see if things improve? Art -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2007 Report Share Posted June 29, 2007 ANNE - is that copaxoone with LDN; or are you using it alone - for MS?? marshiris@...See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2007 Report Share Posted June 29, 2007 Marshiris, It is Copaxone with LDN. I'd read others members were using it together.See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2007 Report Share Posted June 29, 2007 ANNE - so, you're using copaxone with LDN - if it isn't working for you; from what i'm leaning from the group members - all things don't work for all of us!! try LDN without it; and see what happens!! i'm not an MSer; and have never used copaxone; just going by what i read from the group!! marshiris@... See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2007 Report Share Posted June 29, 2007 Marie, I was always stronger from the waist down, since the Copaxone was anything but. Dreaded walking just to get the mail. The aches and pains even seem worse. Also wanted to give it a chance but thanks to you and the rest of the group that has e-mailed I've made up my mind, forget the Copaxone. What did I do before I had the group to talk to?! Thanks again, Ann annf02@...See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2007 Report Share Posted June 29, 2007 Marshiris, Thanks for your e-mail. Yes, I'm going back to using only LDN. until Ann annf02@...See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2007 Report Share Posted June 29, 2007 Hi Ann, Copaxone is not for everyone. I was put on it and I was getting worst. I could tell immediately but wanted to give it a chance. I had always been strong from my waist up and now I was loosing my upper body strength. I was also getting shooting pains in my head and my ears. I was so much worst. Then I found out about LDN and decided to stop the copaxone and take LDN. I could see myself getting better right away. No more shooting pains and my upper body strength got stronger. That was 4 years ago and I am still pleased with the way that I feel on LDN. I have never taken any of the other CRAB drugs. To this day my neuro is pleased with how I am handling MS but he still won't prescribe LDN for me. My suggestion---GET OFF COPAZONE. Good Luck Marie [low dose naltrexone] copaxone? Dear Group, I haven't spoken to you guys in a while but I have been reading the e-mails. Either I'm dense or this has not been brought up, I have been on Copaxone for about 2 1/2 weeks and if I'm not going nuts it seems that the symptoms are worse, as if it aggravates it. Thanks, Ann ann02@... See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
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