Copaxone and LDN

[Guest guest]

Dr. Ayer has just called in a RX for me for LDN. Should I continue to

give myself an injection of copaxone every day? Please give me the

details. I would like to stop the injections but only if they have no

benefit. Will copaxone decrease the benefit of LDN? Any information is

greatly appreciated. Thank you, Jack Dueck in Arizona.

[Guest guest]

Hi Jack,

Congratulations on getting your script. After 2.5 years of being on this chat site, my take is that Copaxone will not diminish any of the effects from LDN. Most people that continue with Copaxone end up getting off because they feel that LDN is doing great and they no longer need Copaxone. Some have stayed on.

I think I remember sending you a copy of the "welcome e-mail" but if not please let me know and I will send out a copy right away.

Best of luck, and keep us all posted on how things go.

Aletha

[low dose naltrexone] Copaxone and LDN

Dr. Ayer has just called in a RX for me for LDN. Should I continue to give myself an injection of copaxone every day? Please give me the details. I would like to stop the injections but only if they have no benefit. Will copaxone decrease the benefit of LDN? Any information is greatly appreciated. Thank you, Jack Dueck in Arizona.

[Guest guest]

Hi Jack,

I am taking both copaxone and LDN.

I want to make reduce the possibilities of having a remission.

I felt an improvement after 1 week on LDN, but I still take the crab drug.

I think it will be wise for you to stay with the copaxone until you feel its useless for you.

Good luck,

Ronit

[Guest guest]

From all that I've read, the only MS drugs to be avoided if taking LDN

are the Interferon drugs (Avonex, Betaseron and Rebif). I don't

believe you'd have any ill effects, it just reduces the efficacy of

those drugs. Copaxone is the only FDA approved MS drug that I know of

that works with LDN (I don't know about the newer drugs).

I don't think of LDN as being used in place of Copaxone, just in

addition to. If I didn't have patient assistance for Copaxone, I

would use it in place of.

Larry

>

> Hi Jack,

>

> Congratulations on getting your script. After 2.5 years of being on

this chat site, my take is that Copaxone will not diminish any of the

effects from LDN. Most people that continue with Copaxone end up

getting off because they feel that LDN is doing great and they no

longer need Copaxone. Some have stayed on.

>

> I think I remember sending you a copy of the " welcome e-mail " but if

not please let me know and I will send out a copy right away.

>

> Best of luck, and keep us all posted on how things go.

>

> Aletha

> [low dose naltrexone] Copaxone and LDN

>

>

> Dr. Ayer has just called in a RX for me for LDN. Should I continue to

> give myself an injection of copaxone every day? Please give me the

> details. I would like to stop the injections but only if they have no

> benefit. Will copaxone decrease the benefit of LDN? Any

information is

> greatly appreciated. Thank you, Jack Dueck in Arizona.

>

[Guest guest]

I have been taking LDN for 2 months. I'm tapering off the Copaxone

because it is costing me over $1,900./mo. I'm on Medicare and I'm

dealing with the " Donut hole " . If it was still covered I would

probably stay on it with the LDN. They say it's ok to take both.

Betty

[Guest guest]

---

Larry,

Under attack... meaning a flare or my doctor attacking me? I have MS

so that deems me an air head more often than not. To be honest I

never was really very good at understanding. Sorry!!

JMHO? Just my honest opinion? So basically you mean copaxone is

worthless and I would be wasting my time and money? It is FDA

approved which tells me if the gov says ok its probally not very

good. I am just trying to keep the peace with my neuro. He is the

only one in my area. He is worried about my rapid progression. I have

had 2 relaspes in 7 months. My optic neuritis from the first flare

is still present and had no improvement at all. I am not a big

believer in if you think it works it will. Only God knows what

tomorrow holds.

In low dose naltrexone , " LarryGC " <larrygc@...> wrote:

>

>

> No, but I can tell you of my experience when the MS nurses were

trying to play Let's Make a Deal

>

> She told me I could do them every other day because they would

be 'just as effective', when I still said no, she said I could even

do it on a Rebif schedule and it would be 'better than nothing'

>

> However, Copaxone is only a Decoy, so if you're NOT going to be

Under Attack, doing Copaxone is PLACEBO, MIND OVER MATTER, JMHO, OC,

totally unneeded IF you're NOT going to BE under attack.

>

> To me, Copaxone are like the Auxiliary Police force... they have no

real power, only act as decoys until the real cops show up. If

there's no current crime rate, they just drive around wasting gas.

It's like using condoms even though you're on the pill, have an iud

and are in a monogamous relationship.

>

> That's probably why the main side effects are niacin heatwave rushs

and injection site reactions. My only question is, if you keep

shooting up decoys, WHERE do they go? do they just pile up? or do

they get flushed out?

>

> But, if it makes You THINK it's doing something, then do it. Lots

of people do.

>

> JMHO JMHO JMHO, OC YMMV

> [low dose naltrexone] Copaxone and LDN

>

>

> Does anyone in this group take copaxone and LDN together? I just

read

> about a new study that says copaxone can be taken every other day

and

> still remain just as effective as everyday injections. I am

considering

> copaxone WITH my LDN mostly because my neuro is willing to try

this

> combo with me instead of the dreaded tysibri. Anyone who can tell

me

> what results you have had will be wonderfully appreciated.

>

[Guest guest]

Well.. I can't tell you what to do, only what I'd do. If you're under attack, then add the copaxone, sure. Every other day OK in my book. IF it's gonna help, I THINK, it'll do as much good every day as every other day. The mechanism is different than the interferons.

If it'll make your neuro feel better about you being on LDN, then by all means take the Copaxone prescription.

If I HAD to take a script I think I'd do one injection in each of the 7 locations they recommend, and then just play DARTS with the rest of them.. Actually, I'm not even sure I could stomach 7 injections. I may just do one and say FORGET That!

I really don't wanna be a pin cushion. Especially with all I know now, after 5 years on LDN and 6 knowing I have MS

But, yelp, JMHO is just that...

[low dose naltrexone] Re: Copaxone and LDN

--- Larry, Under attack... meaning a flare or my doctor attacking me? I have MS so that deems me an air head more often than not. To be honest I never was really very good at understanding. Sorry!! JMHO? Just my honest opinion? So basically you mean copaxone is worthless and I would be wasting my time and money? It is FDA approved which tells me if the gov says ok its probally not very good. I am just trying to keep the peace with my neuro. He is the only one in my area. He is worried about my rapid progression. I have had 2 relaspes in 7 months. My optic neuritis from the first flare is still present and had no improvement at all. I am not a big believer in if you think it works it will. Only God knows what tomorrow holds.