Guest guest Posted May 31, 2007 Report Share Posted May 31, 2007 I started LDN in February along with Humira I had a scope of my BCIR two weeks ago and there were no signs of Crohn's. First time in 24 years! My specialist has agree to try the LDN exclusively and see what happens.... Not sure if the Humira or the LDN was responsible. We will see. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2007 Report Share Posted May 31, 2007 TONY & AARON - you both are truly inspirations to us all who have crohn's disease!! can't wait to start on LDN, myself; which will be soon, as i have the transdermal cream on shipment!! will soon join you all in your successes!! WITH PRAYER & BEST WISHES, marshiris@... See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2007 Report Share Posted May 31, 2007 Thats really good news either way . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2007 Report Share Posted May 31, 2007 > > I started LDN in February along with Humira I had a scope of my BCIR > two weeks ago and there were no signs of Crohn's. First time in 24 > years! My specialist has agree to try the LDN exclusively and see what > happens.... Not sure if the Humira or the LDN was responsible. We > will see. > > > Hi Arron Sounds like you are doing well ! I have Crohn's for 18years. Resection five years ago. Early March 07 I had some fistula surgery and then started taking LDN afterwards. I have been taking LDN for 3 months 4.5mg and my three fistulas appear to be slowly healing. I am also on immuran and salofalk and questran Diet too is important. Also I do not eat wheat, corn or milk anymore :- but every one is different you need to find out what does not agree with you.I make my own yourgurt for the good bacteria http://www.lucyskitchenshop.com/yogourmet.html I have porridge and flax seed for breakfast Is anyone here taking part in the Prof Jill double blind trials on using LDN for Crohns? I am curious when the results will be ready since it started last year.It is only after clinical trials like will doctors start taking LDN seriously Tony Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2007 Report Share Posted May 31, 2007 I started LDN 10/24/06 and I have absolutely no signs of Crohns...finally in remission after two years of trying everything. > > Hello all, > I just wondered if anyone out there who has been taking LDN for > Crohn's have any more updates on their conditions. Its been a while > since we have heard from them on here. > Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2007 Report Share Posted May 31, 2007 My GI read Dr. 's report in one of his journals and told me that she allows the crohn's participants to be on steroids and they can take LDN any time of the day they wish ... what gives? That's not what I heard. > > > > I started LDN in February along with Humira I had a scope of my > BCIR > > two weeks ago and there were no signs of Crohn's. First time in 24 > > years! My specialist has agree to try the LDN exclusively and see > what > > happens.... Not sure if the Humira or the LDN was responsible. We > > will see. > > > > > > > > Hi Arron > > Sounds like you are doing well ! > > I have Crohn's for 18years. Resection five years ago. Early March 07 > I had some fistula surgery and then started taking LDN afterwards. I > have > been taking LDN for 3 months 4.5mg and my three fistulas appear to be > slowly healing. I am also on immuran and salofalk and questran > > Diet too is important. Also I do not eat wheat, corn or milk > anymore :- but every one is different you need to find out what does > not agree with you.I make my own yourgurt for the good bacteria > http://www.lucyskitchenshop.com/yogourmet.html > I have porridge and flax seed for breakfast > > Is anyone here taking part in the Prof Jill double blind trials > on using LDN for Crohns? I am curious when the results will be ready > since it started last year.It is only after clinical trials like will > doctors start taking LDN seriously > > Tony > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2007 Report Share Posted May 31, 2007 AARON - great news!! am a crohn's patient of 16 yrs., and waiting on pins and needles for my 1st supply of transdermal cream to come!! it has been shipped!!! you have really inspired me, with your testimony!! KEEP ON KEEPING ON!! marshiris@... See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2007 Report Share Posted May 31, 2007 > > > My GI read Dr. 's report in one of his journals and told me that > she allows the crohn's participants to be on steroids and they can > take LDN any time of the day they wish ... what gives? That's not > what I heard. > =========== LDN for crohn's is a whole different ballgame. People with MS, RA, cancer, etc cannot come off LDN and retain remission like many crohn's patients can. I think allowed those who had sleep disturbance to take LDN during the day, one doesn't get the maximum endorphin boost during daytime hours like the nightime dose but they get some boost, just not the maximum. Why she let people stay on immune suppressants is a mystery to me. Quote Link to comment Share on other sites More sharing options...
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