Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 Thanks Theo, I am curious, are you also on any other meds at this time? Also, sometimes people do not feel any differently this quickly. But you are right that a majority would feel something differently within the first week. Thank you so much for keep us posted. Are you in the SF area, or elsewhere? Kindest of regards Aletha [low dose naltrexone] Starting on LDN HiI have been on the LDN clinical trial at UCSF andalmost a week ago I completed the 1st phase. Both myneuro as well as myself felt that i was on placeboduring the 1st phase.According to my neuro, who is not w/ UCSF, I wouldhave felt the drug somehow had I started on LDN.Coming THU, in 1 day that is, will be switching topossibly LDN.I will keep the list posted on my experiences.regardstheo __________________________________________________________Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. http://surveylink./gmrs/_panel_invite.asp?a=7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 Hi Aletha, I am on Copaxone since last JAN and dignosed w/ MS since 95. I had to meet the minimum 3 month requirement before I could join the trial which I did last APR. I do not take any other drugs. I do live in the East Bay, Concord if you are familiar. My pleasure to contribute to the list w/ my upcoming experiences. The list has been so informative to me. cheers Theo --- Aletha Wittmann <Aletha@...> wrote: > Thanks Theo, > > I am curious, are you also on any other meds at this > time? > > Also, sometimes people do not feel any differently > this quickly. But you are right that a majority > would feel something differently within the first > week. > > Thank you so much for keep us posted. Are you in > the SF area, or elsewhere? > > Kindest of regards > Aletha > > > [low dose naltrexone] Starting on LDN > > > Hi > > I have been on the LDN clinical trial at UCSF and > almost a week ago I completed the 1st phase. Both > my > neuro as well as myself felt that i was on placebo > during the 1st phase. > According to my neuro, who is not w/ UCSF, I would > have felt the drug somehow had I started on LDN. > > Coming THU, in 1 day that is, will be switching to > possibly LDN. > > I will keep the list posted on my experiences. > > regards > theo > > > __________________________________________________________ > Fussy? Opinionated? Impossible to please? Perfect. > Join 's user panel and lay it on us. > http://surveylink./gmrs/_panel_invite.asp?a=7 > > > > > ________________________________________________________________________________\ ____ Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. http://surveylink./gmrs/_panel_invite.asp?a=7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 Hi Theo, Yes I have family in Concord. I am near Monterey. Not too far away. I am glad to hear that you are on Copaxone as opposed to the Crab meds. Copaxone works fine with LDN. As I recall I believe I had sent you a copy of the welcome e-mail earlier. But if I am mistaken please let me know. I am hoping you have great success with LDN. If not, please know that some people take a longer while to see results. I hope you will give it a longer try on your own after the trial. My very best Aletha [low dose naltrexone] Starting on LDN> > > Hi> > I have been on the LDN clinical trial at UCSF and> almost a week ago I completed the 1st phase. Both> my> neuro as well as myself felt that i was on placebo> during the 1st phase.> According to my neuro, who is not w/ UCSF, I would> have felt the drug somehow had I started on LDN.> > Coming THU, in 1 day that is, will be switching to> possibly LDN.> > I will keep the list posted on my experiences.> > regards> theo > > >__________________________________________________________> Fussy? Opinionated? Impossible to please? Perfect.> Join 's user panel and lay it on us.>http://surveylink./gmrs/_panel_invite.asp?a=7> > > > > __________________________________________________________Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. http://surveylink./gmrs/_panel_invite.asp?a=7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 Aletha, Copaxone is what the 'C' stands for in CRABs. It just happens to be the only one that LDN seems to be compatible with. Marcie Art Hansen <rtee54@...> wrote: >> Hi Theo,> > Yes I have family in Concord. I am near Monterey. Not too far away. > > I am glad to hear that you are on Copaxone as opposed to the Crab meds. Copaxone works fine with LDN. As I recall I believe I had sent you a copy of the welcome e-mail earlier. But if I am mistaken please let me know. > > I am hoping you have great success with LDN. If not, please know that some people take a longer while to see results. I hope you will give it a longer try on your own after the trial. > > My very best> AlethaCopaxone IS one of the CRAB medications. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 Hi Janet, I can say for sure that so far I did not notice anything new from how I was feeling throughout the last year, though I can also say that I did not notice any worsening though either since I started the trial. So, I am in for surprises as from tonight, hopefully +ve ones. Kind Regards theo --- Janet Kunselman <janetkunselman@...> wrote: > Theo, > > Thank you for allowing us to " be a part " of > your experiences. I'm sure all of us on LDN would > love to know what's going on in this trial. It's > great that your'e willing to share. That's how we > all learn. Hope you notice a difference when you > switch meds. > > My Best, > Janet > > Papillion <petaloudas@...> wrote: > Hi > > I have been on the LDN clinical trial at UCSF and > almost a week ago I completed the 1st phase. Both > my > neuro as well as myself felt that i was on placebo > during the 1st phase. > According to my neuro, who is not w/ UCSF, I would > have felt the drug somehow had I started on LDN. > > Coming THU, in 1 day that is, will be switching to > possibly LDN. > > I will keep the list posted on my experiences. > > regards > theo > > > __________________________________________________________ > Fussy? Opinionated? Impossible to please? Perfect. > Join 's user panel and lay it on us. > http://surveylink./gmrs/_panel_invite.asp?a=7 > > > > > > > > --------------------------------- > You snooze, you lose. Get messages ASAP with > AutoCheck > in the all-new Beta. ________________________________________________________________________________\ ____ Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games. http://sims./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2007 Report Share Posted June 15, 2007 Hi, ....For the records.. Yesterday was the first day since I switched medication according to the UCSF LDN trial directives, and I must say I noticed no difference whatsoever. Again, according to my neuro, I should be able to tell when am on LDN drug and not on placebo. I guess patience is a virtue... Theo --- Papillion <petaloudas@...> wrote: > Hi Aletha, > > I am on Copaxone since last JAN and dignosed w/ MS > since 95. > > I had to meet the minimum 3 month requirement before > I > could join the trial which I did last APR. > I do not take any other drugs. > > I do live in the East Bay, Concord if you are > familiar. > > My pleasure to contribute to the list w/ my upcoming > experiences. The list has been so informative to me. > > cheers > Theo > > > > --- Aletha Wittmann <Aletha@...> wrote: > > > Thanks Theo, > > > > I am curious, are you also on any other meds at > this > > time? > > > > Also, sometimes people do not feel any differently > > this quickly. But you are right that a majority > > would feel something differently within the first > > week. > > > > Thank you so much for keep us posted. Are you in > > the SF area, or elsewhere? > > > > Kindest of regards > > Aletha > > > > > > [low dose naltrexone] Starting on LDN > > > > > > Hi > > > > I have been on the LDN clinical trial at UCSF > and > > almost a week ago I completed the 1st phase. > Both > > my > > neuro as well as myself felt that i was on > placebo > > during the 1st phase. > > According to my neuro, who is not w/ UCSF, I > would > > have felt the drug somehow had I started on LDN. > > > > Coming THU, in 1 day that is, will be switching > to > > possibly LDN. > > > > I will keep the list posted on my experiences. > > > > regards > > theo > > > > > > > __________________________________________________________ > > Fussy? Opinionated? Impossible to please? > Perfect. > > Join 's user panel and lay it on us. > > > http://surveylink./gmrs/_panel_invite.asp?a=7 > > > > > > > > > > > > > > > ________________________________________________________________________________\ ____ > Fussy? Opinionated? Impossible to please? Perfect. > Join 's user panel and lay it on us. > http://surveylink./gmrs/_panel_invite.asp?a=7 > > > ________________________________________________________________________________\ ____ Need a vacation? Get great deals to amazing places on Travel. http://travel./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2007 Report Share Posted June 15, 2007 > > Hi, > > ...For the records.. > > Yesterday was the first day since I switched > medication according to the UCSF LDN trial directives, > and I must say I noticed no difference whatsoever. > > Again, according to my neuro, I should be able to tell > when am on LDN drug and not on placebo. > > I guess patience is a virtue... > > Theo > > ============== Some people do not feel any different on LDN, the main purpose of LDN is to halt disease progression, not improve symptoms. Only about 2/3 who take LDN see symptom improvement. Some people have started LDN and didn't see any difference until 6 to 9 months later. Some didn't think it was doing a thing until they stopped taking it and then they realized, oops, yes it was doing something and they started back on LDN. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2007 Report Share Posted June 15, 2007 Hi Bren, My fault as I think I was not clear on what I meant. What I meant was that according to my neuro, when someone starts on LDN usually notices some sort of side effects. This is what I meant that I noticed no difference, i.e. I was referring to - no side effects noticed at least on day 1 I guess I shouldn't necessarily notice any side effects either anyway. Thanks Theo --- Bren <b63powell@...> wrote: > > > > > Hi, > > > > ...For the records.. > > > > Yesterday was the first day since I switched > > medication according to the UCSF LDN trial > directives, > > and I must say I noticed no difference whatsoever. > > > > Again, according to my neuro, I should be able to > tell > > when am on LDN drug and not on placebo. > > > > I guess patience is a virtue... > > > > Theo > > > > ============== > > Some people do not feel any different on LDN, the > main purpose of > LDN is to halt disease progression, not improve > symptoms. Only > about 2/3 who take LDN see symptom improvement. > Some people have > started LDN and didn't see any difference until 6 to > 9 months later. > > Some didn't think it was doing a thing until they > stopped taking it > and then they realized, oops, yes it was doing > something and they > started back on LDN. > > > > ________________________________________________________________________________\ ____ Need Mail bonding? Go to the Q & A for great tips from Answers users. http://answers./dir/?link=list & sid=396546091 Quote Link to comment Share on other sites More sharing options...
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