Speech

[Guest guest]

greysean wrote:

>

> Hi ,

>

> It really is difficult to travel with twins - especially young ones.

> I dread everytime we have to travel to Drew's family in N.C. - it just

> about kills us. I'm glad you are starting speech. I think that is

> around when started speech. I am told that he is doing very well

> in speech for a child with DS. I know when he started off it was slow

> going but when our ST started showing him flash cards he just loved

> them and that spurred him on, that and a love of books. I remember one

> of his early words that was so funny was house because he over

> exagerated the ou and would lean forward while saying it. It really

> tickled his therapist and she would keep bringing that card back and

> he knew it made her laugh so he would get bigger and bigger with his

> interpretations. He still has trouble if you give him a choice of

> three or more he can't answer which one is which even if separately he

> knows them. Its kind of strange. And sometimes its clear he pays no

> attention to what you are asking for and he goes for which ever one he

> likes best - like house - he always chose that one.

> I went yard sale shopping this weekend and found one of those

> talking Barney's. It asks questions like " find something brown " and "

> what does a cow say " and " you are my special friend " and of course " I

> love you. " Well is repeating all the last word or at least the

> last part of words like imagination ( he can't possibly say that whole

> word) and saying very clearly " special friend " which to me seems

> awfully difficult to say and he is answering some of the questions and

> saying " I love you " even though that is not quite as clear. I am so

> proud of him and anyone whose child likes Barney - it is working for

> .He is also trying to make him talk - that is the real challange

> for since he hates touching anything especially stuffed animals.

> It works by squeezing his hand or pushing his tummy.

> The other thing that got talking was Twinkle Twinkle Little Star

> his favorite song. I started not saying the last word and he would

> fill it in for me, now he is starting to do that with some of the

> alphabet and numbers. Good luck with the speech, I know for us that

> has made the biggest difference with cause it makes him seem not

> quite as far behind.

>

> Quick question to everyone- and Gresyson's birthday is in two

> weeks and we are having a small party and I am looking for ideas on

> something fun for the kids to do. It is going to be a really small

> party with only about other 4 kids their age and siblings. I would be

> grateful for any suggestions my mind is a total blank.

>

> Margaret - mom to (DS), Greyson - 2years 11 mos. and Annice 16mos

How about a small craft to make, and bring home? It could do double duty

as a " goodie bag " ! How about making something with their name on it? My

3 yr old loves " personallized " things! Just a thought.

Gail mom to Bobby-5, Jillian-3, and Tara{Ds}6months

[Guest guest]

Hi Margaret,

Thanks for the speech tips! Landon got a good

report yesterday. The speech therapist said that she

was really impressed with his babbling, imitating and

interactions. She said that he was making more sounds

for his age than any child with DS that she had worked

with. I was so proud! Landon has more delays in the

gross motor area than any other area so it was great

to see that communication appears to be a strength at

this time. I hope it continues. By the way, what part

of NC are your husband's parents from. We live right

on the border of NC and SC. Actually, I do most of my

shopping in Laurinburg, NC. It is only about 15 miles

away. mom to Landon (DS) and Ashton -

15 months

--- greysean <greysean@...> wrote:

> Hi ,

>

> It really is difficult to travel with twins -

> especially young ones. I dread everytime we have to

> travel to Drew's family in N.C. - it just about

> kills us. I'm glad you are starting speech. I think

> that is around when started speech. I am told

> that he is doing very well in speech for a child

> with DS. I know when he started off it was slow

> going but when our ST started showing him flash

> cards he just loved them and that spurred him on,

> that and a love of books. I remember one of his

> early words that was so funny was house because he

> over exagerated the ou and would lean forward while

> saying it. It really tickled his therapist and she

> would keep bringing that card back and he knew it

> made her laugh so he would get bigger and bigger

> with his interpretations. He still has trouble if

> you give him a choice of three or more he can't

> answer which one is which even if separately he

> knows them. Its kind of strange. And sometimes its

> clear he pays no attention to what you are asking

> for and he goes for which ever one he likes best -

> like house - he always chose that one.

> I went yard sale shopping this weekend and found

> one of those talking Barney's. It asks

> questions like " find something brown " and " what does

> a cow say " and " you are my special friend " and of

> course " I love you. " Well is repeating all the

> last word or at least the last part of words like

> imagination ( he can't possibly say that whole word)

> and saying very clearly " special friend " which to me

> seems awfully difficult to say and he is answering

> some of the questions and saying " I love you " even

> though that is not quite as clear. I am so proud of

> him and anyone whose child likes Barney - it is

> working for .He is also trying to make him talk

> - that is the real challange for since he hates

> touching anything especially stuffed animals. It

> works by squeezing his hand or pushing his tummy.

> The other thing that got talking was Twinkle

> Twinkle Little Star his favorite song. I started not

> saying the last word and he would fill it in for me,

> now he is starting to do that with some of the

> alphabet and numbers. Good luck with the speech, I

> know for us that has made the biggest difference

> with cause it makes him seem not quite as far

> behind.

>

> Quick question to everyone- and Gresyson's

> birthday is in two weeks and we are having a small

> party and I am looking for ideas on something fun

> for the kids to do. It is going to be a really small

> party with only about other 4 kids their age and

> siblings. I would be grateful for any suggestions my

> mind is a total blank.

>

> Margaret - mom to (DS), Greyson - 2years 11 mos.

> and Annice 16mos

>

[Guest guest]

,

Good going Landon! That's wonderful! Babble,babble,babble...

~,moma to (DS) & Sloan {16 months}

[Guest guest]

All children are different! Vinnie (DS) can say just about as many words as

Sloan. Maybe not as clear but he tries.I more concerned with Sloan not

talking much.

They can say about 10 words.We do use some sign language and our own made up

signs,but they can and do get their point across.

~,moma to (DS) & Sloan {23 months}

[Guest guest]

Carol,

I'm so thrilled for you & Trisha (I'm also jealous!). The only speech

we get through the school is a SLP who consults to the Spec. Ed. teacher

about twice a year! The last consultation suggested that we try photos with

Steph. We see a SLP privately (very expensive- insurance covers some of it)

& she is also using photos with Steph with some success. I'm hoping we can

move from photos to PECS pretty soon. Once again, I'm so happy for you,

especially since you were a bit apprehensive about the school when you first

moved!

[Guest guest]

Carol,

I'm so thrilled for you & Trisha (I'm also jealous!). The only speech

we get through the school is a SLP who consults to the Spec. Ed. teacher

about twice a year! The last consultation suggested that we try photos with

Steph. We see a SLP privately (very expensive- insurance covers some of it)

& she is also using photos with Steph with some success. I'm hoping we can

move from photos to PECS pretty soon. Once again, I'm so happy for you,

especially since you were a bit apprehensive about the school when you first

moved!

[Guest guest]

The political action group I referred to in my letter, is really the 50 Alaskans

I have in a separate email group. I'm actually, in fact, creating another one

between all the groups I'm in along with those who signed the letter and want to

be either in the " general " group or " political " group. So most of you are

really getting most everything, I think. Thanks for being interested!

(Actually it really means a lot because each time I send out an email another

person asks to get off my list! At this rate I'll be in the negative range

pretty soon!)

Sandy from Alaska

ALL INFORMATION, DATA, AND MATERIAL CONTAINED, PRESENTED, OR PROVIDED

HERE IS FOR GENERAL INFORMATION PURPOSES ONLY AND IS NOT TO BE CONSTRUED

AS REFLECTING THE KNOWLEDGE OR OPINIONS OF THE PUBLISHER, AND IS NOT TO

BE CONSTRUED OR INTENDED AS PROVIDING MEDICAL OR LEGAL ADVICE. THE DECISION

WHETHER OR NOT TO VACCINATE IS AN IMPORTANT AND COMPLEX ISSUE

AND SHOULD BE MADE BY YOU, AND YOU ALONE, IN CONSULTATION WITH YOUR

HEALTH CARE PROVIDER.

Speech

Well done, Sandy!!! That was so well said and easy to understand.

Speaking of understanding, I'm a little confused about your political

activism/education group. You said there are only 50. Am I on that list?

I'd like to be.

I know you sent that e-mail awhile back about various lists - but I got

confused.

Anyway, your speech is absolutely wonderful. I'm gonna print it and keep it

as intro reading for those new to the issue.

[Guest guest]

I love your emails! Keep sending them my way!

adrienne in winter park,c o

Speech

Well done, Sandy!!! That was so well said and easy to understand.

Speaking of understanding, I'm a little confused about your political

activism/education group. You said there are only 50. Am I on that list?

I'd like to be.

I know you sent that e-mail awhile back about various lists - but I got

confused.

Anyway, your speech is absolutely wonderful. I'm gonna print it and keep it

as intro reading for those new to the issue.

[Guest guest]

I love your emails too Sandy!

Keep em coming!

LOL

Sue

[Guest guest]

My dd is 19 mths. We started speech today. (and I didn't throw up...just

kidding)

who do or did you go through for physical/occupational therapy? They should

help you.

Or the person that done your IFSP?

speech

> Has anyone got any novel approaches to obtaining speech for their child?

My

> child was started in a special ed preschool at age 3 (he just turned 4 in

> Dec). He is not receiving speech therapy at all. He is essentially

> non-verbal with a vocabulary of about 25 words. I am not sure where to

> proceed. Comments anyone? thanks cindy mom to 4 in Long Beach,

Mississippi

>

>

>

[Guest guest]

,

Request a speech evaluations through the school. They probably did (should have

done) one at three. Have someone go over it with you snd ask them what their

recommendations are. If you can't get the school to do it, ask why. You can

also get a private one done and take the reccomendations to the school. Have

them put in writing why your child does not qualify for speech therapy and then

start with your state sept of ed, special education office. They should be able

to help you. Hopefully it will not go that far. Good Luck!

mom to Bridget, 8 ds

Hansen6mom@... wrote: Has anyone got any novel approaches to obtaining

speech for their child? My

child was started in a special ed preschool at age 3 (he just turned 4 in

Dec). He is not receiving speech therapy at all. He is essentially

non-verbal with a vocabulary of about 25 words. I am not sure where to

proceed. Comments anyone? thanks cindy mom to 4 in Long Beach, Mississippi

[Guest guest]

Please keep my Micah {15 months DS} in your prayers, He has been in the

hospital for 5 days with pneumonia and they can't seem to wean him off the

oxygen. Every time they try to lower the percentage of oxygen His oxygen

level goes way down and they have to up it again. It can be pretty scary.

Thanks everyone for being there!!

Loree

[Guest guest]

Hang in there. My daughter Nikki 4 1/2 months old was in hosppital for viral

pneumonia. And then that cleared up really good and she just had

brochiallitous. She was on oxygen all the time. They tried lowering it and

she would have to go back up on it too. Since I lived 65 miles from home to

the hospital, the dr. allowed me to bring Nikki home and stay on oxygen.

We got home Sat. and just today took her back to the dr. and they took her

off oxygen because she was doing fine breathing on her own. I know at the

hospital, I was so nervous and wanted Nikki breathing on her own. It seemed

like a forever wait. I thought maybe she would be on oxygen forever. But she

came through. I will keep him in our prayers.

Joyce

Re: speech

> Please keep my Micah {15 months DS} in your prayers, He has been in the

> hospital for 5 days with pneumonia and they can't seem to wean him off the

> oxygen. Every time they try to lower the percentage of oxygen His oxygen

> level goes way down and they have to up it again. It can be pretty scary.

> Thanks everyone for being there!!

>

> Loree

>

>

>

[Guest guest]

Loree,

I hope he gets better soon. Yes it can be scary.

mom to Bridget 8 ds

Loree5@... wrote: Please keep my Micah {15 months DS} in your prayers, He

has been in the

hospital for 5 days with pneumonia and they can't seem to wean him off the

oxygen. Every time they try to lower the percentage of oxygen His oxygen

level goes way down and they have to up it again. It can be pretty scary.

Thanks everyone for being there!!

Loree

[Guest guest]

In a message dated 1/17/2002 4:25:06 PM Eastern Standard Time,

Tubafour@... writes:

> > Request a speech evaluations through the school. They probably did

> (should have done) one at three. Have someone go over it with you snd ask

> them what their recommendations are. If you can't get the school to do it,

> ask why. You can also get a private one done and take the reccomendations

> to the school. Have them put in writing why your child does not qualify for

> speech therapy and then start with your state sept of ed, special education

> office. They should be able to help you. Hopefully it will not go that

> far. Good Luck!

Parents can request evaluations at any time. It should be done in writing.

That starts the timeline they have to complete the evaluations and present

you with the results.

Once school has completed their evaluation, they will hold an IEP meeting to

go over the results. If you wish to obtain an independent evaluation,

request it at this meeting and they will give you guidance on how to obtain

one at their expense.

Otherwise, you may submit to the team an independent evaluation you obtained

on your own (at any meeting) ... BUT the school system is only required to

CONSIDER independent evaluations. If you find that the independent

evaluation differs from the school evaluations, you would have the basis for

pushing forward with whatever mechanism your state regs allow to protest the

school's lack of services.

Cheryl in VA

[Guest guest]

This is illegal . You need to request a speech evaluation and speech

therapy for your child. Do this in writing and send it certified mail with

receipt to the school system. GEEZ I hate people who try stuff like this.

Elaine

speech

> Has anyone got any novel approaches to obtaining speech for their child?

My

> child was started in a special ed preschool at age 3 (he just turned 4 in

> Dec). He is not receiving speech therapy at all. He is essentially

> non-verbal with a vocabulary of about 25 words. I am not sure where to

> proceed. Comments anyone? thanks cindy mom to 4 in Long Beach,

Mississippi

>

>

>

[Guest guest]

If you have an independent one done, you ask them to pay for it.

Elaine

Re: speech

>

> ,

>

> Request a speech evaluations through the school. They probably did

(should have done) one at three. Have someone go over it with you snd ask

them what their recommendations are. If you can't get the school to do it,

ask why. You can also get a private one done and take the reccomendations

to the school. Have them put in writing why your child does not qualify for

speech therapy and then start with your state sept of ed, special education

office. They should be able to help you. Hopefully it will not go that

far. Good Luck!

>

> mom to Bridget, 8 ds

> Hansen6mom@... wrote: Has anyone got any novel approaches to

obtaining speech for their child? My

> child was started in a special ed preschool at age 3 (he just turned 4 in

> Dec). He is not receiving speech therapy at all. He is essentially

> non-verbal with a vocabulary of about 25 words. I am not sure where to

> proceed. Comments anyone? thanks cindy mom to 4 in Long Beach,

Mississippi

>

>

>

[Guest guest]

I would recommend that you get him looked at for Oral

Motor therapy. If your current speech person is doing

this but no results are being found. Switch but

discuss with them. It is common for our kiddos to

have relaxed muscles in the face and to have problems

with speech as far as having the thought to say dadda

and getting their mouths to function at the same

time...

WEndy B

--- ksrb3 <ksrb3@...> wrote:

> Hi my name is Sherrelle. my son Kiandre will be two

> in August. He has

> down syndrome. Can some on give me some advice about

> speech. I also

> have a 15yr old Kaheim and he is a great help to me.

> Kiandre just

> began to say bye-bye this week and my husband and I

> are very excited.

> He is recieving speech therapy but its only twice a

> week. He also says

> ma-ma and da-da. Am I expecting too much or not

> enough. Any imput will

> be greatly appreciated.. You can also e-mail me so

> that we can share

> information.

>

>

>

> thanx,

> Sherrelle,Lamont kaheim (15)

> kiandre 19 months

>

>

>

> Click reply to all for messages to go to the list.

> Just hit reply for messages to go to the sender of

> the message.

>

[Guest guest]

WOW Helen, My son is in a social skills class and a child there always takes off. an adult chasing after him. My son and another boy both have the same concerns. (boundary issues), another child is very quiet. at no time were any of these children punished for inappropriate behaviors. instead, the social skill leader worked with them through pic's and social stories. the pic's were of the kids in the group. the group wrote the word stories to go with the pics. was awesome. each child loves the class and the boy that always took off is now staying in the classroom. *ask her (teacher) for a resume and include where and how much training she has in autism. If she's not trained in autism, request another CSE meeting and request for a person trained in autism to work with your

son.Helen Elder <Bigshoelder@...> wrote: I have been struggling with what to do in response to my son’s experience in his speech/social skills class. My son is 7 and the school just added Speech to his IEP. This was presented to me as a social skills class where they would be working on pragmatics, something I have been asking about for a year. They are assigned to bring in a mystery object. The others ask questions and try to guess what is in the bag. My son did

not want them to guess correctly and mislead them. The teacher's response was that he lied, broke the rules and had to sit out the remainder of the class. I am not trying to be a "helicopter mom", but I have concerns that none of the staff has training about Asperger Syndrome. Although my son has a great vocabulary, we find that he is about where 3-5 year olds are in groups and social settings. What would you all do? He was humiliated and I do not believe he learned anything from this experience except not wanting to be a part of this group. What would you all do? Thanks, Helen

Building a website is a piece of cake. Small Business gives you all the tools to get online.

[Guest guest]

It may need to be addressed as an IEP Team. I would definitely make sure whoever is running the "group" has training in social skills and Asperger's. Pam :)See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

HI

My 3 year old is a lazy talker...and everything else if you ask me! But, I

digress...I tried BrainChild vitamins and minerals with him and we have seen a

great improvement.

Good Luck!

Carla

speech

May I ask you all what improved or brought about speech in your kids?

My 4 year old improved after epsom salts and gfcf diet but my 2 year

old still isn't speaking. We've tried everything that we've had

success with for our oldest but sadly, nothing has worked.

a little list

enzymes

gfcf (+corn free +soy free)

acetyl L carntine

DMG

super nu thera

cod liver oil

parasite cleanses

vitamin a protocol (definitely helped his digestion)

[Guest guest]

We've seen great results with the Brainchild Nutritionals.

Also, we use the nordic naturals brand of CLO, which kind are you using?

I noticed you haven't tried Vit E yet - lots of folks have seen success with

this particular one:

http://www.vitaminworld.com/pages/file.asp?xs=0B247E5CC05E4A2D939D1A66C09087

F3

<http://www.vitaminworld.com/pages/file.asp?xs=0B247E5CC05E4A2D939D1A66C0908

7F3 & PID=1005 & CID= & CPID=806> & PID=1005 & CID= & CPID=806

Also, some kids do well on DMG, others TMG, so I would give the TMG a try.

Hope this helps!

speech

May I ask you all what improved or brought about speech in your kids?

My 4 year old improved after epsom salts and gfcf diet but my 2 year

old still isn't speaking. We've tried everything that we've had

success with for our oldest but sadly, nothing has worked.

a little list

enzymes

gfcf (+corn free +soy free)

acetyl L carntine

DMG

super nu thera

cod liver oil

parasite cleanses

vitamin a protocol (definitely helped his digestion)

[Guest guest]

Is the TMG in addition to the vitamins from brainchild? the spectrum

support II lists 100 mg of TMG. I like the ingredients list on

Brainchild, I've never looked into it before.

I was thinking of switching to Nordic naturals. maybe when I order

again. we have an expensive supplement habit as I'm sure everyone on

this list can relate to.

I think you're on to something with the vitamin e. those links didn't

work for me but I googled it and got an article that mentioned liver

bile. Both my boys have issues there. And I checked and I'm only

supplementing about 8%. hmm..

thank you!!

>

> We've seen great results with the Brainchild Nutritionals.

>

>

>

> Also, we use the nordic naturals brand of CLO, which kind are you using?

>

>

>

> I noticed you haven't tried Vit E yet - lots of folks have seen

success with

> this particular one:

>

>

http://www.vitaminworld.com/pages/file.asp?xs=0B247E5CC05E4A2D939D1A66C09087

> F3

>

<http://www.vitaminworld.com/pages/file.asp?xs=0B247E5CC05E4A2D939D1A66C0908

> 7F3 & PID=1005 & CID= & CPID=806> & PID=1005 & CID= & CPID=806

>

>

>

> Also, some kids do well on DMG, others TMG, so I would give the TMG

a try.

>

>

>

> Hope this helps!

>

>

>

>

> speech

>

> May I ask you all what improved or brought about speech in your kids?

> My 4 year old improved after epsom salts and gfcf diet but my 2 year

> old still isn't speaking. We've tried everything that we've had

> success with for our oldest but sadly, nothing has worked.

> a little list

> enzymes

> gfcf (+corn free +soy free)

> acetyl L carntine

> DMG

> super nu thera

> cod liver oil

> parasite cleanses

> vitamin a protocol (definitely helped his digestion)

>

>

[Guest guest]

Yes, the TMG would possibly be in addition to the brainchild dose - it

depends on the dose your child needs. I would start off with the

brainchild, then after you're on the full dose, then possibly add more if

needed.

On the Vit E - this one specifically from Vitamin World: Natural E-400

d-alpha tocopheryl softgels

It is product #000540 on their website.

I can totally relate to the pricy supplement budget, what I could do with

that extra money every month!

From:

[mailto: ] On Behalf Of keigh_ca

Sent: Monday, January 21, 2008 5:41 PM

Subject: Re: speech

Is the TMG in addition to the vitamins from brainchild? the spectrum

support II lists 100 mg of TMG. I like the ingredients list on

Brainchild, I've never looked into it before.

I was thinking of switching to Nordic naturals. maybe when I order

again. we have an expensive supplement habit as I'm sure everyone on

this list can relate to.

I think you're on to something with the vitamin e. those links didn't

work for me but I googled it and got an article that mentioned liver

bile. Both my boys have issues there. And I checked and I'm only

supplementing about 8%. hmm..

thank you!!

>

> We've seen great results with the Brainchild Nutritionals.

>

>

>

> Also, we use the nordic naturals brand of CLO, which kind are you using?

>

>

>

> I noticed you haven't tried Vit E yet - lots of folks have seen

success with

> this particular one:

>

>

http://www.vitaminworld.com/pages/file.asp?xs=0B247E5CC05E4A2D939D1A66C09087

> F3

>

<http://www.vitaminworld.com/pages/file.asp?xs=0B247E5CC05E4A2D939D1A66C0908

> 7F3 & PID=1005 & CID= & CPID=806> & PID=1005 & CID= & CPID=806

>

>

>

> Also, some kids do well on DMG, others TMG, so I would give the TMG

a try.

>

>

>

> Hope this helps!

>

>

>

>

> speech

>

> May I ask you all what improved or brought about speech in your kids?

> My 4 year old improved after epsom salts and gfcf diet but my 2 year

> old still isn't speaking. We've tried everything that we've had

> success with for our oldest but sadly, nothing has worked.

> a little list

> enzymes

> gfcf (+corn free +soy free)

> acetyl L carntine

> DMG

> super nu thera

> cod liver oil

> parasite cleanses

> vitamin a protocol (definitely helped his digestion)

>

>

[Guest guest]

>

> May I ask you all what improved or brought about speech in your kids?

What my son needed is written here. The most important were

anti-virals [OLE, vitamin C, and lysine] and mB12/TMG/folic/carnitine.

And biotin for yeast.

http://www.danasview.net/issues.htm

Dana