APRAXIA

[Guest guest]

PROMPT is a method of speech therapy that focuses on touch memory to

teach the child to recall sounds.

a

>

> My son also has oral motor apraxia. He doesn't seem to have a

problem

> with knowing what to say, uses appropriate language etc...his

problem

> is his breathing when he talks...like he " sucks in " his breathe on

> certain sounds, like " s " also leaves out the beginning sound

> sometimes still....the tone of his voice is sorta different, kind

of

> yells out his words alittle. He gets speech therapy in school 5x

> week, but only 3x are one on one.....hmmm. His speech therapist,

who

> was new to him last year said he had the worst case of oral motor

> apraxia that she ever saw...however she doesn't think he has

verbal

> apraxia-(i guess no problem knowing what to say). I have never

heard

> of Prompt...can someone explain it to me? thanks...

>

[Guest guest]

>

> Yes, chelation is in the cards for us. Unfortunately, our son was

dx. by Dr. Krigsman w/ Autistic Enterocolitis (severe bowel disease)

w/ internal hemorrage in the small intestines - we have to heal the

gut somewhat before we can even think about chelating.

What is it specifically that has been recommended for you to do to

heal his gut?

>>By the way, can anyone give me a very brief explanation of hte

difference between the DAN and Cutler chelation protocols?

Cutler protocol is low dose, frequent administration of oral ALA

and/or DMSA.

DAN does not have one specific protocol, and what is recommended

usually changes over time.

I have links to the specific recommendations here

http://www.danasview.net/chelate.htm

Dana

[Guest guest]

>

> I'm looking for success stories from people whose children had/have

> apraxia and are now speaking clearly. What was the #1 thing that

> caused your child to start speaking clearly? I just feel so lost as

> to what to do for my son. He tries to talk but it is all

> unintelligible. I don't want to list what I have tried, I want to

> know what has worked for people without prejudice. Thanks!!!

Well, I just removed the last of my son's supplements a few days ago,

and his speech is REALLY clear and things are going REALLY well. The

last supplement was fish oil. It took 4 years and quite a few other

supplements before he tolerated the fish oil tho. But it seems the

fish oil was what he needed for clearer speech. Before I was able to

add it, it was frequently difficult to understand him. He has never

had an apraxia dx tho [mostly because I stopped taking him to doctors

after the autism dx, and he was never supposed to have any speech].

Dana

[Guest guest]

Dana: What type of fish oil did you use? I have used the nordic

naturals 369 in the past and it didn't seem to do much. I also used

cod liver oil and didn't see any results. I used the dosing on the

bottle.

[Guest guest]

hi dana....you mentioned that you just 'removed' the last of your sons supps.

did you take him off of them? if so what were your reasons for doing so if you

dont mind me asking (sorry to pry!). thanks! phil

[ ] Re: apraxia

>

> I'm looking for success stories from people whose children had/have

> apraxia and are now speaking clearly. What was the #1 thing that

> caused your child to start speaking clearly? I just feel so lost as

> to what to do for my son. He tries to talk but it is all

> unintelligible. I don't want to list what I have tried, I want to

> know what has worked for people without prejudice. Thanks!!!

Well, I just removed the last of my son's supplements a few days ago,

and his speech is REALLY clear and things are going REALLY well. The

last supplement was fish oil. It took 4 years and quite a few other

supplements before he tolerated the fish oil tho. But it seems the

fish oil was what he needed for clearer speech. Before I was able to

add it, it was frequently difficult to understand him. He has never

had an apraxia dx tho [mostly because I stopped taking him to doctors

after the autism dx, and he was never supposed to have any speech].

Dana

[Guest guest]

I have a friend who's daughter had apraxia and she started using

Pro-EFA's and her daughter is talking clearer now. When she ran out,

her daughter's language regressed.

[ ] apraxia

I'm looking for success stories from people whose children had/have

apraxia and are now speaking clearly. What was the #1 thing that

caused your child to start speaking clearly? I just feel so lost as

to what to do for my son. He tries to talk but it is all

unintelligible. I don't want to list what I have tried, I want to

know what has worked for people without prejudice. Thanks!!!

Dannene

[Guest guest]

hi Dannene,

My youngest son (now 8) did 3 yrs of speech therapy with a preschool

mate with apraxia. My son just wouldn't speak, then was classified as

having recall problems. This other child spoke, but there wasn't a

word amongst it. He needed lots of ST, he's now grade 2, speaks well

but is very delayed in reading and writing abilities. His maths

ability is very high. I am not aware if that child is receiving any

supps at all.

I started using lots of flaxseed oils, eggs etc with my son at the

time (didn't know about biomed).

Wish I'd taken out the gluten and casein then too.

na

>

> I'm looking for success stories from people whose children had/have

> apraxia and are now speaking clearly. What was the #1 thing that

> caused your child to start speaking clearly? I just feel so lost as

> to what to do for my son. He tries to talk but it is all

> unintelligible. I don't want to list what I have tried, I want to

> know what has worked for people without prejudice. Thanks!!!

> Dannene

>

[Guest guest]

In a message dated 9/17/2006 10:35:41 A.M. Eastern Standard Time,

danasview@... writes:

Because for my son, once he no longer needs a supplement, it generally

causes the same problems that initially it resolved.

I find that to be so true here as well.

[Guest guest]

, do you know what brand? There are so many different types. I

want to get thte right one!

>

> I have a friend who's daughter had apraxia and she started using

> Pro-EFA's and her daughter is talking clearer now. When she ran

out,

> her daughter's language regressed.

>

>

> [ ] apraxia

>

>

>

> I'm looking for success stories from people whose children

had/have

> apraxia and are now speaking clearly. What was the #1 thing that

> caused your child to start speaking clearly? I just feel so lost

as

> to what to do for my son. He tries to talk but it is all

> unintelligible. I don't want to list what I have tried, I want to

> know what has worked for people without prejudice. Thanks!!!

> Dannene

>

>

>

>

>

>

>

>

[Guest guest]

sussana, how is your son doing now? the other kid sounds like

zach. i can almost guarantee that he will be good in math and

delayed in reading. his writing abilities are pretty advanced

though.

> >

> > I'm looking for success stories from people whose children

had/have

> > apraxia and are now speaking clearly. What was the #1 thing

that

> > caused your child to start speaking clearly? I just feel so

lost as

> > to what to do for my son. He tries to talk but it is all

> > unintelligible. I don't want to list what I have tried, I want

to

> > know what has worked for people without prejudice. Thanks!!!

> > Dannene

> >

>

[Guest guest]

>

> Dana: What type of fish oil did you use? I have used the nordic

> naturals 369 in the past and it didn't seem to do much. I also used

> cod liver oil and didn't see any results. I used the dosing on the

> bottle.

I used LifeTime fish oil, from my local health food store. It is the

only brand I could find that did not have vitamin E added, because my

son is already fully loaded with vitamin E, so giving him more will

cause problems.

It did take a lot of supplements to allow him to be able to tolerate

fish oil, plus pre-loading with Omega 6. And he did not tolerate

those things until after chelation. So from the start of chelation to

the point when he tolerated fish oil was about 4 years.

Dana

[Guest guest]

>

> hi dana....you mentioned that you just 'removed' the last of your

sons supps. did you take him off of them?

Yep, we are apparently done now!

>>if so what were your reasons for doing so

Because for my son, once he no longer needs a supplement, it generally

causes the same problems that initially it resolved.

Dana

[Guest guest]

Dannene,

I'm not sure what brand. I think it was Carlson's or Nordic Naturals.

Both are good companies.

[ ] apraxia

>

>

>

> I'm looking for success stories from people whose children

had/have

> apraxia and are now speaking clearly. What was the #1 thing that

> caused your child to start speaking clearly? I just feel so lost

as

> to what to do for my son. He tries to talk but it is all

> unintelligible. I don't want to list what I have tried, I want to

> know what has worked for people without prejudice. Thanks!!!

> Dannene

>

>

>

>

>

>

>

>

[Guest guest]

Hi Dannene,

My son " fits in " really well now in the classroom. Very chatty,

sociable, lots of friends, is getting the hang of " times tables " ,

but reading has stagnated this year a bit. I got caught up in March

when my daughter had a vacc reaction, that shocked us onto the

biomed path. Have to get back to helping him more. Haven't

chelated anyone properly yet, still learning, doing biomed

nutrition, experimenting with NCD etc. They have tested for lead

through a home urine test, but must get round to hair testinge etc

at the earliest (financial) convenience.

Biggest bitch is that the schools don't actually teach them reading

properly, it's more the " trip over a word and try to remember it "

strategy v's " good old drills/word families/rules " that I was taught

as a kid. Means he will be a lousy speller until I help him with

it. Most of the kids are pretty useless at it -- I think it's a

combo of toxins in all of them coupled with modern schooling ideas.

Funny how I can pick these kids from a mile away.

I have another son with Angelman Syndrome who attends a special

school so my ability to " pick it " has really developed.

Unfortunately, I was so caught up with the Angel child in the early

years that when the youngest came along, I figured that the fact

that he was physically normal, comprehended ok, played happily by

himself etc was enough. Hindsight is a wonderful thing...(he

shouldn't have been completely non-verbal at 3)...

PS The ST that my youngest (and his mate) used did her ST with

picture sequences, so that it could develop language.

My son started with single words, then " two word sentences " . It

was very logical, but was something that only she could

accomplish. My son had 2 therapists previously, who couldn't break

his skin. There definitely has to be a strong relationship or it

isn't worth the money and time. And STICKERS as rewards are a

godsend !!! Later, when we started reading (I did most of it

myself), I introduced a money reward system, where he could work

towards buying " hotwheel cars " his favourite at the time. Used a

computer program as the primary teaching aide... (was still shy/poor

self esteem/fear of the written text at that stage) and refused to

put pen to paper etc.

na

> > >

> > > I'm looking for success stories from people whose children

> had/have

> > > apraxia and are now speaking clearly. What was the #1 thing

> that

> > > caused your child to start speaking clearly? I just feel so

> lost as

> > > to what to do for my son. He tries to talk but it is all

> > > unintelligible. I don't want to list what I have tried, I

want

> to

> > > know what has worked for people without prejudice. Thanks!!!

> > > Dannene

> > >

> >

>

[Guest guest]

Check out the Group . Also read the book

The Late Talker by Marilyn Agin and

[Guest guest]

Hi ,

My 4yr old son is also mildly apraxic and he also has mild to moderate

Autism. I am currently giving him Cod Liver Oil, Multivitamins, B12,

folinic and enzymes and anti-fungal/anti-bacterial supplements. Do you

think we still need to add Fish Oil and Vit. E to his current supplements?

Does CLO and Fish Oil have the same issues being addressed or entirely

different so we can give both at the same time? Thanks! -Beth

_____

From:

[mailto: ] On Behalf Of epoxycozy

Sent: Tuesday, May 06, 2008 8:56 AM

Subject: Re: apraxia

Check out the Group . Also read the book

The Late Talker by Marilyn Agin and

[Guest guest]

Beth,

We haven't used Cod Liver Oil so I'm not sure of its Omega 3

breakdown and of course it contains Vit A & Vit D which the Fish Oil

doesn't. However, the GLA from Borage Oil(an Omega 6) does seem to

do something which is why the particular formulation I named is the

most popular. Normally, this isn't in Cod Liver Oil.

If you do decide to switch over or reduce the Cod Liver Oil and

increase Fish Oil, look at whether or not you need to add the Vit A &

D somewhere else. The Vitamin E is pretty good to add anyway. It is

a great anti-oxidant. It is fat soluble so you can over do it (just

like Vit A & D), but people on the apraxia board are using pretty

high dosages with few problems. They are using Vit E to address

sensory issues as well as language issues. We only went to 400 IU d-

alpha and 200mg gamma and have stayed there.

Also, I don't know if the fact that your son has autism makes a

difference in how effective the fish oil/Vit E is. Some of the

parents on the other board have kids who are only apraxic and some

have both apraxia and various levels of ASD.

Definitely look into it, and you might want to experiment. BTW, the

fish oil can take months to have an effect although some (including

my son) show improvement within weeks.

(Max's Mom)

>

> Hi ,

> My 4yr old son is also mildly apraxic and he also has mild to

moderate

> Autism. I am currently giving him Cod Liver Oil, Multivitamins,

B12,

> folinic and enzymes and anti-fungal/anti-bacterial supplements. Do

you

> think we still need to add Fish Oil and Vit. E to his current

supplements?

> Does CLO and Fish Oil have the same issues being addressed or

entirely

> different so we can give both at the same time? Thanks! -Beth

>

>

> _____

>

> From:

> [mailto: ] On Behalf Of epoxycozy

> Sent: Tuesday, May 06, 2008 8:56 AM

>

> Subject: Re: apraxia

>

>

>

> Check out the Group . Also read the book

> The Late Talker by Marilyn Agin and

[Guest guest]

Thanks ,

My daughter is on cod liver oil, 1 tsp, along with other supplements

like digestive enzymes, SNT, TMG, and diflucan for yeast. I didn't

know if I'm missing something else to help " boost " her speech. I

haven't tried the vit e though, might give that one a try! What

brand are you using?

>

> Check out the Group . Also read the book

> The Late Talker by Marilyn Agin and

[Guest guest]

sorry i feel like a total disrupter of your cnversation. i just wanted to let

you know I have really researched vitamin E and found alot of info on the

importance of not just giving the alpha form of it. Gamma is often depleted by

giving only the alpha forms. I give my son vitamin shoppe high gamma e capsules.

It has all 8 forms of vitamin e in it..sorry just wanted to let you know. I

didnt know until after I bought a bottle of the alpha arggg

Re: apraxia

Thanks ,

My daughter is on cod liver oil, 1 tsp, along with other supplements

like digestive enzymes, SNT, TMG, and diflucan for yeast. I didn't

know if I'm missing something else to help " boost " her speech. I

haven't tried the vit e though, might give that one a try! What

brand are you using?

>

> Check out the Group . Also read the book

> The Late Talker by Marilyn Agin and

[Guest guest]

I'm using Trader Joe's brand " Trader Darwin " Vitamin E-Natural Mixed

Tocopherols with Gamma. It has the d-alpha, beta, gamma, delta

components of Vit E. A lot of people on the

Group have also used a Vit E from Vitamin World. I can't

remember the name but it was a complete version with d-alpha, gamma

etc. components.

Just a warning, when I added the Vit E w/gamma, I got HUGE behavior

issues for about 3 weeks. I had been warned and wasn't surprised. I

had a pretty compliant kid (probably overly so) before that, within a

few days of adding Vit E, he was a Brat with a capital B. Non-

compliant, some hyperness, argumentative, " NO " , etc. Of course, his

pretend play also took off. :-) Anyway, it was like all of a sudden,

his brain was making connections and he was trying to see what he

could get away with.

Good Luck!

(Max's Mom)

> >

> > Check out the Group . Also read the

book

> > The Late Talker by Marilyn Agin and

[Guest guest]

Do I still continue the fish oil and just add vit e w/ gamma?

> > >

> > > Check out the Group . Also read the

> book

> > > The Late Talker by Marilyn Agin and

[Guest guest]

Hi I am new to the group, My 2 1/2 year old was just diagnosed with apraxia,

and I have a lot of questions and would like to speak to someone who has been

through this with there child. Some of the things I would like to know are will

she overcome this she only says about 30 words and just started putting 2 words

together well the only ones are up there and right there. I just want to be able

to say that my child will be able to hold a conversation, have freinds, and lead

a normal life. Any information would be helpful.

Thank you

Chrissy

[Guest guest]

I have a set of identical twins. One was diagnosed with CP at 4 months. The other appears typical but wasn't talking at 15 months. She was then diagnosed with apraxia. She also drools excessively and chokes sometimes when eating. After more testing she was diagnosed with reflux and dysphasia. We are doing reflexes on her especially facial reflexes in addition to her traditional Speech Therapy. She had come a long way in the last year. She's speaking more verbally. Signing also helped. Best,Stacey Voinis, CPCOn May 7, 2011, at 7:16 PM, Padmaja Sharma <padmajasharma@...> wrote:

Hi,

I have a 3.5 yr old with apraxia of speech and also oral motor apraxia (he also has trouble with chewing, swallowing, drooling etc). I have been trying the reflexes for 9 months now. The speech therapist is using a combination of prompt and another method. I have noted begining progress in the speech but not much in the other areas. I want to connect with other parents/therapists with similar issues and what their experience has been. What has worked for them and what didn't?

Thanks.

Padmaja

6/11, ette Cormier <paulette.rdi@...> wrote:

From: ette Cormier <paulette.rdi@...>Subject: RE: Mitochondrial Autism Date: Friday, May 6, 2011, 6:46 PM

Here’s some info on mitochondrial autism:

As I understand it, Mitochondrial ASD as it compares to Classical Mitochondrial Disease is that it differs in the etiology, meaning that there are genetic and environmental factors at play. This is not to say that that isn't also the case with Classical Mitochondrial Disease, but they differ in the manifestation and symptomology.According to the American Journal of Biochemistry and Biotechnology, Mitochondrial ASD individuals do not display classic features of mito disease and these symptoms are typcially less severe. Symptoms of Mitochondrial ASD can include but I am certain are not limited to or necessarily must include every symptom - cognitive impairment, language deficits, abnormal energy metabolism (very low, unstable energy/easily fatigued), chronic GI problems, abnormalities in fatty acid oxidation, and increased oxidative

stress. Hypotonia and/or seizures may also be present (not certain if these are merely symptoms of Mitochondrial ASD or are co-morbid conditions when they occur). I would refer anyone looking for more info to read:http://hstrial-astephens3.homestead.com/Evidence_of_Mitochondrial_Dysfunction_in_Autism_and_Implications_for_Treatment.pdfhttp://adventuresinautism.blogspot.com/2008/03/mitodnaautismgfcfglutamate-thoughts.htmlAnd for anyone interested, here is one of many articles, providing a definition or better understanding of hypotonia. http://www.childrenshospital.org/az/Site1106/mainpageS1106P0.html

ette Cormier, B.A., B.Ed.

Parent Guide/Developmental Guide

RDI® Certified Program Consultant

(905) 873-9491

www.rainbowconnections.ca

This message and any attachments are confidential and may contain privileged information intended only for the addressee or intended recipient. If you are not the intended recipient of this message, you may not use, copy or disclose any information contained in it. If you think you have possibly received this message in error, please advise the sender by reply e-mail, delete the message and its contents, destroy any saved or hard copies and advise anyone to whom you have sent a copy to do the same. Thank you.

From: [mailto: ] On Behalf Of Weimom@...Sent: Thursday, May 05, 2011 12:28 AMList-Id:Precedence:List-Unsubscribe:Date:Subject:Reply-To:X--Newman-Property:Content-Type; b=HftfYJYiQjlKXud6SJBDQItLE5vf/plHtk45PnQgBU2qd49bZL+Cs43lrgldrWkPPlpYs13p202OjDElNg3Yr4/hbCd8BBYZ0OVk46vtLjBTqs/rPoABjDz2kTD6AXoK; Subject: Re: Mitochondrial Autism

In a message dated 5/4/2011 10:41:41 P.M. Eastern Daylight Time, paulette. rdi@... writes:

I have a client with mitochondrial autism. He was diagnosed in the fall and is working with a DAN naturopath who is supporting him with supplements for the mitochondrial issues.

Can you tell me what you mean by mitochondrial issues? What is the difference between this disorder and reg autism? Thanks for clarifying!

Heidi