Guest guest Posted December 23, 2010 Report Share Posted December 23, 2010 Hello everyone, just wanted to update you all that my son who has been on NV since February has been seizure free and going on his 5th month WITHOUT ANY seizure meds!( After being on these meds. for 9 YEARS) He also had his first normal EEG in his life after about just one month on NV. Still on NV of course and so is Lily who will be getting an EEG in the new year and possibly be taken off her seizure meds as well!!!She also has been doing so well cognitively and has some new words this month as well. I would like to share another amazing update story regarding NV & seizures about a child of a parent in the school parent group that I belong too. This child is 3 1/2 yrs. old and was having seizures even though she was on meds. I would like to report that after starting on NV, she has been seizure free for almost 6 weeks!!! Incredible! The feeling that I had when those words came out I cannot describe because I was the person who shared my experience with NV with this group & because of that this was one of the two families that tried it. I know what it's like to be so worried about my children having seizures and to know there is something that helped my children was of course incredible, but the fact that by me sharing it I was able to help others like my child I can't express -I am so happy for them! The other family in the group tried it with their delayed 4yr. old son who has no diagnosis yet, and they have been all over with him. The progress since being on NV just a few weeks has been reported by his ABA therapist ( who by the way does not know he is on NV) to be catching on to concepts quicker and showing imaginative play skills for the 1st time in his life!! One thing for example; the ABA therapist wanted to see if he would imitate imaginative play and pretended to feed a doll with a spoon and within 2 minutes he started to try to feed the doll with the spoon too!!! I live in NY where we are all skeptical and when the updates were shared everyone's mouths were hanging open -it was four out of four kids who now had success on NV in our group and now more parents are going to try it too for their kids! I believe so strongly in this product and that is why I became a distributor just recently after being a customer through pursuitofresearch for months and saw what NV was doing for my own kids. But hearing these updates brought me so much joy to know I was able to help. I am part of the Cherab team, my story is up on the site under seizures and if there is anyone who needs help with NV or has questions, feel free to contact me any time. This was such great news to share at this and any time of the year, I wish all of you a Happy & Healthy Holiday Season & New Year!! Dawn Falley 631-447-0615 daffy4@... Quote Link to comment Share on other sites More sharing options...
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