Re: Nutriveda question for new user.

[Guest guest]

Our son, ny age 12, has a syndrome called Sotos syndrome (genetic) and has

no words. Most of the kids with this syndrome do speak, however. We started him

on NV less than a week ago. I am writing down daily observations. Some slight

changes are happening but I can't necessarily attribute them to the NV yet. He

also had a seizure last night - hasn't had one for over 6 months. We are having

very hot weather here where we live so it may be that he overheated. Hard to

say. Also he is probably in need of having his seizure meds increased due to his

growth. I plan to give a report to this group after a few weeks go by so as to

get a feel for the bigger picture regarding what effect (if any) NutriiVeda is

having on our son.

>

> Hello all,

>

> I started my son, Kardyn, who is five yrs old and is a syndrome baby. He is

non verbal. He makes a lot of noises but no actual words unless you count the

occasional mama and dada that he doesn't really seem to understand. I started

him on the NV on the 11th and on day five which was yesterday he started

sticking out his tongue, way out. He even seems to be what I would call

" exploring " his mouth. He will even put a sucker on his back teeth and try to

bite it, which he has never done any of these things before. The ST and I could

never get him to stick out his tongue. He could move it, but would never

actually put it out there like that. He was actually drooling a little

yesterday. I had started him out on a half scoop once per day then moved him up

to 3/4 of a scoop once per day. This is when I noticed his tongue and what he

was doing with his mouth.

>

> I am not sure if this is just a coincidence or if this is actually the NV

helping him. Either way I am happy. My friend, who is the one who purchased the

NV for him to try sent me some post about kids seeming to find out they have a

tongue and I must admit that I was impressed and it does seem that Kardyn is

following the same path as some of the other children.

>

> Can anyone tell me how many kids, who are non verbal, have feeding issues as

in not using the back teeth and not wanting food back there, and not really

seeming to know that their tongue is to be used to aide in feeding, are on the

NV and have had some similar results? I would also like to know what seems to be

common as in what comes next after " finding " their tongue?

>

> I would really appreciate your feedback on this. I haven't told the ST that I

have him on the NV but I called her this morning to tell her about him doing

this with his tongue she was shocked.

>

> Thank you all very much for your help,

>

> a Way

>

[Guest guest]

:

My son is almost 3, and is no longer non-verbal, but it's still a work in

process. We are by no means " clearly " speaking, but people can understand him

more and more.

My son also has feeding issues. He is extremely picky and I've recently learned

he's not really chewing the few foods he eats. (I've believe it's a combo of

sensory concerns and motor ability). He takes a bite, clamps down and then it

either sits in his mouth for a bit or he swallows it whole. He is now in

feeding therapy to remedy this. In addition, he had NO awareness of his tongue

until recently. I could tell him to stick out his tongue and he'd open his

mouth really big, but nothing would come out. (we've been in PROMPT therapy for

7 mos now).

Since we started NV, I noticed A LOT more tongue awareness and use. It hasn't

drastically help the feeding situation, but that whole thing is still new to me.

He is now able to move his tongue side-to-side, stick it out, and I see him just

doing general tongue play. For a while, after we started NV, I noticed he was

licking EVERYTHING. Walls, chairs, his body, etc. We have definitely seen an

increase in awareness and ability to use the tongue. I do want to note we

started Occupational Therpay a few weeks before NV, so I can't be 100% certain

it's just the NV, but I would guess a combo of both. Even today his OT was

impressed with his ability (tongue-wise).

Good luck!

Sharon

>

> Hello all,

>

> I started my son, Kardyn, who is five yrs old and is a syndrome baby. He is

non verbal. He makes a lot of noises but no actual words unless you count the

occasional mama and dada that he doesn't really seem to understand. I started

him on the NV on the 11th and on day five which was yesterday he started

sticking out his tongue, way out. He even seems to be what I would call

" exploring " his mouth. He will even put a sucker on his back teeth and try to

bite it, which he has never done any of these things before. The ST and I could

never get him to stick out his tongue. He could move it, but would never

actually put it out there like that. He was actually drooling a little

yesterday. I had started him out on a half scoop once per day then moved him up

to 3/4 of a scoop once per day. This is when I noticed his tongue and what he

was doing with his mouth.

>

> I am not sure if this is just a coincidence or if this is actually the NV

helping him. Either way I am happy. My friend, who is the one who purchased the

NV for him to try sent me some post about kids seeming to find out they have a

tongue and I must admit that I was impressed and it does seem that Kardyn is

following the same path as some of the other children.

>

> Can anyone tell me how many kids, who are non verbal, have feeding issues as

in not using the back teeth and not wanting food back there, and not really

seeming to know that their tongue is to be used to aide in feeding, are on the

NV and have had some similar results? I would also like to know what seems to be

common as in what comes next after " finding " their tongue?

>

> I would really appreciate your feedback on this. I haven't told the ST that I

have him on the NV but I called her this morning to tell her about him doing

this with his tongue she was shocked.

>

> Thank you all very much for your help,

>

> a Way

>

[Guest guest]

Its been a couple of weeks since I've last posted our progress with NV. This

was because we had a little set back that had nothing to due with the NV but

rather a chelation challenge test that brought back many of the bad side effects

(ie stimming, hyperactivity, aggression, etc) that were improving while on the

NV. Its now been almost 2 weeks after the chelation challenge and we are almost

back to where we were prior to this test. The NV continues to be a big WOW for

us. Just the other day my daughter had a teacher who also has a child with

Autism stop her and ask her " what is your secret and what have you been doing

that is making such a big difference in Connor " . My daughter decided to kid

with her and pretend not to know what she was talking about and asked her what

she was seeing. The teacher told her in the last few weeks she has noticed

Connor much more social and aware of his surroundings. My daughter told her we

started him on NV and she said " Oh I've heard of that I'm going to purchase some

immediately for " . We too have noticed a big increase in tongue awareness

and sticking out his tongue which is a another big wow for us since he has never

given us the impression that he even had a tongue. He is also non verbal so we

are hoping and praying the next step might be some sounds and who knows even

some words.

> >

> > Hello all,

> >

> > I started my son, Kardyn, who is five yrs old and is a syndrome baby. He is

non verbal. He makes a lot of noises but no actual words unless you count the

occasional mama and dada that he doesn't really seem to understand. I started

him on the NV on the 11th and on day five which was yesterday he started

sticking out his tongue, way out. He even seems to be what I would call

" exploring " his mouth. He will even put a sucker on his back teeth and try to

bite it, which he has never done any of these things before. The ST and I could

never get him to stick out his tongue. He could move it, but would never

actually put it out there like that. He was actually drooling a little

yesterday. I had started him out on a half scoop once per day then moved him up

to 3/4 of a scoop once per day. This is when I noticed his tongue and what he

was doing with his mouth.

> >

> > I am not sure if this is just a coincidence or if this is actually the NV

helping him. Either way I am happy. My friend, who is the one who purchased the

NV for him to try sent me some post about kids seeming to find out they have a

tongue and I must admit that I was impressed and it does seem that Kardyn is

following the same path as some of the other children.

> >

> > Can anyone tell me how many kids, who are non verbal, have feeding issues as

in not using the back teeth and not wanting food back there, and not really

seeming to know that their tongue is to be used to aide in feeding, are on the

NV and have had some similar results? I would also like to know what seems to be

common as in what comes next after " finding " their tongue?

> >

> > I would really appreciate your feedback on this. I haven't told the ST that

I have him on the NV but I called her this morning to tell her about him doing

this with his tongue she was shocked.

> >

> > Thank you all very much for your help,

> >

> > a Way

> >

>

[Guest guest]

My son doesn't have a syndrome but also has feeding issues along with apraxia.

His SLP has been working with him with oral speech therapy but he is the

pickiest eater. Does the nutriveda help with that too?

> > >

> > > Hello all,

> > >

> > > I started my son, Kardyn, who is five yrs old and is a syndrome baby. He

is non verbal. He makes a lot of noises but no actual words unless you count the

occasional mama and dada that he doesn't really seem to understand. I started

him on the NV on the 11th and on day five which was yesterday he started

sticking out his tongue, way out. He even seems to be what I would call

" exploring " his mouth. He will even put a sucker on his back teeth and try to

bite it, which he has never done any of these things before. The ST and I could

never get him to stick out his tongue. He could move it, but would never

actually put it out there like that. He was actually drooling a little

yesterday. I had started him out on a half scoop once per day then moved him up

to 3/4 of a scoop once per day. This is when I noticed his tongue and what he

was doing with his mouth.

> > >

> > > I am not sure if this is just a coincidence or if this is actually the NV

helping him. Either way I am happy. My friend, who is the one who purchased the

NV for him to try sent me some post about kids seeming to find out they have a

tongue and I must admit that I was impressed and it does seem that Kardyn is

following the same path as some of the other children.

> > >

> > > Can anyone tell me how many kids, who are non verbal, have feeding issues

as in not using the back teeth and not wanting food back there, and not really

seeming to know that their tongue is to be used to aide in feeding, are on the

NV and have had some similar results? I would also like to know what seems to be

common as in what comes next after " finding " their tongue?

> > >

> > > I would really appreciate your feedback on this. I haven't told the ST

that I have him on the NV but I called her this morning to tell her about him

doing this with his tongue she was shocked.

> > >

> > > Thank you all very much for your help,

> > >

> > > a Way

> > >

> >

>