still confused - need help

[Guest guest]

I have only been in the group a week or so, and have been reading a lot and I am

still a bit confused. I took my 26 month old daughter, Madelyn back to the

neurologist today hoping to exclude or confirm apraxia. The neuro is concerned

that she isn't speaking and wanted to do a repeat MRI, eeg, and a hearing study.

She had them when she was 11 months when she was diagnosed with hypotonia and

global delays. I said no to the tests, but asked about apraxia. He said she does

have apraxia, but saw her for 10 minutes, and it seemed to be based on her lack

of words (she has 2 unclear ones) and her efforts to speak where the words came

out jumbled up.

I'm not sure where to go from here. Madelyn needs more therapy whether she has

apraxia or not, but I was looking for a diagnosis (if she has it) to arm myself

with at my next IFSP meeting. I am not clear as to whether she got the diagnosis

or not.

My next step is a developmental pediatrician, which her current peds have

insisted she doesn't need. Does anyone have any recommendations (or people I

shouldn't see) in the NYC/Long Island area?

Thanks,