New to the group

[Guest guest]

Hi there

I have been a member of this group for about a month following the diagnosis

of verbal apraxia (dyspraxia where we are in the UK) for my 2 and a half

year old son, Caleb. I have found the emails on here useful, but as we live

in London, UK, things are a bit different to in the US. We cannot have any

SLT paid for by our private health insurance so we're paying for a session

per week and are also waiting for a referral for an NHS (free) therapist but

we are probably going to be waiting a while for that. The therapist is

great, and engages Caleb really well, and we're seeing tiny hints of

progress. In the meantime, I have started Caleb on 2 ProEfa's per day and

have been reading with interest the emails on this group particularly in

relation to Nutrivida.

Caleb has barely any speech, but as is the case in the UK, it's not really

seen as being an issue until the child is 2. I've always suspected that

there was an underlying cause for this rather than him being 'a lazy boy' as

we were told by many well meaning family and friends. I had his hearing

tested when he turned 2 and he was diagnosed with glue ear and had grommets

fitted in May this year. The consultant assured us that once his hearing

was sorted, the words would follow thick and fast. They haven't. He's more

vocal, and very communicative but with few clear speech sounds. He's

engaging, points, has excellent eye contact, is strong, well balanced,

jumps, climbs, runs etc.... so we don't think that he is on the autistic

spectrum or is suffering from hypotonia so it seems that he has verbal

apraxia in isolation.

Anyway, sorry, this is very long! Basically, I wanted to introduce us, and

say that I find this group useful. I think that the ProEfas are helping

him. I have noticed that his behaviour is better since taking them and I am

going to buy the ProEpa to give him alongside. I would not have known to do

this without this group, so thank you.

If we want to try Nutrivida, how would we do this considering that we are

outside the US? Could anyone tell me if they distribute to the UK, and what

the costs would be? My husband is rather skeptical, but I am keen to try it

if we can obtain it.

Thanks for reading and any tips you have will be very gratefully received!

Mawgan Batt