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Just Say Something enewsletter banner

June, 2010

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In the News

Below are recent news items from stories in newspapers and other media

outlets. Click on the links to read the articles in their entirety.

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Mother Claims Son Was Abused at State Developmental Center

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N.J. disabled, workers debate closing of five developmental facilities

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New Jersey looks to remove words such as 'retarded' and 'idiot' from state

law

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12 Schools Recognized for Innovative Special Education Programming

The Just Say Something Campaign has several components:

1.

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www.justsaysomething.org, a new website, created as a forum to share ideas,

observations and perspectives.

2. Media outreach to bring broad attention to the issue

3. A media watch, to monitor coverage about issues affecting

people with disabilities

4. The Just Say Something E-newsletter

5. Support for local activities - like hosting your own local

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76> Community Conversation

6. Social networking, check out our

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page; <http://cts.vresp.com/c/?ccs01var/6f738e0115/81d525224f/ae11e161a0>

Twitter with us!

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is a project of

<http://cts.vresp.com/c/?ccs01var/6f738e0115/81d525224f/59523f375b> The New

Jersey Council on Developmental Disabilities

PO Box 700

Trenton, NJ 08625-0700

TELEPHONE (609) 292-3745

TOLL-FREE 1 (800) 792-8858

FAX (609) 292-7114

<mailto:njcdd@...> Click Here to Email the Council

Visit the Just Say Something website for more:

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www.justsaysomething.org

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Alison LozanoA Message from Alison Lozano, PhD.

When you are trying to make a substantial societal change, engaging a

diverse group of people is imperative. Too often, people with developmental

disabilities are under-represented because they do not have close ties to

lawmakers, business leaders, media and other key decision makers

Slowly, but surely, that is changing. Through programs such as the Just Say

Something campaign, with its Community Conversation series, people with

disabilities are making their voices heard and making real connections with

people in power throughout the state.

Nowhere was this more evident than at the Community Conversation held May 24

in Flemington. Nearly 50 participants, including Assemblyman

(R-Hunterdon) came out to participate in Hunterdon County's first-ever

Community Conversation.

State and local lawmakers shared coffee and casual conversation with local

residents with developmental disabilities, care providers and other

supporters. The event created a strong dialogue about issues affecting

people with developmental disabilities.

Individuals in positions of leadership had an opportunity to interact with

individuals with developmental disabilities and see them as fully engaged

citizens. They also had the opportunity to address the issues and concerns

of people whose lives are affected by the decisions they make, locally and

statewide.

One of those major issues is inclusion. The Council is actively working to

introduce people with developmental disabilities to their communities. The

only way they are going to be fully engaged is if they are recognized as

full participants.

It is our hope that Community Conversations spread to all parts of New

Jersey. Opening the doors of dialogue is the first critical step toward any

substantial change.

- Alison Lozano, Ph.D.

Executive Director, NJCDD

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In Your Back Yard: The Conversation Continues

Passionate members of the community continue to post on our Just Say

Something blog. This month, a blogger by the name of " Valli " starts

us off with a post about a deli owner in her town and his understanding as

she attempts to teach her son how to count out change:

" When I approached the owner of a deli in my town about the fact that I'd be

bringing in my son to teach him about money and buying things, he strongly

encouraged me to bring him as often as possible. He told me that he would be

happy to work with my son in counting out his change. It really touched my

heart that this man was supporting me in my efforts to teach a life skill

and independence to my child. "

Blogger " Steinbruck " posted a link to a great commercial by the

group Think Beyond the Label with the theme " Labels get in the way,

disabilities rarely do. "

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m6KA> Click here to check it out.

Blogger " " expressed her frustration at drug companies she believes are

putting profit ahead of safety:

" I am appalled at the impact big pharma and big medicine has on the policies

that affect us all. In the first place, their drugs are approved in a very

negligent manner and then they push those drugs and get our government

authorities to pimp for them. It is time to get more balance in what is

going on with drugs/vaccines. etc. we need to ask more questions of the

secret meetings that drug makers have with our government officials. They

are all secret. the public is always KEPT OUT. It leads to corruption and

graft and stealing public tax dollars for ineffective harmful drugs. "

Finally, blogger " Hostafarian " wonders why New Jersey isn't moving to

eliminate the words " retard " and " retarded " from state laws:

" Hey - did anyone notice that a new piece of legislation in Washington is

getting some attention??? ROSA's LAW would eliminate words like 'retard' and

'retarded' from federal laws! Why don't we have a legislative effort here in

New Jersey to do the same thing? I see there is the " R Word " campaign, but

what about getting a bill introduced? "

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A Just Say Something Profile: Delrhi S. Hymes - Standing Up to Mc's

Instead of quietly enjoying a hamburger from the Mc's restaurant on

West 63rd Street in Bayonne on a warm May afternoon, Korall Hymes had to

listen to store employees ridicule her brother, who has autism.

Korall went to Mc's with her mother, Delrhi, and brother Jaylen, 14.

Jaylen started crying and screaming because of the heat and the long wait

for so-called fast food. Eager to calm her son down, Korall left the car and

walked inside to see if she could order the food quicker at the counter.

When she arrived inside, it was quickly apparent why the food wasn't coming.

She found store employees passing around a headset and laughing at her

brother. His wails from the car, prompted by hunger and heat, were fodder

for the employees' amusement.

" Hey, listen to this [expletive] retard, " one of the employees said,

according to Korall. " He does that stupid [expletive] every time they come

here. "

When Korall returned to the car, she was visibly shaken, according to

Delrhi. She told her mother what happened and her mother went inside and

spoke to the manager, who she claims was one of the employees mocking her

son's disability. Delrhi also contacted the Mc's corporate office and,

at press time, was still waiting for a call back.

This was not the family's first incident at that Mc's. In 2007, store

employees began mocking Jaylen when he got upset inside the restaurant. The

manager was conciliatory that time, offering a sincere apology and tickets

for a free meal. The family continued to frequent the restaurant.

Since this is the second time store employees have acted inappropriately,

Delrhi is demanding that Mc's take the issue more seriously.

" I plan on contacting the Office of Civil Rights, not only on my son's

behalf, but on behalf of all people with disabilities, because this is not

acceptable, " Delrhi said. " I'm demanding hiring practices include

sensitivity training for employees and the actual hiring of people with

disabilities. "

Jaylen sometimes gets upset when he goes out. He prefers to know his exact

schedule before he leaves home and would rather be playing on the computer.

But his family has never had a problem anywhere other than that particular

Mc's, according to Delrhi.

Delrhi has been an advocate for people with developmental disabilities for

about seven years. She has completed the Partners in Policymaking course and

helps new parents by answering their questions, informing them of available

services and providing them with support. She started a Facebook group for

the families she helps last year and says it has been a great success.

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E-newsletter development by CCS . The Just Say Something campaign is carried

out under a New Jersey Council on Developmental Disabilities grant to

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Communications, Inc., and

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Considine Communication Strategies, LLC.

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New Jersey Council on Developmental Disabilities

PO Box 700

Trenton NJ 08625-0700

TELEPHONE (609) 292-3745

TOLL-FREE 1 (800) 792-8858

TDD (609) 777-3238

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