Introduction and advice needed

May 25, 2010

Hi everyone! First let me introduce myself. My name is Carla and I have been

married to my best friend for almost 24 yrs. We have 2 sons (20 and 17), 1

daughter (4), and 1 granddaughter (2).

Our daughter came home in June of 2008 from China. She was 26 months old, could

not chew food and was not talking at all, either in Cantonese or English. Her

pediatrician referred us to EI and she had OT, PT, and ST. When she turned 3

she went under the school system and continued with OT and ST. She is given

this 2x a week for 1/2 hour, sometimes with another child and sometimes by

herself. (2x for ST, 2x for OT)

I wasn't seeing improvement at all so I had her hearing checked (it is fine) and

then had her re-evaluated in January by an SLP. This is when she received the

diagnosis of verbal apraxia. She now receives ST once a week for an hour with

her private therapist as well as her ST at school.

Last year I asked for extended school year (ESY)so she could continue her ST

during the summer. I was turned down because they needed to see how far back

she regressed. I'm asking for ESY again this year and have a meeting next week.

I was told this morning that it is very very unlikely she will get this because

she is congnitively ahead of her peers and then I was asked to cancel the

meeting.

Little T is very smart. I'm teaching her sign language and her thirst for new

signs amazes me. Her problem is she can't talk. I was told that because her

needs aren't " medical " that ESY wouldn't be available.

Help!! I'm going to fight for her to get this but I just wanted to touch base

with the group and see if anyone can point me to some documentation or anything

that I can bring with me.

I put 2 videos of Little T on my blog. The first video is of her telling me a

story.

Thanks everyone!

Carla

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