New To Group - NEED HELP / ADVICE

June 22, 2010

Hello

I just recently joined this group. We are in the San , CA area. I have a 5

1/2 year old daughter, currently non verbal, has been diagnosed with a

chromosomal 16 abnormality, on the ASD spectrum (PDD/NOS), and most recently,

Apraxia. She has also has a g-tube since birth but with the grace of God, has

been 100% oral eater for 5 months now. We hope to get the tube removed soon.

Recently started the GFCF diet and also under the care of a DAN doctor (Dr

Traver). We did all the standard bloodwork, urine, hair and stool testing that

DAN doctors do. Was given 10 supplements and instructed to start a new one every

4 days. We were on 1500 mg of Vitamin C, Probiotics and Multi-vitamins only

after being a month on this supplements. My daughter just couldn't take some of

this stuff and would have diarrhea often. Also, we noticed some new behavior

emerged, more irritability, more tantrums, more crying for no reason, etc. I

stopped the 3 supplements yesterday to see if the behavior improves or not.

Anyway, I joined this group because I really want to address the APRAXIA issue.

I just feel like we are not doing enough to address this issue. We do the

traditional speech therapy once a week. That's it. Well, of course, she has

school, OT, and ABA to address other issues.

My daughter has no words and has a really difficult time imitating correctly.

She learns a new sound and loses another. by the way, we are also doing OMEGA

3-6-9 (Nordic Naturals) for 6 months now for about 5ml a day. Is this enough ?

Sorry for asking such stupid questions but I really just need to know what else

I can do to treat this apraxia. What have you done with your children that

worked ? I honestly don't know much about the treatment of it and I want to get

educated at what's out there and available. ANY ANY SUGGESTIONS IS MUCH

APPRECIATED. Ie - therapies, supplements, books, videos, resources, great

therapist in the area, anything and everything that might help.

I've also heard of B12 shots. What is that ?

Thanks so much in advance for your help!!

God Bless,

Beth

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