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-------------- Original message -------------- > > > We are going for an IEP meeting next tuesday. I have been hearing > about how they try to give us the minimum. How do I prepare for this? > > My son responds the best when he gets 1 on 1 training. Peers doesn't > help him much at this point. > > What are my options? Strategy? > > Thanks. > > > > > >

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Go with a clear game plan of what you are asking for. You want more individual help ask for it and get it in writing on the IEP. Set some goals that he will be able to obtain and some a little high. Whatever you do not let them come into the meeting with the goals already written out and ready for you to sign without any input from you. perez3225@... wrote:

-------------- Original message -------------- > > > We are going for an IEP meeting next tuesday. I have been hearing > about how they try to give us the minimum. How do I prepare for this? > > My son responds the best when he gets 1 on 1 training. Peers doesn't > help him much at this point. > > What are my options? Strategy? > > Thanks. > > > > > >

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  • 4 years later...

My daughter who is now 4 was DX with apraxia earlier this last spring and it was

at the same time she was given her eval for her IEP for school, she receives

SPT out side of school also, so one thing I do is make sure that the SPT from

school and that the clinic are on the " same page " and working on the same speech

goals, it has helped le move forward with her speech tremendously.I also

made sure that the SPT wrote notes on everything they worked on over the summer

so that the school can continue to not only re-enforce it, but also adjust her

IEP as needed to achieve new and higher goals. Over the summer she only got SPT

at the clinic and her speech and expressive language delay have blossomed and

since an IEP is ideally suppose to be for a year, I make sure the proper

adjustments are being made.

Hope this helps, best wishes, Christian

[ ] IEP Meeting HELP

Hello All,

My son is 4 1/2 he is going to be going into pre-school well... if this IEP

meeting goes how I am hoping it to. Uziah received a DX of Apraxia when he was

20 months old, sense then we have 16 other DX's. I would like to asked if/what

assistance you have had for your children at school that seem to work? Or

anything that is in your IEP that you feel is invaluable ?>

Thank you in advance for your support!!!

Zoey

Baltimore

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I'm not sure how you find one...but I am preparing for my first IEP meeting in

October.??? My Speech Therapist told me that one her clients hired an advocate

to go with her to the meeting.?? The advocate is someone familiar with the laws

regarding specail needs.?? She said this is the only person she knows of that

had an IEP meeting in our county and was able to get one on one therapy at the

level actually needed.?? I'm planning on getting the advocates name from her and

seeing if I can hire them too.?? You may see if there are any in your area.

[ ] IEP Meeting HELP

Hello All,

My son is 4 1/2 he is going to be going into pre-school well... if this IEP

meeting goes how I am hoping it to. Uziah received a DX of Apraxia when he was

20 months old, sense then we have 16 other DX's. I would like to asked if/what

assistance you have had for your children at school that seem to work? Or

anything that is in your IEP that you feel is invaluable ?>

Thank you in advance for your support!!!

Zoey

Baltimore

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Check the Links Section of this site---there are at least 5-6 Links covering

IEP's. You should go armed with information from therapists that have done your

evaluations for OT PT and Speech and a Psychological--which is included in most

preschool eval's. My dd is 8yrs old- so we've been thru a LOT of the system

already. I've always been told that showing up to your very first IEP meeting

with an advocate gets everyone defensive and on-guard. Those kind of reps should

be saved until theres a problem where your district is not providing services

that they should be. If you go to your meeting with Recommendations for

services---most districts are pretty good at accomodating our kids. Speech for

Apraxia should be 1 on 1 and not a Group session and 3-4x per week.

Good luck. Let us know how it goes.

From the Links Section:

As an attorney, arbitrator, mediator and loving mother of an autistic daughter,

I have a unique perspective on the process by which families prepare their

children's Individualized Education Plans (IEPs).

The IEP meeting, required by federal statute, is convened at least once a school

year to plan an educational program that is tailored to the needs of each

disabled child. The child's " team " attends the meeting: teachers, therapists,

parents, school administrators, and any other invited parties.

So far, our family has had success with 's education in our district. She

has been fully enrolled in standard district programs - Early Childhood and then

grade-school inclusion - and has made significant educational gains. We have

been able to get the district to agree, with minimal or no conflict, to provide

all the services we felt she needed in her IEPs.

Over the years, many parents have told me battle stories about their children's

IEPs. They comment on how " different " 's experience has been from theirs,

even within the same district. Maybe so.

Certainly, my daughter's innate abilities have emerged, and in so doing, have

given her more skills as she goes. Success truly breeds success. I can take no

credit for the marvelous daughter God gave me.

However, would not have been able to be successful if the right

opportunities were not available to her. This is where good advocacy can make

all the difference.

Advocacy v. Parenting

Advocacy is by its nature, a cerebral activity and involves great thought and

creativity. Parenting is by nature a visceral activity that involves great

emotions and heavy decisions.

I know first hand how the feelings that come with children, especially disabled

children, overwhelm and confuse us. No words can adequately explain the dread

and anxiety that accompany us everywhere we go. We belong to a select club, an

elite group of people, who speak a foreign language ( " IEP " , " OT " , " PT " ) other

parents do not know. We emit sensitive radar that only those of our own kind can

detect, often with one look.

For the sakes of our children, we must strive to be patient with those whose

experiences have not given them access to our perspective. It is our duty to

lead these people to a fuller understanding of the beauty and ability within our

children. To do this, we must become effective advocates.

Learning About Rules and Strategies

Good advocacy often works like a game. I do not suggest that advocating for the

needs of special needs children is trivial. It is just that the method of

getting what you need from a school administration has rules and strategies that

are often quite predictable.

If you learn and apply these rules, you can reduce the risk that is inherent

when you negotiate for educational benefits. I liken this to the difference

between poker and hearts.

Playing Poker . . .

Poker is a stimulating game of wager. The fun, the skill and the whole game is

in the bet. In truth, the cards make only a marginal difference to the outcome

of the hand. It is not what you have in your hand that matters as much as what

the other players think you have.

Every hand is a winner, and every hand is a loser. By manipulating the other

players at the table, making them believe what you want them to believe, you win

the bet. You do not really need to have a strategy for the cards: if you

understand people, the cards will play themselves.

And Playing Hearts

Hearts is different. Hearts is all about having a strategy for the cards: how

you play the cards given to you. What the other players think or feel is less

import than getting them to play their cards in the order you want them to!

Yes, there is minimal bluffing, but at tremendous risk. This is because everyone

is paying attention to the cards, not the players. However, the rules of the

game give talented players a chance to unload their worst cards at little or no

jeopardy to themselves.

In fact, the best hand at hearts is the worst hand played skillfully! If you

have a wretched hand, and take every trick, you end up winning the round!

Moreover, even if your round goes badly, the game keeps going, hand after hand,

until all hands are played.

Thinking Like a Poker Player

Many parents and advocates involved in IEPs use " poker " language to describe the

process. They have come to believe that districts, overall, do not act in good

faith when setting IEPs, and that they will cheat.

They do not want to " tip their hand " or " show their cards " . They talk about the

personalities of the school administrators and staff. Are they bluffing? What

are their cards? Are they holding back? Do they care about my child? Do they

care about disabled kids in general?

When parents feel like they have to battle educators for benefits, they lose

confidence in those educators. When parents lose confidence in their educators,

those educators (who are often acting in good faith to do an extremely difficult

job) feel unappreciated.

A siege mentality sets in, lines are drawn, and the parties toss therapies and

interventions onto the table like chips. They wager with the child's needs, but

rarely does the child walk away with any of the pot. This is why playing poker

at an IEP does not work for the children.

Learning to Make Deals

Like hearts, advocating in an IEP might take many deals. The players, sometimes

with competing goals, sit down year after year and look at their hands.

What progress has the child made in school? What skills does he or she have now?

What are the demands of the next grade? How well equipped is the district or the

staff to meet these needs? What resources do the parents have?

Most of the answers to these questions are known to most of the parties at the

table. Unlike poker, which allows for more uncertainty to sweeten the bet, IEPs

leave little to bluffing.

Either the child has abilities in certain areas, or he does not. Either she can

attend in a regular education setting, or she cannot. Either the staff is

prepared to deal effectively with this particular disability or they are not.

And so on. A skillful advocate, like a skillful hearts player, knows when and

how to play certain facts in the file so the child does not bear an undue burden

in the education process.

Eight Steps to Better IEP Meetings

Here are eight steps for parents to learn. These steps will help the parent

negotiator minimize conflict when dealing with good-faith district negotiators.

They will also help you prepare a solid case when negotiating with district

personnel who are acting in bad faith.

1. Make every attempt to sustain relationships.

Like the many hands in a hearts game, IEP negotiations play out over time. A

game of cards is always more enjoyable when played in a group that likes and

respects each other. Try to get to know and personally connect to the other team

members.

Whether or not we personally like our child's teachers, school psychologist,

school social worker, principal or other administrative personnel, we are stuck

with them unless we move. If we move, we will be stuck with new school officials

with whom we have conflict. Or new, difficult people will be promoted into

established positions.

In any event, we have to learn to work with people we do not understand, agree

with, or get along with. They are there, and will be there all year, year after

year. Getting personally angry with them, even if they deserve it, lead to

hostility down the line.

Now hostility can have its place, as in a lawsuit or a Due Process Hearing.

However, if parties get that far in their fights, any chance for a working

relationship is dead. Since it is in the best interests of our children to have

a cohesive team working towards a common goal, we as parents must take a

leadership role in sustaining the team atmosphere.

We cannot lead a team we do not join.

It is not enough to come into a meeting, periodically and make demands; even

legitimate, legal demands. We must model the behavior we want to draw out in our

children's IEP team.

If we want the other team members to be patient, prepared, and educated about

our child's needs, we must set the standard.

We must be understanding of them and the demands on their time.

We must be patient with them as they learn our child's method of learning.

We must be prepared and secure helpful test results on our child's development,

articles or other related materials, and then share them; and

We must be as or more educated about the objective realities of our child's

disability so we can talk to other team members as peers.

Before we make any demands on a team member, we must ask ourselves, " Am I asking

of this person something I have not done, or am not willing to do? "

If someone did something helpful, remember to say " thank you! "

When we can demonstrate that we are doing our part, it is more reasonable to

press others to shoulder their responsibilities.

2. Keep the focus on the child's needs, not the district's resources or the

parents' expectations.

Under the Individuals with Disabilities in Education Act (IDEA), Congress set

forth certain protections for children with special needs. At its core, IDEA is

designed to make sure that disabled children have access to a " free and

appropriate public education " in the " least restrictive environment " .

The United States Supreme Court has been relentless in their insistence that

IDEA may not be used to force a school district to " maximize " a child's

" potential " . If a child is getting a " meaningful educational benefit " and making

progress that can be objectively measured, then most courts will conclude that

IDEA has done its job -even if most parents would consider the results basic or

minimal.

Most schools pride themselves on doing more than passing work for their

students, even their disabled students. Clearly, those with the highest

expectations for children are the parents. This is why we are here.

Yet, many parents engage in the IEP process without having tangible educational

goals, let alone a plan to accomplish these goals. Without a plan, the IEP,

school staff, and parents will flounder.

Let me share an example. Our goal for is to teach her to function as an

autistic person in a non-autistic world. We do not expect the District, or

anyone else, to cure her autism. Each decision made for her - educational and

otherwise - is shaped with this plan in mind. This simplifies things.

When we read a map, we have a starting point and a destination. We plan our

routes and back-up routes from these two variables.

Get Independent Evaluations

How do you know where you are beginning? Get the child tested and find out!

Parents must obtain independent medical and/or developmental assessments for

their disabled children! Without clinical data, there is no reliable starting

point for the journey.

Yes, these tests are often burdensome and expensive. Do them anyway. Our

children's abilities and disabilities are the cards in our hands! How can we

decide how to play them if we do not look at them first?

These evaluations bring parents on board. They force parents to understand the

precise nature of their child's disability, and in so doing, obtain the

necessary information to formulate a cohesive strategy for dealing with it. This

is especially true if the nature of the disability has a hidden educational

impact.

IDEA only requires school districts to pay for special services like speech,

occupational or physical therapy if doing so gives an educational benefit, not

just a medical one. In other words, the disability has to effect learning.

I emphasize the need to have independent clinical medical, psychological, and

/or educational or evaluations done -not evaluations through the school district

or by a practitioner selected by the district. Because IDEA has provisions,

which, under certain circumstances, require school districts to pay for

evaluations (ostensibly to make the field more level for low-income families),

many parents who can afford an independent evaluation fail to get one.

However, school district evaluations are still school district material. If

there is a hearing or lawsuit, these tests are crucial evidence. Parents will

have more faith in the truth of these tests when they choose the professionals

who administer them. In the event that a test does not accurately reflect a

child's abilities, parents who get these evaluations independently have a choice

about whether to share this information with the district - something they could

not control if the tests were done by the district.

These outside evaluations have another benefit in that they relieve the parties

from subjective disagreements. The results speak for themselves. No one is to

blame for this information. In fact, third-party reports give a willing school

administrator a way to justify a difficult or politically unpopular decision to

grant services.

When was going into kindergarten, I wanted her to a full-day program with

kindergarten in the morning and Early Childhood in the afternoon. Our district

had a " policy " (read " budget issue " ) against this.

When I took to her yearly reevaluation at the University of Chicago

Developmental Disorders Clinic (a nationally recognized leader in autism

diagnosis and treatment), I was able to persuade the U of C team that

required the full-day program. They gladly made this recommendation in their

report.

This relieved the sympathetic school administrator (who granted the request)

from having to make the judgment herself. After all, if her boss disagreed with

her, he would have a much harder time disagreeing with the University of

Chicago!

With independent reports, everyone is off the hook and can bring themselves,

defense-free, to the great task of addressing the child's problems. Once we know

where we are, we can decide how best to get where we are going. Once everyone

has an objective sense of a child's abilities, they can develop a plan to teach

that child.

Design Specific, Measurable, Realistic IEP Goals

The IEP is designed to list specific educational goals for the child. Make sure

the goals are realistic, specifically stated, and penned in layman's terms. As

the school year unfolds, the team can look at these goals to objectively assess

the child's progress. To this end, IDEA requires that the goals as they appear

on the IEP form must be something that can be objectively measured.

Avoid generalized goals, as " ny will be able to attend in the classroom with

increasing frequency " . This phrase leaves ny's progress open to subjective

evaluation. Disagreements about subjective evaluations lead to bluffing and

defensive postures on all sides. Where does this leave ny?

If the goal read: " ny will be able to complete grade-appropriate class work

during class time, up to 75% accuracy " the parties can evaluate what ny is

doing in class and objectively measure this against the goal. If ny cannot

finish a spelling test with his class with 75% accuracy, the team can agree on

his inability to meet the goal.

This keeps the focus on ny and away from the other team members. When

everyone can agree on the problem, it is much easier to brainstorm about new

interventions that can help him learn, or whether the goal should be modified

(e.g.: " …up to 50% accuracy " , etc.).

Parental Expectations v. District Resources

A word about parental expectations and school district resources. These

competing interests are present in every IEP. They represent an inherent tension

in disabilities issues. Parents want the best for their children. School

districts have to provide basic services within a clearly stated budget.

Never ignore these dynamics in an IEP. They are always there, even if districts

are not supposed to consider budgetary concerns when they formulate an IEP.

In negotiations, emotions are often the problems to be solved.

Parents should never treat the school team as if they are sitting on limitless

resources. School personnel should never forget the legitimate emotional

investment each parent has in his and her child. Parents should attempt to

occasionally see their child through the eyes of others. School personnel should

try to be creative with what resources they do have.

Neither parents nor schools can wave a wand over a disabled child and make that

child's problems disappear. Yet, the parties often treat each other as if this

were true.

Parents sometimes have expectations of their schools that reach beyond

academics. They want their kids to fit in, love learning, and have predictable,

pleasant school experiences. Often, kids with disabilities can do many of these

things. Sometimes they simply cannot.

Schools, even the best of schools, can harbor frustrations that impede learning

and fitting in. These frustrations should be whittled down until only those

hurdles that cannot realistically be removed remain.

Similarly, schools have rhythms that cause unnecessary pain to a disabled child.

Simply telling parents " this is how we do things " is an inappropriate attitude.

Disabled children may not be penalized for bringing their disabilities to

school. Teachers and students must make every reasonable accommodation to

welcome them.

3. Always provide " face saving " ways out of a dilemma. Have a back-up plan.

Mediators know that this is the secret of successful mediations. We call it the

difference between positional bargaining and principled bargaining.

Assume we have two parties who are arguing over one lemon. Each takes a position

and insists on having the whole lemon. No compromises. They go to a judge who

uses the rules of basic adversarial procedure to resolve their problem by

dividing the lemon in half -to no one's satisfaction.

A mediator will ask each party what they want with the lemon. One party says

they want the pulp for lemonade. The other wants to use the rind for zest. The

mediator sees a solution the judge missed: peel the lemon and give all of the

fruit to one party and all the rind to the other. A win-win solution.

Special needs children benefit greatly from principled negotiations. When

parties know what their needs are, they can be more creative in finding

solutions to those needs.

Often, parties simply assess their needs in private, and make unilateral

decisions as to what they require to satisfy those needs. They then present only

these conclusions as their positions in a negotiation: " I need the lemon. "

Poker rules dictate that you will " tip your hand " and foul up your chances of

winning if your opponents know what your plans are. Keep your cards close to

your chest, and bluff it out. In negotiations, especially delicate negotiations,

the goal should not be to win (which forces the other side to lose) but to

achieve a particular objective.

Encourage brainstorming among all informed people at team meetings, especially

before an IEP. When the collective resources of a group focus on a problem, the

solutions that present themselves are amazing.

Have more than one approach to offer. If your initial suggestions cannot be

implemented, you should have given some thought to your fallback position.

Sometimes a fallback plan contains a calculated failure. Failures, though

unpleasant, are our greatest teachers. If you find yourself at odds with a

school administrator's idea, and if this idea will not cause real harm to your

child, set a trial period, then let the idea go forward and fail. Just let

experience speak for itself.

No one likes to feel like a loser. No one likes to feel humiliated. No one likes

to feel stupid, or to worry that if she makes a mistake, this will be held up

for everyone to see. No one wants to worry over failing in front of a group.

Moreover, everyone will fight tooth and nail to keep these things from

happening.

I promise you, if an IEP becomes a contest of who is right and who is wrong, no

one will roll over and play dead. Present a position (even a perfectly legal and

legitimate one) in unnecessarily demanding terms, and you risk creating an

atmosphere where the other side would rather eat steel wool than admit that they

are wrong (and they certainly won't capitulate if their opponent is not wholly

right on the facts in the first place!)!

I am amazed at the number of parents who walk into a meeting and flatly accuse

school personnel of professional incompetence - in front of their supervisors -

then expect everyone to agree with them!

Sure, wouldn't you, if someone did that to you at your job?

4. Build your record.

What if you are right? What if school personnel are flatly incompetent? Do not

say it. Show it!

Be reasonable and calm while you admit that you are concerned about how a

situation is developing. Be prepared to show, objectively, how your child is not

meeting his goals. Produce reports, articles or test results that will persuade

an objective listener (like a due process hearing officer, or a judge) why your

suggestions are reasonable.

If you can lay out a " court ready " case at this level, everyone will quickly

read the handwriting on the wall. Threats and accusations are unnecessary. The

facts speak for themselves. Of course, this assumes that you have some facts on

your side.

Do not shy away from the damning evidence. Develop a strategy to deal with it. A

good lawyer knows all the strengths and weaknesses of her case. We know where we

expect to have trouble and prepare for this as best as we can. Again, objective

data from non-school district personnel is the best place to start.

Independent medical, developmental and psychologist's evaluations and private

therapists' reports and evaluations are crucial to setting up the facts. So are

third party advocates or therapists who come to the school and observe your

child in his school environment. You have to listen to what these reports and

third parties tell you.

Parents must be willing to face the reality of their child's abilities!

If your child has tantrums when frustrated, do not demand that his day be

frustration-free. Provide and document solutions how the frustrations and

tantrums should be handled.

You are not being disloyal to your child by admitting his problem areas. You are

being disloyal to your child if you do not prepare for them. Get the facts in

writing. Do not rely on your own opinions and feelings.

This is not to say that parental opinions and feelings are bad. In fact, they

are wonderful! In addition to what we may think or feel in our guts, we need to

understand of what we can reasonably expect for our child in the classroom

environment in a given timeframe.

Our best hopes and dreams come true one step at a time. Parental feelings are

the most powerful thing on earth. Our insights are invaluable in setting goals,

therapies, and just getting things done. They are not evidence!

We will fall flat on our faces if we indulge in the belief that our opinions, by

themselves, will persuade an objective hearing officer or judge that we are

right in any contested issue. Courts sympathize with parents but do not defer to

parents.

As parents, we are expected to be many things for our children but " objective "

is not one of these things. We are, by Nature's design, the least objective

persons in the room. Cull and collect objective evidence to buttress any

argument you have. If you get caught off-guard on an issue in an IEP and believe

you need written back-up for your position, adjourn the meeting and reconvene

when you have a chance to have your child assessed by a qualified professional.

IDEA does not require the parents to be rushed into anything.

5. Walk a mile in the other side's moccasins.

It will not hurt to indulge your thoughts about how things are for the other

side. In fact, experimenting with perspective is necessary to brainstorm

solutions or to decide the order in which you will play your cards.

Spend sustained time at the school. Volunteer in your child's classroom and

other classrooms. Watch the kids on the playground and in the lunchroom. What

really goes on inside school? How tired are you at the end of a school day? How

tired must the teachers, the aid, the principal, and your child be?

On the other side, encourage teachers and other school persons to visit you at

home in different circumstances, so they know what your life is like, too.

Do not forget to sell your solutions. When we want interventions for our

children that are designed to maximize potential, do not forget that IDEA will

not support us. Find a way to make your proposal appealing for the school

district.

When was in Early Childhood, the teacher (a wonderful woman) used her

tried and true methods for disciplining . While these methods may work

well with other kids, they were not appropriate for . Instead of objecting

to this procedure, we offered a suggestion that we said would make things easier

for the teacher. Framing our suggestions this way made it easier to implement.

Well-reasoned but abstract ideas about how things should be have little

application unless you can offer practical advice about how they can be. It is

not enough to know how you think things should be done, although this is an

excellent place to start. To make workable suggestions, you need to understand

how the people involved can do this job within the context of their day,

training and budget.

Learn what they have to do and how they do it. Use that knowledge to advocate.

Offer practical ideas about how to address problem areas.

It is harder to ignore the problem-finder if he or she is also the

solution-giver. Conversely, it is easy to ignore people who do not know what

they are talking about. Parents of special needs kids know this better than

anyone else. We are constantly told how to do things by people who have no idea

about the realities of living with our children. We rightfully ignore those

people. School personnel will ignore you unless you understand the realities of

what they do.

6. Listen actively, especially to the things you do not want to hear.

No one is all knowing. Really. As much as I know about my child, and I know an

awful lot about her, I still have things to learn. To my knowledge, no one has

yet descended from the sky.

Often the solutions we seek are stranded on the barren land of " What We Do Not

Want to Hear " , and are calling out to us.

Hear them. Listen to everything with a whole heart and a whole head. If you find

yourself getting angry or defensive because you disagree with what someone is

telling you, or because the person is talking to you in an offensive way, pay

attention to your reaction. When we feel defensive, we stop listening. We begin

to think about a rebuttal. Our thoughts are no longer on the issue, but how we

will respond to it.

If you find your temperature rising, disengage your ego from what is happening.

Breathe deep. Calmly restate what you heard like this: " I want to understand

your position, Ms. . Are you saying _____________? " Then restate what you

thought she said, not what you thought she meant.

She will confirm or deny your recollection. Keep at this until you are sure you

understand her position. Only then can you calmly state your position. Often,

what we think we hear, we did not hear. Or the other party innocently misspoke.

These oversights can be remedied easily. If not, then everyone at the table

fully understands what the disagreement is about, and can try to deal with it.

In addition, hearing all points repeatedly allows even the most uncomfortable of

them to sink in enough to be objectively evaluated.

7. Encourage everyone to love your child, then let them!

Pediatricians and child psychologists have a term of art called " gate-keeping " .

Gate keeping occurs when people set themselves up like watchdogs over a child,

guarding the gate against intruders. Sometimes nurses and doctors will gate-keep

a particularly sick child. They become convinced that they are the only ones who

can really act in the child's best interest and actively discourage others from

helping.

However, no one can gate-keep over a sick or disabled child the way parents can.

We are stunning in this ability. Nature has blessed us with innumerable

instincts for just this task. When is gate-keeping appropriate? When it protects

your child from a real harm. When is it not appropriate? When it gets in the way

of loving or talented people who can help.

Parents must strive to maintain their sense of judgment. They must be able to

tell the difference between real harm and potential or imagined harm. If we

treat every person who disagrees with us as an enemy, we will dull our instincts

so we will not be able to detect the real enemies in our presence.

A school speech therapist told the mother of a nonverbal autistic boy that there

was no hope for him because she could not reach him. She told the boy's mother:

" You know, these autistic kids just don't get it! " This statement demonstrated

her dangerous ignorance about autism. She may as well have said, " You know those

deaf kids? You talk to them, but they don't hear you! " This woman was a real

threat to that boy. She would not help him. In fact, she caused him to regress.

Gate keeping was a wonderful skill for his mother as she strove to get another

therapist for her son.

However, if a knowledgeable educator has a different approach or opinion from

ours, this does not make her the enemy. Do not gate-keep around those people -

they are invaluable, untapped resources.

Let them close to your child to see the wonders and beauty you do. When they

learn to love your child from their heart, they will be motivated to do what

they can to help and will listen to what you have to say. If you push them away,

they will never get a chance to find out what they and your child are capable of

doing. Everyone loses that way.

I am convinced that children can never be loved too much or by too many people.

Love will move mountains. Let it in.

8. Have a little faith.

As a lawyer, I have remarkable faith in the human spirit. I believe that most

people are good at heart and will do their best if they are given an

opportunity.

In the field of education, it makes sense to be optimistic. Think about it. No

one becomes a teacher, an aid, an administrator or a facilitator because of the

money, the hours or the Nike endorsements. They do this because they want to

make a difference to children.

Of course, intelligent people will disagree about the proper way to make that

difference. Those persons closest to the children will have a different

perspective than administrators.

Very few, if any, of the people you will meet in your child's school is out to

hurt anyone. Be alert for the occasional bad apple.

Generally, give your child's team some credit for acting in good faith. If they

need education, supply it. If you disagree, try to work it out without getting

personal. Do not demonize well-intentioned people. Utilize them. Even if they

have priorities that you cannot share, they can turn out to be of great help to

your child.

Summing Up

Your child's IEP should never be a gamble. IEP meetings should not turn into a

game of nerves with everyone trying to guess who is bluffing, betting or folding

on the strength of their guess. An IEP should be a strategic meeting where a

talented advocate need not lie about his or her hand, but can play any facts to

the child's advantage.

Keep the game fair and in good spirits, when possible. Know what your goals are

and work them. Many roads lead to the same place. Many different cards can win

the game.

--------------------------------------------------------------------------------

More Articles by Bollero

Using an Expert as an Effective Resource

Before You Retain a Lay Advocate

Before You Retain an Attorney

Meet Bollero

Ms. Bollero received her undergraduate degree from Northwestern University and

her Juris Doctor degree from Loyola University of Chicago School of Law. She is

a former member of the adjunct faculty at Elgin Community College Paralegal

Program, and serves on the Professional Advisory Committee of the Autism Society

of Illinois and the Illinois Attorney General's Special Committee on Special

Education. Ms. Bollero is a former special education mediator for the Illinois

State Board of Education. She has authored numerous articles on special

education and has conducted a variety of seminars on school topics in Illinois

and nationally. In her seminars, she teaches how to effectively, calmly, and

productively navigate an I.E.P in a way that everyone " Plays well together " . She

brings years of personal as well as professional experience. She will show us

how Playing Hearts Not Poker is in the best interest for our child.

Copyright © Bollero, Esq. All rights reserved. Do not use without

permission.

Contact Information

jlbesq@...

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I'm not sure if having an advocate at your first meeting will be beneficial

because it will appear as if your defenses are up and you didn't give the school

a chance. My son first IEP was last year in pre- school and I took the letter

from the Neurologist and his private speech therapists and they told me they

don't like to label so young. They only wanted to give him 30 minutes of speech

a week and 30 minutes of OT. As I explain,his speech was worse than OT and since

they couldn't afford to purchase the PECS system that they should give him

speech. I was able to get him speech  two  30min. session per week. At the end

of the school year for his second IEP since I observe him in the classroom and

therapy time once a month and went on most trips. I was able to get Speech, OT, 

and a eval for  PT and social therapy.  I guess what I'm saying if the school

see that you are involve in your child progress they tend to give your what you

want if not then

an advocate.

Tracey

________________________________

From: " NotefrmSue@... " <NotefrmSue@...>

Sent: Monday, September 7, 2009 3:19:10 AM

Subject: Re: [ ] IEP Meeting HELP

 

I'm not sure how you find one...but I am preparing for my first IEP meeting in

October.??? My Speech Therapist told me that one her clients hired an advocate

to go with her to the meeting.?? The advocate is someone familiar with the laws

regarding specail needs.?? She said this is the only person she knows of that

had an IEP meeting in our county and was able to get one on one therapy at the

level actually needed.?? I'm planning on getting the advocates name from her and

seeing if I can hire them too.?? You may see if there are any in your area.

[childrensapraxiane t] IEP Meeting HELP

Hello All,

My son is 4 1/2 he is going to be going into pre-school well... if this IEP

meeting goes how I am hoping it to. Uziah received a DX of Apraxia when he was

20 months old, sense then we have 16 other DX's. I would like to asked if/what

assistance you have had for your children at school that seem to work? Or

anything that is in your IEP that you feel is invaluable ?>

Thank you in advance for your support!!!

Zoey

Baltimore

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I totally agree with Tracey!! These are people you might be dealing with for

the next 12 or 13 years and you NEED them to be on your child's side. One tip I

can give is make friends with the therapists. Touch base with them, ask them

for advice on what to do over weekends/breaks, ask them how your child is doing,

be compassionate about how full their schedules are. When it comes time for IEP

meetings ask to meet with them informally to see what they are recommending. My

daughters therapists usually ask me what I think at that time so I get input

into their recommendations too. Volunteer to be a parent member for other IEP

meetings. When it comes time to sit in front of the special ed director who

makes decisions all of the your child's " team " will be on the same page as you.

I would not go in all confrontational at the first meeting.

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I would highly recommend getting outside evals/reports from doctors or

therapists. I think that the three reports from three diffferent medical experts

helped me to get all of the services that my son needed. He is three and when

he transitioned out of EI and into the preschool program through the district,

it was important that the district know that i had medical opinions separate

from the reports and evals of the eval team. Districts have to abide by

guidelines that are set according to scores and other stuff that has very little

to do with the kids and a lot to do with money. When they have medical reports

recommending services, they can easily provide services and use the doctors

reports as the proof that they need. My son also had very high IQ scores and

language scores, which made it harder to qualify, but he still did because he

wasn't " performing " where he should;d have been in relation to his intelligence

and cognitive skills. He actually got SP- 5x (4 ind, 1 gr); 2 OT indv(1 push

in, 1 pull out); 2 social skills (1 sml group pull out, 1 push in) Plus 5x a

week preschool integrated class (1/2 day) I was thrilled beyond belief and I

feel that by mid year, he won't need all of those services and we will cut some

of them.

Good luck!

erin

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