All New to Me

[Guest guest]

Hi everyone,

I have been a " lurker " for a couple of months now, but I thought it was time to

introduce

myself. First, I want to say thank you for this message board. I felt so lost

until I found it.

You all have answered so many questions and made so many of my sons " symptoms "

make

sense. We are not alone and that comforts me. I realize he and I are on a long,

bumpy

journey together.

Larsyn is 26 months old. I had him evaluated at our Regional Center when he was

19

months old...I knew something just wasn't quite right and I expected them to dx

autism or

something of that nature. My best friend and sis-in-law are special ed teachers

who work

with autistic children, my other sis-in-law is a SLP. Well months later, many

hours of

speech therapy and OT we still aren't sure what is going on. I just got a

referal to a

pediatric neurologist, so I am excited I may officially have a proper diagnosis.

He didn't really babble as a baby, he would sometimes start, but then it went

away. He had

very weak trunk tone (didn't sit up until after he crawled). He has sensory

issues, mostly

oral. Very picky about textures (ex. loves fruit, but won't eat it unless

pureed). He has NO

true words. After 6 months of Speech he has a couple of approximations (ba for

binky and

bug, uh for up, ki for kitty, ka for cookie/cracker and maybe a couple of

others). He will

say mamamama or dadadada. He actually has a delay when responding to you (it is

like his

brain needs time to process how to say something). He drools. he stuffs his

face with

food, he is a mouth breather, his mouth is rarely

closed. He doesn't like to look you in the eye for long. If he has his food or

toys a certain

way, DO NOT MOVE them or he will be very upset. He is clumsy (trips over his own

feet!).

He has contact/outdoor allergies (so does his brother).

The positives...he is at his age level for receptive speech, he is extremely

loving and happy.

He gives giant hugs and sloppy kisses.

He plays well with other kids (older or younger), he adores his 5 year old

brother. He is not

shy around others. He has an easygoing personality.

He has individual OT 1 hr/wk and goes to " jumpstart program " (speech therapy

group with

5 other boys, taught by SLP , OT and one therapy asst.) 2 hrs day/3 x's week.

We are vegetarians and both my boys have been on Vegan DHA supplements, but I

just

ordered Nordic Naturals Omega 3/6/9 liquid (Sorry Fish!). I also ordered a

couple of books

many of you have talked about.

Thank You for reading and I am sure in the future I will have a ton of

questions! If anyone

has any suggestions I would love to hear them. You can respond to the post or

personally

e-mail me.

Thank you so much,

Jenna Weil RN, BSN

[Guest guest]

Please see message # 53124. The pureed food thing, weak truncal tone,

peekaboo babble, stuffing, delayed response (here it was a hearing

issue related to gut stuff), and drooling were all seen here.

For us it was allergy and gut stuff.

The testing in the above message was extremely helpful to us in

addressing our puzzle.

You are correct, you are not alone.

>

> Hi everyone,

>

> I have been a " lurker " for a couple of months now, but I thought it

was time to introduce

> myself. First, I want to say thank you for this message board. I

felt so lost until I found it.

> You all have answered so many questions and made so many of my

sons " symptoms " make

> sense. We are not alone and that comforts me. I realize he and I

are on a long, bumpy

> journey together.

>

> Larsyn is 26 months old. I had him evaluated at our Regional Center

when he was 19

> months old...I knew something just wasn't quite right and I

expected them to dx autism or

> something of that nature. My best friend and sis-in-law are special

ed teachers who work

> with autistic children, my other sis-in-law is a SLP. Well months

later, many hours of

> speech therapy and OT we still aren't sure what is going on. I just

got a referal to a

> pediatric neurologist, so I am excited I may officially have a

proper diagnosis.

>

> He didn't really babble as a baby, he would sometimes start, but

then it went away. He had

> very weak trunk tone (didn't sit up until after he crawled). He has

sensory issues, mostly

> oral. Very picky about textures (ex. loves fruit, but won't eat it

unless pureed). He has NO

> true words. After 6 months of Speech he has a couple of

approximations (ba for binky and

> bug, uh for up, ki for kitty, ka for cookie/cracker and maybe a

couple of others). He will

> say mamamama or dadadada. He actually has a delay when responding

to you (it is like his

> brain needs time to process how to say something). He drools. he

stuffs his face with

> food, he is a mouth breather, his mouth is rarely

> closed. He doesn't like to look you in the eye for long. If he has

his food or toys a certain

> way, DO NOT MOVE them or he will be very upset. He is clumsy (trips

over his own feet!).

> He has contact/outdoor allergies (so does his brother).

> The positives...he is at his age level for receptive speech, he is

extremely loving and happy.

> He gives giant hugs and sloppy kisses.

> He plays well with other kids (older or younger), he adores his 5

year old brother. He is not

> shy around others. He has an easygoing personality.

>

> He has individual OT 1 hr/wk and goes to " jumpstart program "

(speech therapy group with

> 5 other boys, taught by SLP , OT and one therapy asst.) 2 hrs

day/3 x's week.

> We are vegetarians and both my boys have been on Vegan DHA

supplements, but I just

> ordered Nordic Naturals Omega 3/6/9 liquid (Sorry Fish!). I also

ordered a couple of books

> many of you have talked about.

>

> Thank You for reading and I am sure in the future I will have a ton

of questions! If anyone

> has any suggestions I would love to hear them. You can respond to

the post or personally

> e-mail me.

> Thank you so much,

> Jenna Weil RN, BSN

>