Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 I just got a call from my husband who says he just noticed that our 3.5 year old son has one ear canal that is narrower than the other. Now, when we first noticed his speech was not increasing at the " normal rate " at 20 months... we had him checked by an audiologist who said he checked out fine. My question is... does anyone else's child have narrow ear canals... and/or should I be concerned? Should I make him another appointment with the audiologist to have him rechecked? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 , I have the same suspicions about my daughter's ear canals. One appears narrower, visibly so, she was born with deformational plagiocephaly from early descent in my pelvic bones and lower than normal amniotic fluid--but not low enough to red flag her for being at risk or anything. I just pieced this together retrospectively and my husband who was present at the moment of birth did confirm that my water broke just as the head crowned, in fact the sac came out intact right before and there wasn't that much in it. So her head was deformed slightly but not the cone shape, in fact aside from the flattened back right and left side front and bumped right side front it was pretty round. Anyway that part though still visible to the parents'eye is not as visible anymore, her forehead filled in and her ears though still asymmetrical somewhat both in shape size and orientation as her head was pretty smushed from the back and bumped in the right front and flattened in the front left and right back where the pressure I think was to begin with. The American Journal of Pediatrics has articles with suggests these kids are at higher risk of developmental disorders than their peers, and I assume that includes speech and I know it includes hearing/auditory processing and those disorders define higher risk in these populations with head asymmetry as well. Anyway, yes her left ear and ear canal is visibly smaller still, the audiologist had no opinion, they only deal with the auditory part, the ENT said she was fine has " pristine ear canals " meaning no infections and i could have told her that--she was breast fed until 14 months and never had an ear infection so I already knew that. So their recommendation was not to worry, and that all ears are asymmetrical in some way. So now I know that the size shape of the ears and plagio is was born with all do put her at a higher risk for Auditory Processing Disorder and other learning disabilities, but most of those can't be tested for until the child is at least 6-7 yrs. So there's really no easy answer. My gut feeling is that yes, she is affected somehow by the difference in shape and size of ears including ear canals just as the plagiocephaly may have at least in part caused her apraxia. I fear that APD may be the next hurdle and it may of course be affecting her even now, but definitely not the sole cause of her speech disorder but rather an additional problem we will have to deal with later as accommodations are the only thing that can be done and some auditory training, but no magic cure or therapy per se. Doctors say they don't want to speculate and can't test so we've been left with no answers and it's not like the cause really matters at this point, the treatment is the same and what she hears exactly given that we know she has normal hearing in at least one ear (that's all they were able to tell because she refused to cooperate, but either way they couldn't have told me more, it's just not possible and it's speculative) So anyway, your question most likely can't be answered too easily, maybe if you struck gold and found and ENT who really cared to tease these things out and somehow offer early intervention and not just pay lip service to the idea which I feel a lot of these professionals do. It's really not their fault, but there's just no way to really test for APD sooner and most audiologists aren't even trained to test for it, so it really takes a specially trained one and it's a much older kind of thing, provided the child has enough speech by then to be able to say what s/he is hearing. And that's what really counts, not so much her hearing in general which very often is just fine in APD kids. Sorry I can't give you any easy or encouraging answers. it's been very frustrating for us too, but that's been our journey and we've unfortunately found that many of the professionals we've gone to to diagnose and treat our child are pretty clueless about speech apraxia in children, auditory processing disorder, deformational plagiocephaly from the womb, just about everything she has though many offered to diagnose her with what she doesn't have--autism PDD-NOS- the catch all diagnosis for " we don't know whats' wrong with this kid mom " . But of course doctors who know, and I mean really know autism can tell she's not autistic as can we her parents, but those who don't really know and don't really know much else just take a whack at it anyway and it can be very discouraging. We've been to audiologist, neurologist, SLPs, psychologists, OT's, developmental pediatrician and regular pediatrician and so far the SLPs and OTs have the best handle on it but not all, only the ones who work on a regular basis with apraxic kids. Others were as clueless as the pediatrician who at 2 was telling me she's fine even though she couldn't say mama or anything else when asked to repeat, she barely had 5 words and even those were not always consistent or at will. Anyway, we'll see what others reply and good luck. Let me know what you find out. Elena --mom to Ziana age 3.10 --severely apraxic but otherwise a happy healthy child, and progressing well since appropriate speech therapy, diet/supplements have been implemented Craine <kacraine@...> wrote: I just got a call from my husband who says he just noticed that our 3.5 year old son has one ear canal that is narrower than the other. Now, when we first noticed his speech was not increasing at the " normal rate " at 20 months... we had him checked by an audiologist who said he checked out fine. My question is... does anyone else's child have narrow ear canals... and/or should I be concerned? Should I make him another appointment with the audiologist to have him rechecked? Thanks, ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 My 10 year old daughter has the same issue in one ear..we still have bouts with them getting clogged in fact yesterday I very dangerously pulled out crusty wax and then put some water in both to soften them her ENT wants us to put vitamin E in them to keep them soften but I really am not sure if that is the best as it is very messy maybe once everything is cleared out then put the E in. My son who is a paramedic says they used hydrogen peroxide in his ears in the hospital and it helped him greatly. If you find out something better I'd love to hear it. Roxanne _____ From: [mailto: ] On Behalf Of Craine Sent: Tuesday, June 24, 2008 10:31 AM Subject: [ ] Narrow ear canals? I just got a call from my husband who says he just noticed that our 3.5 year old son has one ear canal that is narrower than the other. Now, when we first noticed his speech was not increasing at the " normal rate " at 20 months... we had him checked by an audiologist who said he checked out fine. My question is... does anyone else's child have narrow ear canals... and/or should I be concerned? Should I make him another appointment with the audiologist to have him rechecked? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 Elena, That's a very interesting theory because I also suspect APD in my son. He understands, but only if you make sure he's paying attention to you and what you are saying. Drives us nuts! Anyway, I did not have the same birthing issues that you did. I was on blood thinners during my pregnancy because I am prone to blood clots. Doctors wanted to ensure that I did not give birth while still on blood thinners, so they scheduled an induction and instructed me to stop taking the blood thinners 24 hours previous. Once I became dialated enough... they burst my water for me. Later I became stuck at 7cm dialation (no progress for 3 hours) and my son did not move from 0 station. So, after 16.5 hours of active back labor (because my son was faced " sunny side up " ), they wheeled me in for a c-section. Not sure if that ... coupled with my husband's family history of speech and learning disroders sealed my son's fate or not. I hope you stay on this message board. This is going to be a long journey and I need to hear from other parents going through the same thing. I just got a call from my husband who says he just noticed that our 3.5 > year old son has one ear canal that is narrower than the other. Now, > when we first noticed his speech was not increasing at the " normal > rate " at 20 months... we had him checked by an audiologist who said he > checked out fine. > > My question is... does anyone else's child have narrow ear canals... > and/or should I be concerned? Should I make him another appointment > with the audiologist to have him rechecked? > > Thanks, > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 We have narrow ear canals in kid#1. They are on dad's side. She has a budding APD thing that TLP and lots of exercises are at least keeping at bay. The bigger issue is watching for viral and bacterial growth. For that we use unrefined, organic coconut oil. We are hoping to avoid tubes but you never know. I just got a call from my > husband who says he just noticed that our 3.5 > > year old son has one ear canal that is narrower than the other. > Now, > > when we first noticed his speech was not increasing at the " normal > > rate " at 20 months... we had him checked by an audiologist who said > he > > checked out fine. > > > > My question is... does anyone else's child have narrow ear > canals... > > and/or should I be concerned? Should I make him another appointment > > with the audiologist to have him rechecked? > > > > Thanks, > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 To the original poster, which ear canal? My oney is on the right one? Anyway, unrefined organic coconut oil swabbed on the ears helps keep things clear. Daughter has this (Oddly son with speech thing does not). ENTs pick this up, not audiologist. It can be congenital, seen in preemeies, or when for whatever reason they did not grow big. Milk is contraindicated in this kid due to risk of infection and other stuff unrelated to the condition but it does help keep ears clear. In the other kid he actually hasthe allergy. > > My 10 year old daughter has the same issue in one ear..we still have bouts > with them getting clogged in fact yesterday I very dangerously pulled out > crusty wax and then put some water in both to soften them her ENT wants us > to put vitamin E in them to keep them soften but I really am not sure if > that is the best as it is very messy maybe once everything is cleared out > then put the E in. My son who is a paramedic says they used hydrogen > peroxide in his ears in the hospital and it helped him greatly. If you find > out something better I'd love to hear it. > > Roxanne > > > > _____ > > From: > [mailto: ] On Behalf Of Craine > Sent: Tuesday, June 24, 2008 10:31 AM > > Subject: [ ] Narrow ear canals? > > > > I just got a call from my husband who says he just noticed that our 3.5 > year old son has one ear canal that is narrower than the other. Now, > when we first noticed his speech was not increasing at the " normal > rate " at 20 months... we had him checked by an audiologist who said he > checked out fine. > > My question is... does anyone else's child have narrow ear canals... > and/or should I be concerned? Should I make him another appointment > with the audiologist to have him rechecked? > > Thanks, > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 Hi Liz, In Ziana's case it's only one ear canal that is slightly narrower, the ear is smaller, it's the side of her head that was smushed prebirth, or so I thought, but having read more about plagiocephaly I now know that the pushing was from the back, which bumped up the right front (sure enough that was a big bump) and flattened out the left misaligning the ears and creating a difference in shape. From the fact that the ears are so different, it means this must have happened for several months before birth, best time for brain development and growth--but that pediatrician was refusing to accept the fact that this asymmetrical shape was NOT from the freaking birth canal, it wasn't the cone shape, it was from the womb, pressure on the skull from pelvic bones. He was just so reassuring that everything will fill in and there will be no aesthetic issues, and he was mostly right about that but I kept asking about the BRAIN, and he kept saying how well protected the brain was and that's why it can fit through the birth canal but it bounces back in all kids after birth--completely ignoring what I kept telling him NOT FROM THE BIRTH CANAL, NOT FROM THE BIRTH CANAL>>> prebirth, prebirth... But so few doctors have heard about deformational plagiocephaly. They don't read their own journals I tell you, much less the avangard stuff. At the time I wanted to believe him and the child seemed normal except for the inability to feed properly until I brought my own milk in by pumping and taking mega lactation enhancing herbs. But after the malformed head shape that should have been my second clue that something was wrong with her sucking, but you know, first time mom, she started gaining weight once I got the milk started so I thought all was well. But I should have typed the skull deformity search into google sooner, perhaps we could have addressed it cranio sacarally somehow in time and caught on about the speech disorder sooner too. Oh well. So now yes, that still another possible cause of her speech disorder possible APD/language processing along with the genetic predisposition due to gluten casein intolerance etc. which also affect the brain and cut off blood supply since the brain sort of barricades itself to avoid the invasion. So many things to explore and all of them unheard of by most of the doctors i consulted at well renowned universities etc. If it's not too common or in their field directly they just don't know. Thank GOD for the Internet! She has never had ear issues of any kind, and that's all ENTs are trained to look for. I hate to simplify their work like this, but when I asked about the ear canal being smaller, I swear she just gave me the speech about us all being different the one I'd heard so many times form the regular pediatrician, and she said there's no way to measure exactly and more importantly no way to tell how it is affecting her hearing/language processing since that's all in the brain. There, another $500 down the drain to hear that she has no fluid in her ears. I know about the coconut, but my daughter is unfortunately intolerant to coconut too, and almonds and walnuts and cashews and peanuts and all the foods she was eating at the time she had the leaky gut , but she may actually outgrow most of these collateral ones. We just tested again today and we'll see if I can do coconut again. I've been cooking with that for a long time and use it on her butt, my face, hands that and organic olive extra virgin. I've stopped using any lotions and creams a long time ago. So I'd love to go back to the coconut for her too. I've started to reapply it on her scalp to see how it helps with the psoriasis, hoping she won't react to it as much. We'll see what the lab tests say, though they're not 100% conclusive but last time except for the gluten it sure gave me back a list of exactly what I'd been feeding her and so I know those intolerances were real. Take care. Say, what have you heard about Hyperbaric Oxygen therapy? There's a mom at speech therapy who swears by it, she even bought a machine for home treatment, $20K!!!! but says it actually comes out cheaper and less time consuming than going for treatment and that I believe. The biomedic/homeopathic pediatrician has mentioned it and I think after the detoxification is under control we can begin to look at other treatments potentially, but financially....I don't know, i think we may have to really think about this one if insurance doesn't help us cover it. it's just too much to take on on one salary and a mortgage in Silicon Valley no less. ilizzy03 <lizlaw@...> wrote: We have narrow ear canals in kid#1. They are on dad's side. She has a budding APD thing that TLP and lots of exercises are at least keeping at bay. The bigger issue is watching for viral and bacterial growth. For that we use unrefined, organic coconut oil. We are hoping to avoid tubes but you never know. I just got a call from my > husband who says he just noticed that our 3.5 > > year old son has one ear canal that is narrower than the other. > Now, > > when we first noticed his speech was not increasing at the " normal > > rate " at 20 months... we had him checked by an audiologist who said > he > > checked out fine. > > > > My question is... does anyone else's child have narrow ear > canals... > > and/or should I be concerned? Should I make him another appointment > > with the audiologist to have him rechecked? > > > > Thanks, > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 Sounds familiar. Son has something similar on the left side which may explain his swift comeback. Many specialists scratched their heads even though the ped was right from the start (this one she caught but celiac and gut stuff she turned a blind eye to). His is more front left. That right side, that ear, so lose to language center, your poor girl had a rough start. Our deal was likely in utero and some other stuff. Oddly, daughter, who had the delivery similar to 's first bioy, had few issues. Both kids are miracles. In researching family history it seems my own start was not so simple. Blood transfusion at birth due to severe jaundice. No wonder I had trouble with milk. Celiac from the start I bet. HBOT I have heard great things about. BUT, I have heard words of caution for the immune compromised which we are. I still intend to read more but for now I am enjoying the bliss. Another disturbing trend is people sharing it and not doing supervised dives. Like everything, research and common sense is the rule. Watch that ear. Our babysitter did not get tubes and a growh formed requiring multiple surgeries. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2008 Report Share Posted June 28, 2008 I had a very healthy pregnancy and relatively smooth birth and I praise the Bradley diet and exercises for that because at 44 most of the other moms I know had severe issues and most delivered at least 4 weeks sooner with C-sections and a lot of NIU and problems for the child. We were on time to the minute of her conception since I know that too --albeit a 36 h of labor, but once the doula got me to do the repositioning exercises (that's another reason I think she was somehow stuck in my pelvic bones in a weird position with her head) the contractions stabilized and the birth was pretty normal after that and she came out and nursed at my breast within minutes, we got that on tape. So ti never occurred to me she had oral motor issues, but honestly, any lactation consultant knows that if the child is not gaining weight properly in spite of nursing for a long time, oral motor--latching difficulties are very likely the cause and the baby is not stimulating the milk properly. Without the doula I bet a C-section would have come our way 20-30 h later. Anyway, I too feel that there's no way that pre birth pressure on her brain, enough to change the shape and size of her ears and flatten out her skull in the back and on the left and bump it up on the right front (a typical plagiocephaly case) would NOT have affected her brain somehow. It may not be the sole reason she is apraxic, but definitely contributed to it or sensitized the area that the gluten peptides then attacked and the mercury amalgams and what ever else toxic she was exposed to, because unfortunately there is a lot of toxic stuff floating around in our bodies and a 44 year old accumulates much more than the 20 year old mom. And also the gluten peptides cross the placenta and into the breast milk, so she could have been affected by those even before birth (BTW--did you know that galactosemia, that very severe intolerance to the milk protein galactose--they test for it at birth because it's pretty deadly, causes the child to waste away, affects organs like kidneys and liver, severe mental retardation with speech apraxia YES, speech apraxia from a milk protein. Just google apraxia and milk intolerance and you'll get these links which explain it. Now why can't these docs use a little common sense? If they know that the galactose affects the intolerant child even as a fetus if the mom consumes dairy and they recommends that the moms do not eat dairy if pregnant again after having a first child with galactosemia; and we know from the kids who are lactose intolerant that the moms can't eat dairy while breastfeeding because it affects the child--well how much more proof do they need to deduce that maybe all these gluten/casein + other peptides affect intolerant children prior to birth even, hence all the developmental problems that so many of them have, many of which are considered genetic, ---but I fell that's an oversight because the interaction genes environment is what brings these things on or avoids them--that epigenetics field I was mentioning-- it's not static, though most genes are activated before birth, but some continue to be turned off and /or activated all our lives. That's how we end up with all the chronic degenerative illnesses that alopathic medicine is so clueless about. Anyway, yes, all kids are miracles it seems if you think about it, even more so those that have a rough start. Blood transfusion at birth?!! Yikes!!! That is rough to be getting all that foreign stuff at an early age like that. Your immune system must have gone into high alert for sure. I'm waiting on the HBOT too. I've read some encouraging things, it makes sense that these areas of the brain that are damaged are maybe not getting enough oxygen, this also happens in Alzheinmer's, in many neurological afflictions so it does sound like something potentially beneficial, but I'm sure there are complexities that may not be immediately apparent as you said the immuno compromised. I know this mom who swears by it, but yes, the idea of unsupervised sessions is scary and I would not just do it like that. This mom paid $20K for her machine and I assume she would share to recup some of that high cost, but it's not the way I would do it and I'll wait for that to see if and when it fits in-- and only do it under supervision, I've learned that, like says, --go to the best only.. Our biomed doc. did suggest it but she said detox is the first step and we can think about it until then. I know my husband would take a lot of convincing so I'll treat it as a research project to see if I can convince him in the end. Probably not, but them I'm not fully convinced either, I'd need to speak with a doctor who does it and assures me that nothing can go wrong, shows me some research, fully discusses the pros and cons--you know like any of the treatments we've ever done. So far she is progressing very nicely, maybe if we feel we've hit a wall later... -Elena ilizzy03 <lizlaw@...> wrote: Sounds familiar. Son has something similar on the left side which may explain his swift comeback. Many specialists scratched their heads even though the ped was right from the start (this one she caught but celiac and gut stuff she turned a blind eye to). His is more front left. That right side, that ear, so lose to language center, your poor girl had a rough start. Our deal was likely in utero and some other stuff. Oddly, daughter, who had the delivery similar to 's first bioy, had few issues. Both kids are miracles. In researching family history it seems my own start was not so simple. Blood transfusion at birth due to severe jaundice. No wonder I had trouble with milk. Celiac from the start I bet. HBOT I have heard great things about. BUT, I have heard words of caution for the immune compromised which we are. I still intend to read more but for now I am enjoying the bliss. Another disturbing trend is people sharing it and not doing supervised dives. Like everything, research and common sense is the rule. Watch that ear. Our babysitter did not get tubes and a growh formed requiring multiple surgeries. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
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