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I am bumping my own message in case someone new has any answers for

me. Thank you.

>

> I have been hovering and reading a lot from this group. I have 28

> month old son. We have been doing speech thearpy for 3 months

now.

> I just started him on 1 ProEFA a day on the 10th of October and

have

> seen only changes in behavior and they have not been good. A lot

of

> screaming but it is getting better.

>

> I have been reading that my son should see a Pediatric Neruologist

or

> a Developmental Pediatrician. What is the difference? I was

looking

> on my health ins. site to see who is in-network and the only one I

> can find for right now is the Neruo. We have to switch ins. at the

> beginning of the year and under the new plan I can find each kind

of

> doctor in-network. So my 2nd question is do I go to the Neruo now

or

> do I wait? 3rd do I need to see both kinds of Drs?

>

> I am not sure if my son is pure apraxic or not. He doesn't really

> seem to have any other issues besides speech and a little bit of in-

> toeing (which is going away with the help of shoes). Before speech

> therapy he would only use vowels for all words. He did have dada

but

> has since lost it. I think he may have low tone in his mouth and

> tounge but that seems to be getting better also. What is low

tone?

>

> My new SLP is far better then the last one that we had. The first

> had him sitting in a structured setting where he didn't really

> improve. Now we are at home and for 1 hour each week play and do

> speech therapy. He has an m now where he used to just call me ah

ah,

> now I am m a e. They don't quite string together yet. Still

working

> on the 2nd m.

>

> Thanks for any advice you can give. Everyday is something

different

> for me and my boys.

>

> Terry

>

> Mom to

> Logan 5

> Gavin 2.4 (apraxia and who knows)

>

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Hi Terry:

Below there are many links for you to read through. When my son was

2 years old, I didn't have an SLP to diagnose his verbal apraxia. I

did get a referral to a Child Neurologist and called to make sure she

was familiar with apraxia--didn't want to waste my time. The Child

Neurologist diagnosed him, and that helped to get the one-on-one

speech therapy and an SLP familiar with treating apraxia through EI. Some

people do use Dev. Pediatricians-my son doesn't have one. Hopefully you will

hear from those that do have Dev. Peds. Your SLP can diagnose verbal apraxia.

http://www.kidspeech.com/index.php?page=56

Apraxia of speech is usually treatable with the appropriate

techniques. It is not just a simple articulation disorder nor

a " phonological " disorder. Traditional therapy techniques are usually

unsuccessful. Speech pathologists should be knowledgeable about oral-

verbal motor skills, and adult/acquired apraxia to assist the child

best. They should be well-versed in " cueing " and successive

approximations. The Kaufman Speech Praxis Treatment Approach for

developmental verbal apraxia is a highly effective program with young

children. Children must be seen one-on-one, at least in the early

stages of treatment, even by age 2. The Kaufman Speech Praxis Test

for Children and The Kaufman Speech Praxis Treatment Kits are helpful

tools in the evaluation of apraxia, determining treatment goals, and

providing effective therapy.

http://www.kidspeech.com/index.php?page=41

Info on: Kaufman Speech Praxis Test

Last year when my son was 4 years old--he was age appropriate for

expressive speech, but the school SLP evaluated him using the Kaufman

Speech Praxis test and it was really informative. It did show where

the break down in his speech errors are and it really helped with

writing goals for this school year. You can ask your SLP to evaluate

your child for apraxia.

http://www.nodcc.org/files/Apraxia%20-%20The%20Basics%20-%20by%

20Barbara%20C.%20%20MA,%20CCC-SLP.pdf (too long-copy and paste into

address line) Very informative

APRAXIA THE BASICS

BARBARA C. MOORE, M.A., CCC-SLP

NODCC

JULY 2006

(from link)

FORMAL TESTING

& #56256; & #56473;Kaufman Speech Praxis Test for Children

& #56256; & #56473;The Verbal Motor Production Assessment for Children

& #56256; & #56473;The Apraxia Profile

& #56256; & #56473;The Screening Test for Developmental Apraxia of Speech

& #56256; & #56473;Goldman Fristoe 2 Test of Articulation

& #56256; & #56473;Clinical Assessment of Articulation and Phonology

& #56256; & #56473;Standard receptive/expressive language measures

http://aap.org/family/WhatisChildNeurologist.pdf

Answers this question: What is a Child Neurologist?

http://www.aap.org/family/WhatisDevBehPeds.pdf

Answers this question: What is a Developmental Pediatrician?

Evaluation, Assessment and Diagnosis of Childhood Apraxia of Speech

The professional who is most qualified to investigate, assess, and

provide diagnosis for children's speech disorders is the Speech-

language Pathologist. It may be that after speech/language

evaluation, the clinician has reason to refer a child to other health-

related professionals in the fields of occupational therapy,

behavioral and developmental pediatrics, or pediatric neurology.

However, a speech-language pathologist should diagnose the

communication (speech) disorder. Reportedly, some service settings

discourage SLPs from providing diagnoses; though note that per the

American Speech-Language Hearing Association, the SLP is qualified to

diagnose CAS.

N-D specialists (neurologists developmental pediatricians) should

work collaboratively with SLPs (speech language pathologists) in

determining correct diagnosis and treatment plan

http://www.nidcd.nih.gov/health/voice/apraxia.htm

Apraxia of Speech

On this page:

What is apraxia of speech?

What are the types and causes of apraxia?

What are the symptoms?

How is it diagnosed?

How is it treated?

What research is being done?

Where can I find more information?

http://www.shop-in-service.com/apraxia.htm#N

This page is full of good information about apraxia

Re: 1 ProEFA, has the behavior gotten better since you posted your

message the first time? Has it helped with producing more speech

sounds?

/links

Link to the link section where you kind more info about apraxia by

subject matter.

Sorry this is so long--hope it helps,

Tina

> >

> > I have been hovering and reading a lot from this group. I have

28

> > month old son. We have been doing speech thearpy for 3 months

> now.

> > I just started him on 1 ProEFA a day on the 10th of October and

> have

> > seen only changes in behavior and they have not been good. A lot

> of

> > screaming but it is getting better.

> >

> > I have been reading that my son should see a Pediatric

Neruologist

> or

> > a Developmental Pediatrician. What is the difference? I was

> looking

> > on my health ins. site to see who is in-network and the only one

I

> > can find for right now is the Neruo. We have to switch ins. at

the

> > beginning of the year and under the new plan I can find each kind

> of

> > doctor in-network. So my 2nd question is do I go to the Neruo

now

> or

> > do I wait? 3rd do I need to see both kinds of Drs?

> >

> > I am not sure if my son is pure apraxic or not. He doesn't

really

> > seem to have any other issues besides speech and a little bit of

in-

> > toeing (which is going away with the help of shoes). Before

speech

> > therapy he would only use vowels for all words. He did have dada

> but

> > has since lost it. I think he may have low tone in his mouth and

> > tounge but that seems to be getting better also. What is low

> tone?

> >

> > My new SLP is far better then the last one that we had. The

first

> > had him sitting in a structured setting where he didn't really

> > improve. Now we are at home and for 1 hour each week play and do

> > speech therapy. He has an m now where he used to just call me ah

> ah,

> > now I am m a e. They don't quite string together yet. Still

> working

> > on the 2nd m.

> >

> > Thanks for any advice you can give. Everyday is something

> different

> > for me and my boys.

> >

> > Terry

> >

> > Mom to

> > Logan 5

> > Gavin 2.4 (apraxia and who knows)

> >

>

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Hi Terry!

I just wanted to let you know it took a little while for us to see

the impact of the PRO EFA on our son too, I am guesstimating a little

over a month. He was also more emotional for the first week or so.

Ped neurologist vs Developmental Ped - I am probably not the best

person to answer this, but it is my understanding a Developmental

Pediatrician would be there for your child's wellness visits, but

also has an understanding and/or expertise in certain areas of

development. I would think switching your child's normal

pediatrician to a developmental pediatrician could be a good idea as

they will be able to guide you and stay with your child as they get

older. Ped Neuro - I think should be contacted if there are concerns

about autism, etc.

In our case, my son has apraxia and sensory integration dysfunction

(sensory seeking). So, we took him to see a Ped Neuro, but basically

they ruled out any autistic characteristics and said, see you in 6

months.

I hope more people answer your question, I just wanted to respond

with what I know because I know when you post a question, how much

you hope to get feedback!

Good luck!

Jodi

> >

> > I have been hovering and reading a lot from this group. I have

28

> > month old son. We have been doing speech thearpy for 3 months

> now.

> > I just started him on 1 ProEFA a day on the 10th of October and

> have

> > seen only changes in behavior and they have not been good. A lot

> of

> > screaming but it is getting better.

> >

> > I have been reading that my son should see a Pediatric

Neruologist

> or

> > a Developmental Pediatrician. What is the difference? I was

> looking

> > on my health ins. site to see who is in-network and the only one

I

> > can find for right now is the Neruo. We have to switch ins. at

the

> > beginning of the year and under the new plan I can find each kind

> of

> > doctor in-network. So my 2nd question is do I go to the Neruo

now

> or

> > do I wait? 3rd do I need to see both kinds of Drs?

> >

> > I am not sure if my son is pure apraxic or not. He doesn't

really

> > seem to have any other issues besides speech and a little bit of

in-

> > toeing (which is going away with the help of shoes). Before

speech

> > therapy he would only use vowels for all words. He did have dada

> but

> > has since lost it. I think he may have low tone in his mouth and

> > tounge but that seems to be getting better also. What is low

> tone?

> >

> > My new SLP is far better then the last one that we had. The

first

> > had him sitting in a structured setting where he didn't really

> > improve. Now we are at home and for 1 hour each week play and do

> > speech therapy. He has an m now where he used to just call me ah

> ah,

> > now I am m a e. They don't quite string together yet. Still

> working

> > on the 2nd m.

> >

> > Thanks for any advice you can give. Everyday is something

> different

> > for me and my boys.

> >

> > Terry

> >

> > Mom to

> > Logan 5

> > Gavin 2.4 (apraxia and who knows)

> >

>

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Hi Terry!

I just wanted to let you know it took a little while for us to see

the impact of the PRO EFA on our son too, I am guesstimating a little

over a month. He was also more emotional for the first week or so.

Ped neurologist vs Developmental Ped - I am probably not the best

person to answer this, but it is my understanding a Developmental

Pediatrician would be there for your child's wellness visits, but

also has an understanding and/or expertise in certain areas of

development. I would think switching your child's normal

pediatrician to a developmental pediatrician could be a good idea as

they will be able to guide you and stay with your child as they get

older. Ped Neuro - I think should be contacted if there are concerns

about autism, etc.

In our case, my son has apraxia and sensory integration dysfunction

(sensory seeking). So, we took him to see a Ped Neuro, but basically

they ruled out any autistic characteristics and said, see you in 6

months.

I hope more people answer your question, I just wanted to respond

with what I know because I know when you post a question, how much

you hope to get feedback!

Good luck!

Jodi

> >

> > I have been hovering and reading a lot from this group. I have

28

> > month old son. We have been doing speech thearpy for 3 months

> now.

> > I just started him on 1 ProEFA a day on the 10th of October and

> have

> > seen only changes in behavior and they have not been good. A lot

> of

> > screaming but it is getting better.

> >

> > I have been reading that my son should see a Pediatric

Neruologist

> or

> > a Developmental Pediatrician. What is the difference? I was

> looking

> > on my health ins. site to see who is in-network and the only one

I

> > can find for right now is the Neruo. We have to switch ins. at

the

> > beginning of the year and under the new plan I can find each kind

> of

> > doctor in-network. So my 2nd question is do I go to the Neruo

now

> or

> > do I wait? 3rd do I need to see both kinds of Drs?

> >

> > I am not sure if my son is pure apraxic or not. He doesn't

really

> > seem to have any other issues besides speech and a little bit of

in-

> > toeing (which is going away with the help of shoes). Before

speech

> > therapy he would only use vowels for all words. He did have dada

> but

> > has since lost it. I think he may have low tone in his mouth and

> > tounge but that seems to be getting better also. What is low

> tone?

> >

> > My new SLP is far better then the last one that we had. The

first

> > had him sitting in a structured setting where he didn't really

> > improve. Now we are at home and for 1 hour each week play and do

> > speech therapy. He has an m now where he used to just call me ah

> ah,

> > now I am m a e. They don't quite string together yet. Still

> working

> > on the 2nd m.

> >

> > Thanks for any advice you can give. Everyday is something

> different

> > for me and my boys.

> >

> > Terry

> >

> > Mom to

> > Logan 5

> > Gavin 2.4 (apraxia and who knows)

> >

>

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I might be wrong here, but I think the developmental pediatrician is who you

should see for problems--such as autism, pdd-nos, etc.

I would say the pedi. neurologist is if you suspect some sort of brain

injury or neurological problem.

On Fri, Oct 24, 2008 at 2:43 PM, jodiphillips111

<jodiphillips111@...>wrote:

> Hi Terry!

> I just wanted to let you know it took a little while for us to see

> the impact of the PRO EFA on our son too, I am guesstimating a little

> over a month. He was also more emotional for the first week or so.

>

> Ped neurologist vs Developmental Ped - I am probably not the best

> person to answer this, but it is my understanding a Developmental

> Pediatrician would be there for your child's wellness visits, but

> also has an understanding and/or expertise in certain areas of

> development. I would think switching your child's normal

> pediatrician to a developmental pediatrician could be a good idea as

> they will be able to guide you and stay with your child as they get

> older. Ped Neuro - I think should be contacted if there are concerns

> about autism, etc.

>

> In our case, my son has apraxia and sensory integration dysfunction

> (sensory seeking). So, we took him to see a Ped Neuro, but basically

> they ruled out any autistic characteristics and said, see you in 6

> months.

>

> I hope more people answer your question, I just wanted to respond

> with what I know because I know when you post a question, how much

> you hope to get feedback!

>

> Good luck!

> Jodi

>

>

> > >

> > > I have been hovering and reading a lot from this group. I have

> 28

> > > month old son. We have been doing speech thearpy for 3 months

> > now.

> > > I just started him on 1 ProEFA a day on the 10th of October and

> > have

> > > seen only changes in behavior and they have not been good. A lot

> > of

> > > screaming but it is getting better.

> > >

> > > I have been reading that my son should see a Pediatric

> Neruologist

> > or

> > > a Developmental Pediatrician. What is the difference? I was

> > looking

> > > on my health ins. site to see who is in-network and the only one

> I

> > > can find for right now is the Neruo. We have to switch ins. at

> the

> > > beginning of the year and under the new plan I can find each kind

> > of

> > > doctor in-network. So my 2nd question is do I go to the Neruo

> now

> > or

> > > do I wait? 3rd do I need to see both kinds of Drs?

> > >

> > > I am not sure if my son is pure apraxic or not. He doesn't

> really

> > > seem to have any other issues besides speech and a little bit of

> in-

> > > toeing (which is going away with the help of shoes). Before

> speech

> > > therapy he would only use vowels for all words. He did have dada

> > but

> > > has since lost it. I think he may have low tone in his mouth and

> > > tounge but that seems to be getting better also. What is low

> > tone?

> > >

> > > My new SLP is far better then the last one that we had. The

> first

> > > had him sitting in a structured setting where he didn't really

> > > improve. Now we are at home and for 1 hour each week play and do

> > > speech therapy. He has an m now where he used to just call me ah

> > ah,

> > > now I am m a e. They don't quite string together yet. Still

> > working

> > > on the 2nd m.

> > >

> > > Thanks for any advice you can give. Everyday is something

> > different

> > > for me and my boys.

> > >

> > > Terry

> > >

> > > Mom to

> > > Logan 5

> > > Gavin 2.4 (apraxia and who knows)

> > >

> >

>

>

>

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-I wondered the same thing a few months ago and asked other moms

opinions on one of my local special kids groups. Here is the reply I

got.

A pediatric neurologist is a specialist in the nervous system (and

disorders of the nervous system) in children.

A developmental pediatrician is a physician who addresses special care

issues for children with disabilities.

I've always thought it would be nice to have a dev ped for helping to

oversee and manage all of my daughter's many needs-- many of which

require specialists, including a pediatric neurologist. For now, we

have a " regular " pediatrician who seems to be ok in that role. But I

sometimes wonder if the dev ped would have a different approach.

A lot of Dev. Ped don't take insurance- which may be why they could not

find them in a plan. Some of them do though. Just ask around. Our

neurologist diagnosed my daughters Apraxia and monitors her seizure

disorder and hydrocephalus-- all things neurological! Dev Ped is more

about the " big " picture --like a typical Pediatrician.

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The same question was asked on another group. This is the response

given- it sums it up pretty good!

A pediatric neurologist is a specialist in the nervous system (and

disorders of the nervous system) in children.

A developmental pediatrician is a physician who addresses special care

issues for children with disabilities.

I've always thought it would be nice to have a dev ped for helping to

oversee and manage all of my daughter's many needs-- many of which

require specialists, including a pediatric neurologist. For now, we

have a " regular " pediatrician who seems to be ok in that role. But I

sometimes wonder if the dev ped would have a different approach.

The way I interpret it- the Dev. Ped is more about the big picture- like

a typical Ped. Neurologists manage my daughters Apraxia, seizure

disorder, Hydrocephalus --neurological stuff! They also order the MRI's,

EEG'S and testing whenever necessary.

A lot of Dev Ped don't take insurance- which is why you don't find too

many on an Insurance Plan. Some do- but the good ones that everyone

likes don't. Ped Neurologists are usually on a plan and its easier to

start there and go to Dev. Ped if it seems needed later.

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We've only had good Pediatric Neurologists experience. It was one that

diagnosed my daughters Apraxia. Sorry that yours was not so

knowledgeable-but its not right to group them all based on the

experience you've had. I guess if Apraxia were the only issue- someone

with less credentials might do for supplements- like a dietitian or

nutritionist- but we need a medical doctor on our team to prescribe

seizure medication. Which is why they could not be bothered dealing

with vitamin supplements.

Our Ped Neuro also found something very scary on my daughters last MRI

which necessitated another visit to the Pediatric Neurosurgeon. I'm

pretty sure HE is up to date on what is going on in his field!! He's

done all four of her surgeries and is now at just one of the top

hospitals in NYC.

The only reason we've ever changed neurologists is when they stop

taking our insurance and the best one we ever had moved to Boston. If

anyone in/near Boston hears of Dr. Wolf- very, very highly

recommended. He is the one that diagnosed the true Apraxia four years

ago. It was just after we started seeing him that he moved his

practice to Boston. He is wonderful with the kids and very, very

surely knows his stuff!! I don't think he'd help with vitamin

supplements either.

>

> Jenna, your experience with the neuro ped was actually better than

ours believe it or not !!!! I know, hard to believe, but that's how it

is, they know nothing, NOTHING about speech in children.  

>

>

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Maureen,

Hi, If you read my post correctly, I only bad mouthed the pediatric neurologist

I went to!

That is why I would like to change to a PPO, so I can choose the one to see. The

one we

visited doesn't believe in apraxia (the type we see here with our kids), so he

wouldn't

confirm the diagnosis of " apraxia " . I fully believe in neurologists (and

definitely Neuro-

surgeons!)and from reading here many of you had wonderful experiences with them

with

your apraxic kids. I know we will have to follow up with one in 6 months. I also

asked him

about a 24 hour EEG and he blew me off. HE is the one who said my son has a

brain

malformation (most likely microscopic), so how can you deny the possibility the

malformation may cause " quiet " seizure activity or seizures in his sleep? The

only way to

rule it out would be to do a 24 hr EEG. I wasn't expecting him to help me with

vitamin

supplements, but I thought it wouldn't hurt to ask about the fish oils and his

medical

opinion of SPEAK (since a MD is the one who helped formulate it). Unfortunately

my son

just doesn't have apraxia either. What age was your daughter when you first did

an MRI?

Was she under general anesthesia? Maybe I should push for that too (since he did

recommend one, but when he was older). If anyone can recommend a great

neurologist in

Southern California I would love to get their info!!

Jenna RN,BSN(mom of Larsyn 2.5yo with severe apraxia, hypotonia, SPD, dysmorphic

facial

features and global delays)

Past life as a Trauma/Surgical/NEURO ICU nurse for Los Angeles County, now a

stay-at-

home mom.

- In , " Maureen " <mosense@...> wrote:

>

> We've only had good Pediatric Neurologists experience. It was one that

> diagnosed my daughters Apraxia. Sorry that yours was not so

> knowledgeable-but its not right to group them all based on the

> experience you've had. I guess if Apraxia were the only issue- someone

> with less credentials might do for supplements- like a dietitian or

> nutritionist- but we need a medical doctor on our team to prescribe

> seizure medication. Which is why they could not be bothered dealing

> with vitamin supplements.

>

> Our Ped Neuro also found something very scary on my daughters last MRI

> which necessitated another visit to the Pediatric Neurosurgeon. I'm

> pretty sure HE is up to date on what is going on in his field!! He's

> done all four of her surgeries and is now at just one of the top

> hospitals in NYC.

>

> The only reason we've ever changed neurologists is when they stop

> taking our insurance and the best one we ever had moved to Boston. If

> anyone in/near Boston hears of Dr. Wolf- very, very highly

> recommended. He is the one that diagnosed the true Apraxia four years

> ago. It was just after we started seeing him that he moved his

> practice to Boston. He is wonderful with the kids and very, very

> surely knows his stuff!! I don't think he'd help with vitamin

> supplements either.

>

>

> >

> > Jenna, your experience with the neuro ped was actually better than

> ours believe it or not !!!! I know, hard to believe, but that's how it

> is, they know nothing, NOTHING about speech in children.  

> >

> >

>

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Thank you to all of you!! So much information to process.

We have an appointment in April of 2009 for a Ped Neuro that is 3 hours

away. That was the soonest we could get in. If anyone has seen Dr.

Carl Stafstrom of the department of neurology in Madison let me know

what to expect. Should I stop the fish oil before we go to the appt.?

I was reading the posts by Penny and her son Brady and wondering if I

should. I don't know if I can handle going back to screams all the

time instead of just part of the time.

There is a local ped neuro but as soon as I said his name my SLP gave

me the look of disappointment and said I wouldn't go to him if it were

my child. Then I called my sons case worker and she said that other

parents have said he has a bad bedside manner but, knows what he is

talking about. So I will drive to Madison and not risk the chance of

being an angry mom when I leave the Dr. office. Although that may

still happen, I just like to hope not.

Also what questions should I ask? I have so much information and

questions in my head that I don't even know where to start. And the

bonus is that I have 6 months to think about it everyday. Yeah!!

We are looking in to a Devlopmental Ped, but currently they are all out-

of-network for our ins. plan. But we switch plans on Jan 1st and under

the new plan there are 2 that are covered in our area. So who knows?

I might look into making an appt with one of them. The new ins. co.

lists them under Pediatric Behavioral Development; hope this is the

same thing. Their names are Dr. Cupoli and Dr. Keck, if

anyone has dealt with them any information is great!

Jenna, thanks for telling me your experience. I am so sorry to hear

that you had to go through a Dr. not listening to your needs and

wants. That is starting to be a normal thing anymore and should be

stopped. I am glad that you found a Dr. that did just the opposite of

the Ped Neuro.

Tina, I did try to call and see if Dr. Stafstrom had any CAS experience

and the receptionist told me that I need to make sure I am going to see

the right Dr.. That maybe I should be looking into the Waisman Center

in Madison. I am not sure on what they do there but, it looked like

mostly developmental delay stuff. She said she was in no way telling

me what to do but that to rule out a developmental delay that is where

I should go. I basically felt like she was telling me I was wasting

there time and to start at the Center and then maybe end up at the

neuro office. But she wasn't giving me medical advice. In the end I

still have an appt. in April and I am going to ask my Ped. to look into

the Dr.. As far as my SLP diagnosing apraxia, she all ready has. We

are just looking for some back up, when my son turns 3 in June, EI will

no longer cover one-on-one therapy and I want to be able to keep it and

have it covered under insurance. As they have all ready denied

coverage and we are appealing, the 1st SLP didn't do her job right. As

my current SLP says " he has apraxia up the wazoo " and will need more

than what they will give him at the School.

Thank you for all the links. I haven't gone through them all but they

are great, so far.

Also Gavins's behavior was slightly better this weekend. But speech

therapy on Thursday was horrible once he decided not to participate in

the talking and playing with Play-doh at the same time. He is very

smart and knows when we are trying to do speech therapy on him. He

will even do this throughout the week when I try to get him to say

something properly.

I did notice this weekend though that while playing by himself he was

talking more during the play then he normally would. My husband likes

to play the devils advocate and questions if it is the fish oil, but I

believe that it is helping and hopefully the behavior will level out

soon. He only screams because he is not being understood or big

brother takes his toy away. He did start saying No, No, No to big

brother this weekend and seems to be finding a little voice.

Sorry this is so long.

Terry

Mom to

Logan 5 (just your average little guy, who knows how to push mom's

buttons)

Gavin 2.4 (apraxia and who knows)

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Just to make this clear- I was not bad mouthing Jenna's experience at

all- but one of the responses she got that bad mouthed all Ped Neuro's

in one poor group.

My daughter has Hyrdrocepalus so her MRI's and numerous CT scans were

done with that diagnosis in mind and monitoring her there.She never

had one specifically related to her speech delays. Can't help plead

that case. They were all done with Chloral Hydrate as a baby. No

mention of GA until last April when it was a 3hr MRI. I think she

developed a bit of a resistance to the Chloral Hydrate- it would take

her much longer to go out as she got older. All I ended up with was a

very, floppy toddler who still had to be put through the testing no

matter her condition.

- In , " Jenna " <imcaligal@...> wrote:

>

> Maureen,

> Hi, If you read my post correctly, I only bad mouthed the pediatric

neurologist I went to!

>

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Thanks Maureen! I have enjoyed exchanging private e-mails with you :o)

-jenna (mom of Larsyn 2.5 yrs and Chance 5 yrs.)

> >

> > Maureen,

> > Hi, If you read my post correctly, I only bad mouthed the pediatric

> neurologist I went to!

> >

>

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