Guest guest Posted October 1, 2008 Report Share Posted October 1, 2008 I believe my daughter is the oldest person participating in the Speak Supplement Focus Group at the age of 24. We have had some very amazing results with this supplement in the last 9 days but we also have some concerns as well. At the age of 17 I gave Mel one Pro EPA to start with and saw some results but with everything being so crazy with the lawsuit against the school district I stopped them. I was so focused on just trying to keep Mel home and safe thru the court case that everything else went on hold. We did win the lawsuit but there was so much trauma associated with those years that we were just focusing on Mel surviving at that point. We have not had on supplements for a very long time as we were just trying to focus on other issues that Mel was having. Mel suffered 10 grand mal seizures about 2 years ago and we brought her home from the hospital basically to pass away. When they discharged Mel from the hospital she could not even walk. All motor planning skills were lost. I truly thought this was the end for Mel. Mel bounced back within 2 month and regained everything that she had lost from her seizures. Her doctors have never seen anything like it. They are still trying to figure out how Mel survived. About a month ago I decided it was now time to try the fish oil to see if we could help Mel with her speech. I finally felt we were at a place in Mel's life that everything was settled down enough that we could pursue more speech. I contacted for advice on the amount of fish oil I should give to Mel. This is when I was told about the Speak supplement. I was so excited to have Mel try it as I felt this is the right time to focus on supplements. We immediately saw improvements with Mel's speech and see improvements each day. is using new words and phrases each day and acts like she has been using them forever. never wanted to practice her word cards it was always a constant struggle with her to the point I just put all cards away. The second day of Speak she pulled out all of her word cards on her own as she watched me put them away and got them out of their boxes. She handed them to me and we started to practice. She now has them in stacks all over the house and picks them up to practice with anyone thru out the day. I keep a notebook and anyone that comes into our house for a visit will write in the changes they have seen as they have know Mel before and now after the supplement. We are also seeing better motor planning and more attempts to help with things around the house. I am one to talk to Mel on a constant basis now Mel is returning the favor as she talks from the time she gets up until she goes to bed. She will say all words that she knows over and over as they are now becoming clearer and practicing new ones as well. I do have some concerns though and have spoken with one of Mel's doctors already this morning. We have noticed since Mel has been on the Speak she is experiencing diarrhea, headaches, stomach pains, nervous motoring, and we believed she had another seizure while she was sleeping because when she woke up she had a bruise over her left eye. Mel's headaches are to the point that they get so severe that she gets tears in her eyes and is now holding her head and telling me about the pain. Mel's doctor said he knows the fish oil would not harm Mel but is concerned with the high level of Vitamin E and believes that there really needs to be a modest approach when taking the Vitamin E. We have agreed that Mel needs to continue on fish oil but not the high level of Vitamin E. I am going to make some changes that Mel's doctor and I agreed upon and see what happens. I will give my new approach the same amount of time that I gave Speak and that is 9 days and then I will post my results. While we are enjoying the new Mel with all of her new speech we want to make sure she stays healthy. I just have too many concerns at this time to continue with the Speak Supplement. Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2008 Report Share Posted October 1, 2008 To Robin and to Lori and to and to Yvette and to me hugs to all our children no matter what the reason for the regression and/or seizures I pray they are all back 100% to their smiley selves soon. ( ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2008 Report Share Posted October 1, 2008 What is the website for Speak, so I can obtain more info. I'd like to try it with my son and tell our DAN about it. -------------- Original message -------------- From: " Robin C. Ketchem " <rcketchem@...> I believe my daughter is the oldest person participating in the Speak Supplement Focus Group at the age of 24. We have had some very amazing results with this supplement in the last 9 days but we also have some concerns as well. At the age of 17 I gave Mel one Pro EPA to start with and saw some results but with everything being so crazy with the lawsuit against the school district I stopped them. I was so focused on just trying to keep Mel home and safe thru the court case that everything else went on hold. We did win the lawsuit but there was so much trauma associated with those years that we were just focusing on Mel surviving at that point. We have not had on supplements for a very long time as we were just trying to focus on other issues that Mel was having. Mel suffered 10 grand mal seizures about 2 years ago and we brought her home from the hospital basically to pass away. When they discharged Mel from the hospital she could not even walk. All motor planning skills were lost. I truly thought this was the end for Mel. Mel bounced back within 2 month and regained everything that she had lost from her seizures. Her doctors have never seen anything like it. They are still trying to figure out how Mel survived. About a month ago I decided it was now time to try the fish oil to see if we could help Mel with her speech. I finally felt we were at a place in Mel's life that everything was settled down enough that we could pursue more speech. I contacted for advice on the amount of fish oil I should give to Mel. This is when I was told about the Speak supplement. I was so excited to have Mel try it as I felt this is the right time to focus on supplements. We immediately saw improvements with Mel's speech and see improvements each day. is using new words and phrases each day and acts like she has been using them forever. never wanted to practice her word cards it was always a constant struggle with her to the point I just put all cards away. The second day of Speak she pulled out all of her word cards on her own as she watched me put them away and got them out of their boxes. She handed them to me and we started to practice. She now has them in stacks all over the house and picks them up to practice with anyone thru out the day. I keep a notebook and anyone that comes into our house for a visit will write in the changes they have seen as they have know Mel before and now after the supplement. We are also seeing better motor planning and more attempts to help with things around the house. I am one to talk to Mel on a constant basis now Mel is returning the favor as she talks from the time she gets up until she goes to bed. She will say all words that she knows over and over as they are now becoming clearer and practicing new ones as well. I do have some concerns though and have spoken with one of Mel's doctors already this morning. We have noticed since Mel has been on the Speak she is experiencing diarrhea, headaches, stomach pains, nervous motoring, and we believed she had another seizure while she was sleeping because when she woke up she had a bruise over her left eye. Mel's headaches are to the point that they get so severe that she gets tears in her eyes and is now holding her head and telling me about the pain. Mel's doctor said he knows the fish oil would not harm Mel but is concerned with the high level of Vitamin E and believes that there really needs to be a modest approach when taking the Vitamin E. We have agreed that Mel needs to continue on fish oil but not the high level of Vitamin E. I am going to make some changes that Mel's doctor and I agreed upon and see what happens. I will give my new approach the same amount of time that I gave Speak and that is 9 days and then I will post my results. While we are enjoying the new Mel with all of her new speech we want to make sure she stays healthy. I just have too many concerns at this time to continue with the Speak Supplement. Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2008 Report Share Posted October 1, 2008 www.speechnutrients.com > > What is the website for Speak, so I can obtain more info. I'd like to try it with my son and tell our DAN about it. > > -------------- Original message -------------- > From: " Robin C. Ketchem " <rcketchem@...> > > I believe my daughter is the oldest person participating in > the Speak Supplement Focus Group at the age of 24. We have had some > very amazing results with this supplement in the last 9 days but we > also have some concerns as well. > > At the age of 17 I gave Mel one Pro EPA to start with and saw some > results but with everything being so crazy with the lawsuit against > the school district I stopped them. I was so focused on just trying > to keep Mel home and safe thru the court case > that everything else went on hold. We did win the lawsuit but there > was so much trauma associated with those years that we were just > focusing on Mel surviving at that point. > > We have not had on supplements for a very long time as we > were just trying to focus on other issues that Mel was having. Mel > suffered 10 grand mal seizures about 2 years ago and we brought her > home from the hospital basically to pass away. When > they discharged Mel from the hospital she could not even walk. All > motor planning skills were lost. I truly thought this was the end > for Mel. Mel bounced back within 2 month and regained everything > that she had lost from her seizures. Her doctors have never > seen anything like it. They are still trying to figure out how Mel > survived. About a month ago I decided it was now time to try the > fish oil to see if we could help Mel with her speech. I finally felt > we were at a place in Mel's life that everything was settled down enough > that we could pursue more speech. I contacted for advice on the > amount of fish oil I should give to Mel. This is when I was told > about the Speak supplement. I was so excited to have Mel try it as I > felt this is the right time to focus on supplements. > > We immediately saw improvements with Mel's speech and see > improvements each day. is using new words and phrases each > day and acts like she has been using them forever. never > wanted to practice her word cards it was always a constant > struggle with her to the point I just put all cards away. The second > day of Speak she pulled out all of her word cards on her own as she > watched me put them away and got them out of their boxes. She handed > them to me and we started to practice. She now has > them in stacks all over the house and picks them up to practice with > anyone thru out the day. I keep a notebook and anyone that comes > into our house for a visit will write in the changes they have seen > as they have know Mel before and now after the supplement. > We are also seeing better motor planning and more attempts to help > with things around the house. I am one to talk to Mel on a constant > basis now Mel is returning the favor as she talks from the time she > gets up until she goes to bed. She will say all words that she knows > over and over as they are now becoming clearer and practicing new > ones as well. > > I do have some concerns though and have spoken with one of Mel's > doctors already this morning. We have noticed since Mel has been on > the Speak she is experiencing diarrhea, headaches, stomach pains, > nervous motoring, and we believed she had another > seizure while she was sleeping because when she woke up she had a > bruise over her left eye. Mel's headaches are to the point that they > get so severe that she gets tears in her eyes and is now holding her > head and telling me about the pain. Mel's doctor said he knows > the fish oil would not harm Mel but is concerned with the high level > of Vitamin E and believes that there really needs to be a modest > approach when taking the Vitamin E. We have agreed that Mel needs > to continue on fish oil but not the high level of Vitamin E. I am going > to make some changes that Mel's doctor and I agreed upon and see > what happens. I will give my new approach the same amount of time > that I gave Speak and that is 9 days and then I will post my results. > > While we are enjoying the new Mel with all of her new speech we want > to make sure she stays healthy. I just have too many concerns at > this time to continue with the Speak Supplement. > > Robin > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2008 Report Share Posted October 1, 2008 I believe speak in essence is a good supplement but when using any supplements that are multi in nature, you are really not always getting a good idea as to what is helping or affecting your child. I had to introduce K2 (which is found in Speak) one drop at a time to both of my twins. One can tolerate four drops per day and the other one can only tolerate two at the most. Three drops gives him severe diarhhea. I would get all the supplements that are in speak and introduce them one at a time. Also if your child is having seizures still I would definitely consider something that she is eating. Milk triggers seizures in our kids along with gluten. tommysmommy67 wrote: > www.speechnutrients.com > > > >> What is the website for Speak, so I can obtain more info. I'd like >> > to try it with my son and tell our DAN about it. > >> -------------- Original message -------------- >> From: " Robin C. Ketchem " <rcketchem@...> >> >> I believe my daughter is the oldest person participating in >> the Speak Supplement Focus Group at the age of 24. We have had some >> very amazing results with this supplement in the last 9 days but we >> also have some concerns as well. >> >> At the age of 17 I gave Mel one Pro EPA to start with and saw some >> results but with everything being so crazy with the lawsuit against >> the school district I stopped them. I was so focused on just trying >> to keep Mel home and safe thru the court case >> that everything else went on hold. We did win the lawsuit but there >> was so much trauma associated with those years that we were just >> focusing on Mel surviving at that point. >> >> We have not had on supplements for a very long time as we >> were just trying to focus on other issues that Mel was having. Mel >> suffered 10 grand mal seizures about 2 years ago and we brought her >> home from the hospital basically to pass away. When >> they discharged Mel from the hospital she could not even walk. All >> motor planning skills were lost. I truly thought this was the end >> for Mel. Mel bounced back within 2 month and regained everything >> that she had lost from her seizures. Her doctors have never >> seen anything like it. They are still trying to figure out how Mel >> survived. About a month ago I decided it was now time to try the >> fish oil to see if we could help Mel with her speech. I finally >> > felt > >> we were at a place in Mel's life that everything was settled down >> > enough > >> that we could pursue more speech. I contacted for advice on >> > the > >> amount of fish oil I should give to Mel. This is when I was told >> about the Speak supplement. I was so excited to have Mel try it as >> > I > >> felt this is the right time to focus on supplements. >> >> We immediately saw improvements with Mel's speech and see >> improvements each day. is using new words and phrases each >> day and acts like she has been using them forever. never >> wanted to practice her word cards it was always a constant >> struggle with her to the point I just put all cards away. The >> > second > >> day of Speak she pulled out all of her word cards on her own as she >> watched me put them away and got them out of their boxes. She >> > handed > >> them to me and we started to practice. She now has >> them in stacks all over the house and picks them up to practice >> > with > >> anyone thru out the day. I keep a notebook and anyone that comes >> into our house for a visit will write in the changes they have seen >> as they have know Mel before and now after the supplement. >> We are also seeing better motor planning and more attempts to help >> with things around the house. I am one to talk to Mel on a constant >> basis now Mel is returning the favor as she talks from the time she >> gets up until she goes to bed. She will say all words that she knows >> over and over as they are now becoming clearer and practicing new >> ones as well. >> >> I do have some concerns though and have spoken with one of Mel's >> doctors already this morning. We have noticed since Mel has been on >> the Speak she is experiencing diarrhea, headaches, stomach pains, >> nervous motoring, and we believed she had another >> seizure while she was sleeping because when she woke up she had a >> bruise over her left eye. Mel's headaches are to the point that >> > they > >> get so severe that she gets tears in her eyes and is now holding >> > her > >> head and telling me about the pain. Mel's doctor said he knows >> the fish oil would not harm Mel but is concerned with the high >> > level > >> of Vitamin E and believes that there really needs to be a modest >> approach when taking the Vitamin E. We have agreed that Mel needs >> to continue on fish oil but not the high level of Vitamin E. I am >> > going > >> to make some changes that Mel's doctor and I agreed upon and see >> what happens. I will give my new approach the same amount of time >> that I gave Speak and that is 9 days and then I will post my >> > results. > >> While we are enjoying the new Mel with all of her new speech we >> > want > >> to make sure she stays healthy. I just have too many concerns at >> this time to continue with the Speak Supplement. >> >> Robin >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2008 Report Share Posted October 2, 2008 This is a very important point. My son is so sensitive, an increase of only 100 iu of alpha can cause 2 weeks of negatives along with positives. I don't give my son " multi " anything. You need to know what effect - good and bad - any supplement can have. > I had to > introduce K2 (which is found in Speak) one drop at a time to both of my > twins. One can tolerate four drops per day and the other one can only > tolerate two at the most. Three drops gives him severe diarhhea. Quote Link to comment Share on other sites More sharing options...
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