Re: It just SUCKS.........

April 1, 2008

Hetal,

Hang strong and tough you will find your answer as you dig. Yours may not be

so generally obvious like mine and others, but some detail deep within that

once you find it, you will see great results. There is a reason you are his

mother. Most would not go to the lenghts you go through daily, monthly and

yearly.

Even though we have language, I still worry daily. Keep the faith.

Take Care,

Colleen

[ ] It just SUCKS.........

My friend has a baby that will be turning 1 on April 13th is now

saying Uncle Go clearly, yalcome for " your welcome " , okay, " ca " for

cat, " ba " or bad, " daaa " for dog, mama, dada, elmo, and nana

My son will be 3 at the end of May and still doesn't have any clear

cut concrete sounds. We do it all DAN, just started Homeopathy, did

MB12 shots for an entire year, DMG, TMG, Fish Oils, Cq10, etc. He

gets 3 hours of Speech per week in addition to other therapy.

Why is life so unfair? Just venting to people that will understand.

Hetal in California

April 1, 2008

Completely understand! My son will be 5 in June and is just now

obtaining some clear-cut sounds. All the kids in his class at school

(mainstream) - sometimes they sound like adults to me and I forget

they are his age because in my world - 4-5 year olds cannot talk. But

I'm confident that will not remain the case for mine or yours!

Hang in there and know you are among friends...

in TN

>

> My friend has a baby that will be turning 1 on April 13th is now

> saying Uncle Go clearly, yalcome for " your welcome " , okay, " ca " for

> cat, " ba " or bad, " daaa " for dog, mama, dada, elmo, and nana

>

> My son will be 3 at the end of May and still doesn't have any clear

> cut concrete sounds. We do it all DAN, just started Homeopathy, did

> MB12 shots for an entire year, DMG, TMG, Fish Oils, Cq10, etc. He

> gets 3 hours of Speech per week in addition to other therapy.

>

> Why is life so unfair? Just venting to people that will understand.

> Hetal in California

>

April 1, 2008

Hetal,

The best words of advice I have on this come from Suzi who has

twins. We have a number of members with twins where one is " learning

to speak French while the other can't say a word of English " (Mae

you still there?) While both of Suzi's girls have some type of

speech issue -they were very different in severity.

The following are just a few of her archives to show that no

matter where you start in this journey -there's always hope for a voice.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Re: Anyone else heard of this?

I just want to give you some support. I have identical twins that

just turned 6. One of them has severe apraxia, and the other one

has mild speech problems.

At 2, both of them could only say a few words. Around 3, one of my

daughters started talking and the other didn't. My daughter with

severe apraxia really didn't start talking much until she was 4

1/2.

I talked to them the same amount. They got the same attention, and

the daughter with severe apraxia has always received more therapy.

They are still very different in their speech. The one with the

mild speech problem is going to be only receiving speech in the

school twice a week. She can read, and is doing very well. My

other daughter has lots of trouble with multi-syllabic words and

cannot read.

A good SLP will help you. Good luck. We've all been there, and

remember it has nothing to do with you.

Re: Phonological Processing Disorder vs, Apraxia of speech?

Actually, when you compare a kid with Phonological Processing

Disorder to a kid with apraxia, they do not sound alike.

I know because I have identical twins, and one has apraxia and the

other has Phonological Processing Disorder.

The main difference is consistency. With Phonological Processing

Disorder, the same mistakes are made. The child always says the

sound the wrong way. The child doesn't grope for sounds. Also, the

child does not lose sounds.

With apraxia, the child can try to say a sound, and it will come out

different every single time. Also, a child may have a sound one

month, and then lose it the next. Inconsistency is the only thing

consistent with apraxia.

Re: please help

I have 5 (almost 6) year old twin daughters that have been diagnosed

with apraxia at 2 years old.

One of them is still very severe, but she is talking. She now has a

hard time with lots of 2 syllable words, and she can only say a few

3 or more syllable words. However she is now saying most 1 syllable

words. She still has lots of articulation problems.

My other daughter is talking quite well. She still has articulation

problems, but that is about it.

One of the handouts that I received from our speech therapist said

that if they can say anything (ba, ma, etc) then the speech

therapist can get them to talk. It may take a long time, but they

can get them to talk.

So, I think your kids will talk. It's also very early to tell what

they are going to do. One of my daughters wasn't saying much of

anything, and then at 3 she started talking. I hope your kids will

be the same way.

Good luck.

Suzi

Re: The story continues....

My girls are 5 1/2. The intelligibility definitely matters.

is picking it up fast, and her speech is not as delayed as .

goes through a lesson, and she knows it!

has difficulty saying some of the words (especially ones that

start with " R " ), and she forgets sounds (especially the short " A " ).

However, she is getting better. The first time we worked on " R " she

didn't get it. Last night, she did much better. Her rhyming

ability is also much better. She is definitely catching on to the

blending the sounds. I also think it is helping her speech because

we are really working on the beginning and ending sounds. She has a

tendency to drop the final consonant on lots of words, but the

reading is helping with that.

Summary, is going to learn how to read with this book.

is getting better at the basics, and it is helping her speech.

's getting good at reading words that rhyme with " AT "

and " Eat " . I don't know how she'll do later in the book. All in all

I think it's pretty good results for a $15 book.

(By the way, is only on lesson 10 and is on lesson 20)

>

> > It seems like they are trying to teach reading skills.

> >

> > It seems like they need to ask her to point to the correct

picture.

> > So if she reads " BOY " then she should point to a picture of a

boy.

> >

> > I also have another suggestion. I bought a book called " How to

> > Teach Your Child to Read in 100 Easy Lessons " .

Update on & Thanks for Update on Tanner

Thanks for the wonderful update on Tanner.

Since my daughter is also in 4th grade and turning 10 in a few weeks,

I thought I'd post an update on her.

We are finally out of the public school system this year. Last year,

we had an exhaustive independent evaluation done on at public

school expense. The results showed that in addition to speech

problems also has some auditory processing problems. Even though her

phonemic awareness (9%), word decoding skills(25%), and auditory

memory

(1%) scores were very low, she still scored in the average range for

reading (45-55%). However, because of the auditory processing

problems, the neuropsychologist and learning specialist recommended

getting in a multi-sensory reading program. The school district

denied this request, so we left the public school (for many reasons in

addition to the IEP problem).

We put both and her twin sister in a private Christian school

that has a multi-sensory reading program (Barton Reading). gets

pulled everday for 45 minutes during reading. She also goes to

private speech therapy twice a week for an hour each time.

So far both girls are doing great at the new school. They immediately

made friends with a group of other 4th grade girls. This is the first

time they have ever had a group of girls they were friends with. They

always had friends at school, but not like this year.

This school is very different than the public school. There are a lot

more demands. They have Bible memory work, they have lots of social

studies and lots of science, and they also go to Spanish once a week.

I knew would do well at this school because she is gifted and

does great with academics, but I wasn't sure about .

has gotten 100% on all of her Bible memory, including knowing

all of the books of the Old Testament in order. She can say every

book easily except for Eccleasiastes, and she just says you know the

hard word that starts with E.

also got an A- on her first science test. It was a difficult

test because she had to explain a lot of her answers. On the

true/false section if something was false she had to explain why. She

also had to write down a bunch of other answers. In the public

school, they ususally had mulitple choice tests and does great

on those. The science test was the first time she ever had to explain

things on a test, and she did great!

For next week, she is working on a report and project about Chumash

Indians. The report is hard for her, but she is doing it. She may

have to work on it at home this weekend to finish it, but she is doing

okay on it. Next week, she'll also have to tell about her project

which is a Chumash shelter. We've been trying to get her shelter done

early so she can work on her presentation.

Spanish is very difficult for her. She has her first test next week.

I've just told her that it will help her when she goes to high

school.

In music, they are learning how to play the recorder. She is just

struggling with that. The good thing is they are also learning some

songs to sing. One of them is about counting your blessings.

just loved that song because it is about when times are tough

to " count your many blessings " .

This year we have been counting our blessings with the new school.

Take care everyone.

~~~~~~~~~~~~~~~~~~~~~~~~

=====

April 1, 2008

Thanks gals. I knew you guys would understand. My " normal " friends

have no clue how hard language is for some kids and take it for

granted.

I am a fighter by nature so I am going to hang in there and do

everything I can to find that magic pill for my son. I have a

feeling it is just to be lots of years of hard long therapy.

Thx again,

Hetal

> >

> > My friend has a baby that will be turning 1 on April 13th is now

> > saying Uncle Go clearly, yalcome for " your welcome " , okay, " ca "

for

> > cat, " ba " or bad, " daaa " for dog, mama, dada, elmo, and nana

> >

> > My son will be 3 at the end of May and still doesn't have any

clear

> > cut concrete sounds. We do it all DAN, just started Homeopathy,

did

> > MB12 shots for an entire year, DMG, TMG, Fish Oils, Cq10, etc.

He

> > gets 3 hours of Speech per week in addition to other therapy.

> >

> > Why is life so unfair? Just venting to people that will

understand.

> > Hetal in California

> >

>

April 1, 2008

I am with . We see things I never thought possible today. Hang

tough.

Have you seen Dr. lab info:

/message/53124

and the fish oil and E combo many find help with?

> >

> > My friend has a baby that will be turning 1 on April 13th is now

> > saying Uncle Go clearly, yalcome for " your welcome " , okay, " ca "

for

> > cat, " ba " or bad, " daaa " for dog, mama, dada, elmo, and nana

> >

> > My son will be 3 at the end of May and still doesn't have any

clear

> > cut concrete sounds. We do it all DAN, just started Homeopathy,

did

> > MB12 shots for an entire year, DMG, TMG, Fish Oils, Cq10, etc.

He

> > gets 3 hours of Speech per week in addition to other therapy.

> >

> > Why is life so unfair? Just venting to people that will

understand.

> > Hetal in California

> >

>

April 1, 2008

Hetel,

Believe me.... after 10.5 years of speech therapy, I am so ready to be done! We

are so close to being finished and I feel so tired...... the end of the tunnel

is looming but sometimes I wonder if I have the strength to get there. It just

seems as though every time I get set to be through with dyspraxia..... some

other huge obstacle jumps in my way.....

So, I understand..... so completely!

But we are almost there where we were once so far, far away. It has taken us a

long time and it was a lonely journey for the most part since I didn't a

group to shine the lighted path. Since finding my way lit by the other moms,

progress has gone much faster.

But I just have to keep the fight up to the finish and not give up until the

fight is done..... so close now.

You're right though.... It just sucks!

Janice

Mother of Mark, 13

[sPAM][ ] It just SUCKS.........