hypotonia

[Guest guest]

In a message dated 10/19/2008 10:08:12 AM Central Daylight Time,

talithamichele@... writes:

Sea salt helped with hypotonia in my kids. I haven't chelated either

one of them but they no longer have hypotonia.

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[Guest guest]

In a message dated 10/19/2008 10:08:12 AM Central Daylight Time,

talithamichele@... writes:

Sea salt helped with hypotonia in my kids. I haven't chelated either

one of them but they no longer have hypotonia.

**************New MapQuest Local shows what's happening at your destination.

Dining, Movies, Events, News & more. Try it out

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[Guest guest]

Sea salt helped with hypotonia in my kids. I haven't chelated either

one of them but they no longer have hypotonia.

Michele

http://www.healthgazelle.org

http://www.kidslikemine.org

http://www.solanorail.org

[Guest guest]

>

> Hi - does anyone know if DMSA chelation will help with hypotonia

(poor muscle tone)/late

> walking in a toddler? Or is ALA required to address this?

My son needed carnitine for this problem.

Dana

[Guest guest]

My son has hypotonia.  Please tell me how you used sea salt to help with

hypotonia.  Just adding it to their foods?

 

Alyssa

From: Michele <talithamichele@...>

Subject: [ ] Re: hypotonia

Date: Sunday, October 19, 2008, 3:07 PM

Sea salt helped with hypotonia in my kids. I haven't chelated either

one of them but they no longer have hypotonia.

Michele

http://www.healthga zelle.org

http://www.kidslike mine.org

http://www.solanora il.org

__________________________________________________

[Guest guest]

>

> My son has hypotonia.  Please tell me how you used sea salt to help

with hypotonia.  Just adding it to their foods?

>  

> Alyssa

>

Initially, we took it as a " supplement " . Later, we learned to cook

with it and stopped using table salt altogether. I and my oldest both

have a genetic disorder that causes us to purge salt at high rates.

My youngest is a carrier so he has some of the same traits, but to a

lesser degree. We initially took quite large amounts of sea salt on a

daily basis, probably more than most people would tolerate. But I

have spoken to enough people with various disorders who took high

amounts of salt that I no longer think that it's that peculiar to the

specific diagnosis we have. I am only mentioning it to say that the

amounts we took might be a lot more than your family can tolerate...or

they might not. I generally encourage people to take as much as they

crave rather than setting goal of getting a specific amount into them.

My oldest took up to five or six tablespoons a day of sea salt for

about six months, then took up to five or six tablespoons every 2nd or

3rd day for another six months while consuming more normal amounts of

salt on the days in between. I took up to 2 tablespoons a day for many

months. Now, we cook with it and add a bit more to carbs (like

potatoes or noodles) on days when we feel we need more for some

reason. I found that how much salt we could absorb was related to

getting the right fats and carbs into us. I recently posted a couple

of pages with info that relates to that on my website:

http://healthgazelle.org/gettingoffenzymes.shtml

This one has some ideas of how I serve foods to get enough salt in me:

http://healthgazelle.org/combiningseasaltcarbsandhealthyfats.shtml

Michele

http://www.healthga zelle.org

http://www.kidslike mine.org

http://www.solanora il.org

[Guest guest]

what is the name of the enzyme group that you mentioned?

On Oct 19, 2008, at 10:32 AM, Michele wrote:

>

> >

> > My son has hypotonia. Please tell me how you used sea salt to help

> with hypotonia. Just adding it to their foods?

> >

> > Alyssa

> >

>

> Initially, we took it as a " supplement " . Later, we learned to cook

> with it and stopped using table salt altogether. I and my oldest both

> have a genetic disorder that causes us to purge salt at high rates.

> My youngest is a carrier so he has some of the same traits, but to a

> lesser degree. We initially took quite large amounts of sea salt on a

> daily basis, probably more than most people would tolerate. But I

> have spoken to enough people with various disorders who took high

> amounts of salt that I no longer think that it's that peculiar to the

> specific diagnosis we have. I am only mentioning it to say that the

> amounts we took might be a lot more than your family can tolerate...or

> they might not. I generally encourage people to take as much as they

> crave rather than setting goal of getting a specific amount into them.

>

> My oldest took up to five or six tablespoons a day of sea salt for

> about six months, then took up to five or six tablespoons every 2nd or

> 3rd day for another six months while consuming more normal amounts of

> salt on the days in between. I took up to 2 tablespoons a day for many

> months. Now, we cook with it and add a bit more to carbs (like

> potatoes or noodles) on days when we feel we need more for some

> reason. I found that how much salt we could absorb was related to

> getting the right fats and carbs into us. I recently posted a couple

> of pages with info that relates to that on my website:

>

> http://healthgazelle.org/gettingoffenzymes.shtml

>

> This one has some ideas of how I serve foods to get enough salt in me:

> http://healthgazelle.org/combiningseasaltcarbsandhealthyfats.shtml

>

> Michele

> http://www.healthga zelle.org

> http://www.kidslike mine.org

> http://www.solanora il.org

>

>

>

[Guest guest]

>

> what is the name of the enzyme group that you mentioned?

I was on prescription digestive enzymes for cystic fibrosis. The

brand my son and I took was " Pancreacarb MS-8 " . We were prescribed

several hundred dollars a month worth of enzymes. In comparison to

that, it costs something like $25 a month (or less) for the sea salt

and coconut oil that helped us get off them. We also cut yeast from

our diet and I also needed glyconutrients, which aren't cheap. But I

now take glyconutrients sometimes instead of every day. And have

figured out that eating combinations of carbs has a similar effect to

glyconutrients, now that I am healthier.

Michele

http://www.healthgazelle.org

http://www.kidslikemine.org

http://www.solanorail.org

[Guest guest]

My son has a standing order for the cystic fibrosis sweat test but I have been

putting it off.  And I have just recently started thinking that digestive

enzymes might really benefit him. 

 

Can you tell me more about CF and it's relationship to enzymes?

 

And I would like to join a list serve to learn more about digestive enzymes.. 

Do you have the name of a support group?

 

Where do you buy digestive enzymes? 

 

I am currently reading Enzymes for Autism and other Neurological Conditions.. 

And how would I go about matching up my child's cymptoms with the appropriate

enzyme?  Are parents making this decision themselves?  Or is it being over-seen

by a doctor, nutritionist or homeopath?

 

Thanks for your ideas,

Alyssa

 

From: Michele <talithamichele@...>

Subject: [ ] Re: hypotonia

Date: Sunday, October 19, 2008, 3:50 PM

>

> what is the name of the enzyme group that you mentioned?

I was on prescription digestive enzymes for cystic fibrosis. The

brand my son and I took was " Pancreacarb MS-8 " . We were prescribed

several hundred dollars a month worth of enzymes. In comparison to

that, it costs something like $25 a month (or less) for the sea salt

and coconut oil that helped us get off them. We also cut yeast from

our diet and I also needed glyconutrients, which aren't cheap. But I

now take glyconutrients sometimes instead of every day. And have

figured out that eating combinations of carbs has a similar effect to

glyconutrients, now that I am healthier.

Michele

http://www.healthga zelle.org

http://www.kidslike mine.org

http://www.solanora il.org

__________________________________________________

[Guest guest]

----- Original Message -----

From: pjthreeboys

Hi - does anyone know if DMSA chelation will help with hypotonia (poor muscle

tone)/late

walking in a toddler? Or is ALA required to address this?

===>Dmsa will help, although at some point you will need to add Ala as it is

the only chelator that removes mercury from the central nervous system and/or

brain.===>

We just finished our first round of DMSA every 4 hours; he seems to be making

more sounds

and eye contact

===>We saw a LOT of good things with just Dmsa alone. We also saw a lot of

good things with Dmsa and Ala, as well as many good things with just Ala alone.

but has a terrible runny nose now.

===>Yes, some have reported this, appears that Dmsa will sometimes kick start

the immune system reportedly. Some kids also get very minor fevers, Dmsa has

been said to be an antiretroviral, as well as a chelator.

Not sure if it's a yeast symptom or an

actual nasal issue.

===>Could also be, try increasing your probioitics as well, helpful for both

yeast and the immune system.

Anyone else experience this? He's getting zinc, C and B vits and cod liver

oil.

===>Don't forget magnesium, an important supplement, about 400 mgs spread

throughout the day. Avoid magnesium oxide which is said to be absorbed poorly.

There are liquid magnesiums available in the health food store for the little

ones.

Thanks!

[Guest guest]

My son had hypotonia and it went away with treating babesia, a

parasitic infection that is a common co-infection to lyme. We

treated him with mepron which is a prescription drug, but others use

artmesia (the hepapro brand is considered the best.) With this

treatment, all of his gross motor delays were resolved within days.

He climbed up the stairs, out of his crib, into his high chair,

climbed on the furniture and started jumping all in one day. This

from a kid who I had to teach to crawl and hold his bottle for him

just 2 months prior at 20 months of age.

If salt and or vitamin C is helping at all, these too are good at

suppressing parasites, but not likely good at wiping them out long

term.

Caryn

> >

> > My son has hypotonia.  Please tell me how you used sea salt to

help

> with hypotonia.  Just adding it to their foods?

> >  

> > Alyssa

> >

>

> Initially, we took it as a " supplement " . Later, we learned to cook

> with it and stopped using table salt altogether. I and my oldest

both

> have a genetic disorder that causes us to purge salt at high rates.

> My youngest is a carrier so he has some of the same traits, but to a

> lesser degree. We initially took quite large amounts of sea salt

on a

> daily basis, probably more than most people would tolerate. But I

> have spoken to enough people with various disorders who took high

> amounts of salt that I no longer think that it's that peculiar to

the

> specific diagnosis we have. I am only mentioning it to say that the

> amounts we took might be a lot more than your family can

tolerate...or

> they might not. I generally encourage people to take as much as

they

> crave rather than setting goal of getting a specific amount into

them.

>

> My oldest took up to five or six tablespoons a day of sea salt for

> about six months, then took up to five or six tablespoons every 2nd

or

> 3rd day for another six months while consuming more normal amounts

of

> salt on the days in between. I took up to 2 tablespoons a day for

many

> months. Now, we cook with it and add a bit more to carbs (like

> potatoes or noodles) on days when we feel we need more for some

> reason. I found that how much salt we could absorb was related to

> getting the right fats and carbs into us. I recently posted a

couple

> of pages with info that relates to that on my website:

>

> http://healthgazelle.org/gettingoffenzymes.shtml

>

> This one has some ideas of how I serve foods to get enough salt in

me:

> http://healthgazelle.org/combiningseasaltcarbsandhealthyfats.shtml

>

>

> Michele

> http://www.healthga zelle.org

> http://www.kidslike mine.org

> http://www.solanora il.org

>

[Guest guest]

>

> My son has a standing order for the cystic fibrosis sweat test but I

have been putting it off.  And I have just recently started thinking

that digestive enzymes might really benefit him. 

A sweat test is painless and relatively cheap compared to a lot of the

tests I went through. Make sure you bring a book or toys. Waiting to

sweat is boring. I can describe the process in more detail if you are

interested.

>  

> Can you tell me more about CF and it's relationship to enzymes?

About 85% of pwcf (people with CF) are considered " pancreatic

insufficient " . The view of conventional medicine is that the thick

mucus that pwcf produce blocks the ducts of the pancreas, preventing

pancreatic enzymes from being released in the amount needed. I was

severely hypoglycemic for most of my life. Getting on digestive

enzymes stabilized my blood sugar. My own research into hypoglycemia

indicates that the pancreas produces insulin and mine was

overproducing it, though moving gradually towards diabetic as I got

sicker and sicker (and " CF related diabetes " is a significant issue

that effects many pwcf). I am not real clear what roll the pancreas

is supposed to play in digestion but the mental model that

conventional medicine presents concerning CF has not fit with my

experience in getting well.

Cystic fibrosis significantly impacts the respiratory system and the

gut. These two systems are both lined with mucus. Salt is a

significant component of mucus. The general belief is that CF

patients " overproduce " mucus and are " drowning " in mucus, which is why

they have to do chest therapy daily to get the mucus out to be able to

breathe. One study indicated that CF patients actually produce too

little mucus and the stuff they cough up is not mucus but phlegm

(infection). This is consistent with my experience: When I get

enough sea salt, my sinuses are not so dry and when my sinuses remain

moist, I cough up less crap. I think sea salt helps the body produce

healthy mucus and this helps the gut function better, as well as

ensuring that the mucus in the respiratory tract and elsewhere can

perform its job of trapping germs and preventing them from getting

into the body in the first place.

Another observation I have made is that digestive enzymes can be used

as an anti-viral protocol. Conventional medicine offers little in the

way of viral treatment. Alternative medicine has a lot to offer in

the way of anti-virals. So I believe one benefit for people with CF

is that enzymes help kill virii -- something I do with vitamin A,

vitamin E, OLE, diet tonic water, and using peroxide liberally in the

home.

I believe that if you get the right nutrients into someone with CF and

get their excess acidity under control, you can begin reversing the

symptoms. That is proving to be true for my son and I. We have

suntans this year for the first time in our lives, we no longer wilt

in the heat, we no longer prune up like crazy in water, I am beginning

to enjoy food for the first time in my life, etc. This may not hold

true with some of the variations where the cftr is simply missing.

But most forms of CF involve a defect in the cftr and I think that is

proving reparable in my son and I.

>  

> And I would like to join a list serve to learn more about digestive

enzymes..  Do you have the name of a support group?

No, I don't know of such a group. I imagine there is one (or more) but

I haven't pursued that kind of support.

>  

> Where do you buy digestive enzymes? 

It's possible to buy them at places like GNC. I did buy a bottle

there once because I knew my son's insurance would end and I was

trying to plan ahead and find alternatives that we could afford and

which didn't necessary require a doctor. A lot of people on this list

buy them online and can undoubtedly give you some names/links of where

they buy theirs. My son and I have been off digestive enzymes for

over two years. Most of the enzymes we took were prescription and

picked up at a pharmacy.

>  

> I am currently reading Enzymes for Autism and other Neurological

Conditions..  And how would I go about matching up my child's cymptoms

with the appropriate enzyme?  Are parents making this decision

themselves?  Or is it being over-seen by a doctor, nutritionist or

homeopath?

Most pwcf take the digestive enzymes their doctor prescribes. Most

people on this list seem to manage it themselves. Some people with CF

(or with a child with CF) do their own research and will advocate on

own their behalf (or behalf of their child) for trying different

brands based on what they think might work best for themselves.

Michele

http://www.healthgazelle.org

http://www.kidslikemine.org

http://www.solanorail.org

[Guest guest]

>

> My son had hypotonia and it went away with treating babesia, a

> parasitic infection that is a common co-infection to lyme. We

> treated him with mepron which is a prescription drug, but others use

> artmesia (the hepapro brand is considered the best.) With this

> treatment, all of his gross motor delays were resolved within days.

> He climbed up the stairs, out of his crib, into his high chair,

> climbed on the furniture and started jumping all in one day. This

> from a kid who I had to teach to crawl and hold his bottle for him

> just 2 months prior at 20 months of age.

>

> If salt and or vitamin C is helping at all, these too are good at

> suppressing parasites, but not likely good at wiping them out long

> term.

>

> Caryn

>

My sons and I have all treated what I believe is a parasitic infection

that no doctor ever identified. Anyone who is sick for a long time

should consider the possibility that parasites are involved. They

will target someone who is already sick and American doctors typically

don't look for them and consider them to be something people in third

world countries have to worry about.

For my sons and I, sea salt treats an underlying defect in the way our

bodies function. I have reason to believe it can help others as well

who don't have the same disorder, though generally I would assume most

people don't need the high quantities of sea salt that we initially

needed.

Michele

http://www.healthga zelle.org

http://www.kidslike mine.org

http://www.solanora il.org

[Guest guest]

so funny, we began dmsa chelation with my son on fri eve and he has a runny nose

today and I have been asking myself the same question? Most likely my little

guy has his sister's cold. But I can't help wondering if this is yeast related

because every single time I have added or removed a food, changed a

supplement...my son responds with mucus initially. Good luck with chelation,

Alison M

-------------- Original message ----------------------

From: " pjthreeboys " <patricia@...>

> Hi - does anyone know if DMSA chelation will help with hypotonia (poor muscle

> tone)/late

> walking in a toddler? Or is ALA required to address this?

>

> We just finished our first round of DMSA every 4 hours; he seems to be making

> more sounds

> and eye contact but has a terrible runny nose now. Not sure if it's a yeast

> symptom or an

> actual nasal issue. Anyone else experience this? He's getting zinc, C and B

> vits and cod liver

> oil.

>

> Thanks!

>

>

> ------------------------------------

>

> =======================================================

>

[Guest guest]

-Weird, this is our third round with DMSA and my daughter has a runny

nose today. It's our last day of chelation this round. I thought maybe

I was stripping too many minerals and she got sick.

Does anyone know why the runny nose after DMSA?

-- In , DavAliNee@... wrote:

>

> so funny, we began dmsa chelation with my son on fri eve and he has

a runny nose today and I have been asking myself the same question?

Most likely my little guy has his sister's cold. But I can't help

wondering if this is yeast related because every single time I have

added or removed a food, changed a supplement...my son responds with

mucus initially. Good luck with chelation, Alison M

> -------------- Original message ----------------------

> From: " pjthreeboys " <patricia@...>

> > Hi - does anyone know if DMSA chelation will help with hypotonia

(poor muscle

> > tone)/late

> > walking in a toddler? Or is ALA required to address this?

> >

> > We just finished our first round of DMSA every 4 hours; he seems

to be making

> > more sounds

> > and eye contact but has a terrible runny nose now. Not sure if

it's a yeast

> > symptom or an

> > actual nasal issue. Anyone else experience this? He's getting

zinc, C and B

> > vits and cod liver

> > oil.

> >

> > Thanks!

> >

> >

> > ------------------------------------

> >

> > =======================================================

> >

[Guest guest]

Thanks .

The DMSA is compounded with Vit C and I'm happy about that now. I am

giving her 1000mg of OLE too. Plus zinc, vit e, selenium and magnesium.

She seems to be feeling good, in fact this has been our best round out

of the nine we've done so far!

> > >

> > > so funny, we began dmsa chelation with my son on fri eve and he has

> > a runny nose today and I have been asking myself the same question?

> > Most likely my little guy has his sister's cold. But I can't help

> > wondering if this is yeast related because every single time I have

> > added or removed a food, changed a supplement...my son responds with

> > mucus initially. Good luck with chelation, Alison M

> > > -------------- Original message ----------------------

> > > From: " pjthreeboys " <patricia@>

> > > > Hi - does anyone know if DMSA chelation will help with hypotonia

> > (poor muscle

> > > > tone)/late

> > > > walking in a toddler? Or is ALA required to address this?

> > > >

> > > > We just finished our first round of DMSA every 4 hours; he seems

> > to be making

> > > > more sounds

> > > > and eye contact but has a terrible runny nose now. Not sure if

> > it's a yeast

> > > > symptom or an

> > > > actual nasal issue. Anyone else experience this? He's getting

> > zinc, C and B

> > > > vits and cod liver

> > > > oil.

> > > >

> > > > Thanks!

> > > >

> > > >

> > > > ------------------------------------

> > > >

> > > > =======================================================

> > > >

[Guest guest]

We've had the running nose before, and I know a few others that have as

well.

DMSA can be somewhat suppress the immune system. Nothing to be alarmed

over. Increase the vitamin C and D.

Finish the round and it will probably stop. It always has for us. If

it continues, in the first instance I would treat it like a minor cold,

and use a number of natural options to help the body get over it.

sassifrassilassi2002 wrote:

>

> -Weird, this is our third round with DMSA and my daughter has a runny

> nose today. It's our last day of chelation this round. I thought maybe

> I was stripping too many minerals and she got sick.

>

> Does anyone know why the runny nose after DMSA?

>

> -- In

> <mailto: %40>, DavAliNee@... wrote:

> >

> > so funny, we began dmsa chelation with my son on fri eve and he has

> a runny nose today and I have been asking myself the same question?

> Most likely my little guy has his sister's cold. But I can't help

> wondering if this is yeast related because every single time I have

> added or removed a food, changed a supplement...my son responds with

> mucus initially. Good luck with chelation, Alison M

> > -------------- Original message ----------------------

> > From: " pjthreeboys " <patricia@...>

> > > Hi - does anyone know if DMSA chelation will help with hypotonia

> (poor muscle

> > > tone)/late

> > > walking in a toddler? Or is ALA required to address this?

> > >

> > > We just finished our first round of DMSA every 4 hours; he seems

> to be making

> > > more sounds

> > > and eye contact but has a terrible runny nose now. Not sure if

> it's a yeast

> > > symptom or an

> > > actual nasal issue. Anyone else experience this? He's getting

> zinc, C and B

> > > vits and cod liver

> > > oil.

> > >

> > > Thanks!

> > >

> > >

> > > ------------------------------------

> > >

> > > =======================================================

> > >

[Guest guest]

can I ask how you dosed this? My 4 year old son is 40 lbs and has this

issue. Chelation is helping with most things but muscle tone is still

holding him back.

thanks

Kes

>

> Sea salt helped with hypotonia in my kids. I haven't chelated either

> one of them but they no longer have hypotonia.

>

> Michele

> http://www.healthgazelle.org

> http://www.kidslikemine.org

> http://www.solanorail.org

>

[Guest guest]

>

> can I ask how you dosed this? My 4 year old son is 40 lbs and has this

> issue. Chelation is helping with most things but muscle tone is still

> holding him back.

> thanks

> Kes

Our method had been to consume as much as we craved and take more

healthy fats (coconut oil, organic butter or olive oil) with carbs or

glyconutrients when we felt we needed more but couldn't tolerate it.

When I clearly need more sea salt and can't force myself to take more

with water, that's when I make something like mashed potatoes with sea

salt and organic butter. I have similar good results with organic

noodles cooked with sea salt and fried in organic butter or served

with olive oil, spices and Parmesan cheese.

Michele

http://www.healthgazelle.org

http://www.kidslikemine.org

http://www.solanorail.org

[Guest guest]

My daughter was dx with hypotonia of the small muscles in her feet

today. It is affecting her fast walking/running gait. No other

hypotonia, no other gross motor issues, no fine motor issues yet. The

PT recommended orthodic braces. Anyone else have an apraxic child with

hypotonia of the feet? I have heard of hypotonia of the truck/core

muscles as it relates to apraxia. But of the feet only?

Thanks.

[Guest guest]

Hi -

Hypotonia can affect any, or all, muscle groups.  Josh has/had global hypotonia,

predominantly in the trunk and limbs.  But, because his ankles were so weak, he

wore orthotics for a couple of years.  The DAFOs did wonders, although now that

he's in Special Olympics and is doing more athletically, he has managed to break

his left foot last spring (in gymnastics) and had a " doozie " of a sprain of the

right ankle just before Thanksgiving.  We have been followed by an orthopedist

at Shriner's and I'm tempted to ask him about going back to orthotics (maybe) -

we'll see.  Josh's feet were splayed outward because of the low tone in the

limbs/ankles when he was younger but it has gotten much better over time and PT,

although I've noticed since the sprain his right foot is back to going out a

bit more.  The Shriner's folks told us years ago they wanted to monitor Josh's

hips because of the angle of the legs due to the hypotonia ( " if the hips turn,

we can

always break them and reset them " YIKES!!!! fortunately, that hasn't been

necessary!!).  Josh's feet have also gone from having an arch to

being almost totally flat-footed due to the muscle tone issues.  So, my

suggestion, go with the orthotics after a long discussion with an orthopedist -

some find them helpful, some don't (as it turns out, the orthopedic doc at

Shriner's was of the 'doesn't help' ilk - we had used the DAFOs on the advice of

a PT when Josh was younger than when we started at Shriners).

Sherry 

________________________________

From: jenfromcinci2 <jenfromcinci@...>

Sent: Wednesday, January 7, 2009 12:41:14 PM

Subject: [ ] hypotonia

My daughter was dx with hypotonia of the small muscles in her feet

today. It is affecting her fast walking/running gait. No other

hypotonia, no other gross motor issues, no fine motor issues yet. The

PT recommended orthodic braces. Anyone else have an apraxic child with

hypotonia of the feet? I have heard of hypotonia of the truck/core

muscles as it relates to apraxia. But of the feet only?

Thanks.

[Guest guest]

I would say yes, ask for an ortho consult if your ped feels one is necessary. 

Your ped may have an opinion on orthotics as well.  Josh started wearing his

DAFOs when he was about 2 yo and wore them for about 2 years.  He stopped

wearing them just about the time we started seeing the ortho doc at Shriners and

said they obviously did no harm but he felt that he could have been OK without

them as well.  Who knows??  Josh has hypotonia, sensory issues, global

dyspraxia, and, of course, verbal and oral apraxia.

Sherry

________________________________

From: jennifer fisher <jenfromcinci@...>

Sent: Wednesday, January 7, 2009 3:44:00 PM

Subject: Re: [ ] hypotonia

 

Sherry, thank you for the info.  Sophia has not seen an orthopedic yet.  Should

I ask for an ortho consult?  The PT gave us exercises to do at home.  She did

not feel Sophia needed scheduled PT.  The PT consult was through Help Me Grow

(our early intervention program)  Since that does not go through insurance, I

can still ask for a PT eval through our children's hospital if I need to. 

Sophia's hypotonia was rated as moderate.  Sophia has not had other motor issues

(other than talking) so this part is new to me.  She is 32 months.

From: sherry silvern <srsilvern (DOT) com>

Subject: Re: [childrensapraxiane t] hypotonia

@groups. com

Date: Wednesday, January 7, 2009, 2:34 PM

Hi -

Hypotonia can affect any, or all, muscle groups.  Josh has/had global hypotonia,

predominantly in the trunk and limbs.  But, because his ankles were so weak, he

wore orthotics for a couple of years.  The DAFOs did wonders, although now that

he's in Special Olympics and is doing more athletically, he has managed to break

his left foot last spring (in gymnastics) and had a " doozie " of a sprain of the

right ankle just before Thanksgiving.  We have been followed by an orthopedist

at Shriner's and I'm tempted to ask him about going back to orthotics (maybe) -

we'll see.  Josh's feet were splayed outward because of the low tone in the

limbs/ankles when he was younger but it has gotten much better over time and PT,

although I've noticed since the sprain his right foot is back to going out a

bit more.  The Shriner's folks told us years ago they wanted to monitor Josh's

hips because of the angle of the legs due to the hypotonia ( " if the hips turn,

we can

always break them and reset them " YIKES!!!! fortunately, that hasn't been

necessary!!) .  Josh's feet have also gone from having an arch to

being almost totally flat-footed due to the muscle tone issues.  So, my

suggestion, go with the orthotics after a long discussion with an orthopedist -

some find them helpful, some don't (as it turns out, the orthopedic doc at

Shriner's was of the 'doesn't help' ilk - we had used the DAFOs on the advice of

a PT when Josh was younger than when we started at Shriners).

Sherry 

____________ _________ _________ __

From: jenfromcinci2 <jenfromcinci>

@groups. com

Sent: Wednesday, January 7, 2009 12:41:14 PM

Subject: [childrensapraxiane t] hypotonia

My daughter was dx with hypotonia of the small muscles in her feet

today. It is affecting her fast walking/running gait. No other

hypotonia, no other gross motor issues, no fine motor issues yet. The

PT recommended orthodic braces. Anyone else have an apraxic child with

hypotonia of the feet? I have heard of hypotonia of the truck/core

muscles as it relates to apraxia. But of the feet only?

Thanks.

[Guest guest]

 I have been addressing my child's hypotonia with mitochondrial cocktail (Kerb's

Cycle) and have had great results, he is getting stronger, active and

coordinated... I have also been addressing circulatory system to help with the

uptake of oxygen!!!

Love, Gabby. :0)

http://stemcellforautism.blogspot.com/

 

" I know of nobody who is purely Autistic or purely neurotypical. Even God had

some Autistic moments, which is why the planets all spin. " ~ Jerry Newport

 

 

[Guest guest]

How, Gabby?  We have major low muscle tone.

 

Dana

[Guest guest]

Here's one of the only known ways that I know of in clinical studies

has shown to help with hyptonia (hint -EFAs!!)

Archive:

Re: apraxia w/hypotonia & EFA?

If you study the work of Dr. ez -EFAs do appear to help with

hypotonia.

The muscles when depleted of DHA have a hypotonic state.

Just two links of hers -but great work/great sites

http://www.martinezfoundation.com/Community/mwulfen.aspx

http://www.momtahan.com/mmartinez/

How old is your daughter? Is there an MD you can take her to that

is more aggressive on multisensory therapists and conservative on

medications? She's on both Adderall and mirtazapine, so who knows

how that plays with the EFAs.

As far as the " mirtazapine ,generic of remeron " I'm sure you are

sure of the warnings:

http://www.fda.gov/cder/drug/InfoSheets/HCP/mirtazapineHCP.htm

and it's not approved for use in children

http://www.rxlist.com/cgi/generic/mirtaz.htm

As a member who has been here for at least a few months -you have to

know that my son Dakota was also supposed to go onto Adderall and

the mix of the ProEFA and ProEPA has kept him medication free thus

far (he'll be going into 7th grade next year I can't believe it!!)

As far as orphanages go -my mom and Aunt Leona were raised till they

were adults in one and it was during the depression and it was horrible,

but both turned out fine with no medications either. I'm not saying

that your child doesn't need them -but like I posted about

constipation -it took Dr. hours to talk to me about Tanner and

help me to help him in a non medicine way where it would have taken

him 15 minutes to write a prescription. Medicine is not the answer

for everything -especially in very young children and especially

when it's interfering with their progress, and may have severe side

effects. Why that when the EFAs alone 'may' be all your child

needs. Have you read The Omega 3 Connection by Dr. Stoll?

When you say you took your child to a psycytrist -did you mean a

psychiatrist? Have you also taken your child to a pediatric

neurologist or developmental pediatrician? It appears your child is

dealing with both psychological as well as neurological conditions

and it may be best to have both approaches. (and again with MDs

that choose medications only after all other options are not

working. Perhaps that's the case with your child?)

BTW -my Aunt Leona who grew up in an orphanage has her PhD in

nursing and is someone I can put you in touch with who probably has

suggestions for your child. She is a warm and amazing individual -

and...a certified genius too!

=====