from another digest

[Guest guest]

Erma love this too thanks

Kate

>

> love this..

> Posted by: " thmsrav " thmsrav@... thmsrav

> Mon Sep 8, 2008 8:37 am (PDT)

> WHO MOTHERS THE CHILDERN WITH DISABILITIES

>

> Body:

>

> This year, nearly 100,000 women will become mothers of children

with

> disabilities. Did you ever wonder how mothers of children with

disabilities

> are chosen?

>

> Somehow I visualize God hovering over the earth selecting His

instruments of

> propagation with great care and deliberation. As He observes, He

instructs

> his angels to make notes in a giant ledger.

>

> Finally, He passes a name to a angel and smiles, " Give her a child

with a

> disability. "

>

> The angel is curious, " Why, this one, God? She's so happy. "

Exactly smiles

> God.

>

> " Could I give a child with a disability to a mother who does not

know

> laughter? That would be cruel. " But has she patience? " asks the

angel.

>

> " I don't want her to have to much patience or she will drown in a

sea of

> self-pity and despair. Once the shock and resentment wear off,

she'll handle

> it.

>

> " I watched her today. She has that feeling of self and

independence that is

> so rare and so necessary in a mother. You see, the child I'm going

to give

> her has his own world. She has to make him live in her world and

that's not

> going to be easy " .

>

> " But Lord, I don't think she even believes in you. " God smiles, "

No matter,

> I can fix that.

>

> This one is perfect. She has just enough selfishness.

>

> The angel gasps, " Selfishness? Is that virtue? " God nods. " If she

can't

> separate herself from the child occasinally, she'll never survive.

Yes..

> here is a woman whom I will bless with a child less perfect. She

doesn't

> realize it yet, but she is to be envied. She will never take for

granted a

> 'spoken word.' She will never consider a 'step' ordinary. When her

child

> says " Momma " for the first time she will be present at the

miracle and

> know it!

>

> When she describes a tree to her blind child, she will see it as

few people

> ever see my creation.

>

> " I will permit her to see clearly the things I see...ignorance,

cruelty,

> prejudice.. and allow her to rise above them. She will never be

alone. I

> will be at her side every minute of her life becasue she is doing

my work as

> surley as she is here by my side "

>

> Erma Bombeck

>

> This was passed to me and I just had to post it to all the mothers

out here

> with special children. It made me feel better an I hope it does

for you.

>

[Guest guest]

NY Performance of 'Inside/Out..voices from a disability commun

Posted by: " Trisha " trishakittentdp@... trishakittentdp

Tue Jan 27, 2009 5:59 am (PST)

I have posted this email here so that others can see it. I hope that

some of you are interested in it and can attend.

~~Trisha Preston

Mom of Adam (13 w/ AS, SPD, Dyslexia and Dysgraphia)

and (11 w/ Moebius & SPD)

This email is being sent to those on the Moebius Syndrome Foundation

mailing list in NY, NJ, and CT. The same information has been added to

the 'News & Events' section of the website at www.moebiussyndrome.com.

Best wishes,

Marcia Abbott, Secretary

Moebius Syndrome Foundation

Inside/Out: Voices from the Disability Community

Ping Chong & Company's Inside/Out...voices from the disability community

will be performed in New York City on March 20 and March 21, 2009. In

April it will be performed at LaGuardia College. This remarkable

performance is about disabilities performed by people with disabilities.

Joffe, the vice president of the Moebius Syndrome Foundation, is

one of the actors in the play. Tickets can now be purchased for the

performances in March from www.ticketweb.com or by calling 212 556-4300.

More Information:

The remarkable performance of Inside/Out...voices from the disability

community first took place at the Kennedy Center in Washington, D.C. in

June 2008. There now will be several performances in New York City.

The performances will take place at 7:30 pm at the TimesCenter Stage,

242 West 41st St (between 7th and 8th Avenues) on Friday March 20 and

Saturday March 21, 2009. For tickets, go to www.ticketweb.com or call

212 556-4300.

Joffe, vice president of the Moebius Syndrome Foundation, is one

of the performers in this play by Ping Chong and Company, in conjunction

with Very Special Arts (VSA). This play is about disabilities, starring

people with disabilities. Read 's article about his experience

being selected and in performing in Inside/Out:...voices from the

disability community in the Summer 2008 Moebius Syndrome Newsletter.

More information on Ping Chong and his work is found at

www.pingchong.org.