Re: no progress on fish oil/vit e, am i doing it right?

[Guest guest]

I am sure you will get other thoughtful posts but it seems like your

child is a " non-responder " .

My child's speech does not improve on fish oils and Vitamin E. My

child does not regress when he is off the oils. The only effect my

son got was loose stools! He also was more emotional when we

initially started the Vitamin E but that went away after a month.

Again his speech did not improve.

I am lucky to have a pediatrician who is very open minded. I brought

notes from this group to her and my son was on high doses of

fish oils for ten months under her supervision. She agrees with me

that he is a non-responder.

I continue to give my son fish oil because his pediatrician

recommends them but not at such high doses.

>

> my son is not speaking or babbling yet but i am wondering if i am

doing

> things incorrectly.

>

> i give 1 EFA/2EPA/high gamma e ON HIS PANCAKES in the am along with

> UDO's 3/6/9 oil. am i messing up the ratio and is squeezing them

onto

> food ok?

>

> i then give him 1EFA/2EPA (nordic naturals) on lunch food. should i

> also give high gamma e?

>

> i do the same at dinner so right now he is only getting 1 high

gamma e

> capsule (300 or 400 iu i think).

>

> no increase in babble, appetite seems off or less. should i

increase E

> and take away Udo oil?

>

> its been about 2 weeks so far.

>

> thanks for any advice, marcia

>

[Guest guest]

Thanks Deb,

Just saw this and wanted to jump in...it's true as Deb says that he

may be a non responder -but Marcia you first have to get him on the

correct dosage.

1 ProEFA and 2 ProEPA and way too high in pure Omega 3 -not enough

GLA even though you have super high EPA. You want to use

2 ProEFA and 1 ProEPA. Stop the udos -it's overkill.

Yes it's OK to add to food -you just don't want to cook with it.

Switch that around and then let us know!

(almost all are responders -so must be that!)

=====

[Guest guest]

,

If my son was on two Pro EFAs and one Pro EPA three times a day and

his speech didn't improve then he's a non-responder? I just wanted to

make sure I tried the dosage that works with many children.

I also did the Vitamin E (High Gamma from Vitamin World). My son was

emotional at first but then it subsided. Again no speech gains.

The only effect noted was loose stools immediately remedied with a

reduction in doses.

>

> Thanks Deb,

>

> Just saw this and wanted to jump in...it's true as Deb says that he

> may be a non responder -but Marcia you first have to get him on the

> correct dosage.

>

> 1 ProEFA and 2 ProEPA and way too high in pure Omega 3 -not enough

> GLA even though you have super high EPA. You want to use

>

> 2 ProEFA and 1 ProEPA. Stop the udos -it's overkill.

>

> Yes it's OK to add to food -you just don't want to cook with it.

> Switch that around and then let us know!

>

> (almost all are responders -so must be that!)

>

> =====

>

[Guest guest]

Every kid is different - I don't believe in " one size fits all "

solutions for complex disorders like apraxia. I don't use the same

fish oil brand, but when my daughter's apraxia was the worst, I was

giving her 6 caps of omega-brite a day. I never gave her vit E until

after her apraxia resolved, but I do think many are deficient and it

is healthy to give. You might not be giving a high enough dose for

*your child*, or he might need other things to go along with it. With

a disorder like this, I think it's important to focus not only on

immediate results, but also on rebuilding health and making sure your

child doesn't have nutritional deficiencies.

Have you tried carnosine/carnaware? Carnaware and essential GSH

(wellnesshealth.com) were the most important supplements we gave my

daughter as far as impacting language. B12 injections were very

helpful as well.

>

> my son is not speaking or babbling yet but i am wondering if i am doing

> things incorrectly.

>

> i give 1 EFA/2EPA/high gamma e ON HIS PANCAKES in the am along with

> UDO's 3/6/9 oil. am i messing up the ratio and is squeezing them onto

> food ok?

>

> i then give him 1EFA/2EPA (nordic naturals) on lunch food. should i

> also give high gamma e?

>

> i do the same at dinner so right now he is only getting 1 high gamma e

> capsule (300 or 400 iu i think).

>

> no increase in babble, appetite seems off or less. should i increase E

> and take away Udo oil?

>

> its been about 2 weeks so far.

>

> thanks for any advice, marcia

>

[Guest guest]

My son has 2efa 2epa in the morning he drinks them fine, When he gets

home from school and gets 2efa 1epa, he has done quite well. How

old/big is your son that can change how much you may want to give and

also how quickly he is going to respond. My son just turned 4 and is

the size of a 5year old.

My son was a little pickier about his diet for about 2 weeks, but he

is back to himself.

Look at some of those things and see if it doesn't help you to adjust

accordingly.

good luck!

CeCelia

[Guest guest]

> Every kid is different - I don't believe in " one size fits all "

Thank you for sharing but we have learned over time that name brand

doesn't matter -but in fact dosage, formula and quality of oils do

matter and for most of us it is a one size fits all. Even on just

one capsule of ProEFA which is all we did as a group for years (and

all some of you still do) we saw surges in a day to three weeks

almost across the board. I can list what you'll see when because it

does appear to be the same in most. Perhaps Omega brite has a

similar formula today but back when I first spoke to Dr. Stoll

and his formula first came out I believe it was pure Omega 3...and we

know (as a group) that didn't work so we never worked with that

formula. From when I checked now it does appear to contain as well

today a small amount of GLA which is probably why it's working

for your child. So you kind of are using our one size fits all formula.

When it comes to fish oils in this group we provide information about

what has helped the majority for years. It has been written up in

The Late Talker book, Contemporary Pediatrics, professional anecdotal

reports as well as Dr. ' abstract. Of course there are

exceptions to every rule -but exceptions are the minority. If your

child is an exception it doesn't mean things won't work -but that's

when you may have to do more ST or explore more complex and in many

cases more expensive biomedical and other routes - if the basics of

OT, ST and EFAs and E don't work. (guess to someone new that doesn't

look that basic -but it is)

I just posted about Tina's situation and sent out her first message

to this group. I should have mentioned that Landon is only 4 and

presenting as " normal " and all he ever got was speech therapy and

EFAs and vitamin E. If that's the case and that's all a child needs

to find his voice -that's incredible news! And right now at least

Tina has that good news.

=====

[Guest guest]

Fish oil is not what made the big difference for my kid, and we first

tried the brand/dose that was recommended here. We switched to

omega-brite since my kids could not tolerate flavoring (omega-brite is

fairly similar in composition). Carnosine and essential GSH (an oral,

liposomal form of glutathione) made a much bigger difference in my

child's language - we got big surges off those two. We never got a

surge from fish oil (or actually any significant change). My child no

longer has apraxia.

What do you mean when you say that your dosing and formula works for

the majority? How big is your random sample and how was the study

done? By saying that this supplement alone works for everyone, you are

discouraging a lot of parents who haven't had your results. I do not

believe that fish oil alone gets rid of apraxia, and there are

definitely other supplements worth trying.

>

> > Every kid is different - I don't believe in " one size fits all "

>

>

> Thank you for sharing but we have learned over time that name brand

> doesn't matter -but in fact dosage, formula and quality of oils do

> matter and for most of us it is a one size fits all. Even on just

> one capsule of ProEFA which is all we did as a group for years (and

> all some of you still do) we saw surges in a day to three weeks

> almost across the board. I can list what you'll see when because it

> does appear to be the same in most. Perhaps Omega brite has a

> similar formula today but back when I first spoke to Dr. Stoll

> and his formula first came out I believe it was pure Omega 3...and we

> know (as a group) that didn't work so we never worked with that

> formula. From when I checked now it does appear to contain as well

> today a small amount of GLA which is probably why it's working

> for your child. So you kind of are using our one size fits all formula.

>

> When it comes to fish oils in this group we provide information about

> what has helped the majority for years. It has been written up in

> The Late Talker book, Contemporary Pediatrics, professional anecdotal

> reports as well as Dr. ' abstract. Of course there are

> exceptions to every rule -but exceptions are the minority. If your

> child is an exception it doesn't mean things won't work -but that's

> when you may have to do more ST or explore more complex and in many

> cases more expensive biomedical and other routes - if the basics of

> OT, ST and EFAs and E don't work. (guess to someone new that doesn't

> look that basic -but it is)

>

> I just posted about Tina's situation and sent out her first message

> to this group. I should have mentioned that Landon is only 4 and

> presenting as " normal " and all he ever got was speech therapy and

> EFAs and vitamin E. If that's the case and that's all a child needs

> to find his voice -that's incredible news! And right now at least

> Tina has that good news.

>

> =====

>

[Guest guest]

I have a few thaughts and suggestions. First off, you didn't mention

your sons age. And when I read the post, my first thaught was how

the heck is she getting all that fish on into the child via putting

it on food? Does he really gobble up the entire meal? My guess,

probably not, so then much of your fish oil is going down the

disposal???

Please give this a try - Get one of those syringe type medicine

dispensers. They are plastic and have a removable blue bulb top.

Clip your oil capsule (caps have been found to be more stable) and

squeeze the caps into the syring. I would do 2 efa/1 epa 2 times a

day and then ramp up to 3 times a day. I also added the e in - but I

started with the fish oil first, waited about 3 weeks - observed.

Then add in the E.

If done this way you know your child is getting the entire dose. You

will be surprised how adaptable the kids are to this method. While

he's eating his meal- just prepare the syringe and zip up around back

of him and slowly squirt the tube into this mouth - aim for the

sides. Squirt slowly - so he doesn't choke. '

Give this a few months - in my case, it was not fast and furious - it

was slow. The root of my sons problems was/is heavy metal toxicity -

and to this day - mainstream Docs look at me crossed eyed. They are

not being trained, unfortunate but true. ANd there is no way a 15

minute Ped apt is going to either pick it up much less address these

issues. You need a specialist - and I always suggest a DAN Dr. They

reveiw the childs entire history - usually in book format - and give

you one to two hours and then followups are pro rated. likes to

insist this is the " expensive " route however I respectfully

disagree. A Ped sees 4 to 6 patients in an hour - ex. 6 x $65.00 =

390.00 per hour. The Ped is not trained in the childhood epidemics -

their continuing education is filtered through conventional channels -

filtered being the operative word. Unless they take the initiative,

and 98% of them don't - they are missing the mark 98% of the time.

So, ultimately you get a ticket to special ed, and lots of top down

therapy.

Call me crazy - but I'd rather hire a specialist who is going to give

me an hour or two and is indeed interested in every quirk and detail

(250. - 400. per hour) - someone who is focusing on the current

childhood epidemics 24/7 - someone who only sees kids with add/hd,

asthma, allergies, apraxia, autism, develomental delays and related

disorders. Someone who not only knows what labs are going to

identify your childs specific needs but can actually interpret them

in the proper context. And then, finally - a DAN! will outline a

program that simply address' your childs needs using pharmaceuticals

as a last resort.

I've wasted more time and money in the conventional circle - every

penny spent with DAN! is worth it.

My comments are based on my experience - I have a recovering child

who would not be near where he is today had I kept circulating

conventional channels. So, I drive a paid for car - and pay for my

precious DAN! who is helping me recover my boy.

I hope this helps.

>

> my son is not speaking or babbling yet but i am wondering if i am

doing

> things incorrectly.

>

> i give 1 EFA/2EPA/high gamma e ON HIS PANCAKES in the am along with

> UDO's 3/6/9 oil. am i messing up the ratio and is squeezing them

onto

> food ok?

>

> i then give him 1EFA/2EPA (nordic naturals) on lunch food. should i

> also give high gamma e?

>

> i do the same at dinner so right now he is only getting 1 high

gamma e

> capsule (300 or 400 iu i think).

>

> no increase in babble, appetite seems off or less. should i

increase E

> and take away Udo oil?

>

> its been about 2 weeks so far.

>

> thanks for any advice, marcia

>

[Guest guest]

thanks! i was actually doing the right way 2efa, 1epa. just checked!

should i add more vit e as we do 3 doses a day of the fish oil. i

will stop the udo oil, maybe he needs more time. thanks marcia---

In , " kiddietalk " <kiddietalk@...>

wrote:

>

> Thanks Deb,

>

> Just saw this and wanted to jump in...it's true as Deb says that he

> may be a non responder -but Marcia you first have to get him on the

> correct dosage.

>

> 1 ProEFA and 2 ProEPA and way too high in pure Omega 3 -not enough

> GLA even though you have super high EPA. You want to use

>

> 2 ProEFA and 1 ProEPA. Stop the udos -it's overkill.

>

> Yes it's OK to add to food -you just don't want to cook with it.

> Switch that around and then let us know!

>

> (almost all are responders -so must be that!)

>

> =====

>