Response to posts about MR and lame comment from our O.T.

[Guest guest]

Hi everyone,

I've been reading thru the posts the past couple days about labeling

and the " mental retardation " thing. And I've also seen posts of

members who have left this group either: (1) because they didn't feel

welcome or (2) because they couldn't handle the fighting amongst

members. Just a few thoughts and questions for you:

(1) I hope that this group being " mostly " devoted to apraxia can be

welcoming to us moms whose kids are multi-dimensional in their

issues. (Mine being dyspraxic, apraxic, low tone and possibly ADP.)

Otherwise the description of the group should say that this group is

only for apraxic kids with no other issues. After all we've been

through I can't handle any more rejection (and I can't imagine that

any of the members of this board would do that as you've already been

helpful to us the past couple weeks!)

(2) Given my son's issues .... we are just not sure whether there is

any sort of cognitive impairment. He's a mystery to us and everyone

else. He's consistently inconsistent? (Anyone have any thoughts on

that?)

(3) After reading the most recent report written by my son's EI OT

and EI PT (who work at the same place and see Owen back to back)....

I challenged the OT as to why he showed Owen still at an 18 month

level in his fine motor and why he had goals in his report all

as " unmet " and goals that he didn't discuss with me (eating more

vegetables? beginning to potty train?) He couldn't really answer me

except to say, " There's only so much I can do with your cognitively

impaired child. " So my question to all of you amazing, advocating

moms is.....what would you do with that? (We are already on the side

taking steps with regards to seeing a pediatric neurologist,

bloodwork, MRI, check for lead and mercury, etc.)

I knew that the comment was possible only the beginning. And made me

feel like I'm standing in the gap between reality and hope....

Warmly,

Mom of Owen, 33 months