Re: Question for re: Fish Oil

[Guest guest]

I will chime in to say that at three doses a day my son had very loose

stools so we knew to reduce it back to twice a day! (At twice a day he

has normal stools. Now he is also taking Levocarn once a day. Twice a

day gives him loose stools so maybe it plus the fish oils is what had

the effect on my son.)

>

> , I have a couple of questions for you. It is probably in the

archives, but you are better

> searching them than I will ever be!! My first question is: I read

that some have gone with 2

> ProEFA and 1 ProEPA up to three times a day. Did you personally ever

go higher than than, or

> is that considered the " safe " limit. Second, I believe I read (and I

could be wrong!) that at one

> point you were at a higher dose with Tanner and then reduced to a

lower dose re: the fish oil.

> Is that true, and if so, how did you know when to lower the dose?

Thanks for the advice!!!

> Anyone else who wants to chime in, feel free!

>

[Guest guest]

Thanks for chiming in!

I am trying to figure out a few things about " responders. " I would say that the

fish oil

definitely helped my daughters speech. However, it is still not perfect and we

are doing

lots of therapy. I am thinking this is " typical? " -- that is, fish oil alone

isn't solving the

problem -- you still need therapy, right?

Also, we just had my daughter evaluated by a new SLP who told me that she didn't

think

my daughter was presenting as apraxic. I think she is apraxic, but is

presenting differently

because of the fish oil. Does that sound possible? (Her earlier speech

therapists said she

was apraxic, and she has been in therapy for years (!), so I don't believe it

could possibly

be a phonological disorder.)

> >

> > , I have a couple of questions for you. It is probably in the

> archives, but you are better

> > searching them than I will ever be!! My first question is: I read

> that some have gone with 2

> > ProEFA and 1 ProEPA up to three times a day. Did you personally ever

> go higher than than, or

> > is that considered the " safe " limit. Second, I believe I read (and I

> could be wrong!) that at one

> > point you were at a higher dose with Tanner and then reduced to a

> lower dose re: the fish oil.

> > Is that true, and if so, how did you know when to lower the dose?

> Thanks for the advice!!!

> > Anyone else who wants to chime in, feel free!

> >

>

[Guest guest]

My son is at a point where his new school SLP said she would have never

thought apraxia after just meeting him, but with the testing he had two

years ago and repeated last fall it is clear to her that he has apraxia -

it's just resolving! And she sees little things that she feels are part

of his apraxia, but she honestly said she probably wouldn't have realized

that was what it was had the previous report not stated apraxia.

Miche

On Fri, Mar 7, 2008 at 10:43 AM, emonline2000 <emonline2000@...>

wrote:

> Also, we just had my daughter evaluated by a new SLP who told me that

> she didn't think

> my daughter was presenting as apraxic. I think she is apraxic, but is

> presenting differently

> because of the fish oil. Does that sound possible? (Her earlier speech

> therapists said she

> was apraxic, and she has been in therapy for years (!), so I don't believe

> it could possibly

> be a phonological disorder.)

>

[Guest guest]

Hi :

My son was diagnosed with verbal apraxia and after being on fish oil

he no longer presents apraxic to the therapist either. He still has

trouble with articulation for some of the harder sounds, but he

blends in with the other children he goes to school with-3 day

program. A couple of weeks ago the therapist evaluated him using the

Kaufman Praxis test, and it showed that he has a problem with

stridency deletion which is a phonological error. His is out of

habit though so it isn't a real phonological error, but more of

description of the problem he is having. This is what both his

therapist has said about it.

Is your child on Vitamin E? That has helped my son with

articulation. In the link section there is a folder on Vitamin E

filled with lots of archived messages from and other

informative links you might want to read through. Here is the link

if you are reading through email.

/links

Hope this helps,

Tina

> > >

> > > , I have a couple of questions for you. It is probably in

the

> > archives, but you are better

> > > searching them than I will ever be!! My first question is: I

read

> > that some have gone with 2

> > > ProEFA and 1 ProEPA up to three times a day. Did you

personally ever

> > go higher than than, or

> > > is that considered the " safe " limit. Second, I believe I read

(and I

> > could be wrong!) that at one

> > > point you were at a higher dose with Tanner and then reduced to

a

> > lower dose re: the fish oil.

> > > Is that true, and if so, how did you know when to lower the

dose?

> > Thanks for the advice!!!

> > > Anyone else who wants to chime in, feel free!

> > >

> >

>

[Guest guest]

Once on EFAs a child with apraxia does not present as classic

apraxia -but they don't present as normal in regards to speech

development either. Besides most still have the subtle soft signs

even though they even become less obvious.

The first time Tanner was taped for the Talking Page for example was

8 months after he was on EFAs and doing amazing!

http://www.debtsmart.net/talk/tanner.html

For Tanner we never went up past the 6 capsules a day I don't think.

But Tanner also takes 4 400mg alpha gamma natural vitamin E each day

too. My son Dakota is on 10 a day -5 ProEFA and 5 ProEPA.

I used to say to take your child for a neurodevelopmental exam prior

to EFA supplementation because some of the soft signs fade or go

away. Many with children diagnosed with PDD no longer present with

PDD and the parents are upset about the misdiagnosis -but we don't

know if it was a misdiagnosis -or if or how the EFAs appear to help

the brain rewire. For those that live in areas where there are many

other children diagnosed with apraxia around you and have seen

numerous knowledgeable professionals who diagnosed your child as

apraxic prior to EFAs -who no longer presents as classic apraxic -

then you'll know the original diagnosis was not a misdiagnosis.

Other than that you'll just wonder. But for each one of us as

parents does it really matter as long as our child is talking and

doing great?! I mean I know it does for research -and so that new

parents don't believe that they have to do so much more other than

therapy and EFAs (and vitamin E) But below are some archives on this

topic. There are many many more from parents who used to post but

who have children that present as normal today -mainstreamed in

school and life!

--- Here's some of the archives on this:

>

> " He can say many words now and tries to immitate everything he

hears

> (dangerous! ) "

> Dangerous but wonderful! :-) is fond of saying " Shoot! "

and

> " Stop it! " and " Thank you much! " and " So cute! " Adorable (and we

are so

> GRATEFUL and THRILLED about it).

>

> " He has even learned to approximate armadillo! (ah

> ma di LO) FOUR syllables, yippee!! "

> LOVE it! is saying " alligator " and " broccoli " :-).

>

> " His speech therapists also say

> he doesn't present as apraxic anymore and no one is quite sure

> what's going on or how to diagnose him. "

> We are holding the apraxia diagnosis from our Developmental

> Pediatrician, as it gets us what we need at this point.

>

> " I have him on 2 Omega 3,6,9 (same as ProEFA) and 1 EPA a day. And

> of course I am going to try the vit E next. "

> Yep - we do 2 Omega 3-6-9 / 1 EPA twice a day and have just added

the E.

>

> Here's to continued improvement for all of our kids!

>

> Warm regards,

> ******************

> (Rochester, NY)

> Mom to , 3.3 years, Verbal Apraxia

> & , 1.1 years (and babbling away!)

>

>

>

> ________________________________

>

> From:

> [mailto: ] On Behalf Of

myjunkytrash

> Sent: Saturday, September 02, 2006 12:12 AM

>

> Subject: [ ] Re: Things that make you go

hmmmmm ...

>

>

>

> We are having the same experience. My son was barely verbal at 24

> mos (da da) and could not blow or move his tongue on command. Now

> he can blow bubbles, blow a horn, move his tongue laterally and

up.

> He can say many words now and tries to immitate everything he

hears

> (dangerous! ) He has even learned to approximate armadillo! (ah

> ma di LO) FOUR syllables, yippee!! His speech therapists also say

> he doesn't present as apraxic anymore and no one is quite sure

> what's going on or how to diagnose him. He's almost 29 mos now and

> I have him on 2 Omega 3,6,9 (same as ProEFA) and 1 EPA a day. And

> of course I am going to try the vit E next.

>

>

> > >

> > > > " The child on ProEFA or some other EFA formula's like it no

> > longer

> > > fits the criteria of the classic definition of apraxia -and yet

> > > doesn't fit the classic perception of what a late talker is

> > > either.. "

> > >

> > > This is very true. At a recent EI team meeting, our SLP made

the

> > > comment that, " doesn't really present as an apraxic

> child

> > any

> > > longer in many ways. She can imitate speech and her

> > intelligibility

> > is

> > > really quite good. " Our Developmental Pediatrician made a

> similar

> > > comment a few weeks ago. We are floored. "

> >

> > This is happening to us too!!!!! My son is 2.6 (30 months) and

> both

> > his speech therapist and the director of the center think he

> > might " test out " and not qualify for services with the school

> > district when he turns 3. They are also really reluctant to

> > actually label him as apraxic because he has progressed so much

so

> > fast and now presents as a kid with a mild to moderate

> phonological

> > disorder.

> >

> > From barely a dozen " words " at two along with classic oral

apraxia

> > (couldn't blow, lick, pucker, do rasberries etc.), he now is at

> > above age level both in language and cognitively. He does still

> > have significant articulation problems and some oral motor

issues,

> > but kids in our district don't normally qualify for services

based

> > on that alone. We are looking at a private preschool and private

> > speech therapy for him after he is 3. I credit the fish oil for

> > most of this (along with a great therapist and lots of

homework).

> > We started him on 1 capsule of ProEFA a day at 22 months and

added

> a

> > 2nd capsule at 27 months. I'm now trying to decide whether to

add

> 1

> > ProEPA or go with the Vitamin E instead.

> >

> > (Max's Mom)

=====

[Guest guest]

Thanks ! That all makes sense. I am not sure that the Vitamin E is really

helping us.

Anyone have success with fish oil, but not so much with Vitamin E?

We did have success with Yasoo Liquid E for some reason (but as I've said before

cautioned against it because of the PEG). Does this cancer link to Vitamin E

concern

anyone?

> > > >

> > > > > " The child on ProEFA or some other EFA formula's like it no

> > > longer

> > > > fits the criteria of the classic definition of apraxia -and yet

> > > > doesn't fit the classic perception of what a late talker is

> > > > either.. "

> > > >

> > > > This is very true. At a recent EI team meeting, our SLP made

> the

> > > > comment that, " doesn't really present as an apraxic

> > child

> > > any

> > > > longer in many ways. She can imitate speech and her

> > > intelligibility

> > > is

> > > > really quite good. " Our Developmental Pediatrician made a

> > similar

> > > > comment a few weeks ago. We are floored. "

> > >

> > > This is happening to us too!!!!! My son is 2.6 (30 months) and

> > both

> > > his speech therapist and the director of the center think he

> > > might " test out " and not qualify for services with the school

> > > district when he turns 3. They are also really reluctant to

> > > actually label him as apraxic because he has progressed so much

> so

> > > fast and now presents as a kid with a mild to moderate

> > phonological

> > > disorder.

> > >

> > > From barely a dozen " words " at two along with classic oral

> apraxia

> > > (couldn't blow, lick, pucker, do rasberries etc.), he now is at

> > > above age level both in language and cognitively. He does still

> > > have significant articulation problems and some oral motor

> issues,

> > > but kids in our district don't normally qualify for services

> based

> > > on that alone. We are looking at a private preschool and private

> > > speech therapy for him after he is 3. I credit the fish oil for

> > > most of this (along with a great therapist and lots of

> homework).

> > > We started him on 1 capsule of ProEFA a day at 22 months and

> added

> > a

> > > 2nd capsule at 27 months. I'm now trying to decide whether to

> add

> > 1

> > > ProEPA or go with the Vitamin E instead.

> > >

> > > (Max's Mom)

>

> =====

>