Guest guest Posted March 8, 2008 Report Share Posted March 8, 2008 Congrats to you both! Enjoy the trip and please do tell after:) L > > I don't check in as often as I used to but wanted to pass along some > good news. My 6dd Apraxic daughter had Hydrocephalus as a baby. She > did not require a shunt but did have four surgeries. Hydrocephalus is > defined as a Life Threatening Condition. She was dx with Mild CP when > she went into preschool, CP is a life-long condition. Last Fall I > applied to Make A Wish for her. After they got an official diagnosis > from her Neurosurgeon- they said they were coming to the house to give > Tara a Wish! That was about a month ago. They knew she had a severe > speech delay so no one knew, not even me, if she'd be able to tell > them what she wanted of if she even understood what they were asking. > Well, we all underestimated her and LOUD and clear- when they said " is > there somewhere you'd like to go? " . She said Disney! We had been > coaching her just a little on the castle and the princesses! We are > leaving Mothers Day weekend for 7days, this way I get a little credit > down there for all the work I've done with her and for her! Since I > don't get much at home! > > MAW grants wishes to Life Threatening conditions in addition to > terminal they are known for. My daughter is not in any kind of > terminal condition- far from it! > Thanks for listening all! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2008 Report Share Posted March 8, 2008 wow! Congratulations! That si great! **************It's Tax Time! Get tips, forms, and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) Quote Link to comment Share on other sites More sharing options...
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