Re: Feedback on my son's speech??

[Guest guest]

: Sounds like your little boy has many of the same characteristics as

my son. My son is 4 1/2 with the same speech pattern as you describe, he has

PDD NOS which is on the autism spectrum and apraxia. He also has great eye

contact, is social, and is just a lovely child. Autism spectrum disorders and

apraxia can sometimes go together. My son is just on fish oil right at the

moment, he has an appointment with a DAN Dr not until June, and I am going to

contact Dorfman, who is a nutritionist that many people have used and

trusted for children on the spectrum. Write with any questions. Jen

**************It's Tax Time! Get tips, forms, and advice on AOL Money &

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[Guest guest]

I don't know your entire story - but from what I read here. And if

this were my son, (mine is 5) I would absolutely get a DAN! Dr. on

board. What do you have to loose? There is an undeniable epidemic

going on - and I personally think it's better to at least rule out

than wait and hope therapy will get him on track - therapy is a band

aid (imo based on my experience).

As for the apraxia -not apraxia. Here is my opinion - Apraxia is

a " label " du jour. Who really knows, yeah, I know, I know - a

professional speech and language... bla bla bla. Done that, been

there. It really doesn't matter, what I found was one will say yep,

that's apraxia and then 3 months down the road that label du jour

doesn't fit anymore.

I will tell you about my sons speech/language. babbled, jargon,

advanced jargon, words emerged - introduced milk- no words, super

advanced jargon. Health went down the tubes - then got tubes. Got

Apraxia dx - started full out biomed including omegas - didn't fit

apraxia dx within 3 mos.

This is a clue - if your child is responding to omega's - huge clue

to learn more about WHY.

Therapy provides a stimulus. But, the source is still there - and

will stay there until you go after the source of the problem.

Finally, in the end, when I started to see the light - my son is

mercury and lead toxic. And as a result of that - immunity

dysfunction, mitochondrial disease, metabolic dysfunction... with the

addition of biomeds/DAN/hyperbarics/diet/chelation... his

delays/issues/apraxia all slipping away. I don't do therapy anymore

because his Montessori school is " therapy " - if you watch an OT work -

it's pretty darn close to the Montessori model - and that's all day

vs. 30 minutes.

It's like peeling an onion - and it's largely done by you - MOM. You

have to read the books, see the appropriate MD/s, and get help from

other Mom's who walked the path before you. I suggest lurking on the

chelatingkids2 group.

Keep your eyes on the prize - and recover your boy.

>

> Hi Everyone,

> Since you are all so much more versed on apraxia than I am yet as I

> still feel like a newbie here....was wondering if anyone would be

> willing to give me your thoughts on my son's speech. Does this

sound

> like classic Apraxia? Or does Apraxia look different in different

kids?

>

> My son Owen (almost 34 months old) had great consonant-vowel

babbling

> at 6 months old. That continued for quite some time. Past 1 year

old,

> we'd hear a word here or there but then not hear it again. By 2

years

> old had had like 5-10 words that he consisently used, along with

the

> words and short phrases we'd hear and then not hear again. By 2

1/2

> years old, his language starting coming, but VERY slow progress.

The

> main progress is that he'll attempt just about anything, but with

> prompting. His spontaneous language is sometimes there, and

sometimes

> not there as much. (Side note: I finally acknowledged to myself

that

> he does a form of " stimming " and has done it as long as I can

> remember. It's a cross between a hum and a grunt. So he does that

> when he's playing instead of using language. That's one of his

> overlapping signs of autism, but then there are other signs of

autism

> that he doesn't have. i.e. He's very social and has good eye

> contact.) He has good language days and other days when he's more

> quiet and making that noise I mentioned above. His longest

sentence

> has been 4 or 5 words and is basically just the " I want _____ " type

of

> sentence. In addition to all of this, he does these longer

> jargon/babble type of sentences where some of the sentence has

words we

> understand, but the rest makes no sense.

>

> So what do you think? What does this sound like to all you expert

> moms? Yes, he's in speech 2x per week, but we're approved for 3x

per

> week ....it's just that the speech place doesn't always have the

3rd

> hour open. We basically wait for a cancellation to get the 3rd

hour.

> Have him on 4 Omega 3-6-9 capsules(isn't that the same as ProEPA

> ?), along with 2 ProEFA capsules, along with Vitamin E 400 IU of

> the " natural " kind.

>

> Thanks for any thoughts on Owen's speech!

>

> Warmly,

> in CA

>

[Guest guest]

I can only tell you what we saw: Late walking (18.5 mos). First word

the same day. Neurology could never tell us why the speech was

lagging. Words came slowly and intermittently from 18.5-21 mos and

gone after that...6 shots during those three months. Age 2 we got

first phrse " I knee hat " It was I need that and he was pinting to

yogurt. It was breathy. A few new words. Intermittent progress

despite private speech, EI speech, OT and DI and all therapists were

working hard and were great. 27 months, ear tube surgery, reaction to

anesthesia, difficult to wake up, doubled vocabulary in one day,

second day after surgery my very mellow kid freaked out, screamed,

and lost nearly all words (never lost I need or I want though). That

was the day I started researching.

As the speech returned it was slow and at times inconsistent. Now

that it seems to be returning more steadily the progress mimics what

I have heard apraxics speech to be. He recovered the word daddy by

saying addy first and then daddy. Book was ook then book.

We have no formal dx yet.

hth

Liz

>

> Hi Everyone,

> Since you are all so much more versed on apraxia than I am yet as I

> still feel like a newbie here....was wondering if anyone would be

> willing to give me your thoughts on my son's speech. Does this

sound

> like classic Apraxia? Or does Apraxia look different in different

kids?

>

> My son Owen (almost 34 months old) had great consonant-vowel

babbling

> at 6 months old. That continued for quite some time. Past 1 year

old,

> we'd hear a word here or there but then not hear it again. By 2

years

> old had had like 5-10 words that he consisently used, along with

the

> words and short phrases we'd hear and then not hear again. By 2

1/2

> years old, his language starting coming, but VERY slow progress.

The

> main progress is that he'll attempt just about anything, but with

> prompting. His spontaneous language is sometimes there, and

sometimes

> not there as much. (Side note: I finally acknowledged to myself

that

> he does a form of " stimming " and has done it as long as I can

> remember. It's a cross between a hum and a grunt. So he does that

> when he's playing instead of using language. That's one of his

> overlapping signs of autism, but then there are other signs of

autism

> that he doesn't have. i.e. He's very social and has good eye

> contact.) He has good language days and other days when he's more

> quiet and making that noise I mentioned above. His longest

sentence

> has been 4 or 5 words and is basically just the " I want _____ " type

of

> sentence. In addition to all of this, he does these longer

> jargon/babble type of sentences where some of the sentence has

words we

> understand, but the rest makes no sense.

>

> So what do you think? What does this sound like to all you expert

> moms? Yes, he's in speech 2x per week, but we're approved for 3x

per

> week ....it's just that the speech place doesn't always have the

3rd

> hour open. We basically wait for a cancellation to get the 3rd

hour.

> Have him on 4 Omega 3-6-9 capsules(isn't that the same as ProEPA

> ?), along with 2 ProEFA capsules, along with Vitamin E 400 IU of

> the " natural " kind.

>

> Thanks for any thoughts on Owen's speech!

>

> Warmly,

> in CA

>

[Guest guest]

One other thing; We got him filling in blanks with The Bounce videos.

>

> Hi Everyone,

> Since you are all so much more versed on apraxia than I am yet as I

> still feel like a newbie here....was wondering if anyone would be

> willing to give me your thoughts on my son's speech. Does this

sound

> like classic Apraxia? Or does Apraxia look different in different

kids?

>

> My son Owen (almost 34 months old) had great consonant-vowel

babbling

> at 6 months old. That continued for quite some time. Past 1 year

old,

> we'd hear a word here or there but then not hear it again. By 2

years

> old had had like 5-10 words that he consisently used, along with

the

> words and short phrases we'd hear and then not hear again. By 2

1/2

> years old, his language starting coming, but VERY slow progress.

The

> main progress is that he'll attempt just about anything, but with

> prompting. His spontaneous language is sometimes there, and

sometimes

> not there as much. (Side note: I finally acknowledged to myself

that

> he does a form of " stimming " and has done it as long as I can

> remember. It's a cross between a hum and a grunt. So he does that

> when he's playing instead of using language. That's one of his

> overlapping signs of autism, but then there are other signs of

autism

> that he doesn't have. i.e. He's very social and has good eye

> contact.) He has good language days and other days when he's more

> quiet and making that noise I mentioned above. His longest

sentence

> has been 4 or 5 words and is basically just the " I want _____ " type

of

> sentence. In addition to all of this, he does these longer

> jargon/babble type of sentences where some of the sentence has

words we

> understand, but the rest makes no sense.

>

> So what do you think? What does this sound like to all you expert

> moms? Yes, he's in speech 2x per week, but we're approved for 3x

per

> week ....it's just that the speech place doesn't always have the

3rd

> hour open. We basically wait for a cancellation to get the 3rd

hour.

> Have him on 4 Omega 3-6-9 capsules(isn't that the same as ProEPA

> ?), along with 2 ProEFA capsules, along with Vitamin E 400 IU of

> the " natural " kind.

>

> Thanks for any thoughts on Owen's speech!

>

> Warmly,

> in CA

>

[Guest guest]

Can you tell me about the videos. Thanks.

> >

> > Hi Everyone,

> > Since you are all so much more versed on apraxia than I am yet as

I

> > still feel like a newbie here....was wondering if anyone would be

> > willing to give me your thoughts on my son's speech. Does this

> sound

> > like classic Apraxia? Or does Apraxia look different in

different

> kids?

> >

> > My son Owen (almost 34 months old) had great consonant-vowel

> babbling

> > at 6 months old. That continued for quite some time. Past 1

year

> old,

> > we'd hear a word here or there but then not hear it again. By 2

> years

> > old had had like 5-10 words that he consisently used, along with

> the

> > words and short phrases we'd hear and then not hear again. By 2

> 1/2

> > years old, his language starting coming, but VERY slow progress.

> The

> > main progress is that he'll attempt just about anything, but with

> > prompting. His spontaneous language is sometimes there, and

> sometimes

> > not there as much. (Side note: I finally acknowledged to myself

> that

> > he does a form of " stimming " and has done it as long as I can

> > remember. It's a cross between a hum and a grunt. So he does

that

> > when he's playing instead of using language. That's one of his

> > overlapping signs of autism, but then there are other signs of

> autism

> > that he doesn't have. i.e. He's very social and has good eye

> > contact.) He has good language days and other days when he's

more

> > quiet and making that noise I mentioned above. His longest

> sentence

> > has been 4 or 5 words and is basically just the " I want _____ "

type

> of

> > sentence. In addition to all of this, he does these longer

> > jargon/babble type of sentences where some of the sentence has

> words we

> > understand, but the rest makes no sense.

> >

> > So what do you think? What does this sound like to all you

expert

> > moms? Yes, he's in speech 2x per week, but we're approved for 3x

> per

> > week ....it's just that the speech place doesn't always have the

> 3rd

> > hour open. We basically wait for a cancellation to get the 3rd

> hour.

> > Have him on 4 Omega 3-6-9 capsules(isn't that the same as ProEPA

> > ?), along with 2 ProEFA capsules, along with Vitamin E 400 IU of

> > the " natural " kind.

> >

> > Thanks for any thoughts on Owen's speech!

> >

> > Warmly,

> > in CA

> >

>

[Guest guest]

http://www.spectrumconnections.com/

> >

> > One other thing; We got him filling in blanks with The Bounce

> videos.

[Guest guest]

Cool, thanks. They look great!

I just want to add one comment to the original poster of this

thread. Don't get so caught up with if your child is ASD or not ...

it is what it is. He is the same child no matter what his label.

And when it comes to autism, it is a HUGE spectrum of functioning.

Early intervention can help if he is high functioning autism or PDD-

NOS and can help if he is not autistic. The only bad thing to do in

my opinion is nothing (not that you are). So I would treat as though

he may be autism and if he is not, great.

I used to hope my son was not autistic and when he was younger he

could go either way. I think part of that too is because I didn't

know some of the things he did was autism (like jumping up and down

when excited, verbal stims ... thought this was babble, licking ...

thought he was teething and it hurt to bite down, etc.). But now

that he is older it is very clear he has autism. I am so glad I

errored on the side of caution and put him in therapies. He is

making progress though he is still on the spectrum. He is social and

loves to give kisses and hugs to mom and dad and to play with his

brother ... he is beautiful and I love him more than I can ever

express in words. Autism is waaaaaay different than the Rainman

stereotype.

All my best to you,

Michele