Re: Thanks for encouragement (lame OT comment) & supplement update

February 27, 2008

I have a mild kid but in the interest of efficiency I got an ST and

plan on heading to NACD. Obviously if he starts losing skills I'll

revise this.

You could take school services and use a home plan as a supplemental

thing???

>

> Hi all...

> Thanks so much to those of you who responded to my post about the

> comment my son's OT made to me ( " there's only so much I can do to

> help your cognitively deficient child. " ) I DID NOT take Owen to

see

> this OT on Monday like usual ...now we're trying to figure out our

> next steps. I know I'm opening up a can of worms here...but are

> there some of you who have abandoned the idea of runnign all over

> town to the OT/PT/SLP appts....and decided to just become your

> child's primary therapist? We are getting close to the transition

to

> the local school distric and I'm just wondering if I'm

> emotionally " up " for it. Perhaps become his primary therapist?

(Or

> maybe just hold on to speech?) OR, run everything through our

> insurance? (OT, PT, and speech?) I'm so torn and confused by it

> all. Owen is globally delayed.

>

> On another note....

> (1) Bumped up fish oils (especially the EPAs) and added vitamin E

> (400 IU's) about 1 1/2 weeks ago. We're definitely seeing

increased

> language. More attempts to put simple 2, 3 and 4 word sentences

> together. Some spontaneous and some with prompting.

> (2) Last night we gave him his first methyl-B12 shot (after my

> husband accidentally squirted 1/3 to 1/2 of it out)...and he woke

up

> energized and ready to go. His ABA therapist (oh yeah, we get that

> kind of therapy, too, even though we don't have the autistic

> diagnosis) shook her head and couldn't believe what he was doing.

>

> Just wanted to post this for those of you interested in how these

> types of interventions are helping.

>

> Warmly,

>

> Mom of Owen, 33 months

>

February 28, 2008

,

I didn't reply to your original post- but it certainly was uncalled

for by your OT to say the least.

On the topic of your idea of becomming your son's primary therapist,

here are my personal experiences and thoughts.

First off, if you are feeling overwhelmed in running all over, take a

break for awhile. I have done that too. I am guessing your son will

be 3 in may, maybe June. At that time he will be in the preschool

program? Maybe thats when you can tell your other theapist(s) that

you need to take a little time off, and just regroup. I've always

tried to do that during the summer, and then this way, spend the days

on the jersey shore beaches

From some professionals, they do believe that kids who constantly in

the therapists office, those kids tend to be " over-therapized "

They need a chance to be " just a typical kid "

With that being said, I wouldn't try to pretend to be my daughters

primary therapist. I don't have the knowledge, experience, ideas, etc

to do so. I can't pretend to do something, that I know I am not

specifically trained in.

If you stop everything else, PLEASE DONT STOP the EFA's. Also

consider to Continue your home " play therapy " with him. What I mean,

have fun playing with him. Keeping it fun, but also with theraputic

benefits.

Hope this was helpful

Dawn in NJ

>