Re: WAS: yet another MR NOW: Food and behavior story (sorry -- long!)

[Guest guest]

http://jn.nutrition.org/cgi/content/full/135/4/753

> >

> > Great article! Thanks for posting it, Tina. It does not mention

> one

> > thing for which carnitine is sometimes touted, and that is the

> > enhanced absorption of other nutrients. Did the geneticist

address

> > that at all? It is one of those ambiguous claims, but I am

curious

> > because carnitine (and CoQ10) are so frequently recommended.

> >

> > in NJ

> >

>

[Guest guest]

,

It was my environmental doctor (my form of DAN). I believe that I am seeing him

next week to get the results of our autoimmune testing so I will inquire further

about the carnitine but I am not having a good feeling. I remember that he

actually called me in before my appointment to pick up a bottle of the carnitine

and COQ10 plus glutathione to start supplementing immediately. This is a busy

guy... he would not have done this if he hadn't thought it important.

I see him 'handling' me. Each session, he teaches me about toxicity and has me

work through new issues (last one was MSG) and lifestyle changes while

monitoring Marks progress. After going to Utah with my son who turned into the

Fart-King after a few days of restaurant food (yuck..... really stinky stuff

too.... everyone around him was lacking pure oxygen)..... I could see my boy

fading and am now going to order the Feingold diet listing so that I get it

absolutely right. My kid NEEDS clean food and a clean environment in order to

have a chance of getting better.

Janice

[sPAM]Re:[ ] Re: WAS: yet another MR NOW: Food and

behavior story (sorry -- long!)

Janice,

Which doctor suggested the carnitine? If it was your environmental

doctor, perhaps he meant " low average " ? Testable, low levels of

carnitine are not common.

Also, Ellen at NACD said that a lot of their kids supplement with

carnitine because on paper it looks like it should really help. Yet,

they haven't seen any big " wow's " with it. That has been our

experience, too. Have you noticed a good effect from it?

in NJ

[Guest guest]

We have found the Feingold list very helpful. It's great for the

artificials, etc., but I especially like the information about MSG

and HFCS, which is hidden even in 100% natural and organic packaged

foods at Whole Foods. They also have a great bulletin board where

you can ask just about any nutrition question and get an answer.

Good luck with the test results!

>

> ,

>

> It was my environmental doctor (my form of DAN). I believe that I

am seeing him next week to get the results of our autoimmune testing

so I will inquire further about the carnitine but I am not having a

good feeling. I remember that he actually called me in before my

appointment to pick up a bottle of the carnitine and COQ10 plus

glutathione to start supplementing immediately. This is a busy

guy... he would not have done this if he hadn't thought it important.

>

> I see him 'handling' me. Each session, he teaches me about

toxicity and has me work through new issues (last one was MSG) and

lifestyle changes while monitoring Marks progress. After going to

Utah with my son who turned into the Fart-King after a few days of

restaurant food (yuck..... really stinky stuff too.... everyone

around him was lacking pure oxygen)..... I could see my boy fading

and am now going to order the Feingold diet listing so that I get it

absolutely right. My kid NEEDS clean food and a clean environment in

order to have a chance of getting better.

>

> Janice

>

>

>

>

> [sPAM]Re:[ ] Re: WAS: yet another MR

NOW: Food and behavior story (sorry -- long!)

>

>

> Janice,

>

> Which doctor suggested the carnitine? If it was your

environmental

> doctor, perhaps he meant " low average " ? Testable, low levels of

> carnitine are not common.

>

> Also, Ellen at NACD said that a lot of their kids supplement with

> carnitine because on paper it looks like it should really help.

Yet,

> they haven't seen any big " wow's " with it. That has been our

> experience, too. Have you noticed a good effect from it?

>

> in NJ

>

>

>

>

>

>

[Guest guest]

WF or Feingold has the bulletin board? This news disturbs me. I

always ignored Feingold as we eat mainly who foods and I thought the

whole grains and WF pure applesauce we bought was safe from this kind

of stuff.

It gets a little disheartening with these additives.

> >

> > ,

> >

> > It was my environmental doctor (my form of DAN). I believe that

I

> am seeing him next week to get the results of our autoimmune

testing

> so I will inquire further about the carnitine but I am not having a

> good feeling. I remember that he actually called me in before my

> appointment to pick up a bottle of the carnitine and COQ10 plus

> glutathione to start supplementing immediately. This is a busy

> guy... he would not have done this if he hadn't thought it

important.

> >

> > I see him 'handling' me. Each session, he teaches me about

> toxicity and has me work through new issues (last one was MSG) and

> lifestyle changes while monitoring Marks progress. After going to

> Utah with my son who turned into the Fart-King after a few days of

> restaurant food (yuck..... really stinky stuff too.... everyone

> around him was lacking pure oxygen)..... I could see my boy fading

> and am now going to order the Feingold diet listing so that I get

it

> absolutely right. My kid NEEDS clean food and a clean environment

in

> order to have a chance of getting better.

> >

> > Janice

> >

> >

> >

> >

> > [sPAM]Re:[ ] Re: WAS: yet another MR

> NOW: Food and behavior story (sorry -- long!)

> >

> >

> > Janice,

> >

> > Which doctor suggested the carnitine? If it was your

> environmental

> > doctor, perhaps he meant " low average " ? Testable, low levels of

> > carnitine are not common.

> >

> > Also, Ellen at NACD said that a lot of their kids supplement

with

> > carnitine because on paper it looks like it should really help.

> Yet,

> > they haven't seen any big " wow's " with it. That has been our

> > experience, too. Have you noticed a good effect from it?

> >

> > in NJ

> >

> >

> >

> >

> >

> >

[Guest guest]

That's my problem.....

it's the hidden stuff! I am looking for it constantly but I know that I

probably am missing half of it. I am ready for the Feingold help!

Thanks for the good wishes. I'm going to buy that sauna today or tomorrow

morning! Mark was sick today with a cold but still soooo neurotypical..... no

regressions at all. That is absolutely a NEW one! Something good is definately

happening inside his body. I blame it on the DMSA...... round 5 this weekend!

Janice

Mother of Mark, 13

[sPAM]Re:[ ] Re: WAS: yet another MR

NOW: Food and behavior story (sorry -- long!)

>

>

> Janice,

>

> Which doctor suggested the carnitine? If it was your

environmental

> doctor, perhaps he meant " low average " ? Testable, low levels of

> carnitine are not common.

>

> Also, Ellen at NACD said that a lot of their kids supplement with

> carnitine because on paper it looks like it should really help.

Yet,

> they haven't seen any big " wow's " with it. That has been our

> experience, too. Have you noticed a good effect from it?

>

> in NJ

>

>

>

>

>

>

[Guest guest]

Don't worry too much -- knowing you, you probably already researched

the suspect ingredients. In my experience, " natural flavors " is

where they hide most of the unlisted MSG and HFCS. Here's a link to

a helpful list of where MSG is often hidden:

http://www.truthinlabeling.org/hiddensources.html

Here's a fantastic list of additives and the level of their negative

impact on health (from OK to practically poison).

http://www.cspinet.org/reports/chemcuisine.htm

Here's a link to a list of a few packaged items that have HFCS. It's

mostly bad food anyway. The only thing on that list that we have in

our house is Heinz ketchup. (Not on the list, but I think Lea and

Perrins Worcestershire sauce also has HFCS, and we have that one,

too.)

http://www.accidentalhedonist.com/index.php/2005/06/09/foods_and_produ

cts_containing_high_fruct

I couldn't find any links that list alternate names for HFCS, so I

think it is usually listed or in natural flavors. If anyone knows

differently, please let me know. We try to avoid this additive when

possible.

in NJ

> > >

> > > ,

> > >

> > > It was my environmental doctor (my form of DAN). I believe

that

> I

> > am seeing him next week to get the results of our autoimmune

> testing

> > so I will inquire further about the carnitine but I am not having

a

> > good feeling. I remember that he actually called me in before my

> > appointment to pick up a bottle of the carnitine and COQ10 plus

> > glutathione to start supplementing immediately. This is a busy

> > guy... he would not have done this if he hadn't thought it

> important.

> > >

> > > I see him 'handling' me. Each session, he teaches me about

> > toxicity and has me work through new issues (last one was MSG)

and

> > lifestyle changes while monitoring Marks progress. After going

to

> > Utah with my son who turned into the Fart-King after a few days

of

> > restaurant food (yuck..... really stinky stuff too.... everyone

> > around him was lacking pure oxygen)..... I could see my boy

fading

> > and am now going to order the Feingold diet listing so that I get

> it

> > absolutely right. My kid NEEDS clean food and a clean

environment

> in

> > order to have a chance of getting better.

> > >

> > > Janice

> > >

> > >

> > >

> > >

> > > [sPAM]Re:[ ] Re: WAS: yet another

MR

> > NOW: Food and behavior story (sorry -- long!)

> > >

> > >

> > > Janice,

> > >

> > > Which doctor suggested the carnitine? If it was your

> > environmental

> > > doctor, perhaps he meant " low average " ? Testable, low levels

of

> > > carnitine are not common.

> > >

> > > Also, Ellen at NACD said that a lot of their kids supplement

> with

> > > carnitine because on paper it looks like it should really

help.

> > Yet,

> > > they haven't seen any big " wow's " with it. That has been our

> > > experience, too. Have you noticed a good effect from it?

> > >

> > > in NJ

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

You give me credit I don't deserve. Someone actually gave me Feingold

months ago and I ignored it. I guess you can only take on so much at

once. I am choosing to believe it will be fine if I look now.

Removing all the bad stuff at once back then would have likely put

them in body shock!

We got the word Daddy back...it only took 9 months. When I asked him

where the word mommy was " Last heard, and only once mind you, on

5/10/07 " his direct response was " No " followed by a laugh.

> > > >

> > > > ,

> > > >

> > > > It was my environmental doctor (my form of DAN). I believe

> that

> > I

> > > am seeing him next week to get the results of our autoimmune

> > testing

> > > so I will inquire further about the carnitine but I am not

having

> a

> > > good feeling. I remember that he actually called me in before

my

> > > appointment to pick up a bottle of the carnitine and COQ10 plus

> > > glutathione to start supplementing immediately. This is a busy

> > > guy... he would not have done this if he hadn't thought it

> > important.

> > > >

> > > > I see him 'handling' me. Each session, he teaches me about

> > > toxicity and has me work through new issues (last one was MSG)

> and

> > > lifestyle changes while monitoring Marks progress. After going

> to

> > > Utah with my son who turned into the Fart-King after a few days

> of

> > > restaurant food (yuck..... really stinky stuff too....

everyone

> > > around him was lacking pure oxygen)..... I could see my boy

> fading

> > > and am now going to order the Feingold diet listing so that I

get

> > it

> > > absolutely right. My kid NEEDS clean food and a clean

> environment

> > in

> > > order to have a chance of getting better.

> > > >

> > > > Janice

> > > >

> > > >

> > > >

> > > >

> > > > [sPAM]Re:[ ] Re: WAS: yet

another

> MR

> > > NOW: Food and behavior story (sorry -- long!)

> > > >

> > > >

> > > > Janice,

> > > >

> > > > Which doctor suggested the carnitine? If it was your

> > > environmental

> > > > doctor, perhaps he meant " low average " ? Testable, low

levels

> of

> > > > carnitine are not common.

> > > >

> > > > Also, Ellen at NACD said that a lot of their kids

supplement

> > with

> > > > carnitine because on paper it looks like it should really

> help.

> > > Yet,

> > > > they haven't seen any big " wow's " with it. That has been

our

> > > > experience, too. Have you noticed a good effect from it?

> > > >

> > > > in NJ

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Geeze, I know that " No " word. It means " Cant Say. " a former classic word

around here!

-----Original Message-----

From:

[mailto: ] On Behalf Of ilizzy03

Sent: Wednesday, March 05, 2008 8:38 PM

We got the word Daddy back...it only took 9 months. When I asked him

where the word mommy was " Last heard, and only once mind you, on

5/10/07 " his direct response was " No " followed by a laugh.

[Guest guest]

Feingold was one of the first things we did, maybe just after fish

oil. We didn't have to give up too much, but verifying everything in

the food list initially took some time. Now I do almost all of my

shopping at Whole Foods, so I've gotten kinda lazy about checking the

book. I need the 2008 one anyway, because my book is missing a lot

of the newer products that we've been buying. I've been buying a lot

of this " Back to Nature " brand, and the other day I called about an

ingredient and they answered " Kraft Foods " . Now they are suspect in

my eyes -- big companies usually think it's OK to hide ingredients.

I need to clarify those labels ASAP.

in NJ